Re: Lymes Disease

[Guest guest]

Hi Tim,

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For more information about colloidal silver, visit

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With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

My Story:

Optic neuritis:april 2000

have family physican test me for Lyme Disease, aka borreliosis. Test indicated

I did NOT have Lyme Disease

FIRST MS diagnosis. April 2004: take Rebif for one year, Copaxone for 10 months

- loss of strength sped up DRASTICALLY after starting Rebif

SECOND MS diagnosis Aug 2006

Hire quackish physician and start LDN for one year. Still losing strength

Start IV Calcium ethyl amino phosphate and take 3 IV injections per week for one

year.

Hire Lyme Literate Medical Doctor (LLMD) and diagnosed with Lyme Disease + about

6 coinfections March 2008. Take buckets of antibiotics. Lose 40lbs, go from

one cane to two canes.

Hire LLMD #2 and #3 2010

April 2011 start taking a Lyme Tea described in " Healing Lyme " by Buhner and

available on Amazon. Feeling some improvements with the Lyme Tea.

Have written MUCH about Lyme Disease here on " Curing Multiple Sclerosis. Use

the SEARCH function to find my writings.

Here is a News Expose' " Ticked " that features a gal that was diagnosed with MS,

THEN figured out she actually has Lyme Disease:

http://vimeo.com/2354218

Lyme Disease symptoms

www.canLyme.com

the phrase Lyme disese was made for the failed vaccine that killed several

people. A more scientific name is " borreliosis "

How I feel about this sickness

Wermers remembered

>

> Hello. Usually I just read posts and occasionally comment. I'm curious if I've

been as thorough as possible in testing for Lymes. I don't recall what testing I

had done. In any case i can find out. I was dx'd with RRMS 4 1/2 years ago. For

the past 2 1/2 years I haven't had a remission and am getting a lot worse. I'm

in the process of getting a scooter. Anyhow, I've been tested for Lymes and had

it come back negative each time. What gets me is that I have been organic BBD

for almost 8 mths, LDN for 1 yr, I'm getting Calcium EAP IV's for 2 years, I'm

gluten, dairy and sugar-free for over 6 months, I was Liberated in Dec and am

doing Homeopthic clensing for my liver, kidneys and Lymph. My fatigue has almost

put me in a paralyitic state. None of these therepies has made any noteable

improvement. I'm also doing a homeopathic spray for EBV for about 2 months now

which has also been recently tested and came back severely active.

> So my question in short of retesting the EBV since starting the sprays and

given all my recent MRI showing no new or active lesions " what the heck is the

problem? " . Can anyone out there who has had or knows the most conclusive testing

for Lymes?

> Its just that I read so much about people being misdiagnosed with MS and false

negatives on Lymes. I don't know what to trust other than my gut which has

told me from the start that something other than MS is responsible. Thanks in

advance.

>

[Guest guest]

,

My LLMD calls my current condition " Lyme-induced MS " because I exhibit many

classic symptoms of MS, but the underlying causative agent is the Lyme bacteria.

A Lyme-literate MD will know which tests to order, will use a reputable lab, and

will know how to interpret the results. Many LLMD's do not rely solely on test

results. Lyme is often a clinical diagnosis.

If you are unable find an MD who is Lyme literate, you might consider seeking

help from a practioner of complementary or alternative medicine (someone who is

not an MD).

KC

>

> Hello. Usually I just read posts and occasionally comment. I'm curious if I've

been as thorough as possible in testing for Lymes. I don't recall what testing I

had done. In any case i can find out. I was dx'd with RRMS 4 1/2 years ago. For

the past 2 1/2 years I haven't had a remission and am getting a lot worse. I'm

in the process of getting a scooter. Anyhow, I've been tested for Lymes and had

it come back negative each time. What gets me is that I have been organic BBD

for almost 8 mths, LDN for 1 yr, I'm getting Calcium EAP IV's for 2 years, I'm

gluten, dairy and sugar-free for over 6 months, I was Liberated in Dec and am

doing Homeopthic clensing for my liver, kidneys and Lymph. My fatigue has almost

put me in a paralyitic state. None of these therepies has made any noteable

improvement. I'm also doing a homeopathic spray for EBV for about 2 months now

which has also been recently tested and came back severely active.

> So my question in short of retesting the EBV since starting the sprays and

given all my recent MRI showing no new or active lesions " what the heck is the

problem? " . Can anyone out there who has had or knows the most conclusive testing

for Lymes?

> Its just that I read so much about people being misdiagnosed with MS and false

negatives on Lymes. I don't know what to trust other than my gut which has

told me from the start that something other than MS is responsible. Thanks in

advance.

>

[Guest guest]

Hi ,

You've certainly been thorough. Others can comment more on lyme but apparently

getting the Igenix Lab is considered the best and working with a Lyme Literate

MD is the way to go if you want to explore that. It seems some do very well when

switching diagnosis and taking antibiotics and others don't. But I was wondering

in reading your post, if you have done much in the way of testing and treatment

for mercury and other heavy metals. I have heard stories of people who had MS

diagnoses and got out of wheelchairs through amalgam removal and

chelation--again though it doesn't work for all. Also, have you given up legumes

and had an ELISA test for foods that may be BBD compliant but that you are

reacting to.

Zoe

________________________________

To: mscured

Sent: Fri, June 10, 2011 11:55:40 AM

Subject: Lymes Disease

 

Hello. Usually I just read posts and occasionally comment. I'm curious if I've

been as thorough as possible in testing for Lymes. I don't recall what testing I

had done. In any case i can find out. I was dx'd with RRMS 4 1/2 years ago. For

the past 2 1/2 years I haven't had a remission and am getting a lot worse. I'm

in the process of getting a scooter. Anyhow, I've been tested for Lymes and had

it come back negative each time. What gets me is that I have been organic BBD

for almost 8 mths, LDN for 1 yr, I'm getting Calcium EAP IV's for 2 years, I'm

gluten, dairy and sugar-free for over 6 months, I was Liberated in Dec and am

doing Homeopthic clensing for my liver, kidneys and Lymph. My fatigue has almost

put me in a paralyitic state. None of these therepies has made any noteable

improvement. I'm also doing a homeopathic spray for EBV for about 2 months now

which has also been recently tested and came back severely active.

So my question in short of retesting the EBV since starting the sprays and given

all my recent MRI showing no new or active lesions " what the heck is the

problem? " . Can anyone out there who has had or knows the most conclusive testing

for Lymes?

Its just that I read so much about people being misdiagnosed with MS and false

negatives on Lymes. I don't know what to trust other than my gut which has told

me from the start that something other than MS is responsible. Thanks in

advance.

[Guest guest]

Igenex lab is well respected among Lyme patients. They are not foolproof, but

they consistently return more accurate results than other, mainstream labs when

it comes to identifying Lyme and the associated co-infections.

http://igenex.com/Website/

KC

>

> KC,

> I've been seeing a physician who practices Complimentary medicine. He monitors

my EAP IV therepy as well as my overall medical choices. I also began seeing a

naturopath that has been consulting with him. On the surface It'd seem as

though I had my bases covered but in reality I'm doing worse now then ever

before. Lymes is the only thing I can say hasn't been tested to death. I plan on

discussing it with both of them. Thx.

> -M

>

[Guest guest]

Shortly after my April 2000 optic neuritis where in a six day period my left eye

went from 20/15 to 20/400+, I had my family doc test me for Lyme Disease. The

test indicated that I did not have Lyme Disease. That freed me emotionally and

intellectually to pursue an MS diagnosis.

Had been seeing Dr, MD, now deceased, for the intravenous EAP. Took

three IV injections per week for one year. I feel that the EAP provided no

benefit.

I was able to talk Dr. into signing for my first Lyme Disease tests from

Fry Laboratories and IgeneX.

Started " buckets " , aka MANY oral abx about March 2008. Initially had a dramatic

improvement, then a sudden loss of 40 lbs and went from using one cane to using

two canes :-(

I'm up to three LLMDs now. Last month switched to an herbal tea described in

Buhner's book " Healing Lyme " available at Amazon.

I sleep a lot, feel free to send a note to wake me up ;-)

>

> KC,

> I've been seeing a physician who practices Complimentary medicine. He monitors

my EAP IV therepy as well as my overall medical choices. I also began seeing a

naturopath that has been consulting with him. On the surface It'd seem as

though I had my bases covered but in reality I'm doing worse now then ever

before. Lymes is the only thing I can say hasn't been tested to death. I plan on

discussing it with both of them. Thx.

> -M

>

[Guest guest]

Just a thought: Lyme spirochetes tend to bind with other elements (sometimes

iron). Is it possible that killing the Lyme quickly released those elements into

your body making you sick?

>

> Shortly after my April 2000 optic neuritis where in a six day period my left

eye went from 20/15 to 20/400+, I had my family doc test me for Lyme Disease.

The test indicated that I did not have Lyme Disease. That freed me emotionally

and intellectually to pursue an MS diagnosis.

[Guest guest]

Yes, Igenex is not foolproof like KC said, but is far more accurate and more

thorough than say a standard Lyme test. The LLMD I see is the son of the founder

of Igenex-- founder is Dr. Nic -- his son- the LLMD is Dr. .

 

Subject: Re: Lymes Disease

To: mscured

Date: Saturday, June 11, 2011, 12:36 PM

 

Igenex lab is well respected among Lyme patients. They are not foolproof, but

they consistently return more accurate results than other, mainstream labs when

it comes to identifying Lyme and the associated co-infections.

http://igenex.com/Website/

KC

>

> KC,

> I've been seeing a physician who practices Complimentary medicine. He monitors

my EAP IV therepy as well as my overall medical choices. I also began seeing a

naturopath that has been consulting with him. On the surface It'd seem as though

I had my bases covered but in reality I'm doing worse now then ever before.

Lymes is the only thing I can say hasn't been tested to death. I plan on

discussing it with both of them. Thx.

> -M

>

[Guest guest]

The die off of the organism and co-infections can make you sick and  the

organism is very good at hiding so say you take a certain antibiotic and it can

penetrate the cell wall of the organism like Zythromax... the organism is still

able to dodge the antibiotics and go in tissue, cartilage, and now according to

a recently completed study by scientists at UC -- the lymph nodes of the

patient which enable the disease symptoms to fluctuate rapidly -- can be day to

day-- every 3 days or month to month. The article from UC is interesting

because it states that is interesting that the organism would choose to go into

the lymph nodes and can survive there. I like to think of it as the creature in

the movie Alien with Sigourney Weaver---- that sucker was resistant to most

everything they did to try and kill it-- and so is borrealis and the

co-infections. It can take years-- 2.. 3 .. with antibiotics and individuals

still have symptoms. I think what

is hoped for is that the patients are functioning better and have less symptoms

than when they started out-- far less fatigue... less stiffness overall,,,

etc.  It looks like it is pretty normal to drop a lot of weight during the

treatment from what I have seen of ' patients. The effect of all the

antibiotics-- the strength and durantion  is what causes diarrhea and not

being able to eat which leads to the weight loss. He has you buy probiotics and

take them a couple hours before you take the antibiotics, but patients still

have problems. One patient of his that I read a story on stopped treatment

because she said she could not take the effect of all the antibiotics on her

system-- she had dropped 40 pounds. She was young when diagnosed but did say she

felt well enough to return to school and go to college. It is a long battle.

 

Subject: Re: Lymes Disease

To: mscured

Date: Saturday, June 11, 2011, 1:18 PM

 

Just a thought: Lyme spirochetes tend to bind with other elements (sometimes

iron). Is it possible that killing the Lyme quickly released those elements into

your body making you sick?

>

> Shortly after my April 2000 optic neuritis where in a six day period my left

eye went from 20/15 to 20/400+, I had my family doc test me for Lyme Disease.

The test indicated that I did not have Lyme Disease. That freed me emotionally

and intellectually to pursue an MS diagnosis.

[Guest guest]

Mike,

It was my impression from my readings and from one person I know that parasites

should be addressed before liver flushing, rather than after. I have read a

couple of MS healing stories where people felt parasites was the underlying

cause of MS and I know one lady who got her vision back after a year or two of

optic neuritis after doing some heavy-duty parasite cleansing. It seems to be

different for everyone.

But pursuing the Lyme diagnosis, as you have mentioned, sounds like a good idea

given what you have described.

The other thought I had was to look back at what was going on in your life

shortly before or at the time you had your first MS symptoms, like vaccines or

stress or whatever.

Also I know one man with MS who went into total remission though bioidentical

hormone therapy. This isn't as common a tool for men, but it did work for at

least one guy I have corresponded with. He takes several different hormones,

though I'm not sure which.

I hope you find the right thing, whether it's the Lyme treatment route or

another, and of course though it's not talked much about lately there's always

stem cell therapy out there to try to.

Lastly I do know a number of people who could not get their MS to stop

progressing and they took chemo and did go into remission. I know it's extreme.

Not sure if I would do it. But I'm just trying to list everything I can

personally think of because your post really touched me.

Zoe

________________________________

To: " mscured " <mscured >

Sent: Sat, June 11, 2011 9:48:10 AM

Subject: Re: Lymes Disease

 

Zoe,

Yes on all counts. Was tested for heavy metals twice. 1st time I showed severely

elevated Gadolinium and Lead. The gad was from contrast die and I got rid of it

with Modified Citrus Pectin powder that I drank twice a day for over 6 months.

Lead was from bullet frags and adressed it same way. I don't have amalgrams,

however my most recent metals test showed that while the gad and lead where at

low levels I had elevated Mercury that wasn't elevated on previous test. I

beleieve it came from eating excessive shellfish. So I'm doing the

[Guest guest]

Lyme Disease was a name coined for the " Lyme Disease " vaccine that killed

several people :-( The scientific name for the disease is " borreliosis " . My

LLMD #2 diagnosed me as " neuroborreliosis " .

Sadly, NONE of the Lyme Disease tests are 100% accurate! Even my IgeneX test

test merely heavily hints that I have Lyme Disease by all of the pieces of the

spirochetes it detected. There are pictres of my Lyme Disease tests in my

FaceBook account " Lyme " photo album. I will include the page that has all of

the specific weights listed.

http://www.facebook.com/media/set/?set=a.152234948141249.29233.100000642341354

This disease is SERIOUS business. With the help of the

medical-industrial-complex, it has thrown me into a living-death. It forced me

into disability retirement in 2005. Now all I do EVERY day is sit and stare at

the walls.

Connecticut State attorney general Blumenthal(now a Senator) CONVICTED many

people in charge of the Infectious Disease Society of America (IDSA) board of

governors for financial conflicts of interest.

Lyme disease documentary - " Under Our Skin " (UOS) trailer

Canadian Television Lyme Expose'

The two (2) part series is called Out of the Wild. View it here:

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091113/w5_lyme_091114/2009\

1114?s_name=W5

How Lyme Disease and it's Treatments Work

cool 3D animations. I feel the best description of why I am so sick. I don't

quite understand their charts at the end.

> >

> > Shortly after my April 2000 optic neuritis where in a six day period my left

eye went from 20/15 to 20/400+, I had my family doc test me for Lyme Disease.

The test indicated that I did not have Lyme Disease. That freed me emotionally

and intellectually to pursue an MS diagnosis.

>

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