RE: Neuro Muscular problems

[Guest guest]

Janet, try Prokarin with CCSVI. It has helped my swollen feet and my hands work

better. I didn't know that you are an artist. I am too and I wasn't able to

create anything for awhile or open my antique shop. The store is closed now

because I can't leave here to buy inventory and I make more jewelry than I paint

pots.

>

>

> Hi ,

> It's a bastard, isn't it! I was diagnosed the same year as you (1995) and

have Primary Progressive and live my life in a wheelchair.

> I'm not at all surprised you are clinically depressed.

[Guest guest]

, its great that its restoring some of your functions !!!  I feel the

same way.  My progress is not continous, but I test the waters too much and

over

do things too often.  That causes a bit of a setback at times.  However the

prokarin has restored an overall sence of strength in my body that was lacking

before.  Its feeling stronger but it fluctuates at times.  I realize it takes

time to heal and it hasn't been long that I have been on the treatment. 

I feel like the prokarin has done more for me than anything else I have tried. 

________________________________

To: " mscured " <mscured >

Sent: Wed, May 11, 2011 8:45:56 AM

Subject: Re: Re: Neuro Muscular problems

 

hi alison and thanks your rep

 

nutrition, what is specific avoidance foods and diet, very interested, as 'you

are what you eat' thoery i find very interesting

 

i am considering prokarin but find had to source in the uk, any suggestions?

 

regards peter

To: mscured

Sent: Wednesday, 11 May 2011, 14:06

Subject: Re: Neuro Muscular problems

 

I had the same results with LDN. I stopped taking it and I have gotten better

with nutrition. I'm trying Prokarin now and instead of just halting the

progression of disease it is restoring some of my functions. My first obvious

symptoms of MS were mobility issues. I'm starting to doubt the immune system

hypothesis. Look into Elaine DeLack  theory of why histamine is defecient in

PWMS, its effect on cyclic AMP and what that does in your body.

>

> hi guys

>  

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a

>wheelcha

[Guest guest]

My leg stiffness, cramps, spasms are gone since I have started taking the

prokarin.  Also my bowels and bladder work without any issues like constipation

or leakage.  I am getting stronger and the cog fog is clearing.  I would try

the

prokarin and see if it has a positive effect on you.  I was very close to being

wheelchair bound at the time I started it.  Its only been a few months of

treatment for me, but the improvements are still happening.  A few weeks ago

the

foot drop was decreasing. 

________________________________

To: " lowdosenaltrexone " <lowdosenaltrexone >;

" mscured " <mscured >; " LDN_Users "

<LDN_Users >

Sent: Wed, May 11, 2011 3:10:46 AM

Subject: Neuro Muscular problems

 

hi guys

 

ms dx 1995 primary progressive, slow deterioration in walking ability, now in a

wheelchair

 

been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

 

if anyone has same dx as me with similar problems [leg stiffness, cramps, neuro

pain, spasms] would appreciate suggestions and advise, ldn i get scrip from nhs

doc and source from dicksons glasgow uk

 

doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x night]

plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side effects]

not keen on any of these due to side effects

 

do not take any vitamins, supplements nor minerals, nor avoidance diet

 

also have monthly b12 injection hydroxocobalamin 1ml

 

told i am clinically depressed due to ms

 

any reply greatly appreciated

 

regards/peter/ppms/london

[Guest guest]

I am in the same damned PPMS boat with you - taking on water and sinking fast.

That makes it so much more difficult to stay positive/hopeful. I really should

be in a wheelchait full time, but I am trying to stay on my feet as long as I

can.

I am using a walker around the house and crutches when I have to visit anyone,

but use my wheelchair for any extended walking.

A Physical Therapist once told me " Don't rush into disability. " so I stay out of

the chair as much as possible.

I keep trying different things too - for 3 years since diagnosis. LDN didn't

help. CCSVI Liberation didn't help. I am in the 3rd day of a juice fast now.

I also take the recommended supplements.

I'm unemployed, running out of money, getting depressed and loosing hope.

I wish I had something better to tell you, but be comforted knowing you are not

alone. With all the cash generated to beat MS, they should know what causes it

and have a cure.

Best wishes,

-Tim

>

> hi guys

>  

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a wheelchair

>  

> been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

>  

> if anyone has same dx as me with similar problems [leg stiffness, cramps,

neuro pain, spasms] would appreciate suggestions and advise, ldn i get scrip

from nhs doc and source from dicksons glasgow uk

>  

> doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x

night] plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side

effects] not keen on any of these due to side effects

>  

> do not take any vitamins, supplements nor minerals, nor avoidance diet

>  

> also have monthly b12 injection hydroxocobalamin 1ml

>  

> told i am clinically depressed due to ms

>  

> any reply greatly appreciated

>  

> regards/peter/ppms/london

>

>

[Guest guest]

I am sorry. I read my note and it makes me more depressed. That was definately

not my intention.

It's true, work/career as I have known it will probably never happen again. I

have an online business now and I am figuring out ways to earn a living on my

computer (I'm not there yet but I will get there.). Even if I get well, I may

never go back to my profession. Maybe new doors will open for me and my

disabilities will turn out to be blessings in disguise.

Best regards,

Tim

> >

> > hi guys

> >  

> > ms dx 1995 primary progressive, slow deterioration in walking ability, now

in a wheelchair

> >  

> > been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

> >  

> > if anyone has same dx as me with similar problems [leg stiffness, cramps,

neuro pain, spasms] would appreciate suggestions and advise, ldn i get scrip

from nhs doc and source from dicksons glasgow uk

> >  

> > doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x

night] plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side

effects] not keen on any of these due to side effects

> >  

> > do not take any vitamins, supplements nor minerals, nor avoidance diet

> >  

> > also have monthly b12 injection hydroxocobalamin 1ml

> >  

> > told i am clinically depressed due to ms

> >  

> > any reply greatly appreciated

> >  

> > regards/peter/ppms/london

> >

> >

[Guest guest]

Hi Tim,

May I suggest the Best Bet Diet, colloidal silver, and colloidal gold. For more

information, visit

http://tinyurl.com/advice-to-msers

Don't give up. There are still lots of options open to you.

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Thanks Dudley. What is Colloidal silver/gold, what does it do and why does it

work? These sound like metals that should not be ingested?

>

> Hi Tim,

>

> May I suggest the Best Bet Diet, colloidal silver, and colloidal gold. For

more information, visit

>

> http://tinyurl.com/advice-to-msers

>

> Don't give up. There are still lots of options open to you.

>

> With best wishes,

>

> Dudley Delany

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

Get them from iHerb on the Internet. They ship to Europe and their prices

aren't bad.

Janet

To: mscured

From: peter.nicholls@...

Date: Thu, 12 May 2011 11:12:12 +0100

Subject: Re: Neuro Muscular problems

hi julie, interesting your email, checked on many uk supplement providers and

they say: * Paradise Herbs Reishi Supreme Red Ling Zhi -- 60 Vegetarian Capsules

cannot be shipped to the selected address.

any suggestions greatly appreciated

regards/peter/ppms/london

[Guest guest]

I do plan on trying Prokarin but not yet. I want to wait a year since

my CCSVI treatment to see how far it will go.

So glad it is helping you. Keep us updated.

I wouldn't call myself an artist but I'm getting there.

Janet

To: mscured

From: alpdesigns1@...

Date: Wed, 11 May 2011 18:21:22 +0000

Subject: Re: Neuro Muscular problems

Janet, try Prokarin with CCSVI. It has helped my swollen feet and my hands work

better. I didn't know that you are an artist. I am too and I wasn't able to

create anything for awhile or open my antique shop. The store is closed now

because I can't leave here to buy inventory and I make more jewelry than I paint

pots.

>

>

> Hi ,

> It's a bastard, isn't it! I was diagnosed the same year as you (1995) and have

Primary Progressive and live my life in a wheelchair.

> I'm not at all surprised you are clinically depressed.

[Guest guest]

I recall reading a fairly famous holistic doctor's literature where he felt that

various mushrooms, Reiki and some others--capsule form being OK,  I can't

remember which ones though he felt fought the underlying infections which he

believed were the underlying cause of MS. If I can find the document I will add

the other ones he recommended.

I haven't tried this method yet personally but would be interested in following

along on this discussion if others are using mushrooms in their healing.

Zoe

________________________________

To: mscured

Sent: Thu, May 12, 2011 9:57:12 AM

Subject: Re: Re: Neuro Muscular problems

 

Hi Tim,

I started on Reishi which is a mushroom and it has done wonders! This balances

out your whole body, it is used for aides and cancer in other countries! It

costs around $15.00 for a 2 month supply I get this at iherb.com the brand is

Paradise-Reishi. I have been taking it for 2 weeks and my stamina is good, this

is used for so many ailments. Do you have a good support system and have you

applied for disability? Hang in there and don't ever stop looking for that cure,

you need to try everything and see what works for you!!!!

[Guest guest]

yes boss, good idea re bbd, will start on no gluten, is soya or rice milk ok?

take a look at www.thewheellife and spot me

thanks peter

 

 

 

To: MS-Cured <mscured >

Sent: Thursday, 12 May 2011, 18:24

Subject: RE: Neuro Muscular problems

 

Your comment made me laugh " a wheeler with neuro problems " and although I am

sure you are referring to neuroLOGICAL problems, we probably have more

neuroLOGIST problems especially as, as we all know, MS is all in our heads and

doesn't really exist! (Said tongue in cheek, before you beat me up.)

BBD is easy. Don't wait until you've looked into it fully or you'll never do it.

Stop one of the food groups NOW, e.g. gluten (wheat, barley, oats, rye) and

replace with corn, quinoa, millet, buckwheat, amaranth, chestnut, or dairy

(cheese, milk, cream, yoghurt - all - cow's, sheep's, goat's or yak's!), replace

with nut milk, rice milk, hemp milk, quinoa milk, amaranth milk or coconut milk.

Wait a month before you tackle the next.

Start vitamin D3, nearly everyone is deficient in it so it won't harm.

Get blood tests at your GP to see if you are low on other minerals and vitamins.

Good luck and keep enjoying people watching.

Janet

To: mscured

From: peter.nicholls@...

gives me inependence and solitude that is sometimes hard once your a wheeler

with neuro problems

looking into bbd

vitamins, minerals and supplements, yes, but as we are all different, difficult

to know what to take

[Guest guest]

hi zoe, order on it's way, i'll let you know

regards peter

To: mscured

Sent: Friday, 13 May 2011, 1:29

Subject: Re: Re: Neuro Muscular problems

 

I recall reading a fairly famous holistic doctor's literature where he felt that

various mushrooms, Reiki and some others--capsule form being OK,  I can't

remember which ones though he felt fought the underlying infections which he

believed were the underlying cause of MS. If I can find the document I will add

the other ones he recommended.

I haven't tried this method yet personally but would be interested in following

along on this discussion if others are using mushrooms in their healing.

Zoe

________________________________

To: mscured

Sent: Thu, May 12, 2011 9:57:12 AM

Subject: Re: Re: Neuro Muscular problems

 

Hi Tim,

I started on Reishi which is a mushroom and it has done wonders! This balances

out your whole body, it is used for aides and cancer in other countries! It

costs around $15.00 for a 2 month supply I get this at iherb.com the brand is

Paradise-Reishi. I have been taking it for 2 weeks and my stamina is good, this

is used for so many ailments. Do you have a good support system and have you

applied for disability? Hang in there and don't ever stop looking for that cure,

you need to try everything and see what works for you!!!!

[Guest guest]

Soya is out (legume) but rice is OK.

Thanks for the wheellife link, didn't know it existed, will look later.

Have a happy, gluten-free day!

Be prepared for brain fog to diminish in a few weeks.

Janet

To: mscured

From: peter.nicholls@...

Date: Fri, 13 May 2011 09:09:44 +0100

Subject: Re: Neuro Muscular problems

yes boss, good idea re bbd, will start on no gluten, is soya or rice milk ok?

take a look at www.thewheellife and spot me

thanks peter

To: MS-Cured <mscured >

Sent: Thursday, 12 May 2011, 18:24

Subject: RE: Neuro Muscular problems

Your comment made me laugh " a wheeler with neuro problems " and although I am

sure you are referring to neuroLOGICAL problems, we probably have more

neuroLOGIST problems especially as, as we all know, MS is all in our heads and

doesn't really exist! (Said tongue in cheek, before you beat me up.)

BBD is easy. Don't wait until you've looked into it fully or you'll never do it.

Stop one of the food groups NOW, e.g. gluten (wheat, barley, oats, rye) and

replace with corn, quinoa, millet, buckwheat, amaranth, chestnut, or dairy

(cheese, milk, cream, yoghurt - all - cow's, sheep's, goat's or yak's!), replace

with nut milk, rice milk, hemp milk, quinoa milk, amaranth milk or coconut milk.

Wait a month before you tackle the next.

Start vitamin D3, nearly everyone is deficient in it so it won't harm.

Get blood tests at your GP to see if you are low on other minerals and vitamins.

Good luck and keep enjoying people watching.

Janet

To: mscured

From: peter.nicholls@...

gives me inependence and solitude that is sometimes hard once your a wheeler

with neuro problems

looking into bbd

vitamins, minerals and supplements, yes, but as we are all different, difficult

to know what to take

[Guest guest]

Whether or not you are on the BBD, soy is not on the list of things you should

eat for reasons other than molecular mimicry. It is full of goitrogens, bad for

the thyroid, and it is genetically modified. Soy is in most processed foods.

Gluten can be eliminated or minimized by fermentation or sprouting the grains.

Lactose can also be eliminated by fermenting dairy milk (kefir). I drink

fermented goat's milk and soaked oatmeal daily.

>

>

> Soya is out (legume) but rice is OK.

> Thanks for the wheellife link, didn't know it existed, will look later.

> Have a happy, gluten-free day!

> Be prepared for brain fog to diminish in a few weeks.

> Janet

>

>

>

>

> To: mscured

> From: peter.nicholls@...

> Date: Fri, 13 May 2011 09:09:44 +0100

> Subject: Re: Neuro Muscular problems

>

>

>

>

>

> yes boss, good idea re bbd, will start on no gluten, is soya or rice milk ok?

> take a look at www.thewheellife and spot me

> thanks peter

>

>

>

>

>

> To: MS-Cured <mscured >

> Sent: Thursday, 12 May 2011, 18:24

> Subject: RE: Neuro Muscular problems

>

>

>

> Your comment made me laugh " a wheeler with neuro problems " and although I am

sure you are referring to neuroLOGICAL problems, we probably have more

neuroLOGIST problems especially as, as we all know, MS is all in our heads and

doesn't really exist! (Said tongue in cheek, before you beat me up.)

>

> BBD is easy. Don't wait until you've looked into it fully or you'll never do

it. Stop one of the food groups NOW, e.g. gluten (wheat, barley, oats, rye) and

replace with corn, quinoa, millet, buckwheat, amaranth, chestnut, or dairy

(cheese, milk, cream, yoghurt - all - cow's, sheep's, goat's or yak's!), replace

with nut milk, rice milk, hemp milk, quinoa milk, amaranth milk or coconut milk.

Wait a month before you tackle the next.

> Start vitamin D3, nearly everyone is deficient in it so it won't harm.

> Get blood tests at your GP to see if you are low on other minerals and

vitamins.

> Good luck and keep enjoying people watching.

> Janet

>

> To: mscured

> From: peter.nicholls@...

>

> gives me inependence and solitude that is sometimes hard once your a wheeler

with neuro problems

>

> looking into bbd

> vitamins, minerals and supplements, yes, but as we are all different,

difficult to know what to take

>

>

[Guest guest]

Mercury and Toxic metals commonly cause such; test and detox if appropriate

www.flcv.com/neurohg.html

COQ10 deficiency can cause neuro muscular problems; most need this anyway but

especially with cardio problems or COQ10 deficiency ; statins cause this problem

for example

Bernie

[Guest guest]

Brilliant! That is step one done.

Good luck.

Janet

To: mscured

From: peter.nicholls@...

Date: Sat, 14 May 2011 11:49:43 +0100

Subject: Re: Neuro Muscular problems

rice milk on the shop list

gluten or glutton eh

cheers/peter