Re: Damn Pain

[Guest guest]

I Hear you dear Lyndi,

 

Sometimes I just want to rip my hair out, although I find pulling on my hair can

give me a headache, so I try not to.  Sucks, and that is not a strong enough

word to describe this crap. 

 

Hang in the my friend.  I hear you.  I don't know how I manage without pain

pills.  I tell you what though, I hate waking up because when I do wake up my

pain rears its ugly self again

 

Hey, when you find that magic wand, don't be selfish, ok? 

 

Why did I give up smoking??  because it made me cough and that hurt my back.

 

Love and gentle hugs  Lyndi and all, Coleen 

 

> Lyndi wrote:

> It's been a long couple of weeks with head pain from hell coming and going at

a moment's notice. 

[Guest guest]

Migraines? Sinus headaches? I had similar headaches due to my gall bladder being

inflamed. And nothing I did made it go away. Hope this helps a little

> Lyndi wrote:

> It's been a long couple of weeks with head pain from hell coming and

going at a moment's notice.

[Guest guest]

Are these migraine headaches or something new to you?  I know a migraine trumps

any other chronic pain I have so I feel for you having to suffer.

I just want you to consider this head pain and decide if it's something a doctor

should check into.

Jennette

> Lyndi wrote:

>It's been a long couple of weeks with head pain from hell coming and

>going at a moment's notice.

[Guest guest]

>Lyndi wrote:

>It's been a long couple of weeks with head pain from hell coming and

going at a moment's notice.  No cure, other than death, so I have to put

up with it :-) It's been bad enough that it's almost completely

overshadowed the spinal and other pain. Maybe that's a good thing. :-)

>Does somebody know how to work a magic wand?  If so, please share!

Hi Lyndi

I am so sorry to hear about your increased pain. It is amazing that we

find the strength to go on living. 

If I had a magic wand, I would share it with each and every one of you.

First, I would use it on myself on my husband, just to be sure it worked.

<smile>

If is such a big word, to only have two letters in it.

Kaylene

[Guest guest]

Kaylene,

I too have the head pain for over a year and then I was sent to physical therapy

and the lady worked me over. She used the machine that is like the tenns but

stronger and then she would do something else which I can not remember name

right now. Fibro fog. After that she did a thing that she put my head in her

hands as I laid on the table and she massaged my neck up to the top of my head

for about 15 min and after going 12 times there I had no pain now since Nov. I

know it can come back but this helped so much with the excruciating pain I had.

Hope you can get some relief.

ROSIE

> Kaylene wrote:

> I am so sorry to hear about your increased pain. It is amazing that we

find the strength to go on living.

[Guest guest]

>Lyndi wrote:

>It's been a long couple of weeks with head pain from hell coming and going at a

moment's notice.

Lyndi

I command those head devils and imps to leave you alone, NOW! Now, pretend it

worked. You know that is imagery that I was told by a Doctor I should do when I

had a headache, and when the shook my head from to one side to the other to show

me I didn't have my stroke.

I was almost going to kick him in the nuts. I was in a wheelchair and I told him

I wanted to go AMA (Against Medical Advice) and he said, Oh, I'll just give you

something for pain, I told him if it won't hurt my headache, don't do it.

Turns out, I have allergic headaches that come on when molds, cedars, and other

allergies are high and I have to take a migraine and allergy medication. Good

Luck sweet.

Bennie

[Guest guest]

Lyndy wrote:

End of grump.

Lyndi

That wasn't a grump. That was a cry for help! I have neck pain. If I do

too much I spend the night thinking I'm going to die and being afraid

of it. Eventually I go to sleep and wake up better. It's not head pain

so I guess we can't compare. Hope you're feeling better now. Are you?

[Guest guest]

Lyndi wrote:

> It's been a long couple of weeks with head pain from hell coming and

> going at a moment's notice. No cure, other than death, so I have to put

> up with it :-) It's been bad enough that it's almost completely

> overshadowed the spinal and other pain. Maybe that's a good thing. :-)

I just spotted this post of mine from 8 days ago. How a few days

changes things.:-)

My head pain is still coming and going, but the leg and foot pain from

falling and breaking my leg and spraining from my knee to my toes is

genuinely overshadowing any head pain. The pain management increased my

pain meds for the duration, so I suspect that has something to do with

the head pain not feeling so ferocious.

When I saw my previous post, I thought " Be careful what you wish for! "

I got my head pain lowered by breaking a leg and getting more pain meds?

Sheesh. That's not what I had in mind at all. I'm getting too old for

all this crap!! <grin>

Lyndi

[Guest guest]

Lyndi, I'm glad to hear that pain management at least helped with your

head! I somehow missed an update on what the surgeon recommended.

I do have to say Lyndi, you really rocked me with your 1st dust mite

post. My head took off with all the implications of the fall, one

after the other, and it scared the crap out of me. As you may

remember, I'm an above the knee amputee and spend a little too much

time hopping one legged on crutches. I've gotten very good at it, but

you reminded me that all it takes is a little piece of broken pavement

or a small oil slick to send me ass over tea kettle. Even when I'm

using a wheelchair, power or rigid frame Quicky, I have to hop around

hooking the chair on the lift on the back of the car. There are 3

hooks and straps that require 2 hands to work. For each hook I prop my

crutches and lean against the appropriate thing. After 1 hook is done

I hop to the next hook and repeat the process. People around here

aren't used to seeing a gray haired one legged woman on crutches doing

this elaborate lift set up. They're very kind, running over to see if

I need help.

I'm babbling on about that to avoid my current issue. The day after I

read your 1st post about the fall, I got a call from my new primary

care telling me that my latest Dexo showed significant bone loss in my

right hip, on my stump side. This was a huge shock and quite

terrifying. I've always had very strong bones and high calcium levels,

until now. All my other bones are fine but my hip with the shorty

hasn't been weight bearing in about a year and a half. My 1st

prosthesis quite fitting and my skin started reacting badly to the

tight liners that go under it all. Tried to bully my skin into

stopping the huge welts and it didn't work, just left me with little

faint scars on my stump. Finally a prosthesis came available that

doesn't use a liner and I thought I was back in action. I hadn't

counted on the major muscle atrophy on the right side of my body. So

it sat until I could get the worst of the pain under control.

It took way too long but I finally got started with a good chronic

pain clinic. Life was good and I delayed working with the prosthesis

for a few months. Until Lyndi posted and let me learn from her

experience. I have to go in and have the knee and socket adjusted

before I can really begin the road back, next Thursday. It's going to

be very slow going, with flashy new pain to go with the chronic stump

and phantom pain. I've got to do it, the thought of a broken hip is

too much for me to consider. I've got a huge amount of anxiety about

this prosthesis. It's a new system and if it doesn't work, there's

nothing else on the market that my insurance co will pay for and my

skin will tolerate.

Then there's the issue of the fear and anxiety over the pain and

struggle, building my muscles on that side back from nothing. I can't

stand being a wimp. Slow and easy is so far out of my comfort zone I'm

going to have to learn as I go. They raised the co-pay on PT to $40 a

session and we just can't afford it. Anyway, I know how to use a leg

and crutches, mostly I need a cheerleader and that's just plain pitiful.

Lyndi, you've been in my prayers daily since you started abusing dust

mites. You've helped me so much this year when I needed it most, often

being the voice of reason when I couldn't think straight. Keep us

posted!

Lou