Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 , I too have suffered from RLS for a couple years and completely sympathize. Particularly, lower leg spasms. The Nuero gave me Baclofen but that is only somewhat effective. When the legs act up, I find it comforting to bounce my knee by sitting in a chair, lifting my heal, pivoting on my toes, getting my leg/knee to bounce up and down. It bothers the family. They used to complain I was making the table vibrate, but they got used to it and put up with it now. After 5 or 10 minutes of this, I can lay still and the legs don't bother me. Sometimes it takes longer. Another trick I do for it is to stand with my toes on the first step of our stairs and push my heals down, stretching my calves. It works on curbs as well. I hope you find these methods helpful. The best thing is, these methods don't involve any pills. Good luck. -Tim > > Any help greatly appreciated > > On 4.5mg early morning dose [not night as sleep deprivation] > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > > Just driving me crazy > > Thanks in advance > > Regards//MS/PPMS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Treating CCSVI took away restless leg and body twitches for my husband. He had them so bad prior to treatment. He started LDN last night and we hope it helps him with his pain Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 hi tim and thanks your reply  appreciate your exercise routing but i bit hard for me as in a wheelchair  sounds very similar to when i played sports to strech achilles  regards peter To: mscured Sent: Thursday, 19 May 2011, 14:59 Subject: Re: Legs  , I too have suffered from RLS for a couple years and completely sympathize. Particularly, lower leg spasms. The Nuero gave me Baclofen but that is only somewhat effective. When the legs act up, I find it comforting to bounce my knee by sitting in a chair, lifting my heal, pivoting on my toes, getting my leg/knee to bounce up and down. It bothers the family. They used to complain I was making the table vibrate, but they got used to it and put up with it now. After 5 or 10 minutes of this, I can lay still and the legs don't bother me. Sometimes it takes longer. Another trick I do for it is to stand with my toes on the first step of our stairs and push my heals down, stretching my calves. It works on curbs as well. I hope you find these methods helpful. The best thing is, these methods don't involve any pills. Good luck. -Tim > > Any help greatly appreciated >  > On 4.5mg early morning dose [not night as sleep deprivation] >  > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles >  > Just driving me crazy >  > Thanks in advance >  > Regards//MS/PPMS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 , do your legs feel like they're full of concrete, your but feel like it's full of lead? > > > > Any help greatly appreciated > > Â > > On 4.5mg early morning dose [not night as sleep deprivation] > > Â > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > > Â > > Just driving me crazy > > Â > > Thanks in advance > > Â > > Regards//MS/PPMS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 , At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. You can do the knee bouncing while still in your chair. It may take courage and physical feets of strength, but you can do it. Not only will it help your RLS, but it will help prevent atrophy. Good luck. -Tim > > > > Any help greatly appreciated > > Â > > On 4.5mg early morning dose [not night as sleep deprivation] > > Â > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > > Â > > Just driving me crazy > > Â > > Thanks in advance > > Â > > Regards//MS/PPMS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Sounds easy doesn't it? It may not be because some of us are unable to make contact with the nerves necessary to stand and bounce. I used to have help stretching my legs and rotating my ankles. That may be a better way to go. > > , > > At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 I find it helpful to have my husband do some range of motion on my legs. I agree with , sometimes its easier said than done, especially if you dont have the strength or mobility to stand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Thanks Tim, Last night (although I've had CCSVI treatment) my legs were aching big time. I got up and stretched them on the stairs then did some medicinal marijuana. I don't know which did it but sleep at last! Thanks. Janet To: mscured From: tloftus@... Date: Fri, 20 May 2011 17:55:43 +0000 Subject: Re: Legs , At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. You can do the knee bouncing while still in your chair. It may take courage and physical feets of strength, but you can do it. Not only will it help your RLS, but it will help prevent atrophy. Good luck. -Tim > > > > Any help greatly appreciated > > Â > > On 4.5mg early morning dose [not night as sleep deprivation] > > Â > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > > Â > > Just driving me crazy > > Â > > Thanks in advance > > Â > > Regards//MS/PPMS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 If you have true RLS than stretching won't help it since this is a neurological condition not a physical one in the legs themselves. True RLS is not painful, it is annoying as hell, but not painful. It is the strongest urge to move your legs, mainly while at rest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 Whatever you call it, it is painful! It is likely due to a mineral defeciency. Stretching is good regardless of the motivation. It helps your circulation. > > If you have true RLS than stretching won't help it since this is a > neurological condition not a physical one in the legs themsel ves. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 hi alison - yes and yes, probaly more so as i am in a wheelchair regards peter To: mscured Sent: Friday, 20 May 2011, 18:29 Subject: Re: Legs  , do your legs feel like they're full of concrete, your but feel like it's full of lead? > > > > Any help greatly appreciated > >  > > On 4.5mg early morning dose [not night as sleep deprivation] > >  > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > >  > > Just driving me crazy > >  > > Thanks in advance > >  > > Regards//MS/PPMS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 tim - yes well aware that exercise especially streching is good for us wheelers  living in bungalow hence no stairs but have got grap-rails that i can use  bungalow - why ? - becuase the builder ran out of bricks so he 'bungalow' roof on the build !!!!  brgds peter To: mscured Sent: Friday, 20 May 2011, 18:55 Subject: Re: Legs  , At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. You can do the knee bouncing while still in your chair. It may take courage and physical feets of strength, but you can do it. Not only will it help your RLS, but it will help prevent atrophy. Good luck. -Tim > > > > Any help greatly appreciated > >  > > On 4.5mg early morning dose [not night as sleep deprivation] > >  > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > >  > > Just driving me crazy > >  > > Thanks in advance > >  > > Regards//MS/PPMS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 hi alison yes appeciate importance of stetching and working those ankles especially for circulation regards peter To: mscured Sent: Friday, 20 May 2011, 19:28 Subject: Re: Legs  Sounds easy doesn't it? It may not be because some of us are unable to make contact with the nerves necessary to stand and bounce. I used to have help stretching my legs and rotating my ankles. That may be a better way to go. > > , > > At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 My concrete went away with CCSVI treatment. I have noticed though in extreme hot temperatures there is still a little banding in one leg. Janet To: mscured From: peter.nicholls@... hi alison - yes and yes, probaly more so as i am in a wheelchair regards peter To: mscured Sent: Friday, 20 May 2011, 18:29 Subject: Re: Legs , do your legs feel like they're full of concrete, your but feel like it's full of lead? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 I had that too but Prokarin and also Armour thyroid make me feel lighter. I'm still leaning towards the hypothyroid aspect and both " medications " help me in that area. > > hi alison - yes and yes, probaly more so as i am in a wheelchair > regards peter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 A stretching exercise you could do in your wheelchair could be the one given to me. You buy a yoga strap. The one I bought had a plastic snapping lock. I moved it to the end of the strap so it can snap in a loop around my ankle. Then sitting in the chair on the front edge of the seat, you would snap the loop around the ankle, extend that leg fully out, and pull with your arm on the long part of the yoga strap to stretch the inside of the leg and the calf. You hold the stretch for 30 seconds, and rest, then repeat three times and switch legs. I thinnk it would help. The leg that doesn't have the strap on it would be stabilizing you by resting on the floor. Carolyn > > > > , > > > > At the risk of sounding insensitive; Get out of the chair for the calf stretches. Use the stair railing to hold on to. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 LOVE your sense of humor. Keep smiling. > > > > > > Any help greatly appreciated > > >  > > > On 4.5mg early morning dose [not night as sleep deprivation] > > >  > > > Legs suffer from continual RLS [restless legs syndrome] and Pins-and-Needles > > >  > > > Just driving me crazy > > >  > > > Thanks in advance > > >  > > > Regards//MS/PPMS > > > > > > Quote Link to comment Share on other sites More sharing options...
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