Jeanne B

[Guest guest]

Every time I get my tramadol refilled, I have to get " counseling " from the

pharmacist where she asks me why I'm taking it, have I tried getting off, have I

tried something over the counter, all this other silliness in front of other

patients who are waiting in line for their interrogation by the narco squad

pharmacist.

Dear Ms Georgia Peach, (My Mom was one, born in Decatur)

If this illustrious pharmacist is counseling you in the presence of others ,

they're breaking the HIPPA LAW as this is confidential and no one else should

know exactly what you are taking. Heaven forbid, what if you were taking a lot

of class II or even a class I narcotic and someone over heard your medicines and

decided to relieve you of possession of them outside the pharmacy either in the

parking lot, or even on your home.

My pharmacist does the same thing (Walgreens) and has for years. What has

happened to me is someone over heard what I took, (this was in Florida) and they

tried to rob me in the parking lot. Thankfully, where I lived at the time was a

small town and one of the officers spotted this and helped me. I was also

working at the police department at the time, but this had nothing to do with

the help I got.

After this happened, the officer went into the pharmacy and spoke to the

pharmacist. From then on, he did no further counseling, (which he was suppose

to do but since I had been on the patches for 3 years, I really did not need the

" counseling " . However, when I moved and was in a different location, I

explained to the pharmacist what had happened and he would come around to their

lobby area and we would speak face to face.

Peggy

[Guest guest]

Thank you so very much Peggy! Congrats for being born to a peachy mom,

too, <laugh>. If you don't mind, I'm going to copy the e-mail minus the headers

and names and show it to the Nosy pharmacist.

It is terrifying to think that someone would try to rob me or my

husband of my medicine in the parking lot. I hadn't even thought of

that but the way people are now, I can see how it could happen.

I have had my meds stolen from the car before and since then used to

put them in a smaller medicine container if I was spending the night

with our son (he takes me to doctors and such and it is easier to

spend the night there than him come out to the country.) I thought

that was a lot smarter than having to go a month without my heart and

gut meds (huge market for those??) and Tramadol.

It was a horribly long month for pain, gut and heart since my

insurance carrier (bless their little hearts) wouldn't refill them.

Naturally since the doctors are terrified to order anything stronger

than aspirin, my doctor wasn't able to give me a prescription for any

of the drugs (including the stuff for my heart problems, high blood

pressure and Crohn's disease).

The whole drug thing has gotten out of hand. I went to three different

doctors when this last Crohn's flare up started (talking level 10 type

pain every day in the evening and around 7 right now - enough to have

me shaky and sweating). NONE would give me anything stronger than 50

mg Tramadol 4X daily. Supposedly their excuse was they were afraid of

paralytic ileus (um, one of the problems with Crohn's is gallon or

so of liquid stool a day - not that worried about not being able to go

to the toilet) but one of them said he was " Afraid the government

would audit. "

I'm really tired of pain. The doctors seem to have become a lot more

concerned with covering their legal butts than the quality of their

patient's lives.

Jeanne B in GA

> Peggy wrote:

> all this other silliness in front of other patients who are waiting in line

for their interrogation by the narco squad pharmacist.

[Guest guest]

Dear Peggy,

I would speak to the store manager and also document it in writing with the

Corporate people that are in charge of that store or the " group " of stores. Just

look online for the companies corporate website and email your complaint. Then

make sure you get the managers email address so you can send him an email

summarizing your conversation with him including the date, time, place, where

conversation was held and details of the conversation including what he said he

will be doing to remedy the situation. Making a " paper trail " of everything is a

sure way to insure that things will get done right and if not, that you have all

the evidence carefully documented. If you don't get immediate results, you

should make a written complaint that your HIPPA rights have been violated and

include your email evidence, etc. In fact, you should mention that you will be

doing that if things aren't addressed and rectified immediately in your

conversation with the manager.

Best of luck,

Debie

> peggy wrote:

> Every time I get my tramadol refilled, I have to get " counseling " from the

pharmacist where she asks me why I'm taking it, have I tried getting off, have I

tried something over the counter, all this other silliness in front of other

patients who are waiting in line for their interrogation by the narco squad

pharmacist.

[Guest guest]

I have experienced all the same issues with doctors regarding doing anything for

the pain from Crohn's flare-ups. I wish they who deny us relief could spend a

few days in the same pain and misery we feel and you better believe they would

be writing themselves a script for the strongest pain med they could thing of!!!

Not only that but they would be whining the whole time.

>Jeanne B in GA wrote:

>The whole drug thing has gotten out of hand. I went to three different

doctors when this last Crohn's flare up started (talking level 10 type

pain every day in the evening and around 7 right now - enough to have

me shaky and sweating). NONE would give me anything stronger than 50

mg Tramadol 4X daily. Supposedly their excuse was they were afraid of

paralytic ileus (um, one of the problems with Crohn's is gallon or

so of liquid stool a day - not that worried about not being able to go

to the toilet) but one of them said he was " Afraid the government

would audit. "

[Guest guest]

Amen! I so wish they could spend a day in our shoes (or toilets). Then

we'll throw in all the other goodies our IP friends can have (do

have.) Today is off and on drizzle so every one of you know what my

joints feel like. One of these days I'll invent a heating pad we can

put on all of the pain areas at once.

Kills me when I get one of those docs who says crap like " Well, I had

knee (tendon) surgery and was fine on aspirin so you don't need

anything. " ARGH. I bet all of us have seen him or his clone. Telling

someone that acute pain is totally different from chronic pain is

impossible. Living with pain day in and day out and knowing that the

next day you'll still have to face the same damned pain is sometimes

just too too much and even stubbing my toe on the bed is all it takes

for pain to go into overdrive. Just can't take any more - you know?

Then you get the " Oh for God's sake, you just stubbed your toe! "

nonsense.

Am going to go to the doctor tomorrow because of a jaw abscess. I've

been putting it off because I am not going to be determined enough to

keep from asking him for a week of something stronger than tramadol

and he'll give me the lecture of just toughing it out or go to the

pain management doctor who'll send me back to him. Maybe I'll just go

to the emergency room and waste their time and get a script for

antibiotics and 4 days of real pain relief. Right now four days of

more pain relief sounds so good.

Last time I was in the emergency room was when I was having a heart

attack. My husband just dumped me off at the door so he could go back

to work. I don't want to go through that again. Pain on top of pain

and them asking me a dozen times why he didn't stay with me and what

is my insurance and where is my drivers license (legally blind, can't

drive). It was a total joke.

Thanks for letting me vent! Love to all, Jeanne B in GA

> I have experienced all the same issues with doctors regarding doing anything

> for the pain from Crohn's flare-ups. I wish they who deny us relief could

> spend a few days in the same pain and misery we feel and you better believe

> they would be writing themselves a script for the strongest pain med they

> could thing of!!! Not only that but they would be whining the whole time.

>

>

>

>

>>Jeanne B in GA wrote:

>

>

>>The whole drug thing has gotten out of hand. I went to three different

> doctors when this last Crohn's flare up started (talking level 10 type

> pain every day in the evening and around 7 right now - enough to have

> me shaky and sweating). NONE would give me anything stronger than 50

> mg Tramadol 4X daily. Supposedly their excuse was they were afraid of

> paralytic ileus (um, one of the problems with Crohn's is gallon or

> so of liquid stool a day - not that worried about not being able to go

> to the toilet) but one of them said he was " Afraid the government

> would audit. "

>

>

>

>

[Guest guest]

The fear from Doctors now reaches pm docs as well. I have 4 levels of disc

bulges and spinal stenosis with severe sciatic pain thatmakes it hard for me

to go to the bathroom. Originally I was given 30mg roxicodone and 100mg MS

CONTIN. This combo did a good job until he got spooked and stopped writing

oxy scripts. He changed my b/t to MORPHINE which is a 50% cut in strength.

He also cut the number of tabs.

Chronic Pain needs to be addressed legally. We need lawmakers in D.C. that

understand what it is like to live in paid all of the time.

Sent from my Verizon Motorola DROID 3

[Guest guest]

Jeanne B in GA wrote:

>> The whole drug thing has gotten out of hand. I went to three different >

doctors when this last Crohn's flare up started (talking level 10 type> pain

every day in the evening and around 7 right now - enough to have> me shaky and

sweating). NONE would give me anything stronger than 50 mg Tramadol 4X daily.

Debie Abelson wrote:

> I have experienced all the same issues with doctors regarding doing anything

for the pain from Crohn's flare-ups. I wish they who deny us relief could spend

a few days in the same pain and misery we feel and you better believe they would

be writing themselves a script for the strongest pain med they could thing of!!!

Not only that but they would be whining the whole time.

Jeannie and Debie:

http://www.ccfa.org/about/?LMI=0

http://www.crohnsforum.com/doctor/us/ga/

www.angelfire.com/ga/crohns/stories.html

http://tinyurl.com/6w8cfqy

http://tinyurl.com/kou594

There are a wide variety of GI cocktail recipes in use today. A very popular one

is a mixture of Maalox, Donnatal, and viscous lidocaine, in equal parts.[3] A

mixture of 10 ml Mylanta, 10 ml Donnatal and 10 ml viscous lidocaine.

At least getting some lidocaine in there or phenergan can get pain relief. So

get some pain relief and find a better Doctor as ground up hamburger meat and

fecal materal coming up from your intestines should be proof enough and ask any

medical personnel if they would allow themselves to have an open cut and have

all kinds of acidic battery acid (stomach acid) poured on it. Wonder what the

Doctor or Medical perfessional would say.

I would seek a Chrons specialist through the Chronics and colitis association.

This is why it is called ulcertivitis and there is also esophageal ulceritis.

Shame on those Doctors. No, those doctors would not be whining but self

medicating. Bennie.

[Guest guest]

I've been looking for a gastro who specializes in Crohn's down here

but the website keeps giving me the name of the " one size fits all "

doctor I left. I just could not get comfortable with him and the one

treatment for all Crohn's patients certainly wasn't working for me. (1

week of prednisone, 800 mg Asacol three times a day and no pain killer

- quote " Tough it out. " )

I hope if anyone living down in SW GA or northern Florida who has gone

to a good gastro/Crohn's doctor will send the name to me.

Didn't think of phenergan and I have to keep that on hand for the less

than amusing heaves. Crazy that they'll let me have that but nothing

for pain other than tramadol.

Jeanne B in GA

> Bennie wrote:

> At least getting some lidocaine in there or phenergan can get pain relief.

[Guest guest]

Pain medicine is given out by pain doctors in CA. Could you go to a

pain management doctor for help?

siouxmoore

Jeanne wrote:

I've been looking for a gastro who specializes in Crohn's down here

but the website keeps giving me the name of the " one size fits all "

doctor I left. I just could not get comfortable with him and the one

treatment for all Crohn's patients certainly wasn't working for me. (1

week of prednisone, 800 mg Asacol three times a day and no pain killer

- quote " Tough it out. " )

[Guest guest]

Went to a pain management doc here and he said he could not do anything more

than the tramadol I am already on because he was afraid I would develop

paralytic ileus. He was one of the doctors who told me to just " toughen up and

take it because it will end eventually. "

I have Crohn's disease, which does not go away and the flare has lasted 8 months

now and I go up to 10 on their silly pain-o-meter every night. If I eat, I

cannot breathe and the pain makes me sweat, shake and cry (very quietly so I do

not interrupt the idiot television

programs.) So I hold on till 8:30 at night, then take my sleeping pill

(yes, I have tried OTC stuff and other stuff and they do not work on me. At

All.) and can sleep without pain for about 3 hours, which is

heaven.

Good thing is I have now lost 74 pounds in 8 months. Bad thing is I have become

too frail to do anything or go anywhere.

Jeanne B in GA

> siouxmoore wrote:

> Pain medicine is given out by pain doctors in CA. Could you go to a

> pain management doctor for help?

[Guest guest]

Fire your doctor, find a gastroenterologist that deals primarily with Crohn's.

I hope you can find help quickly.

Jennette

> Jeanne B wrote:

> He was one of the doctors who told me to just " toughen up and take it because

it will end eventually. "

[Guest guest]

That's ridiculous! Being in pain and unable to move increases your

risk of developing paralytic ileus FAR more than opioids!

I am on 450mcg of fentanyl per hour and have been on it at this dose

for about a year. I didn't develop any constipation until I became

bedridden. Walking and gravity definitely aid digestion! Now that I am

bedridden after all but an half an hour to an hour a day, I have

severe constipation (borderline paralytic ileus) even when I lower my

dose down to 150mcg/hr (I tried it for almost two weeks, I would have

rather dealt with the pain).

Also, if you do develop paralytic ileus, they have a drug called

methylnaltrexone (Relistor) that is a peripherally acting opioid

blocker. It reverses the GI effects of opioids without effecting the

pain relief (it can't get passed the Blood Brain Barrier).

I would look into a new doctor, but in the mean time try the above

argument with your current doc. He probably doesn't know much about GI

health (or Relistor) and is afraid to cause harm. Instead of educating

himself he'd rather just let you suffer.

Steve M in PA

Went to a pain management doc here and he said he could not do

anything more than the tramadol I am already on because he was afraid

I would develop paralytic ileus. He was one of the doctors who told me

to just " toughen up and take it because it will end eventually. " ...

Jeanne B in GA