Guest guest Posted December 2, 2011 Report Share Posted December 2, 2011 Hang in there, Bill; I've been there. The main thing that gets me through those intense pain days is knowing that it won't always hurt that intensely. Sometimes I have to take it one breath at a time. Wiggle your toes; my dad always preached that nothing bad happens while you wiggle your toes. We are here for you. Ellen >Bill wrote: > > Sorry I have not gotten back > > I have had 1 increase in Prialt so far and another increase in 2 weeks. > Right now my pain level is in the 9s. The side effects so far are very > scary and vivid dreams that wake me up 4 to 5 times a night, sometimes > crying. The other thing is my hands are constantly going to sleep, like 20 > or more times a day. I have to shake them to get the feeling back. As of > right now the way the pain is I would not have gone off patches and oral > pain meds. I just hurt too much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 > Hang in there, Bill; I've been there. The main thing that gets me through > those intense pain days is knowing that it won't always hurt that > intensely. Sometimes I have to take it one breath at a time. > > Wiggle your toes; my dad always preached that nothing bad happens while you > wiggle your toes. > > We are here for you. > Ellen > > >> Bill wrote: > >> >> Sorry I have not gotten back >> >> I have had 1 increase in Prialt so far and another increase in 2 weeks. >> Right now my pain level is in the 9s. The side effects so far are very >> scary and vivid dreams that wake me up 4 to 5 times a night, sometimes >> crying. The other thing is my hands are constantly going to sleep, like 20 >> or more times a day. I have to shake them to get the feeling back. As of >> right now the way the pain is I would not have gone off patches and oral >> pain meds. I just hurt too much. Bill, Try to put your hands in a warm water or heating pad to increase the circulation. You have to get that pain cyle broken guys to make sure other things don't get hurt. Can you not get something for break thru ? This is too hard on your body. Can you take Neurotin with this since the hands going to sleep might be neurological. Lord I finally got my pain cycle broken but had to take something for sleep and it settied the pain down but my butt is on fire, sorry guys, that is what it feels like and I can't get comfortable. I wish I dd not have any feeling in my butt, it would make me do better. Hang in there, thinking of you, Bennie with the fire butt : ) Quote Link to comment Share on other sites More sharing options...
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