Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 That's WONDERFUL, !!!!! I'm so happy for you. You and your family have been in my thoughts and I was hoping that your situation would have a good outcome. Good Luck with everything and be sure to keep us posted. Mother to 3 and 16 months suspected mito > We have excellent news!!!! Staci's birthmom, Ann, is coming with us to > see Dr. Boles @ Children's Hospital Los Angeles. The appointment is Wednesday > at 10:30 a.m. PST. Send good thoughts and prayers our way :-) It is a > follow-up appointment to review the latest battery of tests on Staci, and to > start testing on Ann. Hearing/ reading information is nothing like talking > to an expert doc. Still, it can be a hefty dose of reality. > and I have had three years to learn about mito, in " easy to digest > bites " . Or is it " bytes " ? Exceptional Parent magazine, UMDF, IMDN, Southern > California Mitochondrial Support Group [Now incorporating as an OFFICIAL > UMDF chapter!] have taught us so much. Nothing is greater than the support, > information, and especially love from you, our friends on these lists. We > are so looking forward to finally meeting you in June at the conference!! > Thank you so very, very much. > > Love, hugs and prayers, > , & Anastasia " Staci " Echert > Long Beach, CA Quote Link to comment Share on other sites More sharing options...
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