Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Thanks Jeannie. Growth hormone suddenly sounds exciting! Lonnie Jeannine and Curtis Sawyer wrote: Lonnie wrote: >Has anyone experienced this or given growth >hormones? Both of my daughters are growth hormone deficiency. Increasing the calories had nothing to do with it, but I do know that it is the first thing they try to rule out when a deficiency is suspected. If the nutritional support doesn't correct it, and I doubt that it will, because short stature and growth hormone deficiency aren't all that uncommon in mito, then growth hormone is the next step. My youngest has been on it for 10 years with no side effect - at least that we've noted. She stopped growing at age 18 months and was started on it at 30 months, when her blood sugar became dangerously low. She has done well on it and grown well on it. It's a very tiny needle and she tolerated the shots very well even as a toddler. It helps in many other ways that can benefit kids with metabolic disease. It has an impact on carbohydrate metabolism and the ability to lay down muscle etc.... They are recently realizing the added benefits of HGH for kids with metabolic disease. My older daughter grew, and stayed on her own curve, although she is short. But her low blood sugar worsended dramatically at puberty and she eventually was started on Growth hormone when all other interventions failed to keep her blood sugar up. She failed all of the GH challenge tests, and has done remarkably well since starting it 3 years ago. If there is anything else that I can help you with don't hesitate to contact me. Jeannine Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 One other thing on growth hormone... there is (or was) a study going on at UCSD in the treatment of mtDNA disorders with Growth Hormone. The reason for the study was that at some point it was observed that new mtDNA did not harbor the mtDNA defects of the existing mtDNA and therefore they were going to try and increase the percentage of good mitochondria to bad mitochondria by " growing " more mitochondria. Because of the specific method by which this was theorized to work, a documented mtDNA defect must be present, not just suspected - it has to actually be identified. I just went and looked at their website and couldn't find the information that was previously there. Either the study is closed or I just can't find it! Terri > >Reply-To: Mitoegroups >To: Mitoegroups >Subject: growth hormone >Date: Thu, 22 Jun 2000 10:19:39 -0500 > >Lonnie wrote: > > >Has anyone experienced this or given growth > >hormones? > >Both of my daughters are growth hormone deficiency. Increasing the >calories had nothing to do with it, but I do know that it is the first >thing they try to rule out when a deficiency is suspected. If the >nutritional support doesn't correct it, and I doubt that it will, >because short stature and growth hormone deficiency aren't all that >uncommon in mito, then growth hormone is the next step. > >My youngest has been on it for 10 years with no side effect - at least >that we've noted. She stopped growing at age 18 months and was started >on it at 30 months, when her blood sugar became dangerously low. She >has done well on it and grown well on it. It's a very tiny needle and >she tolerated the shots very well even as a toddler. It helps in many >other ways that can benefit kids with metabolic disease. It has an >impact on carbohydrate metabolism and the ability to lay down muscle >etc.... They are recently realizing the added benefits of HGH for kids >with metabolic disease. > >My older daughter grew, and stayed on her own curve, although she is >short. But her low blood sugar worsended dramatically at puberty and >she eventually was started on Growth hormone when all other >interventions failed to keep her blood sugar up. She failed all of the >GH challenge tests, and has done remarkably well since starting it 3 >years ago. > >If there is anything else that I can help you with don't hesitate to >contact me. > >Jeannine > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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