Re: CCSVI and Subdural Hematoma

August 9, 2011

Yikes (about the leakage)! Glad you are okay. I would recommend getting the

doppler ultrasound for CCSVI. I was on the fence about CCSVI until last

month when my MRI showed an active lesion. I had the ultrasound done, and I

scored 3 out of 5 (only 2 are needed to be a candidate). For example, the

one test measured the cross sectional area of the vein. Normal is 6-8 mm^2.

The cutoff for CCSVI is 3 mm^2. Mine was 0.05 mm^2. Very little blood

flowing through that vein. I'm looking to have the surgery at the end of

August.

If you get the ultrasound, make sure it is done by a tech who knows CCSVI.

The tech that did mine said she has seen a lot of scans that were done

incorrectly (e.g. a scan of the artery instead of the vein). Mine took a

full two hours. Good luck!

You might also try to strengthen your endothelium (the lining on the blood

vessels). I believe that berries are good for this; not sure what else (diet

wise).

Have a blessed day!

Larry

> **

>

> My doctor has been recommending that I look into CCSVI but it seemed a

> little too invasive for me as I am 63 and still pretty mildly affected. Then

> five days ago I ended up in surgery with a leakage of venous blood in the

> brain. It had evidently been going on for some time - possibly a few months.

> I thought I was having an MS exacerbation brought on by a rare (for me)

> sinus infection until my kids found me incoherant on the floor. Thankfully,

> I am doing very well and am back to what used to be normal for me. Now I am

> wondering if there could be any connection between subdural hematoma and

> CCSVI. CCSVI no longer seems very invasive as I'm sporting the enstein

> look right now. Any thoughts? None of the neurologists that I've talked to

> here have ever heard of CCSVI. This is almost always brought on by a head

> injury and the neuro says that even people with heamophilia don't generally

> bleed in the brain. They don't know what brought this on. I'd love to hear

> any thoughts.

> Marilyn

>

--

" I ask God not for the grace to see what lies ahead but for the grace to

accept whatever comes. "

-- Merton

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