Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 I'm interested in trying it too. After CCSVI I am so much better but still have mobility and balance problems and the odd incontinence issue (it goes in extremes - one day every 20 minutes a problem, another day 8 hours without needing a bathroom). Anyone with PPMS been on LDN for a while? Janet To: mscured From: sonia_butterfly@... time to try LDN I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 hi janet  started on 1ml solution 02 december last year, built up to 4.5 ml over 4 months, top dose 4.5 does not suite me as my ms is in my legs neuro muscular, stiffness, spasms, neuro pain, cramps etc  and the worse pins and needles plus restless legs  not seen too much improvement but will continue as treating as long term fix, but realise cannot fix what has already broken such as neurons/nerve ending  good luck  regards/peter/london/ppms To: MS-Cured <mscured > Sent: Wednesday, 18 May 2011, 19:40 Subject: RE: Re: LDN (was Vitamin D level survey)  I'm interested in trying it too. After CCSVI I am so much better but still have mobility and balance problems and the odd incontinence issue (it goes in extremes - one day every 20 minutes a problem, another day 8 hours without needing a bathroom). Anyone with PPMS been on LDN for a while? Janet To: mscured From: sonia_butterfly@... time to try LDN I guess. Quote Link to comment Share on other sites More sharing options...
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