Re: CCSVI, MS, Hemochromatosis, Prokarin

[Guest guest]

The sad part about losing my father-in-law was that he needn't have died if

only he went for the regular phlebotomies. He said they " made him too

tired " . Well so did the HH. When I first started learning about HH back in

the 80's, I was shocked to find out it was the highest % genetic disorder

and how few doctors had ever even heard the term 'hemachromatosis'. I

started a small local group and basically found only a few old doctors that

called it 'bronze diabetes that went out after WWII.

Question for you . I think I recall that you take ECGC (my brain is

fuzzy but the green tea extract). The bottle says to take no longer than 3

weeks but with ms, should I continue?

Cait

>

>

> In CCSVI the iron pools because of venous insufficiency. There are many

> symptoms of HH, some are shared with other diseases and it is often

> misdiagnosed. Transferritin is made in the liver and it binds with iron. The

> blood carries the iron where it needs to be but in people with HH there is

> an excess of iron either by not making enough transferritin, having damaged

> veins or some other anomaly. Having a phlebotomy is draining the blood from

> a vein. HH is genetic and though it may not be caused by vascular disease,

> veins are certainly involved in the disease process.

>

> http://health.groups.yahoo.com/group/mscured/message/45317

>

> I'm sorry that you lost someone to HH.

>

>

> > , how is HH a vascular disease?

>

> I watched my father in law die from

> > it altho the death certificate said " liver cancer " , my ex has it, and one

> of

> > my children has a high ferritin rate which she keeps under control by

> > regularly donating blood and plasma.

>

>

>

[Guest guest]

correction: transferrin

>

> In CCSVI the iron pools because of venous insufficiency. There are many

symptoms of HH, some are shared with other diseases and it is often

misdiagnosed. Transferritin is made in the liver and it binds with iron.

[Guest guest]

I think I would follow the instructions on the bottle or your doctor's orders.

Tea does have an effect on iron absorption. Read this:

Tea Drinking

A study reported in the British journal Gut indicates that drinking black tea

rich in tannin with meals can reduce iron absorption. The control group drank

water with meals; the study group drank tea with meals. Intestinal iron

absorption was measured by studying serum iron-binding capacity and serum

ferritin. Results showed a significant reduction of iron in the study group as

opposed to the control group. Thus, drinking black tea may reduce phlebotomy

frequency in the management of patients with hemochromatosis (Kaltwasser JP et

al 1998).

Green tea extract is a potent iron-chelating agent. Green tea is an antioxidant

that helps remove excess iron from the liver. Hemochromatosis patients should

take 4 to 10 green tea extract capsules with at least 300 mg active polyphenols

per capsule.

_______________________________________________________________

I don't take ECGC, never have. Those who have had CCSVI have been told not to

take it. This article fails to say how often you take it and for how long. It

seems to me that improving circulation would be the top priority.

>

> >

> >

> > In CCSVI the iron pools because of venous insufficiency. There are many

> > symptoms of HH, some are shared with other diseases and it is often

> > misdiagnosed. Transferritin is made in the liver and it binds with iron. The

> > blood carries the iron where it needs to be but in people with HH there is

> > an excess of iron either by not making enough transferritin, having damaged

> > veins or some other anomaly. Having a phlebotomy is draining the blood from

> > a vein. HH is genetic and though it may not be caused by vascular disease,

> > veins are certainly involved in the disease process.

> >

> > http://health.groups.yahoo.com/group/mscured/message/45317

> >

> > I'm sorry that you lost someone to HH.

> >

> >

> > > , how is HH a vascular disease?

> >

> > I watched my father in law die from

> > > it altho the death certificate said " liver cancer " , my ex has it, and one

> > of

> > > my children has a high ferritin rate which she keeps under control by

> > > regularly donating blood and plasma.

> >

> >

> >

>

>

>

[Guest guest]

We (i.e. those who have had CCSVI treatment) should only not take green tea

extract all the while one is on blood thinners (aspirin etc) as you shouldn't

further thin the blood.

Now my 6 months is up I am off aspirin and back to enjoying all my natural

supplements including EGCg.

Janet

> To: mscured

> From: alpdesigns1@...

> Those who have had CCSVI have been told not to take it.>

[Guest guest]

That 6 months sure went by fast! How are you different today than you were

before being Liberated? I know that you've kept us up to date with individual

advancements but I'm ready for the whole story!

>

>

> We (i.e. those who have had CCSVI treatment) should only not take green tea

extract all the while one is on blood thinners (aspirin etc) as you shouldn't

further thin the blood.

> Now my 6 months is up I am off aspirin and back to enjoying all my natural

supplements including EGCg.

> Janet

[Guest guest]

That's great! I've had a headache all week. I don't know if it's allergies or

sinuses but the wind has been working overtime and my sinuses could be dry. I

keep spraying water up my nose! I feel like I'm on speed right now, my eyes are

like saucers. My head is throbbing. I'm thinking that some of this might just be

adjustment issues.

>

>

> Whole story, ? Might take a few e-mails )

> How am I differen? - I am not recognisable

> I have colour in my face, my eyelashes have grown, my wonky eye has gone, I

have ENERGY. I have the energy to wash AND dry my hair, I am alert and can

follow (/lead) conversations. I am the person I was 15 years ago before MS came

along.

>

> I am however still in a wheelchair but EVERYTHING has improved.

> I never get brain fog, last week sat in the sun ironing for 2 days solid and

didn't get fatigued once and what's more didn't go to the bathroom for 8 hours

(unheard of). (I do still get days of incontinence but that is rare now.)

> Can do up buttons, snap my fingers, do up my bra behind my back, wash my hair

with two hands instead of trying to keep balance when seated. There are so many

changes .

> Neuros seem to think it is all about mobility but as we know there is more to

it than that.

> For their measurements I can walk 8 metres with the walker, stand for 30

seconds not holding anything. Before I could do a few steps but not this much

and had no balance,

> It isn't a major " WOW MS has gone " but more a " every bit helps " .

> In 15 years this is the only thing that has helped me so much. The BBD did its

bit and I will continue with that.

> With continual exercise/yoga/swimming I see no reason for this not to

continue.

> The swimming season is about to commence - watch this space!

> Looking forward to rave reviews of Prokarin, .

> Janet

>

>

>

> To: mscured

> From: alpdesigns1@...

> Date: Wed, 4 May 2011 17:32:36 +0000

> Subject: Re: CCSVI, MS, Hemochromatosis, Prokarin

>

>

>

>

>

> That 6 months sure went by fast! How are you different today than you were

before being Liberated? I know that you've kept us up to date with individual

advancements but I'm ready for the whole story!

>

>

>

>