CLO

[Guest guest]

Hi Chiu!

Short question -and one of my (as usual) long, and recent, answers

cut and pasted from the archives ~ :

From: " kiddietalk " <kiddietalk@...>

Date: Fri Oct 11, 2002 10:11 pm

Subject: Re: EFA info, and do you think they're apraxic??

Hi !

We have lots of information on this at http://www.speechville.com

http://www.apraxia.cc and in the archives here.

There appears to be a confusion that Omega 3/6 is good for apraxia

and Omega 3 alone (cod liver oil etc.) is good for autism and PDD.

This is because outside of the CHERAB Foundation's anecdotal

reports -both those from parents and then from the CHERAB Foundation

anecdotal reports from professional that were presented at The First

Apraxia Conference - nobody has decided to document a comparison of

Omega 3 alone vs. Omega 3/6 supplementation.

Even though only apraxia was talked about -search the archives here

and now at other groups -Omega 3/6 appears to stimulate language in

every type of late talker from undiagnosed to those diagnosed with

autism and PDD or those with syndromes or genetic disorders. Omega

3 alone from fish or flax seed oil you will notice very little -if

any changes -and then in a small percentage -you will see a child

who may have a moderate or a dramatic change on Omega 3 alone. It's

just not common. In addition -for those who's child did improve on

Omega 3 -when switched to Omega 3/6 the parents and professionals

that work with the child report even more dramatic changes -and

always within a day to three weeks. CHERAB outreaches to all types

of late talkers -and many children in our group had been diagnosed

one time or another with PDD -and some with autism. Whether that

was a misdiagnosis -or the EFAs changed the diagnosis I don't know,

however most of these children the parents report are no longer

considered PDD or autistic.

The Omega 3/6 formula we've heard here and from the

neurodevelopmental doctors also appears to help with those children

with even severe myelin problems. There is a great study online by

Dr. ez on those patients with Zellweger's syndrome.

http://www.momtahan.com/mmartinez/ Many

children with severe or even very mild myelin problems also have

apraxia. Caroline IlGrande has shared the exciting news about her

daughter here and how Dr. Ming -a pediatric neurologist and PhD and

who runs the Autism Center out of UMDNJ believes it's the EFA

formula of the ProEFA that has helped her daughter's myelin continue

to remylenate to normal -which is amazing -and the same formula is

now suspected of also helping with other neurological damage from

birth.

So why doesn't everyone give their child an Omega 3/6 formula? How

would they know to? For some reason nutritionists decided we

consume enough Omega 6 in our diets and don't require it in

supplements. This was written about and lectured about enough it

was just accepted as fact -and went for example unquestioned by the

autism groups. I came at it in a different way because in having

the diagnosis of apraxia -and at that time being told it's not at

all like autism -which I now know is not true at all, there are

several overlaps, I found the work done in the UK by Dr. Stordy -her

studies on dyspraxic children. Tanner's story is in the book The LCP

Solution written by Dr. Stordy and Malcolm Nicholl -the first under

apraxia http://www.drstordy.com/stories.html

In addition -because some did see great changes on cod liver oil

alone, I mean it's not like it never works -and because the average

person didn't understand the difference between Omega 3 and Omega 6

oils, fish oils got a reputation of being good -but of course " they

don't work for all -just some " Which again is because almost all

the parents were not using the right formula. Once on the right

formula -the fish oils will work for almost all our kids -and help

bring them a voice. The right formula works for so many that for

the few it doesn't work for -we all feel sorry for those parents. I

don't know why it doesn't work for all -that's why we need research.

Again -even if logically it makes sense that we don't need to

supplement our children with any Omega 6 -without the small amount

of Omega 6, GLA from the primrose or borage oil most of us use -the

Omega 3 alone doesn't appear to help our children with speech, focus

and attention, and behavior at all or that much. GLA has anti

inflammatory properties -I have said before that perhaps the GLA

helps the EPA and DHA get to where it's needed in the tiny vessels

of the brain -to cross the blood brain barrier. In addition -I know

from one of the neurodevelopmental pediatricians that used to

recommend blood analysis first -that the success rate with the blood

work was only about 50%. The results (again) for those of us that

just give our child a ProEFA or other Omega 3/6 supplement like it a

day? Almost all.

Maybe the belief in cod liver oil also began because it was once

believed (still is?) that Vitamin A helps with autism. Cod liver

oil -or any fish oil made from the liver of the fish naturally

contains Vitamin A. Fish oil made from any other area of the fish

doesn't contain Vitamin A. ProEFA, Efalex and EyeQ for example all

are made of fish oil that is not from the liver -so they do not have

Vitamin A in them.

So why am I telling you all this? If you add cod liver oil with an

Omega 3/6 formula you are changing the formula -which could be

better -or not -for your child. You would be increasing the ratio

of Omega 3 to Omega 6 -which keep in mind for whatever reason

without the Omega 6 the fish oils don't work at all or as well for

most of our children. In addition -you would be raising the DHA

slightly more than the EPA -and most of us found higher EPA to be

better (read why at http://www.equazen.com )

The formula I think is the best?

EPA about 150 to 250 mg

DHA about 100 mg

GLA about 40 mg

Bottom line -doesn't matter what your child is diagnosed with -as

long as your child has a communication impairment and is not

allergic to fish -show all of the reports from the websites listed

to your child's doctor and start your child on an Omega 3/6 formula

similar to above. The changes are again almost all -and quick. If

it happened only here or there it could be a coincidence -it happens

like clockwork -same improvements around the same time to every

single child.

And just in case your worried about giving EFAs to your young child -

here's a site for the reasons to give it to all babies:

A site for babies.

http://www.beechnut.com/first_advantage/inside_pages/faqs.htm

=====

[Guest guest]

Hi Carla

My son had this problem when we first tried CLO a couple of years back. I

stopped and read about preloading with Omega 6 and also reminded to give

antioxidants with it Vit C and Vit E. When we tried again we did loading EPO

first for 2 months then brought back the CLO, but he was bigger then and spat

it out whatever I tried

We use Eye Q now which has the EPO and Vit E already in with the fish oil.

HTH

Mandi in UK

Quick question (a bit off topic but maybe someone here knows):

>

>

> Before giving CLO should I make sure that I'm doing the Omega 6's 1st? I

> read on another list that giving CLO will initially show improvements then

> regression if Omega 6's aren't built up and that's kind of how I'm feeling

> my son is right now. Lots of great comments about him, then he seems to

> have gone back to his old self. Should I give something like Evening

> Primrose or something else 1st then add CLO later??

>

> Thanks.

>

> Carla

>

[Guest guest]

> We tried cod liver oil from Kirkmans it did not reduce the sideways

glancing

> at all. It is really starting to disturb us when we hear people say

how well

> it worked with others and did not change Mason's glancing at all.

Any other

> suggestions would be appreciated.

1,000 IU of vitamin A per pound of kid per day. Start with a loading

dose of 10,000 IU of vitamin A the first day.

>

> Charlie

(Mason's

> Dad)

>

>

> [Non-text portions of this message have been rem

[Guest guest]

In a message dated 5/8/2003 2:31:12 AM Eastern Daylight Time,

AndyCutler@... writes:

> >We tried cod liver oil from Kirkmans it did not reduce the sideways

> glancing

> >at all. It is really starting to disturb us when we hear people say

> how well

> >it worked with others and did not change Mason's glancing at all.

> Any other

> >suggestions would be appreciated.

>

>

did you try bethanacol after he had been on CLO for awhile? read Megsons

theory.

[Guest guest]

In a message dated 5/8/2003 2:31:12 AM Eastern Daylight Time,

AndyCutler@... writes:

> 1,000 IU of vitamin A per pound of kid per day. Start with a loading

> dose of 10,000 IU of vitamin A the first day.

>

> >

>

Can I use Beta Carotene for all of it? thats 46,000 IU Beta car. for my son a

day.

karen

[Guest guest]

In a message dated 5/7/2003 10:31:26 PM Eastern Daylight Time,

Charliesteele222@... writes:

<< We tried cod liver oil from Kirkmans it did not reduce the sideways

glancing

at all. It is really starting to disturb us when we hear people say how well

it worked with others and did not change Mason's glancing at all. Any other

suggestions would be appreciated.

>>

Charlie,

I would look more into food dyes, flavors or preservatives being the cause.

I only ever saw this for a very short period of time. I found that when I

removed those things it stopped. My child had been getting Tang drink and

also was using red flouride tooth rinse. I am not certain which was the

culprit but something in one or both of those sure was.

Michele

[Guest guest]

> > 1,000 IU of vitamin A per pound of kid per day. Start with a loading

> > dose of 10,000 IU of vitamin A the first day.

>

> Can I use Beta Carotene for all of it?

Beta carotene is not indicated for mercury toxic people. It appears that a lot

of

people cannot make the conversion to vit.A. I believe any other form of vit.A

should be ok.

Valentina

[Guest guest]

Valentina--If my daughter is already getting CLO, and I want to give

her additional A without more D, what kind of A can I give?? If it

says it comes from fish oil, does that mean it also has D?? Sorry to

be so ignorant on this, but any help is appreciated.--Tod

--- In , Valentina Scharpf <val@t...>

wrote:

> > > 1,000 IU of vitamin A per pound of kid per day. Start with a

loading

> > > dose of 10,000 IU of vitamin A the first day.

> >

> > Can I use Beta Carotene for all of it?

>

> Beta carotene is not indicated for mercury toxic people. It appears

that a lot of

> people cannot make the conversion to vit.A. I believe any other

form of vit.A

> should be ok.

>

>

> Valentina

[Guest guest]

> If my daughter is already getting CLO, and I want to give

> her additional A without more D, what kind of A can I give?? If it

> says it comes from fish oil, does that mean it also has D??

If D is not listed, then it should be ok.

I use something similar now. Vit.A from fish oil. It has just vit.A in it. It

works fine.

Also, in the past, I used all the other forms of vit.A. They work very well

for my son.

And btw, you are not ignorant don't worry about asking questions.

Valentina

[Guest guest]

> We tried cod liver oil from Kirkmans it did not reduce the sideways glancing

> at all.

Did you try flax seed oil? Or fish oil? Or vit.A by itself, but a higher dose?

Valentina

[Guest guest]

Valentina--Thanks for always being so helpful.--Tod

-- In , Valentina Scharpf <val@t...>

wrote:

> > If my daughter is already getting CLO, and I want to give

> > her additional A without more D, what kind of A can I give?? If it

> > says it comes from fish oil, does that mean it also has D??

>

> If D is not listed, then it should be ok.

> I use something similar now. Vit.A from fish oil. It has just vit.A

in it. It

> works fine.

> Also, in the past, I used all the other forms of vit.A. They work

very well

> for my son.

>

> And btw, you are not ignorant don't worry about asking questions.

>

>

> Valentina

[Guest guest]

Before we tried the GFCF diet we were told to use Salute Aloe Vera.

Within a month, it gave my son direct eye contact for the first time

since he was 2. His attention span also increased. (I don't know the

details of how it works.) Now we are on the GFCF diet, nystatin for

yeast control, and just started CLO 2 weeks ago. I can't say I have

seen anything new to attribute to the CLO directly. However, 's

speech has been steadily progressing since we started the diet in

January. He is more aware of other people and wants to play with

other children instead of just playing next to them.

I'm considering starting chelation, but am not sure if I should wait

for a test. will be 7 yo in June, so it's been years since his

shots.

Laurie (ChE from Tulane/turned teacher)

> We tried cod liver oil from Kirkmans it did not reduce the sideways

glancing

> at all. It is really starting to disturb us when we hear people say

how well

> it worked with others and did not change Mason's glancing at all.

Any other

> suggestions would be appreciated.

>

>

> Charlie

(Mason's

> Dad)

>

>

>

[Guest guest]

In a message dated 5/8/2003 10:34:30 PM Eastern Daylight Time,

lzodonnell@... writes:

> Salute Aloe Vera.

> Within a month, it gave my son direct eye contact for the first time

>

anyone know why aloe vera would help?

[Guest guest]

> We tried cod liver oil from Kirkmans it did not reduce the sideways

glancing

> at all. It is really starting to disturb us when we hear people say

how well

> it worked with others and did not change Mason's glancing at all.

Any other

> suggestions would be appreciated.

My son has this visual issue if he eats a food/supplement he does not

tolerate, or if he has a yeast issue. When those things are not

present, his desire to do this is considerably lessened. It did not

fully go away until after many rounds of chelation, so I believe he

has metals in his eyes or the visual portion of his brain. He will

still do visual things when he has those issues, but they are

drastically reducing in severity. I am hopeful that once the metals

are gone, his visual issues will be gone also.

CLO has never helped him, but then he also does not tolerate it. I

have also tried Twin Labs Allergy A, which he also did not tolerate.

Dana

[Guest guest]

the oils make my son hyper (and he is extremely hyper to begin with!) one of

my son's docs believe it may be because of the other stuff added. she said

try straight omega 3. havent gotten to that part yet. vicki

[Guest guest]

Did you have to force him to take it? That in itself might have

caused the oppositional stuff, LOL.

Peace,

Kathy E.

On Aug 7, 2005, at 7:07 PM, renee030670@... wrote:

> Have any of you had a whiny, defiant side affect from CLO? That is

> the only

> thing that I did different yesterday and my DS spent the whole day

> stomping

> his feet and telling me no!! And everything I said or did became a

> whiny,

> crying augment from him. Of coarse he is only 5 and maybe he just

> had a bad day

> but I thought I better ask all of you before I give him more CLO.

> I gave him

> the Nordic Naturals Kids' Arctic Cod Liver Oil, Peachy Keen.

> Thanks

>

[Guest guest]

I have no experience with this, but is he OK with flovourings?

If it has a flvour he is intolerant to, then that could be it?!

> Have any of you had a whiny, defiant side affect from CLO? . I gave him

> the Nordic Naturals Kids' Arctic Cod Liver Oil, Peachy Keen.

> Thanks

>

>

>

>

[Guest guest]

Also wondering if the peach flavoring is not tolerated, don't know...maybe a

phenol food? If so giving no phenol with it might help.

lapetitesirene99 <linda@...> wrote:

I have no experience with this, but is he OK with flovourings?

If it has a flvour he is intolerant to, then that could be it?!

> Have any of you had a whiny, defiant side affect from CLO? . I gave him

> the Nordic Naturals Kids' Arctic Cod Liver Oil, Peachy Keen.

> Thanks

>

>

>

>

[Guest guest]

Actually this happened to me. I try everything before I give it to my

son because he's fairly nonverbal. I took it for 3 days and by the

2nd day I was practically in a rage. I went through stop signs,

yelled at everyone, etc. I have never had a reaction like that to any

supplement.

He could be allergic to it also, which can cause pretty aggressive

behavior.

When my kids act like that it is always something biological,

regardless of what kind of a day they are having.

Amy

> Have any of you had a whiny, defiant side affect from CLO? That is

the only

> thing that I did different yesterday and my DS spent the whole day

stomping

> his feet and telling me no!! And everything I said or did became a

whiny,

> crying augment from him. Of coarse he is only 5 and maybe he just

had a bad day

> but I thought I better ask all of you before I give him more CLO. I

gave him

> the Nordic Naturals Kids' Arctic Cod Liver Oil, Peachy Keen.

> Thanks

>

>

>

>

[Guest guest]

Both of these also hugely irritated my son, but he does fine on Kirkman's

unflavored CLO.

Debbie

In a message dated 8/8/2005 11:36:50 AM Central Daylight Time,

m.chelap@... writes:

> The

> first time we used Nordic Naturals Arctic Cod Liver Oil, orange flavor,

> liquid. The second time (several months later) we tried Nordic

> Naturals Omega 3 capsules, lemon flavor.

[Guest guest]

How much did you give him? With my son I have to start ANY supplement

very slowly. Most of supplements (and CLO as well) caused couple weeks

of bad behavior initially. The most effective supplements usually

caused the worst adjustment period. But that is with my son.

Galina

[Guest guest]

FWIW, we tried on 2 separate occasions to give my 7 yo dd CLO. The

first time we used Nordic Naturals Arctic Cod Liver Oil, orange flavor,

liquid. The second time (several months later) we tried Nordic

Naturals Omega 3 capsules, lemon flavor. Each time, my dd began to get

short-tempered with a negative mood. Each time, we removed the fish

oil, and were able to get back on track. I get wanting to try it

again, because I've heard so many great things about supplementing with

EFAs. But not right now.

in Illinois

[Guest guest]

We have tried my son several different times on CLO (different brands,

flavors, etc.) Each time we have used it he becomes a demon within

hours. He will walk around and hit and kick anything or anyone in

sight. A parent on another site mentioned that some kids that are

unable to tolerate CLO are deficient in Taurine. We have been

supplementing that for the past couple weeks and are just about ready

to try the CLO again. Last time we started with 1/4 tsp and I think we

are going to start even lower this time.

> Have any of you had a whiny, defiant side affect from CLO? That is

the only

> thing that I did different yesterday and my DS spent the whole day

stomping

> his feet and telling me no!! And everything I said or did became a

whiny,

> crying augment from him. Of coarse he is only 5 and maybe he just

had a bad day

> but I thought I better ask all of you before I give him more CLO. I

gave him

> the Nordic Naturals Kids' Arctic Cod Liver Oil, Peachy Keen.

> Thanks

>

>

>

>

[Guest guest]

> We have tried my son several different times on CLO (different brands,

> flavors, etc.) Each time we have used it he becomes a demon within

> hours. He will walk around and hit and kick anything or anyone in

> sight. A parent on another site mentioned that some kids that are

> unable to tolerate CLO are deficient in Taurine.

My son was horribly aggressive with any EFAs, including CLO, until I

gave it with mito cocktail and amino acids, especially taurine. I

wrote about it here

http://www.danasview.net/mar05.htm

Dana

[Guest guest]

>

> OK, I have a really dumb question. What is CLO?

Cod liver oil.

>> I read about it on

> dana's website and in your posts. Is it a form of Vitamin A?

It does have a very absorbable form of vitamin A.

Dana