Guest guest Posted September 26, 2011 Report Share Posted September 26, 2011 See that's what I really like about my Neuro. He understand that diet can and does play apart in how we feel and how our ailments progress or don't progress. He is all for alternative medications but also wants us to not discount modern medicine. For now we are in a holding pattern. Dh had a bad relapse. This time in the spine but the neuro says that he is not 100% certain it's Ms. He says the dr's here where we work (we work in Va but live in SC) are very wishy washy and he wants to run some more test. Believe it or not he understands there are conditions that mimick MS to the point that they will give false positives! So he had some test ran at our last visit. We go back in 3 weeks for the results. And one of the tests is for lime desease. He is about 99% though that it is MS he would just like to be 100%. He also said that he likes the fact that DH takes multi vitamines, Vitamine D, B complex, Ginko Biloba, and Magnisium. He agrees that MS can be made worse by a low Vitamine D level and says none of these can hurt they can only help. Also says meditation, exercise and stretching are great ways to help out with any stiffness. Now this dr is a classic trained doctor and would be one that you would expect to prescribe meds and force meds on everyone. Take care Donna in VA >To: mscured >Sent: Sunday, September 25, 2011 12:06 PM >Subject: Re: Best Bet > > > > >> >> Same question as before but now I'm wondering about the >> >> Best Bet Diet, Ann Boroch and the Swank Diet > >I've been on Best Bet Diet since Feb '06, after an attack of optic neuritis and an MRI showing a few lesions. I've not had a relapse since. Doctors like to pooh-pooh this, saying that I'm just in remission. I always point out that I do not believe I'm in remission because whenever I eat something I shouldn't, my symptoms immediately return (balance & coordination problems, numb hands, pins & needles in my feet, etc). It's not easy to get an MD to acknowledge the use of diet in managing/curing disease, but I want credit for the work I've put into it! > >Over the last couple years, I have developed new food intolerances that show up on my ELISA test results and I avoid those foods as well. I have to say that since I started L-glutamine supplementation, I don't have the same severity of reactions (or none at all) to my cheats or accidents with food. Perhaps my gut is finally healing! > >Crystal > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 I completely agree. It's annoying and disappointing isn't it? I know that for me, things don't generally pan out as they do for others, but I have great affects from thing that others don't too. As you say Martha, one size doesn't fit all.From that point, I think we all just look for what DOES work for us and use our inner-ears to listen to what our instinct and bodies tell us they need/want. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: mburton.akod@... Date: Thu, 29 Sep 2011 12:41:57 +0000 Subject: Re: Best Bet I saw no positive changes from the BBD, and no negative ones when I started eating gluten and dairy again. One size does not fit all. Martha . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 agree martha, i saw no benefit from the bbd nor swank diet  eat small regular healthy and reduce fat and red meat [your stomach is a muscle and if you over-load it it has to work hard to break down the food hence why some people feel so tired after a heavy meal]  regards/peter/ppms/london ________________________________ To: mscured Sent: Thursday, 29 September 2011, 13:41 Subject: Re: Best Bet  I saw no positive changes from the BBD, and no negative ones when I started eating gluten and dairy again. One size does not fit all. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 , You can't have been on the BBD for long, it was only months ago that you were starting it. These diet approaches to health take a long time. Anything less than 3 months and you can't even tell if it is going to help. McDougall was the famous one who after being on the Swank diet for 4 years went from bedridden to running up and down the stairs. I did the Swank diet early on in MS but kept faltering so when I started the BBD I told myself I had to stick to it for 4 years. I had CCSVI treatment successfully 11 months ago and am in my 5th year of the BBD which is a way of eating for life as far as I am concerned, it has helped me too much. As Martha says one size does not fit all - but we don't know what size we are until we try. JanetTo: mscured From: peter.nicholls@... Date: Fri, 30 Sep 2011 10:30:17 +0100 Subject: Re: Re: Best Bet agree martha, i saw no benefit from the bbd nor swank diet eat small regular healthy and reduce fat and red meat [your stomach is a muscle and if you over-load it it has to work hard to break down the food hence why some people feel so tired after a heavy meal] regards/peter/ppms/london ________________________________ To: mscured Sent: Thursday, 29 September 2011, 13:41 Subject: Re: Best Bet I saw no positive changes from the BBD, and no negative ones when I started eating gluten and dairy again. One size does not fit all. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 Hi again MarthaIsn't it great that we can all face and encounter 'MS' with our own approach?I was, and am, in agreeance with you regarding the 'one size doesn't fit all' thing as I said in my reply post.I have a markedly different approach to what so many call 'MS' and it does me VERY well. I believe that we should all handle things as best suits us/our bodies and really, it's all a matter of 'each-to-their-own' with our differing ways of handling things. :)RachAel 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: mburton.akod@... Date: Fri, 30 Sep 2011 13:22:05 +0000 Subject: Re: Best Bet , after eight years and thousands of out-of-pocket dollars for alt treatments and diets that did nothing, I no longer have expectations for anything. If you don't have them, you're not disappointed if they don't work, and you're grateful if they do. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 marha, i totally agree with your sentiments  every ms is different so how can there be one solution for all, we are all different  how can the 'experts' give the same drug to many when we are all different  stress free is the main criteria  regards/peter ________________________________ To: mscured Sent: Friday, 30 September 2011, 14:22 Subject: Re: Best Bet  , after eight years and thousands of out-of-pocket dollars for alt treatments and diets that did nothing, I no longer have expectations for anything. If you don't have them, you're not disappointed if they don't work, and you're grateful if they do. ... I took a break on treatments for a year or so (except for massage) and found myself continuing to progress. So I broke down and got on Rebif and stopped progressing. No side effects if I take two NSAIDs after the shot. It's a long, slippery slide with pharmaceuticals, so now I'm on Ampyra and AM seeing results—more strength, better balance and I can stay on my feet longer. (I just started physical therapy to improve my odds.) I'm getting both meds free from the companies. I AM moderate with my diet, eat a little cheese, very little dead animal, take supplements and eat lots of organic produce. I FEEL good. I have an accessible vegetable garden of cedar planters on my back deck. And I do take an herbal liver support. I really think we should be open to anything to improve our quality of life, and not obsess about a cure. The thing I found that helps me the most physically is staying positive, and through practice it isn't an effort anymore. When I'm cheerful, my body works better. I NEVER talk about MS and disability negatively. My favorite quote is from Neil Marcus: " Disability is not a brave struggle or `courage in the face of adversity.' Disability is an art. It's an ingenious way to live. " Considering I live alone, adaptation and figuring out how to do things from the scooter is a necessity—and fun. Ky. Voc. Rehab paid for hand controls in my truck and a lift for my scooter, so I have a social life. Considering that the scooter puts me " on stage, " I always try to look snappy. People like me because I never complain and have not made MS the focus of my life. Happiness is a choice. Life is good. Martha > > > I completely agree. It's annoying and disappointing isn't it? I know that for me, things don't generally pan out as they do for others, but I have great affects from thing that others don't too. As you say Martha, one size doesn't fit all.From that point, I think we all just look for what DOES work for us and use our inner-ears to listen to what our instinct and bodies tell us they need/want. > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > To: mscured > From: mburton.akod@... > Date: Thu, 29 Sep 2011 12:41:57 +0000 > Subject: Re: Best Bet > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I saw no positive changes from the BBD, and no negative ones when I started eating gluten and dairy again. One size does not fit all. > > > > Martha > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 When you've time Larry I would be very interested to hear the dfferences in the diets. Could that be my missing link?I too had a lesion disappear after I'd been BBD a while.Janet To: mscured From: larryforlife@... Date: Fri, 30 Sep 2011 08:35:15 -0400 Subject: Re: Re: Best Bet Thanks Janet! I would like to add that " improvement " can be tracked by two different ways: 1) changes in MS symptoms, and 2) changes in MRIs. And there's not always a direct correlation between the two. ---I agree with Janet that it takes time for diet approaches to work. In my case, I had active lesion after being on the diet for 6 months, but it had healed (vanished) after a year. It is not normal for lesions to heal like this, and my neurologist was surprised (since I wasn't taking the meds). I'm not on the BBD, but my diet is very similar. It is a custom diet from my doctor (specializes in nutrition), and he hadn't heard of the BBD before. But it lends more credibility to BBD/Swank/etc. Best of luck to you. Larry Quote Link to comment Share on other sites More sharing options...
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