Re: Re: [MS_Community] Montel discusses controversi al MS treatment - CTV News

[Guest guest]

Hi ,

gave a great response to your question, so I can't add

much. I'm assuming that you are having the doppler ultrasound done for your

testing. Is that correct? I recommend that you have the ultrasound done by

someone who is familiar with CCSVI and does a good job. The ultrasound

should take about 2 hours if it's done right. Note: The surgery is only

about one hour (mine was about 1:20). If the ultrasound isn't done right,

then you are likely to have false negatives (i.e. you could have CCSVI, but

it's not detected).

I definitely recommend having the ultrasound done. It's non-invasive, and it

is an important piece of data to have. When you get the results, you can

decide if you want to do the surgery now or delay it. Or you might not be a

candidate (need 2 out of 5 parameters).

Good luck! Please keep us updated.

Thanks,

Larry

On Wed, Oct 26, 2011 at 9:06 AM, <

rachael.m.thomas@...> wrote:

> **

>

>

>

> Hi I can't tell you definitively what to expect as results can be

> different for everyone.Both Janet and I who have had the procedure had

> similar but also differing results.It's important for you to ease back into

> exercise and to just rest/relax for a couple of weeks after the procedure

> (my surgeon's recommendation) and then after the healing period has passed,

> to start your physical exercise routine ensuring that you do not push

> yourself too much and that you remain sensible about how much and what you

> do.It is thought to stop progression. I would also recommend that you stay

> committed to the BBD or similar diet as it is hugely important to stick to

> it in order to stop restenosis. I'm a big believer in the BBD and steering

> clear of dairy in order to stop restenosis.*shrugs* This is just what I

> experienced and what I think - things with the procedure are different for

> everyone, but it's important to keep calm and stay away from stress and

> worrying about it.I hope this helps

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

> To: mscured

> From: tazeeyore@...

> Date: Wed, 26 Oct 2011 12:29:07 +0000

> Subject: RE: Re: [MS_Community] Montel discusses

> controversi al MS treatment - CTV News

>

> , could you tell me more about CCSVI, such as what to expect? There

> is a doctor here in Tampa, FL at the Moffit Cancer Center that does this,

> and I'm about to make an appointment with them to have my veins tested. I

> know this is not supposed to cure, but maybe stop progression? Any info

> would be greatly appreciated. Also, if anyone has done CCSVI in Tampa,

> please let me know how it went. I'm nervous about trusting doctor's I don't

> know. Thanks!

>

>

>

>

>