Re: Prokarin Day 2 Update

[Guest guest]

Hi Alan, I am like you and considered about CCVSI - I am in a study at DMC

Detroit but it is not looking favorably toward my nuerologist seeing it

approved.

I have had MS for 15 years and watched my mom pass away the same year I

was diganoised from complicatiion of the MS.

I have changed my diet to be a little healther,and have used alot of medices.

My doctor knows I am desperate to get out of the walker that i have been in for

4 years. - that he offered to wriite the script. I  haven't decided yet.

I also had plamaphersis 5 days from March 23 to April 8- while being

hospitailized in that time with a infection from the port. I now feel a littlke

stronger but I seem to struggling hardeer with balance and walking.Please keep

posting your updates - I think we all need the courage and hope but need to

know

that there no guarentees that anythings work for anyone.

Talk to you soon!

 Joyce Giolitto

________________________________

To: mscured

Sent: Thu, April 7, 2011 11:08:08 PM

Subject: Prokarin Day 2 Update

 

It is the evening of my second day on the Prokarin. I can't say anything

definitive one way or another yet. I did not get any of those red flushing marks

today that I had on Day 1. However on both Days 1 and 2 I have had occasional

queasy (spelling?)feeling -- like an upset stomach feeling--in the stomach that

would just last a minute or less. This upset-stomach feelign could possibly be

due to the Cal/Mag supplement that was sent to be used along with the Prokarin

as apparently they (Elaine Delack and the pharmacy) feel that taking this

cal/mag is mandatory because they say the Prokarin will rob you of calcium or

something to that effect.

As to my MS symptoms, I am not sure I feel any difference. It is very hard to

tell because my symptoms tend to vary at any given time anyway. I thought

tonight it did seem like my cog fog was a bit worse--where I was out with my

spouse and I used the wrong words a few time and couldn't think of words a

couple times and almost felt like I forgot how to talk. This cog fog is symptom

I have most of the time anyway but it doesn't usually interfere with my use of

words the way it did tonight--so I am not sure if that has anything to do with

the Prokarin or not.

At this point my goal is to stay on the Prokarin at least 2-3 weeks if there is

no adverse effect to see if it helps or not. I won't re-order another month

unless I see some benefit in the first month's supply.

As for the CCSVI, I am still on the fence. I know many people have gone into

CCSVI with a very positive, enthusiastic attitude and it is best to go in that

way. Perhaps because I have so many fears/concerns about it, and I don't have

that positive/enthusiastic feeling then that means it is not for me. As

mentioned previously I am scheduled for May for a block of testing followed the

next day by treatment if indicated, so I want to give the doc at least 1-2 weeks

notice if I cancel. I know they have a waiting list and someone else will be

thrilled to be bumped up the list, but I don't want to cancel the day before.

[Guest guest]

So you're going to give it a good 2 to 3 weeks and if you don't see any

" improvement " your not going to reorder? Sorry for being blunt, but I think you

are doomed for failure right out of the gates with that kind of expectation.

There are no silver bullets. Most of what works for most people seem to work

because of their determination to make it work.

You don't seem to have any determination. If that's the case, nothing will work

for you and you are wasting your time and money.

Some people have been " cured " of their MS symptoms solely because they have

" faith " in their cures, whatever they may be.

If you don't have faith, you will never improve. You need to win the battle of

your mind, first.

Giving Prokarin 2 to 3 weeks to work " or else " is not having faith. It's just

proving what already seems to be what you have made up in your mind.

Hope this helps you.