Re: Re: Does anyone else have a high ANA, high SED rate, and high C-reactive protein?

[Guest guest]

Oh and if you go to the doc, I would have your them check your vitamin D

levels and DHEA.

Lots of research pointing to low vitamin d levels and low DHEA levels seems

to be the 1-2 punch that triggers MS.

If you notice most MS seems to occur after 40 when dhea starts to really

drop off.

>

>

>

> > I agree with a previous poster that a very low fat diet, probably lost of

> greens veggies and juices would be the most anti-inflammatory. But meanwhile

> I received today my pack of Prokarin patches 1 month supply, which is

> indicated to take with a high saturated fat diet. I am really, really

> confused and as some of us know, doctors aren't going to be of much help.

> >

>

>

[Guest guest]

Alan, just go ahead with CCSVI without fear as it has nothing much to do with

the rest.

As for the Dietary change, just do it as best you can without steering too far

into the huge amounts of saturated fats.

It all really has to do with what YOUR body wants so just do what YOU feel works

for you.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alansamston@...

Date: Mon, 4 Apr 2011 21:28:46 +0000

Subject: Re: Does anyone else have a high ANA, high SED rate, and high

C-reactive protein?

Thanks for the responses. I just spoke to the regular doctor, as opposed to the

nurse I had spoken to earlier today. Anyway, the doctor said actually the

C-reactive protein is normal and the SED rate is only 2 points higher than the

norm, but the ANA is positive.

[Guest guest]

I don't remember about the ANA but all the rest on me has been elevated. 

________________________________

To: MSCured <mscured >

Sent: Tue, April 5, 2011 7:13:33 AM

Subject: RE: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

Alan, just go ahead with CCSVI without fear as it has nothing much to do with

the rest.

As for the Dietary change, just do it as best you can without steering too far

into the huge amounts of saturated fats.

It all really has to do with what YOUR body wants so just do what YOU feel works

for you.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alansamston@...

Date: Mon, 4 Apr 2011 21:28:46 +0000

Subject: Re: Does anyone else have a high ANA, high SED rate, and high

C-reactive protein?

Thanks for the responses. I just spoke to the regular doctor, as opposed to the

nurse I had spoken to earlier today. Anyway, the doctor said actually the

C-reactive protein is normal and the SED rate is only 2 points higher than the

norm, but the ANA is positive.

[Guest guest]

U may want to check hydration therapy then www.watercure2.org. How much

caffeine do u ingest, how much cola ?

W dniu 2011-04-04 23:00, alansamston pisze:

>

> That is an interesting question because my one makpr weaknessin my

> diet is that I drink coca colas with caffeine amd other no-nos in it.

> And in fact when I drink them I feel great--, more energy, clearer

> head-- but I noticed I started getting some joint pain in my ankle

> area when I was drinking a lot of coca colas.

>

>

> >

> > How is Ur coffee consumption ? It increases CRP levels and is

> > proinflammatory

> > http://findarticles.com/p/articles/mi_m0887/is_11_23/ai_n7578036/

> >

> >

>

>

[Guest guest]

Thank you Crystal. Unfortunately ELISA shows me intolerant to pineapples--Go

figure! As for the Turmeric, in the Prokarin literature one of the items they

say not to take is Turmeric. I'm not sure why. There are a number of things

listed that they say just don't go well with the Prokarin Patch. The Prokarin

guidelines are so very different from what most of us on this group espouses. I

was going to start the Prokarin today, but now am not sure what to do because I

don't think the Prokarin protocol fits well for someone dealing with a lot of

inflammatory issues.

________________________________

From: freewitheft freewitheft@...

..

>

There are some other foods to try that are specifically anti-inflammatory. The

bromelain in fresh pineapple is helpful. I remember reading a story of someone

with rheumatoid arthritis who swore by a pineapple a day. Turmeric is also

great. You can cook with it along with taking it as a supplement. HTH!

I agree with you that the positive ANA makes it seem something else is going on,

either instead of MS or in conjunction with it. Glad to hear the sed rate and

CRP are normal, but staying anti-inflammatory with your diet anyways will only

help!

Crystal

[Guest guest]

Thanks . I had all the metals removed from my mouth about 4 years ago, but

I never did chelation because when I tried a couple things it seemed I had

horrible herx reactions. I am careful not to take aspartame but prior to my MS

onset, I did take a lot of diet soda--but haven't had any in 5 years. One thing

I am still very bad about is the gluten, which I still eat--I will try very hard

to cut that out. It is hard because I am also rice intolerant on the ELISA so

that doesn't leave many options.

________________________________

To: mscured

Sent: Mon, April 4, 2011 8:38:06 PM

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

well yeah, LDN is supposed to treat the auto-immunity and as you know MS,

lupus, Sjogren's, are all auto-immune.

Since that didnt work, there must be something else aggravating things.

Do you have mercury fillings, drink any diet soda or consume anything that

has aspartame or eat gluten ?

[Guest guest]

Thanks . Just had my D tested recently and it was 57ng in the U.S., which I

think is supposed to be multiplied by 2.5, so it is a little lower than optimal

but not too bad. My DHEA is pretty low for my age--I think it is about 90--can't

really recall--and I am in my middle 40s. I have been hesistant to add DHEA

because to my understanding it is a steroid?

When I spoke to Elaine Delack and told her I was not heat intolerant she thought

rather than the Prokarin Patch I would be better off taking MSM and DHEA as she

feels I have Lupus rather than MS. However, when I looked up Lupus on line it

does not match my symptoms. My symptoms are optic neuritis, bladder problems,

severe fatigue, cog fog, bear hug on the limbs, numbness on the limbs,

electrical shock feelings, and vertigo. The only thing that overlapped with

Lupus was the fatiuge. Oh yeah and sometimes I do get some joint pain in my

ankles.

So I have a sachet of Prokarin in the fridge and a CCSVI appt scheduled for May

and a rheumatologist appt scheduled for late April. Honestly at this point I am

ready to go back to my original philisophy of working on detoxing and

rebuilding.

________________________________

To: mscured

Sent: Mon, April 4, 2011 8:42:39 PM

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

Oh and if you go to the doc, I would have your them check your vitamin D

levels and DHEA.

[Guest guest]

Well you used to have to bake stuff yourself if you wanted gluten free

as there wasnt really any other choice, but not any longer as within

just the last year or two gluten free has gone mainstream and there

are plenty of gluten free products out there to replace gluten.

Gluten free bread, buns, pizza crusts, pasta, cookies etc. and they are

getting

so good at making these, you cant tell the difference.

Some grocery stores have entire aisles dedicated to gluten free

and alot of restaurants have started adding gluten free menus.

some popular brands of bread are Udi's and Rudi's etc. and the one I ate

today which is my new favorite Canyon bakehouse bread.

It is so much easier to go gluten free these days than just 3-4 years ago

when

I switched over, there were practically none of these options and difficult.

>

>

> Try baking with coconut flour. You can also make sourdough bread and

> fermented grains to digest the gluten. Sprouted spelt is good too. I'll post

> some recipes if you are interested.

>

>

>

[Guest guest]

I just sent out an ELISA blood sample. I do it once a year. Am eager to see the

results.

Gluten is like a drug for me. I am able to go many months without dairy or soy

but just can't seem to give up the gluten. Especially at night when I can't

sleep I will have a piece of bread and it knocks me out to sleep and I really

crave it. I will keep trying though.

As an aside, my tests came in the mail and it turns out my C-reactive protein is

not high and the SED rate is just a tiny bit over, but the ANA is positive. But

that's a bit better than what I thought the nurse had told me and actually my

CRP and SED rate are both lower than they were about 6 months ago. As for the

ANA, I am not sure they ever took it before. I have dry eyes and dry mouth on

and off so am not surprised the ANA was positive.

________________________________

To: MS-Cured <mscured >

Sent: Fri, April 8, 2011 11:07:57 AM

Subject: RE: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

Millet, quinoa, buckwheat, corn, tapioca, are just a few of the options.

Janet

[Guest guest]

It is true but my ELISA shows intolerances to rice and to eggs, which really

limits me from a lot of the gluten free products at Whole Foods and other health

stores. What a pain!

________________________________

To: mscured

Sent: Fri, April 8, 2011 4:50:55 PM

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

Well you used to have to bake stuff yourself if you wanted gluten free

as there wasnt really any other choice, but not any longer as within

just the last year or two gluten free has gone mainstream and there

are plenty of

[Guest guest]

well gluten can mimic endorphins, which is the feel good chemical.

So it makes sense that you crave it and it makes you feel good.

Because you could be experiencing withdrawal if you try to stop

consuming them.

Scientists call these exorphins and they attach to endorphin receptors

and compete for them anywhere there is a endorphin receptor like

the immune system.

This would also explain why you were LDN resistant or why it

didnt help because while the LDN may raise your endorphin

levels, the endorphins were never reaching the immune system

to help it because the exorphins were competing for the receptors

but the exorphin might only be giving partial response to the

immune system causing the immune system malfunction.

This is an interesting enlightment because I have always

thought gluten was just purely an allergen and it was just having

a direct allergic response to the immune system wreaking

havoc with MS, but if the gluten is also having an indirect

modulation effect by endorphin blocking through exorphin

mimicking this would for some people be a potential cause

for the MS in the first place !

>

>

> Thanks . I had all the metals removed from my mouth about 4 years ago,

> but

> I never did chelation because when I tried a couple things it seemed I had

> horrible herx reactions. I am careful not to take aspartame but prior to my

> MS

> onset, I did take a lot of diet soda--but haven't had any in 5 years. One

> thing

> I am still very bad about is the gluten, which I still eat--I will try very

> hard

> to cut that out. It is hard because I am also rice intolerant on the ELISA

> so

> that doesn't leave many options.

>

>

> ________________________________

>

> To: mscured

> Sent: Mon, April 4, 2011 8:38:06 PM

>

> Subject: Re: Re: Does anyone else have a high ANA, high SED rate,

> and

> high C-reactive protein?

>

>

> well yeah, LDN is supposed to treat the auto-immunity and as you know MS,

> lupus, Sjogren's, are all auto-immune.

> Since that didnt work, there must be something else aggravating things.

>

> Do you have mercury fillings, drink any diet soda or consume anything that

> has aspartame or eat gluten ?

>

>

[Guest guest]

Rather than buying all those flours, you can get the way cheaper & FRESHER

(which is important, especially with nuts! They do go rancid fairly quickly...)

by grinding them yourself...nuts can easily be ground to flour in a coffee

grinder, & the food processor can do some...worth looking into!

~Anas?azia~

I've been using sorghum, tapioca, and millet flours for baking and they work

well. Also almond flour, but it's soooooooo expensive.

It would be nice if the companies making gluten-free foods expanded beyond rice

as a substitute in everything!

Crystal

.