Re: in Hospital/Separate G & J Tubes

[Guest guest]

Donna,

So sorry to hear that is sick again. I hope they can get things

under control quickly. When my daughter was younger she had an NG tube,

and eventually her pylorus wouldn't open enough to allow even tube

feedings. They too tried underfloroscopy to place the tube thru the

pylorus and were unsuccessful. She was maintained on TPN for awhile

until eventually she had a plyorplasty to open up the pylorus

premanently. It helped for her. Has anyone ever considered this

procedure for your son?

She still has some motility issues, but not nearly to the degree that

she once did. At least the food makes it out of the stomach now, which

was not the case before.

Caitlin also recieves IVIg once a month as well.

Good luck,

Jeannine