Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Where do you get prokarin from please judith ________________________________ From: mscured [mailto:mscured ] On Behalf Of joy inspired Sent: Thursday, March 24, 2011 5:17 AM To: mscured Subject: Re: Re Prokarin I am also overweight, but the dose is the same for everyone. I emailed it to you. 1.65 mg. of prokarin. 1 disk a day to be taken off at night so the body can reset. Elaine the Rn who created it eventually went up to two patches a day. I exercise and am loosing weight slowly. That is why I use sparkpeople to track my progress, nutritional intake, journal my symptoms and exercise I do. They have several ms teams for support of over 800? people or so. It has been helpful. I didn't realize I wasn't getting enough protein. Now my diet is more balanced. When my protein intake went up my hair stopped falling out. Now it is correct in the bloodwork also. The prokarin does help with the fatigue. When I started exercising I did it slowly. 1000 steps per hour off and on during the day to build strength and endurance. Increasing as I was able to. Then I added in other workouts with resistance bands doing powerfit by stephanie hucklebee. They are maybe 5 dvds for about $20.00 that take 20 min. a day that are low inpact and fairly doable for people with ms. Then I advanced to barre workouts which are tougher. They work the butt, glute, hamstrings, quads mostly, but also have arm and ab sections too. They made a major difference with the mind body connection. Before it felt like the quads and glutes weren't working when I walked up hills. After doing the workouts I can think engage or they automatically start working when I walk. Before they wern't getting the message to work as a team. Barre is the best workout that I have found. Its no impact, has cardio and is very effective. It helps with strength, balance, and flexibility. I know it sounds like a dumb workout, but it has helped reverse atrophy in my bad leg quite a bit. It used to look like dough. All pale and soft. Now it has definition, the calf has shape, you can see the muscle in the quad and calf. ________________________________ From: Alan Samston <alansamston@... <mailto:alansamston%40yahoo.com> > To: mscured <mailto:mscured%40yahoogroups.com> Sent: Wed, March 23, 2011 7:21:33 PM Subject: Re: Re Prokarin Wow I think Joy's amazing turnaround in 4 days on Prokarin is causing quite a stir. Here and there I have read such stories of QUICK turnaround whether it be with Prokarin, Calcium EAP intravenous injections, Klenner, or CCSVI. But of course often within each of these modalities, there are others who have moderate, minimal or no improvements. I am interested in trying to Prokarin based on Joy's experience and like others trying to find out where to get it, how to use it, and a doctor who will write the script here in the U.S.A. Another thing I think we need to find out is whether there is any contraindication between CCSVI and Prokarin, for those of us who want to do both. Also I read that Prokarin used to be in a patch but not is a a disc, but some people are reporting that the previous patch worked better than the disc. So that is another question. I am also trying to find out dosages. If we can find a doctor to write the script, exactly what does the doctor need to write on the script? If anyone can answer or give opinions on any of these questions, please let us know. Also of course it would be interesting to know if anyone else here has tried the Prokarin the past? Alan. P.S. I am overweight also even with BBD but I think it is because of lack of exercise due to the fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Please can you telll me where you get prokarin from judith ________________________________ From: mscured [mailto:mscured ] On Behalf Of joy inspired Sent: Wednesday, March 23, 2011 2:16 PM To: mscured Subject: Re: Re Prokarin Thank you I am thrilled. I just pray it lasts. I worry about the costs of it. My only income is such a small amount. Now if the creative genius of the group can figure out a way for me to afford it by making an inexpensive version I would be sooo happy. I never expected to have this kind of improvement. I can tap my fingers together fast. I havent been able to do that in years. I showed my husband. I was about 1/3 the speed of him finger movement wise. Catching a ball was hard due to slow reflexes. Two weeks ago I was about ready to give up and give in to the wheelcair in the garage. Then prokarin hit. I was shopping online for a walker. LOL. That is how bad my condition was. I am still getting the burning neuropathy in my right foot but its less intense. I hope it fixes it. I hate the burning pain. ________________________________ From: <rachael.m.thomas@... <mailto:rachael.m.thomas%40hotmail.com> > To: MSCured <mscured <mailto:mscured%40yahoogroups.com> > Sent: Wed, March 23, 2011 6:26:05 AM Subject: RE: Re Prokarin Yep - that was one of the first things I read when searching for its details. I'm an athsmatic so must be very careful of anything like this - antihistamines have the same warnings. Nothing has ever happened and they've never caused me problems, but I'm always carefully aware of the 'risks'. I'll be going ahead when I find where is best for me to get it from here in the UK. I'm so happy for your improvements Joy! It's just terriffic!! 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured <mailto:mscured%40yahoogroups.com> From: yourbeamofsunshine@... <mailto:yourbeamofsunshine%40yahoo.com> Date: Wed, 23 Mar 2011 06:20:37 -0700 Subject: Re: Re Prokarin They say you have to be careful if you have ashma on the inserts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 custom rx shoppe pharmacy in washington. There phone number is 1- ________________________________ To: mscured Sent: Thu, March 24, 2011 8:49:17 AM Subject: RE: Re Prokarin  Where do you get prokarin from please judith ________________________________ From: mscured [mailto:mscured ] On Behalf Of joy inspired Sent: Thursday, March 24, 2011 5:17 AM To: mscured Subject: Re: Re Prokarin I am also overweight, but the dose is the same for everyone. I emailed it to you. 1.65 mg. of prokarin. 1 disk a day to be taken off at night so the body can reset. Elaine the Rn who created it eventually went up to two patches a day. I exercise and am loosing weight slowly. That is why I use sparkpeople to track my progress, nutritional intake, journal my symptoms and exercise I do. They have several ms teams for support of over 800? people or so. It has been helpful. I didn't realize I wasn't getting enough protein. Now my diet is more balanced. When my protein intake went up my hair stopped falling out. Now it is correct in the bloodwork also. The prokarin does help with the fatigue. When I started exercising I did it slowly. 1000 steps per hour off and on during the day to build strength and endurance. Increasing as I was able to. Then I added in other workouts with resistance bands doing powerfit by stephanie hucklebee. They are maybe 5 dvds for about $20.00 that take 20 min. a day that are low inpact and fairly doable for people with ms. Then I advanced to barre workouts which are tougher. They work the butt, glute, hamstrings, quads mostly, but also have arm and ab sections too. They made a major difference with the mind body connection. Before it felt like the quads and glutes weren't working when I walked up hills. After doing the workouts I can think engage or they automatically start working when I walk. Before they wern't getting the message to work as a team. Barre is the best workout that I have found. Its no impact, has cardio and is very effective. It helps with strength, balance, and flexibility. I know it sounds like a dumb workout, but it has helped reverse atrophy in my bad leg quite a bit. It used to look like dough. All pale and soft. Now it has definition, the calf has shape, you can see the muscle in the quad and calf. ________________________________ From: Alan Samston <alansamston@... <mailto:alansamston%40yahoo.com> > To: mscured <mailto:mscured%40yahoogroups.com> Sent: Wed, March 23, 2011 7:21:33 PM Subject: Re: Re Prokarin Wow I think Joy's amazing turnaround in 4 days on Prokarin is causing quite a stir. Here and there I have read such stories of QUICK turnaround whether it be with Prokarin, Calcium EAP intravenous injections, Klenner, or CCSVI. But of course often within each of these modalities, there are others who have moderate, minimal or no improvements. I am interested in trying to Prokarin based on Joy's experience and like others trying to find out where to get it, how to use it, and a doctor who will write the script here in the U.S.A. Another thing I think we need to find out is whether there is any contraindication between CCSVI and Prokarin, for those of us who want to do both. Also I read that Prokarin used to be in a patch but not is a a disc, but some people are reporting that the previous patch worked better than the disc. So that is another question. I am also trying to find out dosages. If we can find a doctor to write the script, exactly what does the doctor need to write on the script? If anyone can answer or give opinions on any of these questions, please let us know. Also of course it would be interesting to know if anyone else here has tried the Prokarin the past? Alan. P.S. I am overweight also even with BBD but I think it is because of lack of exercise due to the fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 > He turned red when he wrote it out and > did it very reluctantly. He said there is no proof It works. I said back in > the 1940 a doc from mayo clinic was giving it in IVs to pts. with MS. > Congrats on your amazing improvements!!! Do the world a favor and make an appointment to see the neuro ASAP. He needs to see the rapid, remarkable changes now, while he has your last visit (and the condition you were in) fresh in his mind. Otherwise, he will rationalize it all later. Give him something that might make him think twice next time. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 The drive is just too far to go see him. He is over 4 hours away and I would have to stay overnight in a motel. He is overbooked so it is very hard to see him and the cost of the trip is expensive. If he was close I would. Yesterday it felt like the patch wasn't working a little bit less. I don't know if it was the location of the patch. I did have problems with adhesion of it. It kept falling off. I know it worked well on my chest the first few days. However I still went up stairs like I never had an issue with them from MS. Before it was almost impossible for me to get up a few steps without clinging to a rail and struggling with much work. I did a 30 min. workout inside to the the big storm that is hitting. It feels like the muscles again are getting the proper feedback to move correctly. Before at times it felt like I could move the muscle but it was hard. Now it feels like when I am exercising it that it has more strength. I do have brief periods of muscle weakness??? or like there are short times when the nerve conduction isn't as strong and the muscles fatigue or feel a bit heavy. But it is nothing like what it was before. I was getting to the point of disuse on one arm for a bit. I am reporting this so that you are aware its a progress of rebuilding still. I think the inflammation is decreaing in the neck where I have a couple of lesions as the pain is gone. My left ear always has pressure in it and feels like its full of fluid. It is decreased a tiny bit. Hopefully it takes care of that too. Overall I am still moving much better than before. When I exercise my muscles do get fatigued and wobbly, but I work out very intensly during that time. Barre workouts are kind of like doing maybe 20-30 min. of different types of squats and leg lifts to strengthen that area. I know I am rambling, but I am also analyzing too. Before I would feel fatigue and have to sit for 1/2 an hour or longer before it felt like my legs would support my weight to walk. Now they get jelly like feeling but they still work. I can walk afterwards and I can get up off the floor after stretching and doing crunches during the workout. The recovery time after exercising is decreased. I do feel caution with building up the exercise. Its hard as I do want to push myself to gain strength. I don't want to overdo it and have a set back. ________________________________ To: mscured Sent: Thu, March 24, 2011 9:36:16 AM Subject: Re: Re Prokarin  > He turned red when he wrote it out and > did it very reluctantly. He said there is no proof It works. I said back in > > the 1940 a doc from mayo clinic was giving it in IVs to pts. with MS. > Congrats on your amazing improvements!!! Do the world a favor and make an appointment to see the neuro ASAP. He needs to see the rapid, remarkable changes now, while he has your last visit (and the condition you were in) fresh in his mind. Otherwise, he will rationalize it all later. Give him something that might make him think twice next time. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 > Now it > feels like when I am exercising it that it has more strength. I do have brief > periods of muscle weakness??? or like there are short times when the nerve > conduction isn't as strong and the muscles fatigue or feel a bit heavy. But it > is nothing like what it was before. I know exactly what you are describing. When I'm having a reaction to something I'm eating (last summer, for instance, I felt like crap for about 6 weeks because of agave, took me that long to figure it out!) I can feel a definite difference when I exercise. It's odd because the muscles are exactly the same as the day before, but it takes more effort to make them do what you want and you feel weaker. Do you have a camcorder or a digital camera that takes video? If so, you could take some video and call the dr. office to get an email address where you can send it. I did that for my son's neuro when he had rheumatic fever. If not, I think it's worth at least a phone call to rave about the results you are seeing with this. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 The body feels like its repairing, but the short is still there if it makes sence. I think it will probably continue for a bit until the nerves heal more. It isn't the prokarin that is doing it. It was worse before the prokarin rather than less of it. It's is like tiny brief periods of weakness. I tried to explain to my husband when we walk it feels like the muscles are relearning how to walk at the start of the walk - they work fine but after 100 feet they start feeling normal. Its like they are slow to get moving. Or after I get out of the car after sitting they feel sluggish to move, but once I get moving everything works. Before prokarin it felt like I could barely walk 500 feet.  So this is a big improvement.  Now I have breaks from the worse of it.  I was able to walk farther today about 2.75 miles. We did a good brisk pace. I did take one tiny pause at the end of the walk. My good leg was fatigued to the point that the foot was dragging. But it only took a min. to recover. That is farther than I have walked in ages. We also did errands in and out of stores most of the day. So its been a very busy day with lots of walking for me. I am doing great. I didn't have to sit and recover after the walk. The muscles worked well when we got home. I did have a bit of dizziness, but it started at best buy. My senses everytime I go there are overwhelmed with all the lights, sounds, people, movement. Its like it is still too much to process at once. However I still walked without a cane in the store or assistance even with the dizzines. The neuro won't care about the prokarin results. He is so aganist it. ________________________________ To: mscured Sent: Thu, March 24, 2011 1:34:41 PM Subject: Re: Re Prokarin  > Now it > feels like when I am exercising it that it has more strength. I do have brief > > periods of muscle weakness??? or like there are short times when the nerve > conduction isn't as strong and the muscles fatigue or feel a bit heavy. But >it > > is nothing like what it was before. I know exactly what you are describing. When I'm having a reaction to something I'm eating (last summer, for instance, I felt like crap for about 6 weeks because of agave, took me that long to figure it out!) I can feel a definite difference when I exercise. It's odd because the muscles are exactly the same as the day before, but it takes more effort to make them do what you want and you feel weaker. Do you have a camcorder or a digital camera that takes video? If so, you could take some video and call the dr. office to get an email address where you can send it. I did that for my son's neuro when he had rheumatic fever. If not, I think it's worth at least a phone call to rave about the results you are seeing with this. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 Hi joy Please could you tell me where you got the prokarin from and was it very expensive Judith miller ________________________________ From: mscured [mailto:mscured ] On Behalf Of joy inspired Sent: Friday, March 25, 2011 2:05 AM To: mscured Subject: Re: Re: Re Prokarin The body feels like its repairing, but the short is still there if it makes sence. I think it will probably continue for a bit until the nerves heal more. It isn't the prokarin that is doing it. It was worse before the prokarin rather than less of it. It's is like tiny brief periods of weakness. I tried to explain to my husband when we walk it feels like the muscles are relearning how to walk at the start of the walk - they work fine but after 100 feet they start feeling normal. Its like they are slow to get moving. Or after I get out of the car after sitting they feel sluggish to move, but once I get moving everything works. Before prokarin it felt like I could barely walk 500 feet. So this is a big improvement. Now I have breaks from the worse of it. I was able to walk farther today about 2.75 miles. We did a good brisk pace. I did take one tiny pause at the end of the walk. My good leg was fatigued to the point that the foot was dragging. But it only took a min. to recover. That is farther than I have walked in ages. We also did errands in and out of stores most of the day. So its been a very busy day with lots of walking for me. I am doing great. I didn't have to sit and recover after the walk. The muscles worked well when we got home. I did have a bit of dizziness, but it started at best buy. My senses everytime I go there are overwhelmed with all the lights, sounds, people, movement. Its like it is still too much to process at once. However I still walked without a cane in the store or assistance even with the dizzines. The neuro won't care about the prokarin results. He is so aganist it. ________________________________ From: freewitheft <freewitheft@... <mailto:freewitheft%40yahoo.com> > To: mscured <mailto:mscured%40yahoogroups.com> Sent: Thu, March 24, 2011 1:34:41 PM Subject: Re: Re Prokarin > Now it > feels like when I am exercising it that it has more strength. I do have brief > > periods of muscle weakness??? or like there are short times when the nerve > conduction isn't as strong and the muscles fatigue or feel a bit heavy. But >it > > is nothing like what it was before. I know exactly what you are describing. When I'm having a reaction to something I'm eating (last summer, for instance, I felt like crap for about 6 weeks because of agave, took me that long to figure it out!) I can feel a definite difference when I exercise. It's odd because the muscles are exactly the same as the day before, but it takes more effort to make them do what you want and you feel weaker. Do you have a camcorder or a digital camera that takes video? If so, you could take some video and call the dr. office to get an email address where you can send it. I did that for my son's neuro when he had rheumatic fever. If not, I think it's worth at least a phone call to rave about the results you are seeing with this. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 it can be made! ________________________________ To: mscured Sent: Fri, March 25, 2011 7:47:48 AM Subject: RE: Re: Re Prokarin  Hi joy Please could you tell me where you got the prokarin from and was it very expensive Judith miller ________________________________ From: mscured [mailto:mscured ] On Behalf Of joy inspired Sent: Friday, March 25, 2011 2:05 AM To: mscured Subject: Re: Re: Re Prokarin The body feels like its repairing, but the short is still there if it makes sence. I think it will probably continue for a bit until the nerves heal more. It isn't the prokarin that is doing it. It was worse before the prokarin rather than less of it. It's is like tiny brief periods of weakness. I tried to explain to my husband when we walk it feels like the muscles are relearning how to walk at the start of the walk - they work fine but after 100 feet they start feeling normal. Its like they are slow to get moving. Or after I get out of the car after sitting they feel sluggish to move, but once I get moving everything works. Before prokarin it felt like I could barely walk 500 feet. So this is a big improvement. Now I have breaks from the worse of it. I was able to walk farther today about 2.75 miles. We did a good brisk pace. I did take one tiny pause at the end of the walk. My good leg was fatigued to the point that the foot was dragging. But it only took a min. to recover. That is farther than I have walked in ages. We also did errands in and out of stores most of the day. So its been a very busy day with lots of walking for me. I am doing great. I didn't have to sit and recover after the walk. The muscles worked well when we got home. I did have a bit of dizziness, but it started at best buy. My senses everytime I go there are overwhelmed with all the lights, sounds, people, movement. Its like it is still too much to process at once. However I still walked without a cane in the store or assistance even with the dizzines. The neuro won't care about the prokarin results. He is so aganist it. ________________________________ From: freewitheft <freewitheft@... <mailto:freewitheft%40yahoo.com> > To: mscured <mailto:mscured%40yahoogroups.com> Sent: Thu, March 24, 2011 1:34:41 PM Subject: Re: Re Prokarin > Now it > feels like when I am exercising it that it has more strength. I do have brief > > periods of muscle weakness??? or like there are short times when the nerve > conduction isn't as strong and the muscles fatigue or feel a bit heavy. But >it > > is nothing like what it was before. I know exactly what you are describing. When I'm having a reaction to something I'm eating (last summer, for instance, I felt like crap for about 6 weeks because of agave, took me that long to figure it out!) I can feel a definite difference when I exercise. It's odd because the muscles are exactly the same as the day before, but it takes more effort to make them do what you want and you feel weaker. Do you have a camcorder or a digital camera that takes video? If so, you could take some video and call the dr. office to get an email address where you can send it. I did that for my son's neuro when he had rheumatic fever. If not, I think it's worth at least a phone call to rave about the results you are seeing with this. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 I do not want any fennel next week thank you, if you have celeriac can I have a small one ________________________________ From: mscured [mailto:mscured ] On Behalf Of Alan Samston Sent: Tuesday, March 22, 2011 6:38 PM To: mscured Subject: Re: Re Prokarin Wow Joy. What an amazing and quick turnaround. Congratulations. Where did you get the Prokarin? ________________________________ From: joy inspired <yourbeamofsunshine@... <mailto:yourbeamofsunshine%40yahoo.com> > To: mscured <mailto:mscured%40yahoogroups.com> Sent: Tue, March 22, 2011 1:50:56 PM Subject: Re: Re Prokarin Hi, I am on Prokarin and I absolutely love what it is doing for me. Its only day 4 and I have gone from being almost wheelchair bound to walking normally. Before I could walk only about 500 feet with severe difficulty. It took all my strength to walk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 Have been doing some more research on Prokarin. Some concerns are the diet that goes with it is a high saturated fat diet (red meats and butter) and they recommend ZERO PUFAs. This is the antithesis of the Swank diet and doesn't really fit with the BBD either. As others have pointed out, not all diets work for everyone, and yet the Prokarin experts recommend this high saturated fat diet for everyone on Prokarin, or I was told by the compounder, and that otherwise fatigue and stuff could get worse if not taking high saturated fats. I was also told that this treatment works best for people who have heat intolerance. That really isn't one of my symptoms. Does anyone else here who has MS NOT have heat intolerance? I was told by someone in their association that if I didn't have heat intolerance then I do not have MS and that I was misdiagnosed. I don't really believe that since my symptoms are classic MS symptoms. Any thoughts? Are others going to try the Prokarin? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 I think a lot of the reason that Prokarin works is because histamine is a hormone and most of us have low thyroid where it is manufactured. I switched my diet from raw/vegan to a higher level (about 40% of the calories) of meat and butter (not only because that diet is my ancestral/metabolic type diet, but is also one that supports the thyroid). Many of the hypothyroid symptoms that I had are better or gone. My eyebrows have grown back! My hair is not falling out by the handful and I have no more incontinence, fingers crossed. Thyroid hormones also affect the body's thermostat and mine has much improved. Having had these experiences, I'm not completely where I want to be yet. I ordered a new book about thyroid and I will read it and share what I find. The author explores autoimmune hypothyroid (Hashimoto's thyroiditis), which is probably what I have, and he says that taking hormones isn't necessary if you follow his instructions on how to address the root cause. I think that CCSVI could be a factor. > > Have been doing some more research on Prokarin. Some concerns are the diet that goes with it is a high saturated fat diet (red meats and butter) and they recommend ZERO PUFAs. This is the antithesis of the Swank diet and doesn't really fit with the BBD either. > > As others have pointed out, not all diets work for everyone, and yet the Prokarin experts recommend this high saturated fat diet for everyone on Prokarin, or I was told by the compounder, an that otherwise fatigue and stuff could get worse if not taking high saturated fats. > > I was also told that this treatment works best for people who have heat intolerance. That really isn't one of my symptoms. Does anyone else here who has MS NOT have heat intolerance? I was told by someone in their association that if I didn't have heat intolerance then I do not have MS and that I was misdiagnosed. I don't really believe that since my symptoms are classic MS symptoms. Any thoughts? > > Are others going to try the Prokarin? > Quote Link to comment Share on other sites More sharing options...
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