Guest guest Posted April 5, 2011 Report Share Posted April 5, 2011 All I can say is the side effects are very small in comparison to the regular meds. Call elaine with your concerns and talk with her. She is the expert and can answer your questions. ________________________________ To: mscured Sent: Mon, April 4, 2011 4:06:05 PM Subject: Prokarin Update  My other of blood results aside, I received today my first month Prokarin patches from the compounding pharmacy and read through the literature. The recommended diet and supplements differs quite a lot from the BBD and Swank, as for example they recommend eating a high saturated fat food every day or at least every other day, no PUFA oils, and low vitamin D. I also noted, as in the EDMS website that in a placebo-controlled study done by the company, that the only difference between the two groups -those on Prokarin and those on Placebo-was in fatigue, with less fatigue in the Prokarin group. Also in the literature that came with the package are a list of risk and side effects including blot clots and other scary things. All this got me back to Tom Bayak's and my own previous question as to why Prokarin, if available since the late 90s, has not had more people singing it's praises. Please. I do not mean to take away from those who have had great results like Elaine, Joy, and several others. Clearly this works for some people, perhaps many people, I really don't know. However, I am questioning this a lot more and I put my patches in the fridge as instructed in the directions but am not sure I am going to move forward with this or not. I am wondering if anyone else in the group is still pursuing the Prokarin patch? thank. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2011 Report Share Posted April 5, 2011 Her book came in the mail yesterday and I have already read a lot of it. It is a great explanation of how Prokarin works and why it wasn't marketed as a drug for MS. > > All I can say is the side effects are very small in comparison to the regular > meds. Call elaine with your concerns and talk with her. She is the expert and > can answer your questions. > > > > > > ________________________________ > > To: mscured > Sent: Mon, April 4, 2011 4:06:05 PM > Subject: Prokarin Update > >  > My other of blood results aside, I received today my first month Prokarin > patches from the compounding pharmacy and read through the literature. The > recommended diet and supplements differs quite a lot from the BBD and Swank, as > for example they recommend eating a high saturated fat food every day or at > least every other day, no PUFA oils, and low vitamin D. I also noted, as in the > EDMS website that in a placebo-controlled study done by the company, that the > only difference between the two groups -those on Prokarin and those on > Placebo-was in fatigue, with less fatigue in the Prokarin group. Also in the > literature that came with the package are a list of risk and side effects > including blot clots and other scary things. All this got me back to Tom Bayak's > and my own previous question as to why Prokarin, if available since the late > 90s, has not had more people singing it's praises. Please. I do not mean to take > away from those who have had great results like Elaine, Joy, and several others. > Clearly this works for some people, perhaps many people, I really don't know. > However, I am questioning this a lot more and I put my patches in the fridge as > instructed in the directions but am not sure I am going to move forward with > this or not. > > I am wondering if anyone else in the group is still pursuing the Prokarin patch? > > thank. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 But were you 10 years progressive ms, or relapsing remitting ms? > > Before prokarin I could barely walk 500 feet with great difficult. My feet > could barely lift off the floor, it was more of a shuffle. My speech was > slurred, slow, severe cog fog, very extremely weak. Almost wheelchair bound. I > needed assistance to get out of a chair. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 The doc did not tell me. However the last two years were spent with constant progression and worsening of my abilities. I was getting extremely weak and dependant on my husband. ________________________________ To: mscured Sent: Wed, May 18, 2011 9:16:26 AM Subject: Re: Prokarin update But were you 10 years progressive ms, or relapsing remitting ms? > > Before prokarin I could barely walk 500 feet with great difficult. My feet > could barely lift off the floor, it was more of a shuffle. My speech was > slurred, slow, severe cog fog, very extremely weak. Almost wheelchair bound. >I > > needed assistance to get out of a chair. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 I'm still using 1/4 of a disc of Prokarin. I started taking several kinds of enzymes again (digestive, probiotic, pacreatic, FOS) because I don't think I make enough yet with Prokarin. I started feeling weak/light-headed again at such a small dose and the enzymes have helped in that area. I can pick up an egg out of the carton, something I have been unable to do. I have hand strength and have for a long time but I didn't feel like I had any fingerprints, no traction. I lift my foot onto my footrest more naturally without the use of my arms. I do it everytime I get up. I'm standing more frequently for exercise. I hold the grab-bars for support. I use my legs to stand instead of just pulling myself up. I'm a long way from walking but I'm further away from being bed-ridden! Quote Link to comment Share on other sites More sharing options...
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