thyroid

[Guest guest]

Bev: What thyroid med are you on? (forgot)

Babs

RA 8/98, DX 4/99, AP 11/99

200 mg. Doxycycline

125 mcg. Synthroid

2 mg. Hytrin

Mestinon

Vits. & Misc. Suplmts.

[Guest guest]

Synthroid. 150 MCG.

Bev

Bev: What thyroid med are you on? (forgot)

[Guest guest]

Hi Bev: It may be that your change in Synthroid is adjusting. I believe it takes a little bit to build up in your system and should level out. I know that by the time my Synthroid is increased (just this past Dec.), I was feeling kind of draggy but after a couple of weeks, I felt more energy. I also get muscle weakness cuz low thyroid aggravates my muscular dystrophy (M. Gravis). How long ago did your dose change and what did your dr. say?

Smiles to you, Bev, with hopes of improving health. :>)

Babs

RA 8/98, DX 4/99, AP 11/99

200 mg. Doxycycline

125 mcg. Synthroid

2 mg. Hytrin

Mestinon

Vits. & Misc. Suplmts.

[Guest guest]

Oh, I should also add that my latest increase of Synthroid also accompanied an increased need for Mestinon for Myasthenia Gravis: tetracyclines are contraindicated for MG, which I knew when starting the AP. Been feeling more muscle weakness and when I skipped a few doses of the doxy, noticed increased strength. Since my MG is in semi-remission, I had no qualms about doing the AP but I guess it's catching up to me now. No big deal, really, as my meds keep all well under control and I would NEVER give up the AP!! Went to see my neuro for a new script of my Mestinon and he had no problem with my continuing the AP though he really was not educated about the treatment. I am also fortunate in that I am not the only patient of Dr. Trentham's who also has MGravis. I think my neuro felt more comfortable knowing that.

Medical oddball - Babs

RA 8/98, DX 4/99, AP 11/99

200 mg. Doxycycline

125 mcg. Synthroid

2 mg. Hytrin

Lipitor

Mestinon

Vits. & Misc. Suplmts.

[Guest guest]

Just a note to those interested in thyroid disease. Many of us on AP

also have thyroid disease, some in autoimmune nature as in Hashimotos.

Not all thyroid meds work alike and what may work for one does not

work for another.

If you would like more info the best site to review is

http://thyroid.about.com/. Everything you would like to know about

your thyroid health is right there. There is also a forum to talk with

others about their experiences.

Best wishes,

Marti in AK

[Guest guest]

Thanks ......I'll write that down and talk to my doctor when I go in

for my physical in a couple of weeks.

Jackie

[Guest guest]

> >

> Hi ,

I think it was you who told us your endo said when

> you are dealing with an autoimmune disease you throw all the

regular

> standards out the window..

Marti/: Wow, I would be interested in hearing more about

this. Sounding like a broken record, but I have a thyroid condition

called, " multinodular goiter. " Hormonally I test out on the high-

side of normal, but ... what IS " normal " ??? Sounds like that may be

questionable in someone with PA, is that correct??

Geez, Louise ... if I can get my jaw off the floor, I'll go get my

kiddos ready for school now!

Warmly,

Cat

[Guest guest]

Hi Cat,

Isn't it amazing how it all adds up? and how so many of us have

similar troubles?

OK...the thyroid can be affected by the autoimmune illnesses too. It

is called thyroiditis.(itis is a suf....just kidding ) the

controvery arises when they test for antibodies for this...as Mayo

did for me...many docs now say if you have the antibodies then you

need to be treated with a lower TSH reading. I do have the antibodies

and my TSH reading falls within the new standards....but my docs here

don't even believe in testing for them...they just go by a strict TSH

higher reading. There are some good websites to read on this . I'll

try to remember what they are.

hhmmm.....maybe you can make the connection to your particular

thyroid problem...I'm not sure on that. I know pa can cause all sorts

of overgrowths though. Many of my bones have overgrown and fused.

hope this helps some,

Marti

>

> > >

> > Hi ,

> I think it was you who told us your endo said when

> > you are dealing with an autoimmune disease you throw all the

> regular

> > standards out the window..

>

> Marti/: Wow, I would be interested in hearing more about

> this. Sounding like a broken record, but I have a thyroid

condition

> called, " multinodular goiter. " Hormonally I test out on the high-

> side of normal, but ... what IS " normal " ??? Sounds like that may

be

> questionable in someone with PA, is that correct??

>

> Geez, Louise ... if I can get my jaw off the floor, I'll go get my

> kiddos ready for school now!

>

> Warmly,

> Cat

[Guest guest]

Hahahahaha ... thanks for the early morning giggle!! ( " itis " is

WHAT, now??)

I remember my first visit to the endo -- he was an older guy,

experienced, I-know-everything-type. Promptly popped off and told me

I had Hashimoto's and would have to take thyroid hormone for the rest

of my life (funny, that was back in my healthy days and I was

horrified at the thought of having to take a teensy pill daily ...

my, my, how times have changed!). Started me on Levoxyl and said it

should shrink those nodules; blood work came back showing I DID NOT

have Hashimoto's (so much for Dr. Know-it-all). Oh, well. Stayed on

the Levoxyl and had to have weekly blood work; TSH kept getting lower

and lower. Finally bottomed out -- even on lowest dosage of Levoxyl -

- and had to discontinue it. Final verdict: " Well, we'll just have

to monitor the nodules and make sure they're not growing. " They are

the " cold " type (meaning they don't produce thyroid hormone) and

these are the ones worrisome for malignancy so I have yearly

ultrasounds. So far, they're behaving themselves and are stable,

with minimal growth.

Will be interesting to get the rheumy's " take " on all of this,

I 'spose. Not really looking forward to it, exactly, but it IS (nice

in a wierd way) to feel as if the missing piece of the puzzle has

been found. I trust you understand that.

Thanks again for the laugh -- " A merry heart does good like a

medicine! "

Cat

>

> Hi Cat,

>

> Isn't it amazing how it all adds up? and how so many of us have

> similar troubles?

>

> OK...the thyroid can be affected by the autoimmune illnesses too.

It

> is called thyroiditis.(itis is a suf....just kidding ) the

> controvery arises when they test for antibodies for this...as Mayo

> did for me...many docs now say if you have the antibodies then you

> need to be treated with a lower TSH reading. I do have the

antibodies

> and my TSH reading falls within the new standards....but my docs

here

> don't even believe in testing for them...they just go by a strict

TSH

> higher reading. There are some good websites to read on this .

I'll

> try to remember what they are.

>

> hhmmm.....maybe you can make the connection to your particular

> thyroid problem...I'm not sure on that. I know pa can cause all

sorts

> of overgrowths though. Many of my bones have overgrown and fused.

>

> hope this helps some,

>

> Marti

[Guest guest]

In a message dated 11/30/2004 10:05:14 AM Eastern Standard Time,

catwright@... writes:

I remember my first visit to the endo -- he was an older guy,

experienced, I-know-everything-type. Promptly popped off and told me

I had Hashimoto's and would have to take thyroid hormone for the rest

of my life

I definitely do have Hashimoto's and have been taking that stinkin little

pill for 19 years. My thyroid antibodies are through the roof. One more

autoimmune disorder to have. It seems my antibodies were so high that it

actually

killed my thyroid. May it rest in peace. When I went to a new internal

medical doctor a few months ago, his exact words were " you have a lot of

autoimmune crap going on " . Between the thyroid, the Pa, the fibro, and

allergies

he was right. It seems many of us here on the board all have the same

problems.

Janet

[Guest guest]

In a message dated 3/1/05 12:36:48 PM Eastern Standard Time, eve@...

writes:

>

> Thyroid refers to natural thyroid replacement, available from Armour

> and other makers. It must be natural thyroid, including both T3 and

> T4. Comes in tiny tablets - very inexpensive. My MD has them

> available in bulk at his office and gives them to me for $7.00 for 100

> 1 grain tablets.

>

How does one switch from synthetic to Armour? When I first learned that I had

hypothyroidism, I was put on Armour by a homeopath. Then my GP switched me

to Synthroid because he said it would be easier to monitor. I foolishly

followed his directive. Now I would love to switch back to Armour but don't

know if

it would be effective.

Please advise.

[Guest guest]

From what I under stand it your Thyroid is off you T levels will be off but not

the reverse.

Phil

Greg Kevorkian <grekkevork@...> wrote:

Anybody here doing both T and Thyroid hormone? Does anyone know what

the effect of raising T will be on Thyroid hormone?

Thanks

Greg

---------------------------------

[Guest guest]

> Anybody here doing both T and Thyroid hormone? Does anyone know

what

> the effect of raising T will be on Thyroid hormone?

>

> Thanks

> Greg

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

No when your Thy is low it will make you T low when you get your Thy up you T

will go up.

Phil

Greg Kevorkian <grekkevork@...> wrote:

> Anybody here doing both T and Thyroid hormone? Does anyone know

what

> the effect of raising T will be on Thyroid hormone?

>

> Thanks

> Greg

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

Hi,

After taking T via hormone pellets for more than 10 year I began

taking thyroid about 3 years ago as it was needed. I have not had any

adverse interaction.

I wonder if you saw this as a problem somewhere.

ernestnolan

> Anybody here doing both T and Thyroid hormone? Does anyone know what

> the effect of raising T will be on Thyroid hormone?

>

> Thanks

> Greg

[Guest guest]

Greg - here is cut from a webpage -

http://www.healthcentral.com/peoplespharmacy/pp_guides/PDF/thyroid.pdf#search='t\

estosterone%20affect%20on%20thyroid%20medications'

It says that testosterone may lower the values of Total T4, serum T3 and TSH

test results. Also Levothyroxine may need reduced. Hope this helps.

Dan

Greg Kevorkian <grekkevork@...> wrote:

I am going nuts trying to find out what effect raising T has on

Thyroid meds. The docs have no clue.

If anyone has any information, not speculation, please e-mail it to

me. I will be in your debt.

Thanks

Greg

---------------------------------

[Guest guest]

Hi Greg

I see Dan has already replied with information plus URL.

If this is your " consultant " when you say " docs " you must change your team.

Firstly if they are not sure or have never met this then they are hardly

seeing enough patients but thye have instant access to medical reports and

texts and should find out and tell you. If they are not prepared to do that

they are probably not going to spot something unusual.

If on the other hand you mean a GP then try and get closer contact and

contact between appointments by phone or email.

Use the information from Dan to see where the " land lies " . Say you have read

this report and have a copy printed out and ask your team what they feel it

means in your case.

Good luck!

Thyroid

>I am going nuts trying to find out what effect raising T has on

>Thyroid meds. The docs have no clue.

>

>If anyone has any information, not speculation, please e-mail it to

>me. I will be in your debt.

>

>Thanks

>Greg

>

>

>

>

>

>

[Guest guest]

Who should I see about this, our family doctor or DAN

> naturopath?

I've yet to see the doctor who knows how to read the results, or how

to treat it, so I'd just go to the doctor who'll run the tests the way

you ask for them and then prescribe what you tell them .

Nell

>

[Guest guest]

Is there a PA/thyroid connection? I ask because I was on thyroid meds for 2

yrs. then a dif doctor said I tested normal, and I'm off the meds. I have some

symptoms of low thyroid, though, in spite of that normal reading. I felt better

on the meds than off, and I'm getting ready to go back for another test.

PotterHarryMom

Mairyn 8

Connor 12

Cameron 14

" It is our choices, Harry, that show what we truly are, far more than our

abilities. " Albus Dumbledore

From: Harry Potter and the Chamber of Secrets

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

they don't usually take you off thyroid meds just because you test normal

..That just usually means your on the right dose and should continue with that

dose. cathy from ma

[Guest guest]

There is with RA and thyroid(Hashimotos). Once on meds, you stay on

meds. It's called replacement therapy, it is a hormone not a drug. Your

thyroid doesn't just start working again, it slowly dies. Untreated or

poorly treated thyroid will have joint problems.

Kate

At 08:50 AM 11/4/2006, you wrote:

>Is there a PA/thyroid connection? I ask because I was on thyroid meds for

>2 yrs. then a dif doctor said I tested normal, and I'm off the meds. I

>have some symptoms of low thyroid, though, in spite of that normal

>reading. I felt better on the meds than off, and I'm getting ready to go

>back for another test.

>

>

>

>

> PotterHarryMom

> Mairyn 8

> Connor 12

> Cameron 14

> " It is our choices, Harry, that show what we truly are, far more than

> our abilities. " Albus Dumbledore

> From: Harry Potter and the Chamber of Secrets

[Guest guest]

>In my experience with throid drugs i have to agree with the above

writer, once they find youe correct dose they should leave you on it

as far as I know . I have been on my thyroid meds for 22 years now and

ther is no signs of them stopping..

Good luck

> they don't usually take you off thyroid meds just because you test

normal

> .That just usually means your on the right dose and should continue

with that

> dose. cathy from ma

>

>

>

[Guest guest]

> I was diagnosed with low thyroid over 10 years ago,and have been on

> Synthroid since. I had tsh readings in the 60's and was told that was

extremely high.

> It took a year to get the correct diagnosis but my symptoms were

mostly

> weight gain,no appetite, and extreme fatigue. No breathing problems.

> But that was the start of my descent into poor health, Next came

> hypertension,mastoiditis,Diabetes,then psoriasis,now

PA.

> Judy

> Thanks Judy,

You are the first person I've heard of with such a high tsh

reading. And my blood pressure and blood sugar are suddenly high, I've

had the mastoiditis and believe me that one hurts!!

Thanks so much for writing in...this is such a wonderful group.

Marti

[Guest guest]

I can tell you that is a fact, any doctor who takes you off doesn't

understand hypothyroidism and needs to go back to school.

Kate

At 03:39 PM 11/4/2006, you wrote:

>

> >In my experience with throid drugs i have to agree with the above

>writer, once they find youe correct dose they should leave you on it

>as far as I know . I have been on my thyroid meds for 22 years now and

>ther is no signs of them stopping..

>Good luck

>

>

>

[Guest guest]

can you post the test results with the units and ranges. You just don't

go on Armour if you have low cortisol levels Dr.'s don't look for Adrenal

Fatigue when testing your ether above range or below it no in between. If your

moring cortisol test was below 15 you need to address this before starting

Armour and you just don't start on armour and stay on this low dose for 20

months WTF is with that. Go to this site and read it front to back and back to

front.

http://www.stopthethyroidmadness.com/

Also check out the Forums.

http://www.stopthethyroidmadness.com/community/viewforum.php?f=5

http://www.stopthethyroidmadness.com/community/viewforum.php?f=2

Compounded T is good as anything but still it's best to first treat the

Adrenls then the Thyroid and this test Testosterone. Starting Testosterone

first or with Thyroid can stress the Thyroid and Cortisol levels.

Phil

fkw1122 <fkw1122@...> wrote:

Hello All,

After 3 weeks or whatever it's been..to refresh, on my bloodwork from

the beginning of the month, my TSH was elevated. I asked about

getting the T3 and T4 testing as well as the morning cortisol

(although I had my morning cortisol done last year and it was normal).

Anyways I finally heard back, and the Doctor wants me to be on Armour

Thyroid for 20 months and get rechecked with the T3 and T4. They also

are ok with me starting the Testosterone compound before then and

re-testing at the same time.

Anyone know anything about this medication? What about the difference

between Androgel and a compounded mixture? She did specify

bio-identical testosterone I believe (it's not in front of me)..

Thanks!!

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