Re: Re: Email Response from Dr. Woeller~Prokarin

[Guest guest]

Hi everyone. I contacted the pharmacy in wa. My insurance is going to cover

the

prokarin patches. The copay for me is 45$. I have blue cross.

________________________________

To: mscured

Sent: Tue, March 29, 2011 2:08:46 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

Â

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

>have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

>have been dealing with MS for 27 years and most if not all of the success's are

>NOT expensive. If you want the truth about MS...Talk to those that have MS and

>that heve become involved with their own treatment.

> Best Regards,

> Tom Bayuk

>

>

[Guest guest]

That is great news Joy. It is interesting because I have blue cross also but

they have declined anything that is not FDA approved for a specific condition

and from a compounding pharmacy. They did not pay for my LDN or compounded

hormones. I will check if they would pay for the Prokarin, but based on what

I've had so far, it will be a no. I guess each state's plan is different. I have

BCBS for my particular state, rather than a national plan, so that is probably

what allows them to set their own rules.

________________________________

To: mscured

Sent: Tue, March 29, 2011 8:21:41 PM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

Hi everyone. I contacted the pharmacy in wa. My insurance is going to cover the

prokarin patches. The copay for me is 45$. I have blue cross.

[Guest guest]

good luck allison, hope it works for you

 

shame we cannot source in uk as i would give it a go

 

regards/peter/london/ppms

To: mscured

Sent: Tuesday, 29 March 2011, 22:08

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

have been dealing with MS for 27 years and most if not all of the success's are

NOT expensive. If you want the truth about MS...Talk to those that have MS and

that heve become involved with their own treatment.

> Best Regards,

> Tom Bayuk

>

>

[Guest guest]

According to the web site it is available through the canadian pharmacy.  They

ship overseas. 

________________________________

To: " mscured " <mscured >

Sent: Wed, March 30, 2011 7:07:39 AM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

 

good luck allison, hope it works for you

 

shame we cannot source in uk as i would give it a go

 

regards/peter/london/ppms

To: mscured

Sent: Tuesday, 29 March 2011, 22:08

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

>have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

>have been dealing with MS for 27 years and most if not all of the success's are

>NOT expensive. If you want the truth about MS...Talk to those that have MS and

>that heve become involved with their own treatment.

> Best Regards,

> Tom Bayuk

>

>

[Guest guest]

Sent via BlackBerry from T-Mobile

Re: Email Response from Dr. Woeller~Prokarin

 

The patch is actually a ready to apply disc. It was originally a tube of cream

that had to be refrigerated and applied to a patch. Refrigeration is not

necessary for the newer product.

I used Skip's when I took LDN. Skip talked with me when I had questions. Very

personable pharmacy. I don't know if they do Prokarin.

Ask them the next time you order LDN.

>

> Anybody try Skip's in Boca Raton. He is our favorite LDN Compounder. I wonder

>if he does Prokarin?

>

> Also, anybody know what type (patch?) is dispensed by Custom RX in Bellingham.

>I found them right away on Googly.

>

[Guest guest]

The pharmacy instruction says it needs to be kept cool.  Only 10 days out of a

fridge.  Otherwise it breaks down.  I will follow the pharmacys

instructions. 

In the summer they ship it with cooling packs to preserve the life of the med. 

________________________________

To: mscured

Sent: Sun, April 3, 2011 10:23:25 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

This is from Elaine's site:

http://www.edmsllc.com/QA-Prokarin_Disc.htm

The Prokarinâ„¢ Disc can be stored at room temperature, but for the longest

shelf

life and stability it is recommended that you store it in the refrigerator. When

traveling it is not necessary to keep it in a cooler or refrigerator, but do

protect it from extreme heat or cold. Do not leave it in the vehicle on warm or

cold temperature days as this can deteriorate the disc and its potency.

>

> Wow, that's good to know. The GoodShape group is where I got the information.

>Prokarin is shipped overseas and it must come specially packed.

[Guest guest]

I started Day 1 of Prokarin today. Nothing really to report yet, but it's only

been 1/2 day on me. The pharmacist said most people feel the benefit, if they do

get benefit, in 2-3 weeks.

________________________________

To: mscured

Sent: Wed, April 6, 2011 7:00:11 PM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

 

Raving about the prokarin results.  Yesterday I walked the 3.15 mile trail and

my speed improved along with my gait.  The  last .5 mile usually leaves me very

fatigued to the point I need assist at times.  Yesterday I did the