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Re: Answers in two days about six years of worry/guilt/fear... hell.

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That's WONDERFUL, !!!!!

I'm so happy for you. You and your family have been in my thoughts

and I was hoping that your situation would have a good outcome.

Good Luck with everything and be sure to keep us posted.

Mother to 3 and 16 months suspected mito

> We have excellent news!!!! Staci's birthmom, Ann, is coming

with us to

> see Dr. Boles @ Children's Hospital Los Angeles. The appointment is

Wednesday

> at 10:30 a.m. PST. Send good thoughts and prayers our way :-)

It is a

> follow-up appointment to review the latest battery of tests on

Staci, and to

> start testing on Ann. Hearing/ reading information is nothing like

talking

> to an expert doc. Still, it can be a hefty dose of reality.

> and I have had three years to learn about mito, in " easy

to digest

> bites " . Or is it " bytes " ? Exceptional Parent magazine, UMDF,

IMDN, Southern

> California Mitochondrial Support Group [Now incorporating as an

OFFICIAL

> UMDF chapter!] have taught us so much. Nothing is greater than

the support,

> information, and especially love from you, our friends on these

lists. We

> are so looking forward to finally meeting you in June at the

conference!!

> Thank you so very, very much.

>

> Love, hugs and prayers,

> , & Anastasia " Staci " Echert

> Long Beach, CA

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