Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 , I am located in SE South Dakota where abouts in NE are you? Lori h Father, I know that You are watching over me. I trust my life to You. Thank You that You are faithful and that You will act at just the right time for me. I praise You. In Jesus’ name. Amen. --------------------------------- Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Welcome, . I've only been here about a week, and it has been very good for me. It's been comfort, laughs, information, and lots of hugs. I hope it is for you too. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 I found that gentle pool therapy works wonders for me. My 360 poetry... http://360.yahoo.com/sweetsweets2012 So, since I understand that aerobic exercise releases a lot of lactic acid built up in Fibro people which in turn can cause us more pain, I'm wondering if anyone knows of a way to help combat that aspect of the disease. Recent Activity 11New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 I know about the old age part - and how there's some relief when you read about similar symptoms in others. You know then that there's really something to this mess. I was only 32 when finally diagnosed, so I want to give a lot of encouragement to those newly diagnosed to really push to get whatever they need for comfort. Whether it's ergonomic tools for work or home, be comfortable! Let me know about the disability part. I've been thinking about it. The migraines started when I was 5 years old and I often wonder if that was some sort of warning. Oh, the things we wondered about, and as you say, " knew " but couldn't get validation on from docs. Be as strong as you can - I'm in your corner! Donna > > Welcome. I enjoyed reading a bit about your story. I'm still coming to terms with having the diagnosis, and every time someone writes what I experience it helps me beging to accept it. Even though I've had it 20 years, My doctor then, said " ther's nothing anyone can do about it anyway, (so basically forget about it). Because I, too, believed that stigma, as did my doctor, or at best, " it's something vague and nebulous, and I don't know what to do about it so I don't want to hear about it " . I continued to work and ignore the pain as much as possible, until I couldn't anymore, and quit in 1999. I didn't get diagnosed until 3 weeks ago however. It's one thing to suspect you have it, or even believe you have it, but that it's simply a case of feeling a lot of aches and pains here and there--- the tolerable kind. It has gradually become much more than that in the past 3 years, and now I'm falling down, and can't get up by myself because of severe degenerative disorder in both knees. And I' not ready to be that old! I haven't even gotten my disability yet. By the time it comes I'll be too immobile to go spend it.! Geesh! Who is responsible for this? Let's go get 'em.The bringers on of old age before we are ready. > > New member intro > > > Hi- > I recently joined the group and thought I'd introduce myself. I was > diagnosed in 1988 after I flared so bad that I couldn't get down the > steps where I worked. Several co-workers thought I had Lupus and > helped me find an Oncologist (of all people!) who diagnosed me with > Fibro. He also diagnosed PA, but that's another story. > > It's been a long road & part of the road consisted of the stigma > which existed back then about Fibro. I was told I was a malingerer > and that I wasn't really feeling bad-it must just be stress. Ha! > > I now see a Rheumatologist who treats my Fibro, PA and AS. I take > Indocin for anti-inflam. relief, Flexeril for muscle pain, Remicade > and Methotrexate for the PA and AS. Trigger point injections are > available if I need them as well as other types of pain meds. I use > massage and hot showers to deal with pain, too. I'm finally " lucky " > to have a doctor who understands and gently cares for me. I know, > I'm on some heavy drugs, but the PA sapped my strength so much that > the Fibro had to be really bad for me to notice. At least I have > energy in between my infusions. > > So, since I understand that aerobic exercise releases a lot of lactic > acid built up in Fibro people which in turn can cause us more pain, > I'm wondering if anyone knows of a way to help combat that aspect of > the disease. > > Thanks for the support group; I've been " hanging out " for a few days > reading and I'm so impressed by the conversation in here that I want > to thank all of you. > > - Donna > > > > > > > -------------------------------------------------------------------- ---------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.467 / Virus Database: 269.6.2/785 - Release Date: 5/2/2007 2:16 PM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 Thank you, Donna New member intro > > > Hi- > I recently joined the group and thought I'd introduce myself. I was > diagnosed in 1988 after I flared so bad that I couldn't get down the > steps where I worked. Several co-workers thought I had Lupus and > helped me find an Oncologist (of all people!) who diagnosed me with > Fibro. He also diagnosed PA, but that's another story. > > It's been a long road & part of the road consisted of the stigma > which existed back then about Fibro. I was told I was a malingerer > and that I wasn't really feeling bad-it must just be stress. Ha! > > I now see a Rheumatologist who treats my Fibro, PA and AS. I take > Indocin for anti-inflam. relief, Flexeril for muscle pain, Remicade > and Methotrexate for the PA and AS. Trigger point injections are > available if I need them as well as other types of pain meds. I use > massage and hot showers to deal with pain, too. I'm finally " lucky " > to have a doctor who understands and gently cares for me. I know, > I'm on some heavy drugs, but the PA sapped my strength so much that > the Fibro had to be really bad for me to notice. At least I have > energy in between my infusions. > > So, since I understand that aerobic exercise releases a lot of lactic > acid built up in Fibro people which in turn can cause us more pain, > I'm wondering if anyone knows of a way to help combat that aspect of > the disease. > > Thanks for the support group; I've been " hanging out " for a few days > reading and I'm so impressed by the conversation in here that I want > to thank all of you. > > - Donna > > > > > > > ---------------------------------------------------------- ---------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.467 / Virus Database: 269.6.2/785 - Release Date: 5/2/2007 2:16 PM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 , So glad you are not interested in pharmaceuticals. We are all here mainly managing our MS without them. The diet that worked for me is the Best Bet Diet which I've been on for over 4 years. Various alternative supplements help, notably vitamin D3 and MSM. CCSVI treatment has helped me tremendously. You'll find lots of valuable information in the archives here. If you have a particular question just shout. Welcome! Janet To: mscured From: atlanteanproductions@... Date: Tue, 10 May 2011 08:56:07 -0500 Subject: New member intro ---------- Forwarded message ---------- Date: Tue, May 10, 2011 at 8:53 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Awesome! I am only interested in alternative health\medicines at this point. Very recently diagnosed this month, I am still in the process of finding a 2nd opinion so I haven't quite accepted this diagnosis but my neurologist seems sure after seeing 2 MRIs and my Trigeminal Neuralgia outbreak in March. She is wanting me to begin daily injections of Copaxone to slow down any possible progression of the disease but I'm not open to any pharmaceuticals right now. My family is very supportive that I only seek natural and homeopathic remedies due to the history of conventional medicine. Thank you for this news group. Craft ------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 I was on Avonex for 1 month and Copaxone for 1 year. They did absolutely nothing for me and, I suspect, may have been causing more damage. > > ---------- Forwarded message ---------- > > Date: Tue, May 10, 2011 at 8:53 AM > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > To: mscured Moderator <mscured-owner > > > > Awesome! I am only interested in alternative health\medicines at this > point. Very recently diagnosed this month, I am still in the process of > finding a 2nd opinion so I haven't quite accepted this diagnosis but my > neurologist seems sure after seeing 2 MRIs and my Trigeminal Neuralgia > outbreak in March. She is wanting me to begin daily injections of Copaxone > to slow down any possible progression of the disease but I'm not open to any > pharmaceuticals right now. > > My family is very supportive that I only seek natural and homeopathic > remedies due to the history of conventional medicine. Thank you for this > news group. > > Craft > > > > ------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Thank you for that info, that is why I joined this group! I want to hear from the people in the trenches actually going thru this journey and not from my neurologist who basically looks at me as if I'm from another planet when I question her treatments which are ALL prescription drugs. Before she even saw the 2nd MRI, she wanted me to take Carbamazepine an anti-seizure med that is used to treat epilepsy!!! Yikes, glad I didn't listen to her. ________________________________ To: mscured Sent: Tue, May 10, 2011 12:20:36 PM Subject: Re: New member intro  I was on Avonex for 1 month and Copaxone for 1 year. They did absolutely nothing for me and, I suspect, may have been causing more damage. > > ---------- Forwarded message ---------- > > Date: Tue, May 10, 2011 at 8:53 AM > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > To: mscured Moderator <mscured-owner > > > > Awesome! I am only interested in alternative health\medicines at this > point. Very recently diagnosed this month, I am still in the process of > finding a 2nd opinion so I haven't quite accepted this diagnosis but my > neurologist seems sure after seeing 2 MRIs and my Trigeminal Neuralgia > outbreak in March. She is wanting me to begin daily injections of Copaxone > to slow down any possible progression of the disease but I'm not open to any > pharmaceuticals right now. > > My family is very supportive that I only seek natural and homeopathic > remedies due to the history of conventional medicine. Thank you for this > news group. > > Craft > > > > ------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi , welcome to the group. You're in a good place right now in that you have the right attitude and an early start. I hope you can find something here that works for you! > > My family is very supportive that I only seek natural and homeopathic > > remedies due to the history of conventional medicine. Thank you for this > > news group. > > > > Craft > > > > > > > > ------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.