Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 In a message dated 8/11/2003 9:58:24 PM Pacific Daylight Time, peterri@... writes: > I have to > go to a psych for several visits, have an IQ test done, see an SLP for a > pragmatic language eval and then if everyone agrees that AS is likely, he is > allowed to go see the neuro-psych. It seems like a lot to do, but I guess > this is a complicated diagnosis. Hi Terri, First of all I bow down to you for having triplets...whoa. I have 3 kids too but they are spread out and even so I'm a little worn by day's end. I have a 4.5 yr old that has received 3 differing dx's in the last year by 3 different professionals....however, I think he either has AS or is High Functioning but he is still young and we are waiting a bit before we see a neuropsych. I was wondering about why you had to go through all of those visits etc before being allowed to see the neuropsych? Is it a HMO thing? I hope it all goes well and that you can agree with the doctors etc., as it can be tiring just getting opinions that you don't feel fit your child. Hang in there and glad you're on the list! Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 I was wondering about why you had to go through all of those visits etc > before being allowed to see the neuropsych? Is it a HMO thing? Actually, I was wondering this myself and the best I can gather from all the people I've talked to is that the neuropsych is the only one in town and is currently scheduling appts in December and January. He is very busy, so they kind of take people through a screening process in order to get there. Also, I guess they want to rule out other things in the process as well. It is all controlled by the neuropsych's office. They won't schedule the appt until all the other stuff is done. Maybe he likes to see psych testing and a pragmatic lang. eval before he makes his dx, I don't know for sure. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 > However,he does all this stuff and isn't that what AS is? I think >he is probably on the milder side, but I am pretty sure this is >probably going on with him.>>>>>>>>>>>>>> Hello Terri, I know that my son is really into the weather(his obsession) and really thought that he had Aspergers but he did not fit the 2 of 4 criteria in that he has a language delay so that fits PDD/Autism. Aspergers there is NO delay in language. Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Ummm depends on who you ask. I know some doctors who will dx AS even w/ a language delay. And I know children w/ a language delay who are dxed As. Big controversy. a > Aspergers there is NO delay in language. > > Marj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 <<<<<<<<<<Ummm depends on who you ask. I know some doctors who will dx AS even w/ a language delay. And I know children w/ a language delay who are dxed As. Big controversy. a >>>> <<<<<<> Aspergers there is NO delay in language. Marj>>>>>> yes,big controversy. also, on how much is " delay " - F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Hello Welcome to the group. At your son's age repo might still work wonders. Eliminating swing, and bouncy will do good, and more tummytime is also a great tool. If you can take weekly pictures so you can tell if it's working. Also good luck Wednesday. Let us know what they say. Helmets/bands are usually used once repo isn't successful. Sandy Willow's Mom > > Hi, > > My name is and my son Kade is 4 months old. At Kade's 4 month > appointment my pediatrician told me to give Kade more tummy time and > referred me to a cranial specialist to be evaluated for plagio. His > appointment is on Wednesday, I am very nervous. What should I expect > at this appointmnet. I never noticed a problem with his head until > the pediatrician pointed it out. Is a helmut recommended to most > children? I have been putting him to sleep on his stomach and > elimiated his use of swings and bounceys. Any advice on what to > expect would be appreciated. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Hi , Welcome to the group. Kade is still very young and could benefit from aggressive. 24/7 repositioning. This means is flat spot never touches a hard object. There are some tips in the files and links sections. i'm sure Christie and Becky will chime in. Not all infants are candidates for helmet/band therapy. Usually the asymmetry has to be greater than 6 mm or noticable in the face. Some specialists are so used to seeing severe plagio that the more moderate cases are brushed off. If you are still not happy with things after talking to the specialist seek a different opinion. Most likely the cranial specialist will either take measurements or go from experieince to determine his severity. They may order a CT scan to rule out premature fusing of the sutures. The AAP recommends repositioning until about 5 months of age and then says helmet/band therapy is necessary to correct any remianing asymmetries. Your ped sounds like he is on top of things which is great. So where are you located? We may have some folks in the same area. My daughter had moderate plagio and was banded at 4 1/2 months. She wore 2 DOC bands through 8 1/2 months of age. Her pics are in the DOC bands before and after photos and on our family website (listed below). mom to na DOC Grad South Carolina www.thefilyaws.com laurenstyron <laurenstyron@...> wrote: Hi,My name is and my son Kade is 4 months old. At Kade's 4 month appointment my pediatrician told me to give Kade more tummy time and referred me to a cranial specialist to be evaluated for plagio. His appointment is on Wednesday, I am very nervous. What should I expect at this appointmnet. I never noticed a problem with his head until the pediatrician pointed it out. Is a helmut recommended to most children? I have been putting him to sleep on his stomach and elimiated his use of swings and bounceys. Any advice on what to expect would be appreciated.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Hi , Welcome to the group. Kade is still very young and could benefit from aggressive. 24/7 repositioning. This means is flat spot never touches a hard object. There are some tips in the files and links sections. i'm sure Christie and Becky will chime in. Not all infants are candidates for helmet/band therapy. Usually the asymmetry has to be greater than 6 mm or noticable in the face. Some specialists are so used to seeing severe plagio that the more moderate cases are brushed off. If you are still not happy with things after talking to the specialist seek a different opinion. Most likely the cranial specialist will either take measurements or go from experieince to determine his severity. They may order a CT scan to rule out premature fusing of the sutures. The AAP recommends repositioning until about 5 months of age and then says helmet/band therapy is necessary to correct any remianing asymmetries. Your ped sounds like he is on top of things which is great. So where are you located? We may have some folks in the same area. My daughter had moderate plagio and was banded at 4 1/2 months. She wore 2 DOC bands through 8 1/2 months of age. Her pics are in the DOC bands before and after photos and on our family website (listed below). mom to na DOC Grad South Carolina www.thefilyaws.com laurenstyron <laurenstyron@...> wrote: Hi,My name is and my son Kade is 4 months old. At Kade's 4 month appointment my pediatrician told me to give Kade more tummy time and referred me to a cranial specialist to be evaluated for plagio. His appointment is on Wednesday, I am very nervous. What should I expect at this appointmnet. I never noticed a problem with his head until the pediatrician pointed it out. Is a helmut recommended to most children? I have been putting him to sleep on his stomach and elimiated his use of swings and bounceys. Any advice on what to expect would be appreciated.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 > I'm reading here tonight because I'm suspecting she's sensitive to > phenols too. Phenol info http://www.danasview.net/phenol.htm Welcome to the group! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi Amy, I hope everything goes well with Liam's casting and band. Someone gave me a great tip that I wanted to share with you. A few days before your son's casting, try playing PeekABoo with a pair of pantyhose to get him comfortable with having the stocking over his face. This part of the casting terrified my daughter (who was 5 and 1/2 months at the time) and was really stressful for me. I wish I had thought about or heard this idea before her casting so we both would have been better prepared! Good luck!!! , Mom to Hallie (6 months) wearing DOC band for 2 weeks Charlotte, NC --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi Amy, I hope everything goes well with Liam's casting and band. Someone gave me a great tip that I wanted to share with you. A few days before your son's casting, try playing PeekABoo with a pair of pantyhose to get him comfortable with having the stocking over his face. This part of the casting terrified my daughter (who was 5 and 1/2 months at the time) and was really stressful for me. I wish I had thought about or heard this idea before her casting so we both would have been better prepared! Good luck!!! , Mom to Hallie (6 months) wearing DOC band for 2 weeks Charlotte, NC --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Welcome to the group. 5 1/2 months is a great age to get a band. Too bad you had to beg the pediatrician so much. Way to be a good advocate for your son. For some reason some doctors like to make that more difficult than it needs to be. Good Luck with the casting I hope he doesn't cry at all (our son screamed the whole time but he was 14 months). Let us know how it goes. Haylee mom to andre doc band grad --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Welcome to the group. 5 1/2 months is a great age to get a band. Too bad you had to beg the pediatrician so much. Way to be a good advocate for your son. For some reason some doctors like to make that more difficult than it needs to be. Good Luck with the casting I hope he doesn't cry at all (our son screamed the whole time but he was 14 months). Let us know how it goes. Haylee mom to andre doc band grad --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi Amy, Welcome to the group! Your baby is at a great age to receive awesome correction. Let us know how the casting goes. > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi Amy, Welcome to the group! Your baby is at a great age to receive awesome correction. Let us know how the casting goes. > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Amy, Welcome. I am glad you found us too. I am also gald that the casting info helped you out. 5 1/2 months is a great age for correction it should go fast. You've done a great job so far staying on top of this, what a good mommy Liam has!! CAROLG --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Amy, Welcome. I am glad you found us too. I am also gald that the casting info helped you out. 5 1/2 months is a great age for correction it should go fast. You've done a great job so far staying on top of this, what a good mommy Liam has!! CAROLG --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi Amy, Welcome to the group. Liam is a great age for banding. Good luck with casting. Kiersten will be exit casted on Tues. She is graduating. I need to get her a lollipop for distraction. Bottles and pacis work well too. Let us know how it goes. na, DOC Grad X2 Kiersten, DOC Band 1/10/06, Tort www.thefilyaws.com/plagio/plagio.html --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi Amy, Welcome to the group. Liam is a great age for banding. Good luck with casting. Kiersten will be exit casted on Tues. She is graduating. I need to get her a lollipop for distraction. Bottles and pacis work well too. Let us know how it goes. na, DOC Grad X2 Kiersten, DOC Band 1/10/06, Tort www.thefilyaws.com/plagio/plagio.html --- In Plagiocephaly , " Amy " <smith.amyl@...> wrote: > > Hi everyone, > I'm so glad I found this group! My son, Liam, is 5 1/2 months old and went > through one heck of a delivery. His head never rounded out and it was > apparent from day one something was wrong, but like all newborns, you give > it at least a little bit. Well by 3 weeks, most of his head " rounded " out so > to speak, but there was clearly a flat spot behind his right ear. Anyway, > after months of begging our pediatrician for a referral, he finally decided > my son's head wasn't going to round out anymore. We have an appt scheduled > for casting next week - thanks for the play by play of casting, I would have > been mortified if I hadn't gone through your step by step. I'm also getting > quite the education on insurance issues too. > Anyway, I just wanted to introduce myself. I'm sure over the next few weeks > I'll have more questions and hopefully some of you will share your > expertise. > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Asperger's is mainly social skills deficits, not " intelligence " or learning disabilities for most. My daughter has Asperger but also has mild MR, so we have the learning probs. If you have doubts, get a second opinion. Never hurts. Welcome! > > I have a 9 1/2 yr old in the 3rd grade. He was DX this past summer. > We were told he had Asperger's. We actually had the appt to check if > he had ADD. We had never heard of Asperger's. We were told to get an > IEP, 2 different kinds of meds,social skills classes, etc. We opted > not to tell the school and not to give him meds. We did go in the > 1st day of school to explain to the teacher that he takes every word > literally and has some social skills problems. She was very > receptive! So far this school year he has had a great year. He likes > going to school. He really likes his teacher. We have him sit in > front, by the teacher. > > We just received his midterm grades. All A's and 1 B+. The IQ test > he had taken was an 82. I don't think so. I just wonder if he has > Aspergers. He did take a day's worth of testing at a Drs. office. > Maybe I'm just in denial. He does have a few friends. I'm in the > Indianapolis area. It would be great to talk to someone else > locally. > > He is on a tennis team and a swim team. He is also in Boy scouts. In > October he will be starting a social skills class. My husband > doesn't think he needs it but, it can't hurt > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Welcome! I have a 9 year old in the 4th grade and was diagnosed at the end of 3rd grade. He can at times seem like he doesn't have AS but then there are time that I'm like, " Oh he SO has it! " Mostly it is how he takes things so litterally. Alot. It makes a huge difference on how I need to commumicate with him. I think even if you think he may not have it, all the " cures " for it can't hurt. Other than the medication of course. The Dr. that diagnosed my son also highly suggested medication and we've opted against it because there is nothing that he really needs it for. I feel like if it's not broken don't fix it. There was nothing crazy that made us see a Dr. in the first place. He just takes everything so literal that his school sugested he may have it. Before getting diagosed I read the OASIS book on Asperger's Syndrome and that was really helpful. I found that there were alot of things I related to and alot I didn't. Like he doesn't have all the sensory issues some have. It's really all literal stuff and social stuff. And the social stuff isn't always the same. Sometimes he's very outgoing and sometimes he's really shy. As long as your child is likeing school and not complaining about not having friends, etc. keep doing what your doing! But definitly read up and learn about Asperger's because a little education on it has really helped the way I relate to him and the way I choose my wording and that can make a world of difference. The social skills groups are good to. My son LOVES them. I think really, all kids should do that, not just ones with Aspergers! <mkisses@...> wrote: Asperger's is mainly social skills deficits, not " intelligence " or learning disabilities for most. My daughter has Asperger but also has mild MR, so we have the learning probs. If you have doubts, get a second opinion. Never hurts. Welcome! > > I have a 9 1/2 yr old in the 3rd grade. He was DX this past summer. > We were told he had Asperger's. We actually had the appt to check if > he had ADD. We had never heard of Asperger's. We were told to get an > IEP, 2 different kinds of meds,social skills classes, etc. We opted > not to tell the school and not to give him meds. We did go in the > 1st day of school to explain to the teacher that he takes every word > literally and has some social skills problems. She was very > receptive! So far this school year he has had a great year. He likes > going to school. He really likes his teacher. We have him sit in > front, by the teacher. > > We just received his midterm grades. All A's and 1 B+. The IQ test > he had taken was an 82. I don't think so. I just wonder if he has > Aspergers. He did take a day's worth of testing at a Drs. office. > Maybe I'm just in denial. He does have a few friends. I'm in the > Indianapolis area. It would be great to talk to someone else > locally. > > He is on a tennis team and a swim team. He is also in Boy scouts. In > October he will be starting a social skills class. My husband > doesn't think he needs it but, it can't hurt > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Hi, !! My son is 14, and he also had many many problems in Junior high, which I did my best to help him get through it, but the school resisted me and actually refused to change any of their policies/actions regarding my son's problems. I even brought in the head of my state's Autism Society, who agreed with me, and they argued with her!! In 9th grade, I had hoped things would be different, but though they were less abusive towards him, they still had policies that he had to do everything that everyone else had to do, even though his difficulties truly prevented him from complying. I pulled him out of school a few weeks ago and began homeschooling him... it has been wonderful for him. I am sure it isn't for everyone, but he's doing so well and has had ZERO agressive outbursts since I have started homeschooling. I am a single mom and he is my only child, I work full time with developmentally disabled adults, one on one and in a group home, but I have arranged my schedule so that I do the subjects that take longer, like English or science, on my days off, which I have 3 days off, I work 12 hour shifts a couple days a week, and the rest, I will ask him to read chapter 6 of his history book while I am at work, and I test him when I get home, or review with him whatever the subject calls for. He will actually graduate at 16 if he keeps up his pace, he can do two grades worth of curriculum in a year.... but that's his choice, which he wants to graduate at 16... so be it!! And though he wont be able to get scholarships to ivy league colleges, he can get financial aid and go to community college like anyone else. It's just a suggestion, and to let you know that I know where you are coming from, I know the pain and frustration you feel when your child is having such a hard time at school and no matter what you do, you can't seem to fix it for them. My son, too, kept refusing to go to school in Junior High, he begged me many times to let him stay home, and I had no idea that anyone could homeschool their child, I was stupid and thought I had to have a college degree to homeschool... not so! > > Hi everyone, My name is . I am 42 and have been married to > for almost 22 years. We have 2 kids, Mathew 13 and > 12. just retired from the Forces and is currently in school > studying for a new occupation. I work as a clerk at the military > base in Edmonton. Our son was diagnosed 18 months ago with > Asperger's Syndrome, an Anxiety Disorder, and Oppositional Defiant > Disorder. We underwent 8 years of going from place to place looking > for help and a diagnosis. We knew early on something was different > and by his first year check up he wasn't reaching milestones. By > the time he was 4 I took him to a pediatrician out of desperation as > I was at my wits' end; I knew something was wrong but no one was > listening to me. Although it was acknowledged he had something... > the road was long. He had no help or aide until last year because > the schools refused to acknowledge that much was wrong with him. > Until grade 7 - when he refused to go into the Junior High School! > Even then, I have struggled to get him the right kind of help; often > it means politely but firmly standing up for him and I, offering > suggestions and telling them what will happen next if no solution is > reached. He was bullied badly and it is still an ongoing issue, > however the threat of pressing charges and forcing them to provide > an aide just for protection in the hallways seems to have curbed the > problem for now. This last year was horrible, one of the worst, but > things are a little better now. I contacted the local Autism > chapter and found an Asperger's Boys' night out, etc. I have just > started looking through these sites and wanted to see what other > parents are up against and what kind of creative solutions they have > found. We have no family support in the area, and very little > anyway. Due to my husband's work commitments and school schedule I > am on my own handling everything that comes our way. It sure has > been lonely. I do not wish this on anyone but it's nice to know > others are out there. Thanks for listening!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Welcome . I am also but I go by Trish. I have one son aged 15 now a sophomore in HS. Middle School was absolutely the worst time - complicated for us by my husband's life threatening illness (happy ending - he recovered fully) - but HS has been okay. Your son sounds very high functioning which brings its own issues. It must be tough dealing with everything on your own. When my husband was ill, that was the worst part for me - having no real confidant to share the daily grind. Friends are great but they don't really get what it's like to live with and worry about kids like ours. By the way, I also home schooled my son for a year. He loved it but he wasn't getting the kind of socialization that the school setting can provide so we moved house to a district that had what we felt was a better approach. So far, it's been working out. But we take nothing for granted - if we let our vigilance drop, stuff happens. (We discovered he was being teased in the lunchroom by a girl who allegedly was a peer helper. Some helper.) Anyway, welcome again. Trish (Mom to Noel aged 15 wife to for 20 years) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 >Hi to and everyone. My name is Seronda and I have 3 children, 20, 14, 13. My son, who is the youngest, was diagnosed with PDD. But, at school, I was told he is high functioning. At this point, I'm not sure if PDD and Aspergers are the same? He was just this year mainstreamed into the general ed. population. Fortunately for him, he attends a small school for disabled children that also has general ed. students. Now the bad point is he will be transitioning into high school. I am so afraid for him because he was in a small school setting. He has associates that he talks to at school that understands his situation. He was also teased by this girl but he shut her down quickly. This will not be the same in high school. This is very hard for me also because I have no friends in the area. I once got in contact with a person that was suppose to have been in my area, but she never contacted me again. I am more confused now than I was before. You is very not alone and I feel your every situation. Right now, as I am a new member, rely wholely on groups like this. I feel a sense of support and understanding. > Hi everyone, My name is . I am 42 and have been married to > for almost 22 years. We have 2 kids, Mathew 13 and > 12. just retired from the Forces and is currently in school > studying for a new occupation. I work as a clerk at the military > base in Edmonton. Our son was diagnosed 18 months ago with > Asperger's Syndrome, an Anxiety Disorder, and Oppositional Defiant > Disorder. We underwent 8 years of going from place to place looking > for help and a diagnosis. We knew early on something was different > and by his first year check up he wasn't reaching milestones. By > the time he was 4 I took him to a pediatrician out of desperation as > I was at my wits' end; I knew something was wrong but no one was > listening to me. Although it was acknowledged he had something... > the road was long. He had no help or aide until last year because > the schools refused to acknowledge that much was wrong with him. > Until grade 7 - when he refused to go into the Junior High School! > Even then, I have struggled to get him the right kind of help; often > it means politely but firmly standing up for him and I, offering > suggestions and telling them what will happen next if no solution is > reached. He was bullied badly and it is still an ongoing issue, > however the threat of pressing charges and forcing them to provide > an aide just for protection in the hallways seems to have curbed the > problem for now. This last year was horrible, one of the worst, but > things are a little better now. I contacted the local Autism > chapter and found an Asperger's Boys' night out, etc. I have just > started looking through these sites and wanted to see what other > parents are up against and what kind of creative solutions they have > found. We have no family support in the area, and very little > anyway. Due to my husband's work commitments and school schedule I > am on my own handling everything that comes our way. It sure has > been lonely. I do not wish this on anyone but it's nice to know > others are out there. Thanks for listening!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Welcome to our group, ! Feel free to join in the conversations anytime you like. Middle school was really awful for my now 17 yo. Some people have said that high school is better. However, my ds was not able to keep going to high school - he did for 2 1/2 years and then it just got to be too overwhelming for him. So now he is finishing school by getting tutored 2 times per week. His grades are a lot better and he sure has needed the 1-1 teaching. Plus his tutor is a guy, another thing that I think helps. Roxanna ( ) Introducing Myself Hi everyone, My name is . I am 42 and have been married to for almost 22 years. We have 2 kids, Mathew 13 and 12. just retired from the Forces and is currently in school studying for a new occupation. I work as a clerk at the military base in Edmonton. Our son was diagnosed 18 months ago with Asperger's Syndrome, an Anxiety Disorder, and Oppositional Defiant Disorder. We underwent 8 years of going from place to place looking for help and a diagnosis. We knew early on something was different and by his first year check up he wasn't reaching milestones. By the time he was 4 I took him to a pediatrician out of desperation as I was at my wits' end; I knew something was wrong but no one was listening to me. Although it was acknowledged he had something... the road was long. He had no help or aide until last year because the schools refused to acknowledge that much was wrong with him. Until grade 7 - when he refused to go into the Junior High School! Even then, I have struggled to get him the right kind of help; often it means politely but firmly standing up for him and I, offering suggestions and telling them what will happen next if no solution is reached. He was bullied badly and it is still an ongoing issue, however the threat of pressing charges and forcing them to provide an aide just for protection in the hallways seems to have curbed the problem for now. This last year was horrible, one of the worst, but things are a little better now. I contacted the local Autism chapter and found an Asperger's Boys' night out, etc. I have just started looking through these sites and wanted to see what other parents are up against and what kind of creative solutions they have found. We have no family support in the area, and very little anyway. Due to my husband's work commitments and school schedule I am on my own handling everything that comes our way. It sure has been lonely. I do not wish this on anyone but it's nice to know others are out there. Thanks for listening!! ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.13/546 - Release Date: 11/22/2006 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.