Re: Re: The Myths of MS~Elaine DeLack

[Guest guest]

Hi ,  I had been in a decline since 2009.  Before that I had been able

to

work.  My balance at the point to where I decided to try out prokarin was very

bad.  At times I needed a cane inside.  Outside I always needed a cane and my

husband's arm.  I was able to slowly walk distance, but it was exhausting. It

took all my strength to move.  My feet would drag on the ground with most

steps,

I could barely raise up my quads to take a step.  My body felt like I was full

of lead everywhere.  I needed assistance out of the chair 80% or more of the

time.  The weekend before I started I could barely shuffle in to Church maybe

500 feet from the closest parking space. 

My mind was so foggy that I could hardly pay bills.  I scrambled words I read

on

tv or the computer.  More so signs and the tv.  At times english sounded like

a

foreign language.  My speech slurred 8x a day or more with facial droop.  My

tounge movements were slow and my finger tapping speed.  My feet were numb up

to

my hips.  I felt like I needed a wheelchair, but was too reluctant to give in

to

the disease.  I felt too exhausted to do anything like cook, clean, etc. 

I did exercise.  It is what I saved my strength for.  I tried as hard as I

could

to exercise to keep the neuropathways working. 

I was on copaxone for a year and had 5 or more flares which the neuro basically

ignored.  Each flare would take away my ability to move a bit more.  I

received

acthar gel twice.  Predisone once.  I got worse with the predisone to the

point

I was paralyzed due to a reaction.  The acthar gel worked during the treatment

but I would loose most of the benefits when It stopped.  I felt like I needed

more dosaged to have it be effective.  They only give you 4 shots of it. 

I had felt like since dec. I was getting weaker no matter how much nutrition I

got in or exercise I did.  The prokarin has turned things around.  I was

desperate when I tried it.  The neuro though I was stupid to try it.  However

it

is working.  I can get up without assist.  I don't have the issues as severely

as before.  I still feel the ms symptoms, but they are much less.  At times it

almost feels like I don't have ms. 

Everyday before was a bad day MS wise.  Now it feels like most days are good

days.  With the exception of the pain keeping me up the other night, I am doing

great.  I did feel like a couple of days ago I was a bit more tired.  Elaine

the

RN who makes prokarin says your body has to adjust to it.  I figure the MS was

so severe that It will take time to see all the improvements. 

I walked several days 2.75 miles without assistance.  That is a big

improvement.  And I did it at a good pace.  My feet didn't drag until the

end. 

Then it was one side.  I rested a min. and it went away. 

My muscles recover quickly after exercising without that I can't walk and feet

are dragging body feels like lead.  That makes me feel good that the nerves are

communicating with the muscles better.

I still have mild symptoms.  At time I do feel a bit of heaviness, but its not

as severe.  I can still walk alone without a cane when that happens.  Its like

I

am being reborn. 

Of course it is still early to see how I will do in the long run. 

Yes, I would love the less expensive home made stuff.  If we can figure out a

way to get the products he uses that would be great.  Goodship.  I found the

dry

powder of histamine on the web, but I don't know how to caculate out the proper

dosage.  If it is the wrong dose it could be dangerous. 

 

________________________________

To: mscured

Sent: Sun, March 27, 2011 8:24:55 PM

Subject: Re: The Myths of MS~Elaine DeLack

 

I ordered the book " They said it makes no " cents " by Elaine Delack. I'll read

the book, formulate my questions, then I'll make an appointent with an MD in

Colorado who specializes in CAM treatments. I will ask him if he has ever used

this therapy first (or even heard of it) before I make the long trip. I would

really prefer to make GoodShape's recipe using H2 because of the cost. The

people on his forum are ecsatic about it. I hope you get better everyday!

How bad did you get before you tried Prokarin and what convinced you to try it?

I'm thrilled to have two successful treatments from which to choose. If the

first one doesn't help, I'll do the other next!

People on this forum were talking about it in 2000!

>

> Today I did a 54 min. barre workout.  I continue to add a bit of time to my

> workouts as I can.  We did not walk due to rain.  My strength is much

better

> than it has been in months.  Honestly I am not making it up.  

[Guest guest]

Her website explains how to get it in europe. 

http://edmsllc.com/pharmacies.htm

________________________________

To: mscured

Sent: Mon, March 28, 2011 7:53:34 AM

Subject: Re: The Myths of MS~Elaine DeLack

 

I believe it has to be ordered in the US but it is shipped all over the world.

It takes a doctor's prescription. Call EDMS at (360)654-0448 or email them at

medelack@.... Their website is http://www.edmsllc.com/

>

> I have sent quite a few postings asking if anyone knows how you can get

> prokarin in the uk but had no replies. PLEASE does anybody have any

> answers to this?

>

> judith

[Guest guest]

Type in a search for histamine and you will find lots of supplies in japan,

china who sell it. 

The problem is what is being sold and what he uses in his recipie is

different. 

He uses a liquid. 

One would have to be able to figure out how to mix the powder with liquid to

create a strength that he uses in his recipie. It is not the same formula as

what goodshape uses.  He has a premixed liquid from a pharmacy.

If you don't have the knowledge to do that, then you would be at risk of causing

death with an overdose.  Too much histamine is bad and could cause reactions. 

Are you willing to experiment with the unknown???   

Do a search for it and you will find it. 

________________________________

To: mscured

Sent: Sun, March 27, 2011 10:35:22 PM

Subject: Re: The Myths of MS~Elaine DeLack

 

I didn't have a lot of those symptoms (at least I don't remember them) but my

mobility went early on. I had balance issues where I had trouble walking through

an open door. Hot showers wiped me out and I had to turn the water to cold just

to be able to get out. For several years I was in basically atrophied. I was

living in a motorhome behind my shop in my parent's backyard. I sat in a chair

all day. Now I live in my own room and I have a powerchair that allows me the

freedom to move. I did have a bit of fatigue but it was insignificant and I only

remember that it happened. I don't remember what it felt like.

Where did you find the powder that you can get it online? GoodShape's source

requires a prescription. I posted his instructions on how to mamake a patchless

version.

>

> Hi ,  I had been in a decline since 2009.  Before that I had been

able

>to

>

> work.  My balance at the point to where I decided to try out prokarin was

very

>

> bad. 

[Guest guest]

I've been researching Prokarin since Joy reported her incredible recovery, which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All the

positive testimonials seem to be tied back to Elaine's company and the pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much as

a treatment strategy--but if it works and has no major adverse effects then I'd

be willing to do it.

[Guest guest]

How much does the Tahoma Clinic charge to write the script?

________________________________

To: mscured

Sent: Mon, March 28, 2011 3:44:05 PM

Subject: Re: The Myths of MS~Elaine DeLack

Â

I got this response from the GoodShape group:

You might try

Mon Mar 28, 2011 15:26

74.93.75.65

a phone consult with the Tahoma Clinic. Ellis is the naturopath there. I do

think that Dr. actually fills the prescriptions. That's

how I did it. I then used the Custom Rx Prescription Shop and they have an offer

for the first month free. All that cost me was the $25.00 shipping.

I called, they directed me to another number and they are sending a form by

email for me to fill out.

[Guest guest]

I am not associated with that company. I found her on the web awhile back but

didn't try her stuff until I was despreate. I felt like I was steps away from

beng wheelchair bound. I felt like my life, my brain was slipping away. I am

so grateful she has made her research and product availabe for purchase.Â

I walked 3.5 miles today. My balance was off today, but my ear pressure has

increased. It feels very full. Its harder to hear. I also did an hour of

exercise dvd.Â

Â

________________________________

To: mscured

Sent: Mon, March 28, 2011 8:49:14 PM

Subject: Re: The Myths of MS~Elaine DeLack

Â

It's tied to Elaine DeLack because no-one else makes it except for the people on

GoodShape who make their own and compounding pharmacies. She has no company,

just a non-profit LLC that helps people get it. It isn't promoted as a cure and

Elaine has used it for 14 years on herself. She developed Procarin/Prokarin for

herself and shared her findings with the rest of us. She was not out to make a

huge profit. The FDA wouldn't approve it, drug companies wouldn't study it or

manufacture it because they couldn't make any money with it. They were already

making billions of dollars promoting the theory of autoimmunity and selling

Interferons! You can get this from a compounding pharmacy if you get a

prescription. I listed some sources. I haven't read any negative comments but

I'm not saying that it has worked for everyone. Some people were falsly

diagnosed with MS and Prokarin will not help them.

>

> I've been researching Prokarin since Joy reported her incredible recovery,

>which

>

> frankly is one of the quickest most dramatic turnarounds I have

> heard--especially for the speed of improvements.

[Guest guest]

When the disc runs low on medication you feel the symptoms coming back. I used

mine for two days. On the evening of the second day you feel a bit worse. In

the morning you feel a weaker. Then you put a new patch on and you feel better

within a few hours. Its not like taking provigil for enegry. It does more as

it helps with so many more symptoms.Â

Again it is too early to see if the results will hold up or fade away. I only

pray they stay.Â

________________________________

To: mscured

Sent: Mon, March 28, 2011 7:17:10 PM

Subject: Re: Re: The Myths of MS~Elaine DeLack

Â

I've been researching Prokarin since Joy reported her incredible recovery, which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All the

positive testimonials seem to be tied back to Elaine's company and the pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much as

a treatment strategy--but if it works and has no major adverse effects then I'd

be willing to do it.

[Guest guest]

I have been diagnosed with MS since 1984 and have done well without any drugs

other than LDN.

A number o years ago " Prokarin " was all the rage and supposed to be " THE "

miracle cure. However, it is not that. It may help some then again it may not.

So go slow, be careful and educate yourself.

Regards,

Tom Bayuk

www.thomasbayuk.com

Re: Re: The Myths of MS~Elaine DeLack

I've been researching Prokarin since Joy reported her incredible recovery,

which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All

the

positive testimonials seem to be tied back to Elaine's company and the

pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere

of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective

for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who

is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that

Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much

as

a treatment strategy--but if it works and has no major adverse effects then

I'd

be willing to do it.

[Guest guest]

Thanks for your measured response Tom

Subject: Re: Re: The Myths of MS~Elaine DeLack

To: mscured

Received: Wednesday, 30 March, 2011, 1:46 AM

Â

I have been diagnosed with MS since 1984 and have done well without any drugs

other than LDN.

A number o years ago " Prokarin " was all the rage and supposed to be " THE "

miracle cure. However, it is not that. It may help some then again it may not.

So go slow, be careful and educate yourself.

Regards,

Tom Bayuk

www.thomasbayuk.com

Re: Re: The Myths of MS~Elaine DeLack

I've been researching Prokarin since Joy reported her incredible recovery, which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All the

positive testimonials seem to be tied back to Elaine's company and the pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much as

a treatment strategy--but if it works and has no major adverse effects then I'd

be willing to do it.

[Guest guest]

that is what I told the neuro. He wanted to keep me on copaxone and the other

pills taken to help with pain and spasitity. I told him I would continue to

get

worse unless there was a change in my path or plan of care. The definition of

insanity is doing the same thing over and over again expecting different results

I told the neuro. Then I demanded the prokarin.Â

Today I walked 3.15 miles an all time new record for me.Â

________________________________

To: mscured

Sent: Tue, March 29, 2011 11:21:38 AM

Subject: Re: The Myths of MS~Elaine DeLack

Â

The use of Prokarin was never promoted as a cure. Elaine Delack has used it for

14 years. It does not work for everyone because not everyone was correctly

diagnosed. Histamine occurs naturally in the body and this product is not a

chemical drug. LDN is not a cure either and neither is CCSVI. The only guarantee

is that if you do the same thing you will not see different results. There is

plenty of literature available to study Procarin/Prokarin and making the

decision to try it is up to you. The same goes with any therapy.

>

> Thanks for your measured response Tom

>

[Guest guest]

I don't think prokarin is a miracle cure.Â

However, it is very helpful with decreasing my symptoms. I only hope it helps

others as well as it is helping me. That is why I though I would tell everyone

my improvements. I plan on continuing it due to the results.Â

________________________________

To: mscured

Sent: Tue, March 29, 2011 7:46:07 AM

Subject: Re: Re: The Myths of MS~Elaine DeLack

Â

I have been diagnosed with MS since 1984 and have done well without any drugs

other than LDN.

A number o years ago " Prokarin " was all the rage and supposed to be " THE "

miracle cure. However, it is not that. It may help some then again it may not.

So go slow, be careful and educate yourself.

Regards,

Tom Bayuk

www.thomasbayuk.com

Re: Re: The Myths of MS~Elaine DeLack

I've been researching Prokarin since Joy reported her incredible recovery, which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All the

positive testimonials seem to be tied back to Elaine's company and the pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much as

a treatment strategy--but if it works and has no major adverse effects then I'd

be willing to do it.

[Guest guest]

I think there was a misconception about it being a cure because some people in

their testimonials, on other sites, said that it remyelinates the nerves. That

is probably an incorrect statement, else after a while it should be able to be

stopped instead of being an ongoing treatment.

I think like said if someone has tried lots of other things and still

has symptoms than it's worth trying other things. Prokarin probably has less

risks than CCSVI, in terms of the restonis issue.

My point being just that I do agree with idea of keep trying different things if

the same things aren't working. I just think we can't go over the moon over

excitement with everything that comes along.

________________________________

To: mscured

Sent: Tue, March 29, 2011 8:58:28 PM

Subject: Re: Re: The Myths of MS~Elaine DeLack

I don't think prokarin is a miracle cure.

However, it is very helpful with decreasing my symptoms. I only hope it helps

others as well as it is helping me. That is why I though I would tell everyone

my improvements. I plan on continuing it due to the results.

[Guest guest]

Now that I can get the med covered I will use a new patch daily. I am really

excited to see what happens.Â

________________________________

To: mscured

Sent: Tue, March 29, 2011 12:12:12 AM

Subject: Re: Re: The Myths of MS~Elaine DeLack

Â

When the disc runs low on medication you feel the symptoms coming back. I used

mine for two days. On the evening of the second day you feel a bit worse. In

the morning you feel a weaker. Then you put a new patch on and you feel better

within a few hours. Its not like taking provigil for enegry. It does more as

it helps with so many more symptoms.Â

Again it is too early to see if the results will hold up or fade away. I only

pray they stay.Â

________________________________

To: mscured

Sent: Mon, March 28, 2011 7:17:10 PM

Subject: Re: Re: The Myths of MS~Elaine DeLack

Â

I've been researching Prokarin since Joy reported her incredible recovery, which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All the

positive testimonials seem to be tied back to Elaine's company and the pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much as

a treatment strategy--but if it works and has no major adverse effects then I'd

be willing to do it.

[Guest guest]

Alan,

As I recall the " Goodshape " website had a formula for Prokarin That was very

inexpensive. However, that was about 8 or 10 yrs ago....Since that time

thankfully I have done reasonably well using LDN, vitamins, essential fatty

acids, stretching, etc.

Regards,

Tom

Re: Re: The Myths of MS~Elaine DeLack

I have been diagnosed with MS since 1984 and have done well without any drugs

other than LDN.

A number o years ago " Prokarin " was all the rage and supposed to be " THE "

miracle cure. However, it is not that. It may help some then again it may not.

So go slow, be careful and educate yourself.

Regards,

Tom Bayuk

[Guest guest]

That is why it is best to talk to those involved with their treatment of ms.

Everyone is so different it is good to learn of others and their success's. We

are all interested in improvement and most things are worth trying.

Regards,

Tom

Re: Re: The Myths of MS~Elaine DeLack

I've been researching Prokarin since Joy reported her incredible recovery,

which

frankly is one of the quickest most dramatic turnarounds I have

heard--especially for the speed of improvements.

In researching Prokarin, I have found mixed things in the testimonials. All

the

positive testimonials seem to be tied back to Elaine's company and the

pharmacy

she works with, which makes me wonder about marketing issues. I am not saying

that refutes her treatment, but I did find a number of testimonials elsewhere

of

people who reported none to minimal improvements from the treatment and even

in the small placebo-controlled study that was done where there was a placebo

group, they said the only difference was that the Prokarin group had a little

less fatigue than the placebo group. I have not read too much yet on the

goodshape site except I think it said that they no longer are able to send the

free bottles. I also have been reading that this treatment is only effective

for

those who are heat intolerant, which am not.

That said, I am still thinking of giving it a try if I can find a doctor who

is

willing to write the prescription. I think it might be a little challenging to

find such a doc because I think Prokarin is not FDA approved and very few docs

are familiar with it.

I figure I could try it for a month. If I could get the kind of results that

Joy

got, it would be worth it.

Of note, in the testimonials I read the people invariably state that they have

to wear the patch every day otherwise the symptoms start to come back within a

day or two or three. Hence this does not seem to be a healing remedy so much

as

a treatment strategy--but if it works and has no major adverse effects then

I'd

be willing to do it.

[Guest guest]

Does anyine know where you can get prokariin Britain please

judith

From: mscured [mailto:mscured ] On Behalf Of joy

inspired

Sent: Wednesday, March 30, 2011 4:56 AM

To: mscured

Subject: Re: Re: The Myths of MS~Elaine DeLack

Thank you. It is such a blessing. I can now afford to put on one patch every

day instead of stretching it out trying to make it last !!! I am so thrilled.

Now if everyone else can have such luck with there insurance.

________________________________

From: <alpdesigns1@... <mailto:alpdesigns1%40yahoo.com> >

To: mscured <mailto:mscured%40yahoogroups.com>

Sent: Tue, March 29, 2011 6:46:01 PM

Subject: Re: The Myths of MS~Elaine DeLack

I'm excited for you!

>

> Now that I can get the med covered I will use a new patch daily. I am really

> excited to see what happens.Â