Guest guest Posted November 28, 1999 Report Share Posted November 28, 1999 Dear Bonnie, Ozone steam saunas will help. Email me privately and I will connect you to one of the many Texas clinics. Best of Health! Saul Pressman URL: http://www.plasmafire.com email: saul@... ---------------------------------------------------------------------------- ------------------------------- Lymphedema > I've been a silent member of this list for a while, just taking in > all this new and wonderful information. > > I am a breast cancer survivor (1 1/2 years) who developed lymphedema > in my arm and hand following surgery and radiation. Now I have > developed it in my legs. I have had the latest treatment on my arm > (manual lymph drainage), but nothing, other than elevation for the > legs. Years ago all stages of lymphedema used to be called > elephantitis---very ugly stuff. > > It may be helpful to say that lymphedema cannot be treated with > " water pills " as it is a protein fluid which will cause fibrosis of > the skin if the water is removed leaving only the protein. This thing > is a real bugger and can leave me very depressed. It can also be very > painful depending on my activity level, barometric pressure, etc. > > Does anyone have any experience with this condition? Are there any > suggestions for oxygen therapy, holisitics, etc.? Most of the medical > community is VERY ill-informed or completely ignorant about > lymphedema. Many doctors still say " Learn to live with it! " Well, I > don't want to! > > Any input, net references, personal experiences, etc. would be > greatly appreciated. > > Bonnie in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 1999 Report Share Posted November 28, 1999 PLEASE consider Hyperbaric OXygen therapy for your condition Rapid Recovery Hyperbarics www.hbot4u.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 1999 Report Share Posted November 28, 1999 Hyperbaric Oxygenation for Polyneuropathy, a case report M.Capria, Tampa Hyperbaric Enterprise, 700 W. Waters Av. Tampa, FL 33604 C~~~~~ P~~~~~~, a 41 year old female, presented a history that included a diagnosis of Lyme Disease since August 1995. Her medication consisted of long term oral antibiotic cephradine and IV antibiotic vancomycin along with percodan for pain control. She had several acute medical episodes in 1998, prior to receiving hyperbaric oxygen therapy, that involved bilateral distal parathesia, muscle weakness, intermittent flaccid paralysis that included what was called bipolar Bell's Palsy and she had intermittent loss of consciousness. Several of these episodes required hospitalization. One episode required intensive care for respiratory failure June 19, 1998. She was placed on mechanical ventilation for 15 hours. Spinal tap showed protein but no cells in the CSF. Around this time she had intermittent bilateral lower extremity motor loss requiring wheel chair support. While the prior medical regime addressed the Lyme infection the later condition involved several acute episodes of polyneuropathy. At the time of her presentation to the hyperbaric facility she was ambulatory without support but walked with postural kyphosis approaching full flexion. Muscular weakness made it difficult for her to stand upright. She had constant daily migraine headaches. She said she did not sleep well as her memory of waking in the hospital with the mechanical ventilation scared her such that she feared going to sleep and having respiratory arrest again. She was taking oxycodin for pain control. She had a history of cigarette smoking. Social history: married, no children. Hyperbaric oxygenation was started in Tampa, Florida on August 18, 1998 at 22 psig (2.5 ata abs) twice per day for 60 minutes at full pressure each session, six days per week for the first two weeks, five days per week thereafter. Patient used oxygen hood at full pressure and kept hood on for most of the decompression. After 75 sessions the patient reported that " something clicked " and her headaches were gone, pain and motor loss were gone, energy resumed and she " got her life back " . Her posture was no longer kyphotic and she was able to smile during conversations. She continued HBO2 twice per day (2.0 to 2.38 ata abs) and during her 122nd session reported that her " hand tingling " disappeared. She resumed long walks and started helping other people with their own difficulties. Her headaches cleared. She reported sleeping better and lost her fear regarding respiratory arrest. She said she was more comfortable inside the chamber than anywhere else. Her treating medical physician, who initially did not recommend hyperbaric oxygenation, expressed wonder at C.P.'s improvement and now thinks HBO2 is a good therapy. The only reported side effect was some noticeable myopia that stabilized after 80 sessions. After that time the patient reported her overall vision improved. Discussion: Lyme complications often involve neurological complications such as polyneuropathy. (ref. # 2-5). Bilateral distal sensory and motor disturbance progressing to the cranial nerves with impaired respiration presents a polyneuropathy that can be life-threatening. Unrecognized tissue hypoxia, especially after episodic respiratory failure, further complicates this chronic disease condition. Hyperbaric oxygenation therapy was applied over a prolonged time to compare the outcome over several months as earlier studies showed promise (ref.#1). This patient responded well after 75 sessions and continued improving to full function up to 144 sessions. The impact on her social well being transformed her from weak and dependent to outgoing and helpful. The temporary side-effect of myopia was minimal compared to the overall improvement. The per session cost averaged about $85 each including a subsidized portion from a charity fund. After looking at this particular treatment cost compared to the years of debilitation, social loss and medical bills in this chronic condition one may conclude this HBO2 therapy was cost effective and useful. References: #1 Ter Arkh 1986;58(7):105-9 [Place of hemocarboperfusion and hyperbaric oxygenation in the treatment of patients with rheumatoid arthritis with systemic symptoms]. [Article in Russian] Saikovskii RS, Alekberova ZS, Dmitriev AA, Ashurova LL, Mach ES HBO2 is appropriate in such systemic symptoms as ischemic polyneuropathy, digital arteritis, trophic ulcers and Raynaud's syndrome. #2 Muscle Nerve 1997 Aug;20(8):969-75 Detection of Borrelia burgdorferi DNA and complement membrane attack complex deposits in the sural nerve of a patient with chronic polyneuropathy and tertiary Lyme disease. Maimone D, Villanova M, Stanta G, Bonin S, Malandrini A, Guazzi GC, Annunziata P Institute of Neurological Sciences, University of Siena, Italy. We report a patient who developed a chronic sensory-motor polyneuropathy and a progressive myelopathy 4 years after a tick bite. The presence of complement membrane attack complex deposits and macrophage infiltrates around epineurial vessels and within the endoneurium suggests that the neuropathy in our patient was immune-mediated. #3 Am J Phys Med Rehabil 1996 Jul-Aug;75(4):314-6 Lyme borreliosis neuropathy. A case report. Deltombe T, Hanson P, Boutsen Y, Laloux P, Clerin M Department of Physical Medicine and Rehabilitation, University Hospital of Mont-Godinne UCL, Yvoir, Belgium. Lyme borreliosis is responsible for a large variety of peripheral neurologic manifestations including axonal polyneuropathy, radiculopathy, and facial nerve palsy. #4 Enferm Infecc Microbiol Clin 1996 Feb;14(2):72-9 [Frequency of the clinical manifestations of Lyme borreliosis in Spain]. [Article in Spanish] Guerrero A, Escudero R, Marti-Belda P, Quereda C Unidad de Enfermedades Infecciosas, Universidad de Alcala de Henares, Madrid. Neurological manifestations were presented by 40 patients (62.5%) (in control group 23%, p < 0.05) cutaneous lesions by 20 patients (31%), articular manifestations by 18 patients (28%) (in control groups 56%; p < 0.05) and cardiac manifestations in two. Cutaneous manifestations included 17 erythema migrans, 2 acrodermatitis chronica atrophicans and 1 lymphocytoma). Artritis was present in 18 cases. Neurological manifestations included 16 cases of meningitis (2 with encephalitis), 11 of craneal neuropathy and 25 of peripheral neuropathy (13 of polyneuropathy). #5 N Engl J Med 1990 Nov 22;323(21):1438-44 Chronic neurologic manifestations of Lyme disease. Logigian EL, Kaplan RF, Steere AC Department of Neurology, Tufts University School of Medicine, Boston, MA 02111. Lyme disease, caused by the tick-borne spirochete Borrelia burgdorferi, is associated with a wide variety of neurologic manifestations. To define further the chronic neurologic abnormalities of Lyme disease, we studied 27 patients, in 16 patients electrophysiologic testing showed an axonal polyneuropathy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 I also have lymphederma and have had it since I had mono in my early twenties. I'm now 61. This past year my right leg has been worse than ever. Very swollen and very very painful. I have lived on water pills doesn't help unless I use massive dosage. I have wrapped and used support bandages and this has only helped temporairily. I also try to keep my leg elevated. This helps some of the swelling, but not the pain or numbness. If the Drs. are able to help you please let us all know about it. My left leg is starting to be in the same condition. Have you tried to buy slacks with the leg so swollen you can't get them over the leg? If you wear a dress people can't believe the shape and size of one leg compared to the other. My right leg looks like a bow-legged tree trunk. Have to go now Love and Hugs Carolyn Grandma Hen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Onelist has 3 lymphedema lists. I really don't think there is a treatment other than wraps . I'm not really sure. ne (little ninja chickie) ----Original Message Follows---- From: " Anne . " <amacgruder@...> Reply-egroups egroups Subject: Re: Lymphedema Date: Thu, 17 Aug 2000 03:49:39 -0500 Faulkncs@... wrote: > I also have lymphederma and have had it since I had mono in my early > twenties. I'm now 61. This past year my right leg has been worse than ever. > Very swollen and very very painful. I have lived on water pills doesn't > help unless I use massive dosage. I have wrapped and used support bandages > and this has only helped temporairily. I also try to keep my leg elevated. > This helps some of the swelling, but not the pain or numbness. If the Drs. > are able to help you please let us all know about it. My left leg is > starting to be in the same condition. Have you tried to buy slacks with the > leg so swollen you can't get them over the leg? If you wear a dress people > can't believe the shape and size of one leg compared to the other. My right > leg looks like a bow-legged tree trunk. > > Have to go now Love and Hugs Carolyn Grandma Hen I have tried looking up Lymphedema on the internet, but the only thing I can find is about AIDS related Lymphedema. And I can't find anything within those sites that would help me anyway, because they are ALL RELATED TO AIDS!! Rudeness! Anne ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Hi Sophia- Hi everyone My name is Sophia, I am 56 years old been overweight most of 35 years, had diabetes 2 for 30 years, due to Ignorance on my part I am having quite a few problems. I thought I was young and these thing would not happen to me WRONG DUH . I wish I had known then all we do now about diabetes and many illnesses. Welcome to the group!! I am sure we will have you in stitches soon, or at least talking about Aisha's butt. I can't believe how far this topic has gone!! I joined this list because it was brought to my attention by someone very sweet and special i accidently met one nite ((Dorie)) I have been lurking and decided to join in. Way to go Dorie! I hope i got name right ne Sullivan. You caught my attention. I have Lymphedema, had it a long time didn't know about it. Did they tell you what caused the Lymphedema? I was told I had it too. Due to my allergies, and shots of Benadryl & Solumedrol both being IM injections. I was going to Dallas to a wound clinic cause of wounds to my heels. I live in Wichita Falls about 2 hours from Dallas. Anyway the wound dr told me about Lymphedema. He wanted me to go to Healthsouth rehab as they treat this. How do they treat it? No one has even tried to treat me for it! And they wouldn't try to desensitize my again, so I am stuck in the middle of the deal. It comes down to I have to chose between letting my allergies end my life or taking (using IM) Benadryl and continuing the damage done. It is not good time either way in my opinion! I want to say this is a great bunch of courageous caring people . To laugh. cry. share and be there for all is a wonderful blessing. ~hugs to all from here in Texas Sophia~ I hope to talk to you again soon! Love Always, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Faulkncs@... wrote: I also have lymphederma and have had it since I had mono in my early twenties. I'm now 61. This past year my right leg has been worse than ever. Very swollen and very very painful. I have lived on water pills doesn't help unless I use massive dosage. I have wrapped and used support bandages and this has only helped temporairily. I also try to keep my leg elevated. This helps some of the swelling, but not the pain or numbness. If the Drs. are able to help you please let us all know about it. My left leg is starting to be in the same condition. Have you tried to buy slacks with the leg so swollen you can't get them over the leg? If you wear a dress people can't believe the shape and size of one leg compared to the other. My right leg looks like a bow-legged tree trunk. Have to go now Love and Hugs Carolyn Grandma Hen I have tried looking up Lymphedema on the internet, but the only thing I can find is about AIDS related Lymphedema. And I can't find anything within those sites that would help me anyway, because they are ALL RELATED TO AIDS!! Rudeness! Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 I help a lady with lympedema and she has daily leg masasges by a physical therapist. This is the ONLY thing that keeps the swelling controlled. Lee Faulkncs@... wrote: I also have lymphederma and have had it since I had mono in my early twenties. I'm now 61. This past year my right leg has been worse than ever. Very swollen and very very painful. I have lived on water pills doesn't help unless I use massive dosage. I have wrapped and used support bandages and this has only helped temporairily. I also try to keep my leg elevated. This helps some of the swelling, but not the pain or numbness. If the Drs. are able to help you please let us all know about it. My left leg is starting to be in the same condition. Have you tried to buy slacks with the leg so swollen you can't get them over the leg? If you wear a dress people can't believe the shape and size of one leg compared to the other. My right leg looks like a bow-legged tree trunk.Have to go now Love and Hugs Carolyn Grandma Hen--------------------------------------------------------------------Get a NextCard Visa, in 30 seconds!1. Fill in the brief application2. Receive approval decision within 30 seconds3. Get rates as low as 2.9% Intro or 9.9% Ongoing APR and no annual fee!1/7873/6/_/817445/_/966495090/--------------------------------------------------------------------|e>-The Being Sick CommunitySharing our resources:-Add a website URL you think may help another, or even add a link to your own webpage. Chat:- Scheduled Daily Chats at # on IRC DALnet.http://www.elderwyn.com/members/chat.htmlEgroups JAVA based chatroom for your use anytime:-chat/ (Anyone on web-tv will not be able to access java and it is very slow compared to IRC.)Memorial Page:-http://www.elderwyn.com/members/inlovingmemory.htmlMembers Lounge:-Medical resources, counselling via email, information on the daily chat times, free psychic readings and the cartoon of the day. http://www.elderwyn.com/members Members Profiles, pictures, and birthdays:-Message Archives and Digest Attachment Pictures:-messages/Promoting This Community:- Would you like people to be able to join from your webpage?promote/Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit mygroupsTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Hello Mother Hen Thank you for the info. I'm going to have to talk to my Dr. about my legs again when I see her. They are really getting the best of me. I think it is the atmosphere conditions that have such an affect on me. Don't laugh. they swell and ache just like arthritis does with the weather. Now how are you feeling? That vent today was a good one. Will YOU try to get the proper rest? I know easy for me to say. Everyone and everything is more important to you and just one more thing won't hurt. Am I right? I love you and everything you do for us. Please take care. Grandma Hen is watching you Gentle Hugs and deep love. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 I don't know if you remember Lillian, but she had lymphedema caused by a botched liposuction. So I sent off the following request to two doctors, one who was themselves a surgeon. Here is the original message I sent and their replies. I don't know if any of this information will relate to you sweeties with lymphedema but it cant hurt... ~~~~~~~ My original request... Got a lady on the support group who has ended up with lymphedema from a liposuction job gone wrong. Seems the surgeon botched it and she ended up with a axillary node dissection?? Anyhow... just wondering who the best specialist would be for her to see? Who deals with Lymph's?? (there must be an ologist for it!) ~~~~~~~~ Reply no.1 Axillary nodes are best understood by surgeons who do mastectomies and radiotherapists who give post mastectomy radiation. I'd start with the mastectomy surgeon. ~~~~~~~ Reply no.2 good general surgeon or breast surgeon ~~~~~~~ Hope this gives you some options, they are both excellent dr's published books etc... and they say the same thing... so perhaps a breast surgeon may have ways to help you? Worth investigating anyhow I am sure! Love A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Hello Sophia, Welcome the family!! A friend of Dories is always a friend of ours!! Sorry to hear of all your problems. If there is every anything I can do please feel free to ask. Please just jump in, vent, curse, send jokes, inspiration, poems ~ anything. We are here for you, you are not alone. Love Aisha. *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aishaMailing list: aishaelderwyn Being Sick: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 See if you can go to this link there is different sites to go to. hugs Helen http://www.oncolink.upenn.edu/support/lymphedema/lympho_1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Breast surgeon sounds like a good idea except for 1 small detail. My lymphedema is in my leg! LOL Little ninja chickie aka ne ----Original Message Follows---- From: " Aisha Elderwyn " <aisha@...> Reply-egroups <egroups> Subject: Re: Lymphedema Date: Fri, 18 Aug 2000 14:04:16 +1000 I don't know if you remember Lillian, but she had lymphedema caused by a botched liposuction. So I sent off the following request to two doctors, one who was themselves a surgeon. Here is the original message I sent and their replies. I don't know if any of this information will relate to you sweeties with lymphedema but it cant hurt... ~~~~~~~ My original request... Got a lady on the support group who has ended up with lymphedema from a liposuction job gone wrong. Seems the surgeon botched it and she ended up with a axillary node dissection?? Anyhow... just wondering who the best specialist would be for her to see? Who deals with Lymph's?? (there must be an ologist for it!) ~~~~~~~~ Reply no.1 Axillary nodes are best understood by surgeons who do mastectomies and radiotherapists who give post mastectomy radiation. I'd start with the mastectomy surgeon. ~~~~~~~ Reply no.2 good general surgeon or breast surgeon ~~~~~~~ Hope this gives you some options, they are both excellent dr's published books etc... and they say the same thing... so perhaps a breast surgeon may have ways to help you? Worth investigating anyhow I am sure! Love A. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 She has someone take her into the physical therapy office. Aleka16@... wrote: Lee I have a question. The lady you are taking care of that getslymphedema messages do they come in and do it or does she go to therehab or something. Just curious. Thanks Sophia--------------------------------------------------------------------Get a NextCard Visa, in 30 seconds! Apply NOW!1. Fill in the brief application2. Receive approval decision within 30 seconds3. Get rates as low as 0.0% Intro APR and no annual fee!1/7874/6/_/817445/_/966573281/--------------------------------------------------------------------|e>-The Being Sick CommunitySharing our resources:-Add a website URL you think may help another, or even add a link to your own webpage. Chat:- Scheduled Daily Chats at # on IRC DALnet.http://www.elderwyn.com/members/chat.htmlEgroups JAVA based chatroom for your use anytime:-chat/ (Anyone on web-tv will not be able to access java and it is very slow compared to IRC.)Memorial Page:-http://www.elderwyn.com/members/inlovingmemory.htmlMembers Lounge:-Medical resources, counselling via email, information on the daily chat times, free psychic readings and the cartoon of the day. http://www.elderwyn.com/members Members Profiles, pictures, and birthdays:-Message Archives and Digest Attachment Pictures:-messages/Promoting This Community:- Would you like people to be able to join from your webpage?promote/Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit mygroupsTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Hi Sophia. Welcome to the group! I joined as a caregiver to my son. I know that you've already seen for yourself what a kind, caring group of people we have here. I'm so glad you decided to become active on the list. Aleka16@... wrote: > Hi everyone My name is Sophia, I am 56 years old been overweight most > of > 35 years, had diabetes 2 for 30 years, due to Ignorance on my part I > am > having quite a few problems. I thought I was young and these thing > would > not happen to me WRONG DUH . I wish I had known then all we do now > about > diabetes and many illnesses. > I joined this list because it was brought to my attention by someone > very sweet and special i accidently met one nite ((Dorie)) I have been > > lurking and decided to join in. > I hope i got name right ne Sullivan. You caught my attention. I > have Lymphedema, had it a long time didn't know about it. I was going > to > Dallas to a wound clinic cause of wounds to my heels. I live in > Wichita > Falls about 2 hours from Dallas. Anyway the wound dr told me about > Lymphedema. He wanted me to go to Healthsouth rehab as they treat > this. > I have been going this past year for the lymph massages which open up > the lymph system and I keep them wrapped. It has helped and I will > have > to have the compression for life. I also have Bad legs weeping > especially when terribly swollen if i havent wrapped them which most > of > time they are. I just wish I had know about this long ago. Maybe legs > > would not have gotten so bad. But i has helped a lot and I wish you > luck. Let me know what the other dr says about it it would be > interesting. I understand they have not been doing Lymphedema > treatment > in Us but last 4 or 5 years. They have europe etc but here not many > doctors are aware or doing it. > I want to say this is a great bunch of courageous caring people . To > laugh. cry. share and be there for all is a wonderful blessing. > ~hugs to all from here in Texas Sophia~ > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > The Being Sick Community > > Sharing our resources:- > Add a website URL you think may help another, or even add a link to > your own webpage. > > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > http://www.elderwyn.com/members/chat.html > > Egroups JAVA based chatroom for your use anytime:- > chat/ > (Anyone on web-tv will not be able to access java and it is very slow > compared to IRC.) > > Memorial Page:- > http://www.elderwyn.com/members/inlovingmemory.html > > Members Lounge:- > Medical resources, counselling via email, information on the daily > chat times, free psychic readings and the cartoon of the day. > http://www.elderwyn.com/members > > Members Profiles, pictures, and birthdays:- > > > Message Archives and Digest Attachment Pictures:- > messages/ > > Promoting This Community:- > Would you like people to be able to join from your webpage? > promote/ > > Subscription Details:- > 1) Individual email - means that every email sent to the list you > receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your > convenience and receive no email. > > To modify your subscription settings please visit > mygroups > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to > what you believe, even if it's a tree that stands by itself. Hold on > to what you must do even, if it's a long way from here. Hold on to > your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 What is lymphedema? Marsha, Buddi (with a heart over the i) & McgiverI/M # toys2pooICQ# 41368971 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2000 Report Share Posted October 7, 2000 Sophia I am sorry you are having so much trouble right now. What is lymphodema???I dont know this one. You will be in my prayers! Hugs Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 I would suggest that she get into the shower and alternate standing underneath hot and cold sprays of water. Starting with water as hot as she can stand it, focus the spray on her lip for 15 seconds before turning off the hot water completely and focusing the cold spray of water on her lip for 15 seconds. This entire process should be done 7 times. She should do this in the morning and again at night. Hydrotherapy is very effective with all kinds of maladies, from pain to swellings to tumors. I pray that your friend will receive some relief. Blessings, Cheryl Kathy wrote: A cyber friend with oral cancer has developed lymphedema (fluid retention) of the lower lip caused by radiation. She has had several traditional procedures to try to kill this cancer...chemo, radiation, surgey to remove her tongue...she also has a feeding tube and still the cancer returns....The doctors tell her there is nothing that will ease the swelling in her lip and she will have it the rest of her life....does anyone have any herbal suggestions that she might try to ease this latest affliction? As always thanks for any help offered..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 , It's been a while. Still praying for Mel, hope he is doing better! My wife got cancer again last April or so, again. The doctors said there was nothing they could do this time. All we did for her was drinking ozonated water. In August 4 doctors said she was cancer free again with no help from any doctors. Don't know if I ever told you I had prostate problems. My dad died from prostate cancer. I don't go to doctors, but 10 years ago they said I had at least an enlarged prostate. The last several months started getting pretty bad. I feel it was cancer, because I could feel a lump, which I never felt before. I refused to apply the ozone the way your supposed to for prostate cancer, so it wasn't working for me. I decided to try apricot seeds. Within two months ALL symptoms are gone & feel like a teenager again as far as the prostate. The apricot seeds really did the trick. Many have been cured by them. I feel if Mel and your friend would just hold ozonated water in their mouths and drink lots of it, do some funneling, plus take 8-10 seeds a day the cancer would go away. I've really seen what ozone will do for any skin problem, or some close to the skin, and I'm TOTALLY sold on it. There is NOTHING it hasn't cured, if you can get the ozone to it. The lip and throat are easy to get to for ozone. Take Care , and say hi to Mel, and give him by best. Gaylen > > A cyber friend with oral cancer has developed lymphedema (fluid > retention) of the lower lip caused by radiation. She has had > several traditional procedures to try to kill this cancer...chemo, > radiation, surgey to remove her tongue...she also has a feeding tube > and still the cancer returns. Knowing what this lady has gone > through in her fight to eradicate this cancer has strengthened my > belief that my friend Melville (who has the same disease) has made > the correct choice by avoiding the medical establishment and > following alternative treatments. His quality of life these past 3 > yrs has been much better than hers. > > The doctors tell her there is nothing that will ease the swelling in > her lip and she will have it the rest of her life....does anyone > have any herbal suggestions that she might try to ease this latest > affliction? > > As always thanks for any help offered..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Thank you Cheryl, for your suggestion of hydrotherapy to reduce the lymphedema in Annie's lip. Due to the tumours on her face, I don't think she would be able to tolerate the water pressure on or near them, but of course will pass on your suggestion to her. I wonder if she would get similiar results if she alternately held hot and cold compresses to her swollen lip. I was very sorry to read that Bonnie's cancer returned Gaylen and hope that this latest remission truly is the end of her battle and that it won't once again return. I'm glad the apricot seeds seemed to work in her instance, Mel used them for about a yr when he was first diagnosed and they had no affect on his cancer...different strokes for different folks I guess. Annie can not open her mouth due to the effects of her cancer surgeries and radiation, but thanks for the suggestion of drinking ozonated water....but impossible for her to do. She doesn't believe either traditional or alternative therapies will be helpful in her advanced state and only looking for relief for her hugely swollen lip at the moment. And of course Mel can not afford to purchase an ozonator. Although we swam several times a week in ozonated water for a couple of years it had about as much affect on his cancer as the master miracle products you had such faith in awhile back and so generously sent his way. He is still kicking and confounding his doctor, but we know his future is in the Lord's hands. If anyone else has any suggestions to combat Annie's lymphedema please post them....thanks again and good health to all.... > > , > It's been a while. Still praying for Mel, hope he is doing better! > My wife got cancer again last April or so, again. The doctors said > there was nothing they could do this time. All we did for her was > drinking ozonated water. In August 4 doctors said she was cancer > free again with no help from any doctors. > Don't know if I ever told you I had prostate problems. My dad died > from prostate cancer. I don't go to doctors, but 10 years ago they > said I had at least an enlarged prostate. The last several months > started getting pretty bad. I feel it was cancer, because I could > feel a lump, which I never felt before. I refused to apply the ozone > the way your supposed to for prostate cancer, so it wasn't working > for me. I decided to try apricot seeds. Within two months ALL > symptoms are gone & feel like a teenager again as far as the > prostate. The apricot seeds really did the trick. Many have been > cured by them. > I feel if Mel and your friend would just hold ozonated water in > their mouths and drink lots of it, do some funneling, plus take 8- 10 > seeds a day the cancer would go away. I've really seen what ozone > will do for any skin problem, or some close to the skin, and I'm > TOTALLY sold on it. There is NOTHING it hasn't cured, if you can get > the ozone to it. The lip and throat are easy to get to for ozone. > Take Care , and say hi to Mel, and give him by best. > Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Hi , http://www.cancersalves.com/products/indigo_drops.html Ingrid Naiman is anexperienced and well respected herbalist. She may want to give the above-mentioned formula a try. Gubi [ ] Re: lymphedema > > > Thank you Cheryl, for your suggestion of hydrotherapy to reduce the > lymphedema in Annie's lip. Due to the tumours on her face, I don't > think she would be able to tolerate the water pressure on or near > them, but of course will pass on your suggestion to her. I wonder > if she would get similiar results if she alternately held hot and > cold compresses to her swollen lip. > > I was very sorry to read that Bonnie's cancer returned Gaylen and > hope that this latest remission truly is the end of her battle and > that it won't once again return. I'm glad the apricot seeds seemed > to work in her instance, Mel used them for about a yr when he was > first diagnosed and they had no affect on his cancer...different > strokes for different folks I guess. > > Annie can not open her mouth due to the effects of her cancer > surgeries and radiation, but thanks for the suggestion of drinking > ozonated water....but impossible for her to do. She doesn't believe > either traditional or alternative therapies will be helpful in her > advanced state and only looking for relief for her hugely swollen > lip at the moment. And of course Mel can not afford to purchase an > ozonator. Although we swam several times a week in ozonated water > for a couple of years it had about as much affect on his cancer as > the master miracle products you had such faith in awhile back and so > generously sent his way. He is still kicking and confounding his > doctor, but we know his future is in the Lord's hands. > > If anyone else has any suggestions to combat Annie's lymphedema > please post them....thanks again and good health to all.... > > > > > > , > > It's been a while. Still praying for Mel, hope he is doing > better! > > My wife got cancer again last April or so, again. The doctors said > > there was nothing they could do this time. All we did for her was > > drinking ozonated water. In August 4 doctors said she was cancer > > free again with no help from any doctors. > > Don't know if I ever told you I had prostate problems. My dad > died > > from prostate cancer. I don't go to doctors, but 10 years ago they > > said I had at least an enlarged prostate. The last several months > > started getting pretty bad. I feel it was cancer, because I could > > feel a lump, which I never felt before. I refused to apply the > ozone > > the way your supposed to for prostate cancer, so it wasn't working > > for me. I decided to try apricot seeds. Within two months ALL > > symptoms are gone & feel like a teenager again as far as the > > prostate. The apricot seeds really did the trick. Many have been > > cured by them. > > I feel if Mel and your friend would just hold ozonated water in > > their mouths and drink lots of it, do some funneling, plus take 8- > 10 > > seeds a day the cancer would go away. I've really seen what ozone > > will do for any skin problem, or some close to the skin, and I'm > > TOTALLY sold on it. There is NOTHING it hasn't cured, if you can > get > > the ozone to it. The lip and throat are easy to get to for ozone. > > Take Care , and say hi to Mel, and give him by best. > > Gaylen > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Hi Kathry, Yes, alternating hot and cold compresses will work as well. You must use water that is as hot as she can stand and then completely cold. It would probably be best to have two such bowls of water close by to where the procedure is being performed, so the switching from hot/cold can be done as quickly as possible. I think the true key here is that Annie no longer believes that anything is going to work for her. The mind is a powerful tool in both sickness and in wellness and if she has lost all hope, then probably she won't receive positive results from anything she she tries, whether allopathic or alternative. I am studying to be a master herbalist, but I'm also a great believer in the power of the mind to create illness and to recover from illness. Without knowing anything about Annie's diet, lifestyle, stress level, etc. it's hard to come to any definite conclusions. Has she done a cleanse for all of her organs? It sounds to me like she has a great deal of toxins in her body, especially since I believe you mentioned she's had radiation. Dr. Shulze has a wonderful program for the Incurables. It's very intensive and she would need someone to commit to helping her through it, but many miraculous outcomes have been achieved through this program. I will keep Annie in my prayers. I honestly believe that no situation is ever hopeless, no matter how hopeless it may appear. Blessings, Cheryl Kathy wrote: Thank you Cheryl...I wonder if she would get similiar results if she alternately held hot and cold compresses to her swollen lip. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Hi Gubi...good to see you, Mel mentioned you the other day as we watched the news,wondering how you were doing.... and thanks for your excellent suggestion. We are familiar with Ingrid and purchased her book on cancer salves a couple of yrs ago...Mel still makes up and uses some of the salves she's recommended and they do seem helpful. I forwarded the link to Annie and hopefully the drops will help her. I also passed on your excellent suggestion about hydrotherapy Cheryl. I totally agree with you that the mind plays a powerful part in a person's well being and healing. Unfortunately Annie has lost all her immediately family to cancer in the past couple of years and has been battling squamous cell cancer for several yrs now, having more than her lifetime allowable radiation, extensive surgeries and chemo and I can understand how difficult it is for her to feel hopefull that she will be cured of this cruel disease. Thanks Gubi, Gaylen and Cheryl very much for your input, greatly appreciated.... > > > > > > , > > > It's been a while. Still praying for Mel, hope he is doing > > better! > > > My wife got cancer again last April or so, again. The doctors said > > > there was nothing they could do this time. All we did for her was > > > drinking ozonated water. In August 4 doctors said she was cancer > > > free again with no help from any doctors. > > > Don't know if I ever told you I had prostate problems. My dad > > died > > > from prostate cancer. I don't go to doctors, but 10 years ago they > > > said I had at least an enlarged prostate. The last several months > > > started getting pretty bad. I feel it was cancer, because I could > > > feel a lump, which I never felt before. I refused to apply the > > ozone > > > the way your supposed to for prostate cancer, so it wasn't working > > > for me. I decided to try apricot seeds. Within two months ALL > > > symptoms are gone & feel like a teenager again as far as the > > > prostate. The apricot seeds really did the trick. Many have been > > > cured by them. > > > I feel if Mel and your friend would just hold ozonated water in > > > their mouths and drink lots of it, do some funneling, plus take 8- > > 10 > > > seeds a day the cancer would go away. I've really seen what ozone > > > will do for any skin problem, or some close to the skin, and I'm > > > TOTALLY sold on it. There is NOTHING it hasn't cured, if you can > > get > > > the ozone to it. The lip and throat are easy to get to for ozone. > > > Take Care , and say hi to Mel, and give him by best. > > > Gaylen > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 , I suspect that with 10 nodes removed, she has lost some of the lymph channels -and as a result is suceptible to accumulation and swelling (which is true). So in order to avoid a swollen arm the idea is to not do anything that may enhance what the body is going to do ANYWAY. The cells in her arm will have continued, normal catabolism for which the wastes must be removed. In MY OPINION, she does need lymphatic drainage. She should do the skin brushing, apply castor oil topically while her arm is elevated above her head. This will help the lymph drain and also rapidly enhance the healing from the surgery. This is especially important since she will be doing radiation and you want to remove ALL the destroyed cells from the area as quickly as possible. Dick Thom Beaverton, OR cancer, AI I have a 57 y/o woman, recently dx with left sided breast cancer, stage 1. She had 10 lymph nodes removed, 1 node had micrometasis. She started a series of radiation yesterday and they are also talking about putting her on tamoxifen. She was told by the lymphedema authorities that she wasn't allowed to go in the sauna/jacuzzi or get overheated since her lymphatics are compromised on her left side. I am having her do dry skin brushing towards the heart and she was told that she wasn't supposed to do that and she is confused. She was also told that she can have poor wound healing on her left side and to be extra careful. Has anyone of you heard of anything like that and what are your thoughts on it? Thanks Tan, ND, LAc Honolulu, HI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Now I need the 'experts', those that have experienced this Lymphedema problem as my daughter-in-law has just been told this is a 'real' potential for her due to the double mastectomy and lymph node involvement. What do you do, if anything, and has it helped? Joe C. Quote Link to comment Share on other sites More sharing options...
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