Re: My introduction/Jeanne B/Crohn's

September 15, 2011

I am a fellow Crohn's sufferer and also have Ankylosing Spondylitis (another

type of arthritis that is fusing my bones together), Thyroid

Disease,Seizure/Migraine Disorder, a Mild Brain Injury, and Central Sleep Apnea.

Since Sept. 1st, I have had a nasty flare of Crohn's an was admitted to a nearby

hospital. They told me, after numerous tests, including a Barium Enema with

contrast dye CT scan, that my large intestine had separated from my abdominal

wall. They sent in several surgeons who explained the seriousness and urgency of

the matter and surgery was scheduled for early the next morning.

The next morning, A gastrointestinal doctor showed up instead of the surgeon. He

did more " wonderful " testing. All the while, I still couldn't eat a thing that

didn't reappear as urgent, unrelenting liquid stool a short time later. The next

morning, he returned, telling me I didn't have Crohn's, but I.B.S. I inquired

about the intestine separation situation and he said that I should talk to the

surgeon about it. Soon after his departure, I asked to speak to the surgeon, but

I was told I was being released and needed to go home. Nothing more would be

done.

So, in essence, after a few bags of fluids to relieve my severe dehydration, a

few very uncomfortable tests, I was being sent home not being able to eat and

still having uncontrollable Mountazuma's Revenge!!

A few days later, after becoming completely dehydrated again, I called my

Gastro's office. It took three days to get a response which was: go immediately

to the hospital,(his hospital, not the one I had been in) and get admitted

through the ER.I did.

They had the records transferred from the other hospital, which kept me from

having to repeat those horrible tests.After being in the hospital for 5 more

days, being treated for severe loss of potassium, undergoing a colonoscopy,

being so dehydrated that the only place (after 20 trys) they could get an IV to

run was my left foot, they may the constant diarrhea stop!!

Have you been through times like this? I would really like to know. I sincerely

hope your answer will be NO!

I also have experienced numerous hospitalizations where when going through a

Crohn's Flare, the nurses just stood by, grossed out by the amount and frequency

with which the diarrhea would flow and did not help me clean myself or the floor

or anything. They just looked at me like I was a freak of nature and they would

avoid me and my room all together as much as possible.

Anyway, I would like to hear about you, your experiences, how you manage your

life and your tips about just keeping it all together...

Debie, a fellow Crohn's person

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