Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 Hi kallmetigger I'm not touching it - I am, like you, am very concerned about the side effects. My walking has improved ot of sight since my CCSVI procedure in November of last year. I'm also looking into other far more natural treatments than Gilenya. I do know some people who are loudly and proudly taking it (through Facebook) but the group I run there is geared towards the 'alternative' means of treating 'MS' so because I warn people of the side effects and tell them about the information I find on drugs like this, people who take the drugs don't tend to talk to me about their drugs. All we can do is go by gut-feeling and research - if you're open to taking the drugs, and if you feel that any benefits you get will outweigh the risks, then do it. Each of us must do what we each believe is right for us. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: kallmetigger@... Date: Fri, 6 May 2011 05:42:06 +0000 Subject: gylenia I was wondering if anyone is currently taking this medication, and if so how long have you been on it, and if you have had any issues. The side affects in the literature that come with it scare me to death. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 I thank you for your response. Whether you know it or not. You answered my question about taking it. When you said going by your gut, i knew. It was my answer. I have felt in my gut NO. I look forward to hearing about other alternatives. Sent from my HTC Inspireâ„¢ 4G on AT & T ----- Reply message ----- To: " MSCured " <mscured > Subject: gylenia Date: Fri, May 6, 2011 6:13 am Hi kallmetigger I'm not touching it - I am, like you, am very concerned about the side effects. My walking has improved ot of sight since my CCSVI procedure in November of last year. I'm also looking into other far more natural treatments than Gilenya. I do know some people who are loudly and proudly taking it (through Facebook) but the group I run there is geared towards the 'alternative' means of treating 'MS' so because I warn people of the side effects and tell them about the information I find on drugs like this, people who take the drugs don't tend to talk to me about their drugs. All we can do is go by gut-feeling and research - if you're open to taking the drugs, and if you feel that any benefits you get will outweigh the risks, then do it. Each of us must do what we each believe is right for us. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: kallmetigger@... Date: Fri, 6 May 2011 05:42:06 +0000 Subject: gylenia I was wondering if anyone is currently taking this medication, and if so how long have you been on it, and if you have had any issues. The side affects in the literature that come with it scare me to death. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2011 Report Share Posted June 21, 2011 Hello kallmetigger: I am testing Gylenya since near 3 years as a clinic assay. I dislike to take drugs but I must recognize that without Gilenya I will be in a wheel seat. The didn´t notice side effects sauf a little braquicardia first day. Gylenya is based on a mushroom from Asia and it sounds me well. It looks is not recommended for all kind of MS. Gylenya hasn´t stop my MS but it made my life more normal. Less fatigue for example. But al last MS contued and I read about nutrition for MS and I a m improving a little day by day after three months. I don´t know where I will reach to and the relative influence or both medicines. Hugo > > > Hi kallmetigger > I'm not touching it - I am, like you, am very concerned about the side effects. > My walking has improved ot of sight since my CCSVI procedure in November of last year. I'm also looking into other far more natural treatments than Gilenya. > I do know some people who are loudly and proudly taking it (through Facebook) but the group I run there is geared towards the 'alternative' means of treating 'MS' so because I warn people of the side effects and tell them about the information I find on drugs like this, people who take the drugs don't tend to talk to me about their drugs. > > All we can do is go by gut-feeling and research - if you're open to taking the drugs, and if you feel that any benefits you get will outweigh the risks, then do it. Each of us must do what we each believe is right for us. > > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > > > > > > To: mscured > From: kallmetigger@... > Date: Fri, 6 May 2011 05:42:06 +0000 > Subject: gylenia > > > > > > > I was wondering if anyone is currently taking this medication, and if so how long have you been on it, and if you have had any issues. The side affects in the literature that come with it scare me to death. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.