Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 I do wish you luck as I am about to enter a mini-hell myself. My social security hearing isn't for over a month and I am living with family. I have no income, no insurance nor meds. Ellen >Bill/MI wrote: >In the end I had to come off all of it when I got my pump. The 2 months that I spent coming off all of meds was the worst thing that has ever happened to me. >I was in terrible pain (in the 9-10 range) and sick. Never again will I let my self get into that situation. I am off of all the pain meds now and will be starting with Prialt in my pump this week. Being off the meds has be terrible, but hopefully this new stuff will work. Wish me luck I wish every one a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 You should qualify for state disability through the welfare office and get medicaid as well. I know it won't happen overnight. Can't you call your doctor, tell him what's happening and have him help you through this or supply any samples he has in his office. I know they won't have any opioid meds. If you do go to the hospital be sure to apply for their low/no income program. You won't owe them a dime that way. Also, there are free health clinics in many areas, do check that out and some are walk in. Take your prescriptions and medical records that show your conditions, any images from tests etc as well. You'd be surprised what kind of help is out there for people with no income. Also the pharmaceutical companies will supply many medications free of charge. All you do is fill out their application and have your doctor sign it. www.needymeds.com Ellen wrote:> > My social >security hearing isn't for over a month and I am living with family. I have >no income, no insurance nor meds. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 I will never understand why some doctors force patients off all oral meds before implanting the pump. It's ridiculous! Not to mentioned COMPLETELY UNNECESSARY!!! I wish I had one of those doctors that would prescribe whatever I asked for. I'm so sick of the fight. I even have to fight for refills now. Don't get me wrong, I would LOVE to have a doctor with ideas and who cared about my case. I used to have one. Unfortunately, she left to spend time with her daughters. I'm sorry you had to go off 300mcg/hr of fentanyl. I went from 300mcg/hr to 100mcg/hr with no problem, but 100mcg/hr to 75mcg/hr was a little uncomfortable. I wasn't willing to try anything lower than that. Steve M in PA " Bill " wrote: > > I have had just the opposite problem. My Dr. gave me pretty much what I wanted. But in the end I was on 300mcg/hr Fentanyl patches and all the Morphine sulfate I could take for break through. > > In the end I had to come off all of it when I got my pump. The 2 months that I spent coming off all of meds was the worst thing that has ever happened to me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2011 Report Share Posted October 30, 2011 > Jennette wrote: > You should qualify for state disability through the welfare office and get medicaid as well. I know it won't happen overnight. Can't you call your doctor, tell him what's happening and have him help you through this or supply any samples he has in his office. I know they won't have any opioid meds. > > If you do go to the hospital be sure to apply for their low/no income program. You won't owe them a dime that way. Also, there are free health clinics in many areas, do check that out and some are walk in. Take your prescriptions and medical records that show your conditions, any images from tests etc as well. You'd be surprised what kind of help is out there for people with no income. > Also the pharmaceutical companies will supply many medications free of charge. All you do is fill out their application and have your doctor sign it. www.needymeds.com >> Ellen wrote: >> My social security hearing isn't for over a month and I am living with family. I have no income, no insurance nor meds. Ellen, My niece also applied for an emergency medicaid/medicare supplement and it gave her income before hearing as she was told by her job not to come back she could not do the job. She had seizures on the job and she was a respiratory technician in a hospital. Jennette has great ideas and the program my niece got was the state program like what Jeanette mentioned. She had to have two tumors in her carotid and jugular veins that had acoustic neuromos (tumors on the inside of the ear that had grown on both sides and entrapped the arteries) I had forgot about that and you should call to the state Health and Human services through your state you are living. It can't hurt and I will try to ask my niece about it and e-mail you but its a start. Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2011 Report Share Posted October 30, 2011 I wish there was some better way to switch from oral or patch medication to a pain pump. I don't think the weaning off period has to be so long. However it is probably necessary since it can take weeks for blood levels to drop from taking a medication for a long period of time. I also wonder if they do not clear a person's system from a pain med that introducing a pump to soon will be less effective over time. If the blood levels from the previous medication(s) are not low enough and you introduce another medication through the pump the body will adapt to the higher level of medication. so when the previous medication is out of the system, the medication in the pump may not be as effective and require higher dose earlier in treatment. I think it is easier switching from one oral med to another or even to a pain patch. I would imagine the delivery route greatly effects the speed and effectiveness of the medication. I do hope the switch is not too bad. Sending huge gentle hugs, Tami > M. wrote: > I will never understand why some doctors force patients off all oral meds before implanting the pump. It's ridiculous! Not to mentioned COMPLETELY UNNECESSARY!!! Quote Link to comment Share on other sites More sharing options...
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