Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 --- Judy <frumpyhead@...> wrote: > Just about every fall my friend gets Erythema Nodosum, painful lumps > all over her legs for several months and occasionally all winter long. > Dr.s only suggest Aleve or steroid shots. Judy, the seasonality suggests vitamin D deficiency might be a factor. Does she take high-vitamin CLO? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 It looks like it might be from changes in her diet. I saw a few references to potassium iodide helping. Here's one that looked interesting about the link between that and inflammatory bowel disease: Important cutaneous manifestations of inflammatory bowel disease L B Trost , J K McDonnell Department of Dermatology, Cleveland Clinic Foundation, USA Correspondence to: Correspondence to: Dr L B Trost Department of Dermatology, A61, Cleveland Clinic Foundation, 9500 Euclid Avenue, Cleveland, Ohio 44195, USA; TrostL@... Inflammatory bowel disease (IBD) has many extraintestinal manifestations. Cutaneous manifestations are usually related to the activity of the bowel disease but may have an independent course. Anyone presenting with IBD should be examined for cutaneous manifestations. Pyoderma gangrenosum is a severe painful ulcerating disease that requires moist wound management and, in the absence of secondary infection, systemic corticosteroids, cyclosporine, or both. Infliximab may also be used. Erythema nodosum is a common cause of tender red nodules of the shins. Management includes leg elevation, NSAIDs, and potassium iodide. Oral manifestations of IBD include aphthous stomatitis, mucosal nodularity (cobblestoning), and pyostomatitis vegetans. Treatment should be directed both at the cutaneous lesions and at the underlying systemic condition. > > Hello, > > Just about every fall my friend gets Erythema Nodosum, painful lumps > all over her legs for several months and occasionally all winter long. > Dr.s only suggest Aleve or steroid shots. Does anyone know if it's > connected to diet? I haven't been able to find any sort of alternative > health or diet information at all on this and we'd really like to know > what this is all about. I hope someone on here knows something about > this, it's frustrating searching for something no one seems to know > anything about. > > Thanks for any help! > > Judy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Here's a link to the use of potassium iodide for it: http://www.medscape.com/viewarticle/440356_10 > > > > Hello, > > > > Just about every fall my friend gets Erythema Nodosum, painful lumps > > all over her legs for several months and occasionally all winter long. > > Dr.s only suggest Aleve or steroid shots. Does anyone know if it's > > connected to diet? I haven't been able to find any sort of alternative > > health or diet information at all on this and we'd really like to > know > > what this is all about. I hope someone on here knows something about > > this, it's frustrating searching for something no one seems to know > > anything about. > > > > Thanks for any help! > > > > Judy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 The link doesn't work for me - if the same thing happens to you, I got it from googling erythema nodosum iodine and it was the first article. > > > > It looks like it might be from changes in her diet. I saw a few > > references to potassium iodide helping. > > > > Here's one that looked interesting about the link between that and > > inflammatory bowel disease: > > > > Important cutaneous manifestations of inflammatory bowel disease > > L B Trost , J K McDonnell > > Department of Dermatology, Cleveland Clinic Foundation, USA > > > > > > Correspondence to: > > Correspondence to: > > Dr L B Trost > > Department of Dermatology, A61, Cleveland Clinic Foundation, 9500 > > Euclid Avenue, Cleveland, Ohio 44195, USA; TrostL@ > > > > Inflammatory bowel disease (IBD) has many extraintestinal > > manifestations. Cutaneous manifestations are usually related to the > > activity of the bowel disease but may have an independent course. > > Anyone presenting with IBD should be examined for cutaneous > > manifestations. Pyoderma gangrenosum is a severe painful ulcerating > > disease that requires moist wound management and, in the absence of > > secondary infection, systemic corticosteroids, cyclosporine, or > both. > > Infliximab may also be used. Erythema nodosum is a common cause of > > tender red nodules of the shins. Management includes leg elevation, > > NSAIDs, and potassium iodide. Oral manifestations of IBD include > > aphthous stomatitis, mucosal nodularity (cobblestoning), and > > pyostomatitis vegetans. Treatment should be directed both at the > > cutaneous lesions and at the underlying systemic condition. > > > > > > > > --- In , " Judy " <frumpyhead@> wrote: > > > > > > Hello, > > > > > > Just about every fall my friend gets Erythema Nodosum, painful > lumps > > > all over her legs for several months and occasionally all winter > long. > > > Dr.s only suggest Aleve or steroid shots. Does anyone know if it's > > > connected to diet? I haven't been able to find any sort of > alternative > > > health or diet information at all on this and we'd really like to > > know > > > what this is all about. I hope someone on here knows something > about > > > this, it's frustrating searching for something no one seems to > know > > > anything about. > > > > > > Thanks for any help! > > > > > > Judy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Hi , Yes... she takes Blue ice ferminted 1/4 teaspoon a few times a week. Think she should up this some? It makes since it might be vitamin D... she gets a lot of sun in the summer. Thanks, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Thank you! It's funny you mention iodine, she just started putting some Lugol's iodine on her lumps because I was telling her how I had read that iodine can help with lumpy breasts. Different things I know, but she's willing to try anything. We'll do some research on this, thank you so much! Judy > > > > > > > > Hello, > > > > > > > > Just about every fall my friend gets Erythema Nodosum, painful > > lumps > > > > all over her legs for several months and occasionally all > winter > > long. > > > > Dr.s only suggest Aleve or steroid shots. Does anyone know if > it's > > > > connected to diet? I haven't been able to find any sort of > > alternative > > > > health or diet information at all on this and we'd really like > to > > > know > > > > what this is all about. I hope someone on here knows something > > about > > > > this, it's frustrating searching for something no one seems to > > know > > > > anything about. > > > > > > > > Thanks for any help! > > > > > > > > Judy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Actually your question helped me a great deal - I found my thing that I've been having trouble with is a related syndrome - called Sweet's Syndrome! It's similar - painful lumps on the neck/head/shoulders accompanied by fatigue, aches, fever, headaches. I'd been trying to figure out why I get these the same time as the lumps. The iodine always helps get rid of it and the explanation of why it works for the E. N. makes sense to me for my thingie too. > > > > > > > > > > Hello, > > > > > > > > > > Just about every fall my friend gets Erythema Nodosum, > painful > > > lumps > > > > > all over her legs for several months and occasionally all > > winter > > > long. > > > > > Dr.s only suggest Aleve or steroid shots. Does anyone know if > > it's > > > > > connected to diet? I haven't been able to find any sort of > > > alternative > > > > > health or diet information at all on this and we'd really > like > > to > > > > know > > > > > what this is all about. I hope someone on here knows > something > > > about > > > > > this, it's frustrating searching for something no one seems > to > > > know > > > > > anything about. > > > > > > > > > > Thanks for any help! > > > > > > > > > > Judy > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 --- Judy <frumpyhead@...> wrote: > Yes... she takes Blue ice ferminted 1/4 teaspoon a few times a week. > Think she should up this some? It makes since it might be vitamin D... > she gets a lot of sun in the summer. Judy, the Blue Ice fermented CLO is listed as 600 IU of D per ml and a teaspoon is about 5 ml, so with a 1/4 teaspoon serving, she is getting only about 750 IU of D. I have seen recommendations of 2,000 IU of D per day in the winter as optimal. That would be more like 2/3 of a teaspoon every day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 and Judy, > Judy, the Blue Ice fermented CLO is listed as 600 IU of D per ml and a > teaspoon is about 5 ml, so with a 1/4 teaspoon serving, she is getting > only about 750 IU of D. I have seen recommendations of 2,000 IU of D > per day in the winter as optimal. That would be more like 2/3 of a > teaspoon every day. Vitamin D would be a good idea anyway in the winter. The Vitamin D Council, Dr. Mercola, and others recommend 4,000 to 6,000 IU per day in the winter for most people. As long as you're not vitamin A deficient, such doses should be very safe. This recent study found that 3,800 to 5,000 IU is needed to attain a serum 25-OH-vitamin D level of 30 ng/mL (which is still suboptimal) in the winter months. http://www.ajcn.org/cgi/content/abstract/87/6/1952 Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Okay! It sounds like I need to talk to my friend about taking higher doses of the Blue Ice CLO and I think I'll be increasing my dose as well. Thank you! Judy --- In , " Tom Jeanne " <tjeanne@...> wrote: > > and Judy, > > > Judy, the Blue Ice fermented CLO is listed as 600 IU of D per ml and a > > teaspoon is about 5 ml, so with a 1/4 teaspoon serving, she is getting > > only about 750 IU of D. I have seen recommendations of 2,000 IU of D > > per day in the winter as optimal. That would be more like 2/3 of a > > teaspoon every day. > > Vitamin D would be a good idea anyway in the winter. The Vitamin D > Council, Dr. Mercola, and others recommend 4,000 to 6,000 IU per day > in the winter for most people. As long as you're not vitamin A > deficient, such doses should be very safe. > > This recent study found that 3,800 to 5,000 IU is needed to attain a > serum 25-OH-vitamin D level of 30 ng/mL (which is still suboptimal) in > the winter months. > > http://www.ajcn.org/cgi/content/abstract/87/6/1952 > > > Tom > Quote Link to comment Share on other sites More sharing options...
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