Hello after a long time

[Guest guest]

This group meant a lot to me when I was diagnosed back in 2003. It encouraged me

to be my own best doctor and do lots of reading and asking of questions. I

haven't been here in a while so just wanted to drop by and say I'm still doing

well, though I have progressed somewhat.

I now eat a gluten-free, legume-free, dairy-free and almost sugar-free

diet--lots of fruits & veggies, and I take a bundle of supplements including

r-lipoic acid, good old fish oil and Vitamin D3. I also watch fat content,

particularly saturated fats--my goal there is to be as close to zero as I can

get. I can tell the difference by the next day if I don't.

Last Dec.I went to San Diego for venoplasty, which initially gave me some mild

improvements; those mostly disappeared within a month, or so I thought until I

took stock this week. Now I'm convinced that I am continuing to grow stronger;

my brain function improved immediately and that has not changed; my horribly

sore neck and shoulders -- so bad that I dreaded trying to sleep -- those are

almost entirely gone.I still have numb toes and foot drop on one foot and I

still walk with a cane but I'd say my QOL is extremely good. It's even better

than that when I meditate every day.

I've been taking 4.5mg of LDN since 2005 and that immediately reduced my fatigue

by about 75%, and that has continued. As a person who probably has PPMS (As far

as I know, I've never had an attack or a relapse,)I knew that I was in the

population segment least likely to have dramatic results from venoplasty. I had

just hoped to perhaps stop the slow progression I have experienced. I'm charting

every month at CCSVI-tracker.com and now I can see the slow improvements I've

made over the past 4-1/2 months.

So many people here have been so kind and helpful to me; not everything works

for everyone, but I tried a lot of suggestions and one thing I'm absolutely sure

of, is that people here gave me the best possible attitude. It comes from hope

of course, and knowing that there are things that can be done. I never fell

into the hands of anyone who told me that it was all hopeless and I should just

prepare for the downward spiral. I've sure heard plenty of horror stories from

those who did!

If any of my old friends are still here, you can read more about my adventures

with MS at www.generalstatic.blogspot.com

Many thanks for everything and I won't be a stranger!

Daphne

[Guest guest]

Welcome back, Daphne. Keep up the good work!

Here is a site you may appreciate:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany