Re: The Myths of MS~Elaine DeLack

[Guest guest]

Today I did a 54 min. barre workout.  I continue to add a bit of time to my

workouts as I can.  We did not walk due to rain.  My strength is much better

than it has been in months.  Honestly I am not making it up.   We walked 2.75

miles a few days ago which is a longer amount and length of the walk.  The

speed

was brisk until the very end which is a hill.  The last 50 feet I slowed down

and rested a tiny bit.  The good leg started dragging.  I have a bioness for

the

other side.  It took maybe 30 sec. to a min. for it to recover and I was able

to

walk again without dragging it. 

When I workout the muscle recover faster.  I don't always have the issues of it

being hard to walk after you exercise.  My body used to shut down or sometimes

It would wear me out so badly I would fall asleep.  I still keep exercising due

to the importance of it.  My balance feels normal with an occasional balance

check. That is rare though.

I still get the burning in the foot.  I was awake acouple of nights with it due

to the intensity, but that is not new.

The fingers work better when typing.  My alertness is great.  The muscle

spasms

are gone.  The spasitiy was severe before is gone. 

I have had days when it hasn't been as good but that was when the neuropathy was

at the worse.  I just wasn't as perky.  So the ms still is going up and down

in

symptoms.  Even when it is a bad day, I can still function where as before it

was so severe I couldn't.  There is improvement that is quite impressive.  I

have also stretched out the patches and saved them to use them two days in a

row.  I know they say to change it, but its so expensive and I don't have much

income due to ssi. 

My patch today was reused and I still did great.  I am hoping I can continue to

get two days out of a patch.

________________________________

To: mscured

Sent: Sun, March 27, 2011 7:24:53 PM

Subject: The Myths of MS~Elaine DeLack

 

I guess I'm the only person here today and I haven't had anyone to discuss this

with. Watch this video (1 of 9 parts, all of which can be found at this link)

and determine if any of this makes sense. I agree with the statement that she

makes towards the end that, in her opinion, it doesn't matter what the tests

(MRIs) show if the quality of your life does not reflect them. She does not

think that MS is auto-immune and she discusses why using logic. Gee, that's a

new approach! I think Prokarin is worth pursuing based on the videos I saw

today. CCSVI may be a result of histamine phosphate deficiency, not the cause of

MS. Gotta research some more.

[Guest guest]

I ordered the book " They said it makes no " cents " by Elaine Delack. I'll read

the book, formulate my questions, then I'll make an appointent with an MD in

Colorado who specializes in CAM treatments. I will ask him if he has ever used

this therapy first (or even heard of it) before I make the long trip. I would

really prefer to make GoodShape's recipe using H2 because of the cost. The

people on his forum are ecsatic about it. I hope you get better everyday!

How bad did you get before you tried Prokarin and what convinced you to try it?

I'm thrilled to have two successful treatments from which to choose. If the

first one doesn't help, I'll do the other next!

People on this forum were talking about it in 2000!

>

> Today I did a 54 min. barre workout.  I continue to add a bit of time to my

> workouts as I can.  We did not walk due to rain.  My strength is much better

> than it has been in months.  Honestly I am not making it up.  

[Guest guest]

I didn't have a lot of those symptoms (at least I don't remember them) but my

mobility went early on. I had balance issues where I had trouble walking

through an open door. Hot showers wiped me out and I had to turn the water to

cold just to be able to get out. For several years I was in basically

atrophied. I was living in a motorhome behind my shop in my parent's backyard.

I sat in a chair all day. Now I live in my own room and I have a powerchair that

allows me the freedom to move. I did have a bit of fatigue but it was

insignificant and I only remember that it happened. I don't remember what it

felt like.

Where did you find the powder that you can get it online? GoodShape's source

requires a prescription. I posted his instructions on how to mamake a patchless

version.

>

> Hi ,  I had been in a decline since 2009.  Before that I had been

able to

> work.  My balance at the point to where I decided to try out prokarin was

very

> bad. 

[Guest guest]

I have sent quite a few postings asking if anyone knows how you can get

prokarin in the uk but had no replies. PLEASE does anybody have any

answers to this?

judith

________________________________

From: mscured [mailto:mscured ] On Behalf

Of joy inspired

Sent: Monday, March 28, 2011 3:43 AM

To: mscured

Subject: Re: The Myths of MS~Elaine DeLack

Today I did a 54 min. barre workout. I continue to add a bit of time to

my

workouts as I can. We did not walk due to rain. My strength is much

better

than it has been in months. Honestly I am not making it up. We walked

2.75

miles a few days ago which is a longer amount and length of the walk.

The speed

was brisk until the very end which is a hill. The last 50 feet I slowed

down

and rested a tiny bit. The good leg started dragging. I have a bioness

for the

other side. It took maybe 30 sec. to a min. for it to recover and I was

able to

walk again without dragging it.

When I workout the muscle recover faster. I don't always have the

issues of it

being hard to walk after you exercise. My body used to shut down or

sometimes

It would wear me out so badly I would fall asleep. I still keep

exercising due

to the importance of it. My balance feels normal with an occasional

balance

check. That is rare though.

I still get the burning in the foot. I was awake acouple of nights with

it due

to the intensity, but that is not new.

The fingers work better when typing. My alertness is great. The muscle

spasms

are gone. The spasitiy was severe before is gone.

I have had days when it hasn't been as good but that was when the

neuropathy was

at the worse. I just wasn't as perky. So the ms still is going up and

down in

symptoms. Even when it is a bad day, I can still function where as

before it

was so severe I couldn't. There is improvement that is quite

impressive. I

have also stretched out the patches and saved them to use them two days

in a

row. I know they say to change it, but its so expensive and I don't

have much

income due to ssi.

My patch today was reused and I still did great. I am hoping I can

continue to

get two days out of a patch.

________________________________

From: <alpdesigns1@... <mailto:alpdesigns1%40yahoo.com> >

To: mscured <mailto:mscured%40yahoogroups.com>

Sent: Sun, March 27, 2011 7:24:53 PM

Subject: The Myths of MS~Elaine DeLack

I guess I'm the only person here today and I haven't had anyone to

discuss this

with. Watch this video (1 of 9 parts, all of which can be found at this

link)

and determine if any of this makes sense. I agree with the statement

that she

makes towards the end that, in her opinion, it doesn't matter what the

tests

(MRIs) show if the quality of your life does not reflect them. She does

not

think that MS is auto-immune and she discusses why using logic. Gee,

that's a

new approach! I think Prokarin is worth pursuing based on the videos I

saw

today. CCSVI may be a result of histamine phosphate deficiency, not the

cause of

MS. Gotta research some more.

[Guest guest]

hi judith, me too posted but no replies so assume not available in the uk, below

reply from overseas that supply overseas

but if anybody can help re uk be grateful

QUOTE

Dear ,

 

Thank you for your enquiry about Prokarin.  We do require a prescription from

your physician, which we will have authorized by a Canadian physician for a fee

of $10.00.

 

The Medicine Shoppe Pharmacy, Toronto, Canada is licensed to compound and ship

Prokarin worldwide with the exception of the USA.

 

Prokarin is a Transdermal Disc that can be self-administered.  If you would

like additional information about Prokarin we would suggest that you visit the

website of the developer of Prokarin at www.edmsllc.com.

 

We have shipped Prokarin to many countries in Central and Eastern Europe, the

Middle East, Asia and Africa.  We do advise that it would be prudent for you to

check with the Customs and Excise Authorities in your country if it is possible

to import Prokarin, as some countries do not allow the importation of medicines

that are not available locally.

 

The cost of the Prokarin discs is $250.00 Canadian for a 4 week supply, PLUS all

of the shipping costs involved.  Shipping costs vary from country to country,

once an order has been received we then contact our shipping company to request

a quotation from them for shipping costs, which we then inform you of. 

Shipping costs to most European capital cities is approximately $50.00-$70.00. 

We ship with DHL Worldwide Express, delivery time is normally 2-3 days.

 

Once your order has been placed with us, we will need a physical street address

for the delivery (Not a post office box) with a telephone number (fax number as

well if it is available).

 

Payment for Prokarin is made to The Medicine Shoppe Pharmacy either by credit

card, which is the best and most convenient form of payment, or by a direct wire

transfer to our bank in Toronto.  When payment in full has been received, we

will ship the Prokarin to you.

 

Honiball

THE MEDICINE SHOPPE PHARMACY

2917 Bloor Street West

Toronto, ON   M8X 1B4

T:

F:

 

 

 

To: mscured

Sent: Monday, 28 March 2011, 9:31

Subject: RE: The Myths of MS~Elaine DeLack

 

I have sent quite a few postings asking if anyone knows how you can get

prokarin in the uk but had no replies. PLEASE does anybody have any

answers to this?

judith

________________________________

From: mscured [mailto:mscured ] On Behalf

Of joy inspired

Sent: Monday, March 28, 2011 3:43 AM

To: mscured

Subject: Re: The Myths of MS~Elaine DeLack

Today I did a 54 min. barre workout. I continue to add a bit of time to

my

workouts as I can. We did not walk due to rain. My strength is much

better

than it has been in months. Honestly I am not making it up. We walked

2.75

miles a few days ago which is a longer amount and length of the walk.

The speed

was brisk until the very end which is a hill. The last 50 feet I slowed

down

and rested a tiny bit. The good leg started dragging. I have a bioness

for the

other side. It took maybe 30 sec. to a min. for it to recover and I was

able to

walk again without dragging it.

When I workout the muscle recover faster. I don't always have the

issues of it

being hard to walk after you exercise. My body used to shut down or

sometimes

It would wear me out so badly I would fall asleep. I still keep

exercising due

to the importance of it. My balance feels normal with an occasional

balance

check. That is rare though.

I still get the burning in the foot. I was awake acouple of nights with

it due

to the intensity, but that is not new.

The fingers work better when typing. My alertness is great. The muscle

spasms

are gone. The spasitiy was severe before is gone.

I have had days when it hasn't been as good but that was when the

neuropathy was

at the worse. I just wasn't as perky. So the ms still is going up and

down in

symptoms. Even when it is a bad day, I can still function where as

before it

was so severe I couldn't. There is improvement that is quite

impressive. I

have also stretched out the patches and saved them to use them two days

in a

row. I know they say to change it, but its so expensive and I don't

have much

income due to ssi.

My patch today was reused and I still did great. I am hoping I can

continue to

get two days out of a patch.

________________________________

From: <alpdesigns1@... <mailto:alpdesigns1%40yahoo.com> >

To: mscured <mailto:mscured%40yahoogroups.com>

Sent: Sun, March 27, 2011 7:24:53 PM

Subject: The Myths of MS~Elaine DeLack

I guess I'm the only person here today and I haven't had anyone to

discuss this

with. Watch this video (1 of 9 parts, all of which can be found at this

link)

and determine if any of this makes sense. I agree with the statement

that she

makes towards the end that, in her opinion, it doesn't matter what the

tests

(MRIs) show if the quality of your life does not reflect them. She does

not

think that MS is auto-immune and she discusses why using logic. Gee,

that's a

new approach! I think Prokarin is worth pursuing based on the videos I

saw

today. CCSVI may be a result of histamine phosphate deficiency, not the

cause of

MS. Gotta research some more.

[Guest guest]

I believe it has to be ordered in the US but it is shipped all over the world.

It takes a doctor's prescription. Call EDMS at (360)654-0448 or email them at

medelack@.... Their website is http://www.edmsllc.com/

>

> I have sent quite a few postings asking if anyone knows how you can get

> prokarin in the uk but had no replies. PLEASE does anybody have any

> answers to this?

>

> judith

[Guest guest]

He used a powder and made the solution. It isn't just histamine, it is

histamine phosphate (H2). He gave specific instructions on how to make it on

his website, including the container he used. I found H2 at Spectrum Chemical

Mfg. but it is back-ordered until May and you have to have a license to order

it.

>

> Type in a search for histamine and you will find lots of supplies in japan,

> china who sell it. 

[Guest guest]

www.aeholland.com/prokarindrinfo.pdf

Good information on the science behind the hypothesis.

>

> He used a powder and made the solution. It isn't just histamine, it is

histamine phosphate (H2). He gave specific instructions on how to make it on

his website, including the container that he used. I found H2 at Spectrum

Chemical Mfg. but it is back-ordered until May and you have to have a license to

order it.

[Guest guest]

This pharmacy no longer compounds any drugs.

> >

> > He used a powder and made the solution. It isn't just histamine, it is

histamine phosphate (H2). He gave specific instructions on how to make it on

his website, including the container that he used. I found H2 at Spectrum

Chemical Mfg. but it is back-ordered until May and you have to have a license to

order it.

>

[Guest guest]

I got this response from the GoodShape group:

You might try

Mon Mar 28, 2011 15:26

74.93.75.65

a phone consult with the Tahoma Clinic. Ellis is the naturopath there. I do

think that Dr. actually fills the prescriptions. That's

how I did it. I then used the Custom Rx Prescription Shop and they have an offer

for the first month free. All that cost me was the $25.00 shipping.

I called, they directed me to another number and they are sending a form by

email for me to fill out.

[Guest guest]

>

>You wrote...>

> I guess I'm the only person here today and I haven't had anyone to discuss

this with. Watch this video (1 of 9 parts, all of which can be found at this

link) and determine if any of this makes sense. >

>

Awesome, I've been keeping an eye on this topic since it arose and so

I'm really pleased you posted the link, it makes for compelling viewing.

I'll be most interested in how you get on with it and will be waiting for any

updates in the UK if anyone orders it in?

good luck to everyone : )

[Guest guest]

I left a message with Elaine Delack and today she called me back. She gave me

the name of another doctor who does phone consultations and he even uses Skype

(which is great for overseas calls). His name is Kurt Woeller and he can be

found at StillPoint.com. The Custom Rx Shoppe in Washington is who she

recommends as the compounding pharmacy. They still offer a free one month trial

but I don't know the conditions or the fee for the consultation.

We talked for a few minutes and she asked me if I had the basic MS symptoms of

heat intolerence and balance problems. Because I do, she thought that I would

benefit from Prokarin. How well I do with it depends on my ability and

willingness to follow instructions. I now have two sources (which I have posted)

to get the patch that she referred to as " discs " . She has used it for 14 years

and is still doing well.

Her thoughts on CCSVI were guarded. She thinks its too new to know much about

it. She did say that she doesn't think it's the cause of MS but she hopes that

it helps those who've had the Liberation Therapy done.

>.

>

> Awesome, I've been keeping an eye on this topic since it arose and so

I'm really pleased you posted the link, it makes for compelling viewing.

> I'll be most interested in how you get on with it and will be waiting for any

updates in the UK if anyone orders it in?

>

> good luck to everyone : )

>

>

>

[Guest guest]

Correction. Dr. Woeller can be found at http://www.mystillpoint.com/

>

> I left a message with Elaine Delack and today she called me back. She gave me

the name of another doctor who does phone consultations and he even uses Skype

(which is great for overseas calls). His name is Kurt Woeller and he can be

found at StillPoint.com. The Custom Rx Shoppe in Washington is who she

recommends as the compounding pharmacy.

[Guest guest]

I don't know yet. They sent an application online and I haven't had a chance to

send it back. It has to be approved before the consultation to see if I'm a

candidate for a phone consult.

>

>

>

>

>

>

>

>

[Guest guest]

It's tied to Elaine DeLack because no-one else makes it except for the people on

GoodShape who make their own and compounding pharmacies. She has no company,

just a non-profit LLC that helps people get it. It isn't promoted as a cure and

Elaine has used it for 14 years on herself. She developed Procarin/Prokarin for

herself and shared her findings with the rest of us. She was not out to make a

huge profit. The FDA wouldn't approve it, drug companies wouldn't study it or

manufacture it because they couldn't make any money with it. They were already

making billions of dollars promoting the theory of autoimmunity and selling

Interferons! You can get this from a compounding pharmacy if you get a

prescription. I listed some sources. I haven't read any negative comments but

I'm not saying that it has worked for everyone. Some people were falsly

diagnosed with MS and Prokarin will not help them.

>

> I've been researching Prokarin since Joy reported her incredible recovery,

which

> frankly is one of the quickest most dramatic turnarounds I have

> heard--especially for the speed of improvements.

[Guest guest]

The use of Prokarin was never promoted as a cure. Elaine Delack has used it for

14 years. It does not work for everyone because not everyone was correctly

diagnosed. Histamine occurs naturally in the body and this product is not a

chemical drug. LDN is not a cure either and neither is CCSVI. The only guarantee

is that if you do the same thing you will not see different results. There is

plenty of literature available to study Procarin/Prokarin and making the

decision to try it is up to you. The same goes with any therapy.

>

> Thanks for your measured response Tom

>

[Guest guest]

I'm excited for you!

>

> Now that I can get the med covered I will use a new patch daily. I am really

> excited to see what happens.Â

[Guest guest]

I posted the website. The difficulty is procurring the histamine phosphate.

>

> Alan,

> As I recall the " Goodshape " website had a formula for Prokarin That was very

inexpensive. However, that was about 8 or 10 yrs ago....Since that time

thankfully I have done reasonably well using LDN, vitamins, essential fatty

acids, stretching, etc.

> Regards,

> Tom

[Guest guest]

Watch the Elaine DeLack videos that I posted. She talks about the myelin

degeneration hypothesis. I have two small lesions on my spine and I don't walk.

Some people have many of them and they don't have MS. It might be that

neurotransmitters (like cyclic AMP) are more important than what we think. She

says there is no cure because you have to keep supplementing (in the her case

with Prokarin) or the symptoms return. CCSVI isn't cure either. It's high on my

list of treatment though. At some point you have to decide if feeling good with

the treatment is good enough. For me it is. I will likely always have MS.

--- In mscured , Alan Samston wrote

>

> I think there was a misconception about it being a cure because some people in

> their testimonials, on other sites, said that it remyelinates the nerves. That

>

>

>

>

[Guest guest]

I posted two places to get a phone consultation and a compounding pharmacy who

takes insurance and ships the disc.

>

>

>

>

>

> Does anyine know where you can get prokariin Britain please

>

> judith