Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 > > This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Hey... I am on facebook. Tommy Marshall, RRMS, 54 years old, diagnosed 2 years ago. Doing the Avonex and hating the fact that I lose one day a week... I too experience rages for no reason. I attributed them to the large infusion of steroids when I was first hospitalized. No I think I just get mad because this shit is no fair... I was a dancer and a musician and now I suck. I really can't perform any longer. and that angers me. It's like my own body is betraying me... Ah jaysus... that's my kvetch for the night... Come o back and lets chat... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Hi The group generally will respond when it receives a comment like yours. I have experienced many emotions in the 11 years since diagnosis and hate is certainly one of them but I have concentrated more of my efforts on staying well which leads to better feelings. Most of the time. Bruce ps I am on facebook To: mscured Sent: Wednesday, 20 April 2011 12:28 AM Subject: Re: WOW.  This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... Hugs to all, P.S. who s on facebook here? I am on facebook...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I get angry when I fall down or can't perform a simple task like hand writing or taking out a knot, the more I try and the longer it takes, the angrier I get, but I'm working on it, with a good deal of success. > > This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 The little things I struggle through now because of MS used to make me real angry. I think I get angry at times because MS has unfairly stolen my dreams and is forcing me to invent new dreams. > > This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 , Meltdowns are not uncommon for anyone facing a long-term illness. MS = Stress = Negative Reactions (meltdown) MS is the root cause for stress, but it's secondary factors that become stressors (triggers for problems): social issues, unreasonable expectations (both from yourself and others), finances, heat, exercise, work, etc. On the web, search for " Stress Management " to find some ideas. I just found this helpful site: http://www.helpguide.org/mental/stress_management_relief_coping.htm It talks about dealing with the four A's of stressful situations: Change the situation: -Avoid the stressor. -Alter the stressor. Change your reaction: -Adapt to the stressor. -Accept the stressor. LOL. I just accidently deleted a bunch of text, and I was so angry about it. I'm glad my wife and kids weren't nearby to hear me! I'll be doing more research into this topic for myself also. Take care, Greg > > This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Look at it , as it may be be your " biggest blessing " That is what happened to me... Make it a Great Day! Kopera ________________________________ To: mscured Sent: Wed, April 20, 2011 8:59:02 AM Subject: Re: WOW. The little things I struggle through now because of MS used to make me real angry. I think I get angry at times because MS has unfairly stolen my dreams and is forcing me to invent new dreams. > > This group has slowed waaaaay down.... I was hoping to get some answers about >if others have anger problems? I have melt downs here and there. Mainly because >of things falling around me, but I am wondering if others have experienced this. >I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Agreed but immobility was what led to my diagnosis and I was in a wheelchair quickly. I get frustrated sometimes when everything I touch falls to the floor and my vocabulary includes expletives that I have not used in the past (only when I'm alone). It's a release of tension for me. I know that getting upset is not going to make me well and voicing my distress in that way makes me feel silly when I look back on it. Who/what are you angry with? God? Yourself? Big Pharma? The situation? It's a wasted emotion actually. > > > Anger - no. Initially I was angry that MS was about to change my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Thank you for your post , I’ll have to go back and make notes of those of you on FB, I’m also on FB. Been diag. since 96. My anger went away when I dealt with my husband divorcing me, he was afraid my illness would affect his $$. He said it was for my benefit so I would receive public assistance. It’s probably evident, there’s still some anger there. I have CCSVI scheduled for May 20th, I look forward to have somewhat more freedom. I’ll look everyone up on FB. Edie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I am amazed when people see it as a 'gift' or as something great! I think it's terriffic for those that do, but my goodness gracious, that is something which I can never say. lol I'm over being angry at it, but will NEVER welcome CCSVI or 'MS' into my life! (so glad for you though - sincerely, it is great that your situaion and mindset sees it as a good thing.) My life was fantastic before it came into the mix (when I was dxd that is) - my life was in MY hands and I was doing well in every aspect that I had any sway in. I was happy, active, fit and very social. I just think that we each have to find a way through this forest - do we create a fearful, threatening, dark and scarey journey through the trees, or do we clear a sunny, open and colourful journey through the forest? I truly believe that we create our own circumstances and our own destinies. I'm no expert at any of this and I trip up on the tree roots in the path but most of my journey is sunny these days because I've cleared a lot of the negative and the fear out of my mindscape. Old habits die hard though - it does get scarey if I look at it as others would have me look at it THEIR ways and if I lose a friend or two along the way because of the evil letters, but we have to go on if we want to live! Just got to be honest with ourselves and choose a path - I reckon we're chosen for this problem because we're strong enough to handle it where others wouldn't be. I really don't know and I certainly don't want to offend anyone - just sharing thoughts. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: ginakopera1@... Date: Wed, 20 Apr 2011 07:03:12 -0700 Subject: Re: Re: WOW. Look at it , as it may be be your " biggest blessing " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 - I can remember prior to this healing journey was ever thought of in my mind of the natural healing ability of our bodies. My husband saying why did this have to happen to you? I replied maybe I am the lucky one (not even knowing what was lurking in the near future) I was thinking better me then him or my son, I would take the grief before them. Call it seeing the the glass full rather then half empty thoughts which is my general personality. If some would like to know what happened and in my story I had to shorten it because it goes into a whole other book and thought it would be best to stay on one subject. The worse thing that ever happened to me what was the start of all terrify-horrendous-emotional pain and believe me I was not looking for natural healing nor did I even believe, nor care. My husband had an affair and that was during the time what I call is the " NON-Intentional fast " For 2 months I didn't eat nor sleep and of course dropped a TON of weight. Then after the 2 months when I started calming down I realized all my symptoms were completely gone. Was the start of this path but I still didn't know what exactly I was in for... Until a year later, when it came back with a vengeance and at that time everything had to fall into place the way it did to help me, my son and possible you. So to sum up my thoughts, if all of this drama-trauma created by 2 individuals that was never needed but for there own selfishness and if it was never created, I would NEVER of gained or have the knowledge I do today. I have been on both sides of the fence Medical vs. Natural and it Natural healing is far less time-consuming, less costly and gained me where I needed to be and that was not happening prior, I just kept getting worse with no hope. So in a sense, I am thankful... My book was born, Cure Yourself Naturally www.ginascorner.com My biggest hope/dream/vision many can gain where I suffered. Life sure hasn't been a full bowl of cherries but the wisdom I gained, peoples lives I have helped, I am very thankful... Make it a Great Day! Kopera ________________________________ To: MSCured <mscured > Sent: Wed, April 20, 2011 11:07:19 AM Subject: RE: Re: WOW. I am amazed when people see it as a 'gift' or as something great! I think it's terriffic for those that do, but my goodness gracious, that is something which I can never say. lol I'm over being angry at it, but will NEVER welcome CCSVI or 'MS' into my life! (so glad for you though - sincerely, it is great that your situaion and mindset sees it as a good thing.) My life was fantastic before it came into the mix (when I was dxd that is) - my life was in MY hands and I was doing well in every aspect that I had any sway in. I was happy, active, fit and very social. I just think that we each have to find a way through this forest - do we create a fearful, threatening, dark and scarey journey through the trees, or do we clear a sunny, open and colourful journey through the forest? I truly believe that we create our own circumstances and our own destinies. I'm no expert at any of this and I trip up on the tree roots in the path but most of my journey is sunny these days because I've cleared a lot of the negative and the fear out of my mindscape. Old habits die hard though - it does get scarey if I look at it as others would have me look at it THEIR ways and if I lose a friend or two along the way because of the evil letters, but we have to go on if we want to live! Just got to be honest with ourselves and choose a path - I reckon we're chosen for this problem because we're strong enough to handle it where others wouldn't be. I really don't know and I certainly don't want to offend anyone - just sharing thoughts. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: ginakopera1@... Date: Wed, 20 Apr 2011 07:03:12 -0700 Subject: Re: Re: WOW. Look at it , as it may be be your " biggest blessing " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Thank you!!! Subject: RE: Re: WOW. To: " MSCured " <mscured > Date: Wednesday, April 20, 2011, 9:07 AM Â I am amazed when people see it as a 'gift' or as something great! I think it's terriffic for those that do, but my goodness gracious, that is something which I can never say. lol I'm over being angry at it, but will NEVER welcome CCSVI or 'MS' into my life! (so glad for you though - sincerely, it is great that your situaion and mindset sees it as a good thing.) My life was fantastic before it came into the mix (when I was dxd that is) - my life was in MY hands and I was doing well in every aspect that I had any sway in. I was happy, active, fit and very social. I just think that we each have to find a way through this forest - do we create a fearful, threatening, dark and scarey journey through the trees, or do we clear a sunny, open and colourful journey through the forest? I truly believe that we create our own circumstances and our own destinies. I'm no expert at any of this and I trip up on the tree roots in the path but most of my journey is sunny these days because I've cleared a lot of the negative and the fear out of my mindscape. Old habits die hard though - it does get scarey if I look at it as others would have me look at it THEIR ways and if I lose a friend or two along the way because of the evil letters, but we have to go on if we want to live! Just got to be honest with ourselves and choose a path - I reckon we're chosen for this problem because we're strong enough to handle it where others wouldn't be. I really don't know and I certainly don't want to offend anyone - just sharing thoughts. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: ginakopera1@... Date: Wed, 20 Apr 2011 07:03:12 -0700 Subject: Re: Re: WOW. Look at it , as it may be be your " biggest blessing " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 I've been very, very angry since I got sick, primarily at doctors and the medical industry. Every single doctor I saw diagnosed me as " probable MS " and wrote me a prescription for anti-depressants. Not one gave me any information on the disease itself, and when I asked what I could do to diminish the potential for progression or attempt to avoid it, not one offered me anything, no hope, no ideas, nothing but Big Pharma symptom management drugs. I had lost 47% of my hearing (related to MS? who knows...)was having spells of blindness and they wanted to treat me with anti-depressants? That's just wrong, and it made me angry. So I turned that anger into a passion for learning how to take control of my health and find ways to diminish this disease myself, looking to others who had been there before me. And I haven't been back to a doctor since... > > This group has slowed waaaaay down.... I was hoping to get some answers about if others have anger problems? I have melt downs here and there. Mainly because of things falling around me, but I am wondering if others have experienced this. I really hate feeling so hateful sometimes.... > Hugs to all, > > P.S. who s on facebook here? I am on facebook...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 I think that I'm able to say it because I was fortunate enough to get a very early start on kicking MS's butt. I've suffered no permanent disability, which I would think makes it a bit harder to say that MS is a blessing. In my case, though, I'm healthier and in better shape than I've ever been in my life. That is thanks to the MS coming along and forcing me to make the choices that have made me healthier. I had been into alternative medicine and healing for some time before that, so it was my chance to put my money where my mouth is. It also helped me realize something that is often said on this group...what works for one doesn't necessarily work for all. I thought I had a healthy lifestyle prior to the attack of optic neuritis. Turns out that my vegetarian life, which included *a lot* of gluten and beans/legumes, was not the way to go for me personally! That doesn't mean that others can't thrive on it though. Crystal > > > I am amazed when people see it as a 'gift' or as something great! > I think it's terriffic for those that do, but my goodness gracious, that is something which I can never say. lol > I'm over being angry at it, but will NEVER welcome CCSVI or 'MS' into my life! > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.