Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 Historically, I've had the most trouble with relapses during the spring and the fall. It seemed to be connected with the changeability of the weather in the places that I've lived- warm one day, cold the next. But I've never heard that this is a common pattern. And the amount of problems that I've had has decreased over the years. I was diagnosed almost 40 years ago. There has been deterioration, but it's been mostly gradual, rarely dramatic enough to call a relapse after the first 5 years. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Hi all I have to say that for me, relapses and exacerbations have only ever happened due to extreme emotional upset and stress and it has never been due to weather or the change of seasons. Having said this, as I'm humidity intolerant, the English Summers are hell to live through and it is a time where I struggle to move as well as I do in Winter. This isn't an exacerbation though - it's just humidity intolerance. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: pamcastro@... Date: Mon, 23 May 2011 00:28:06 +0000 Subject: timing for relapses Hi, Does anybody know if there is a certain time of the year where relapses are more common? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Definitely Dudley! I envy those who don't have 'heat intolerance' on their lists of 'MS' symptoms. I was just letting people know that heat intolerance isn't an exacerbation or merely a seasonal thing. Whilst Summer is the hotter season for sure, Winter can be terrible too - It's bad for me if made to sit or stand in a too warm room. Others don't see it as 'hot' but for me it is stifling. Heat intolerance is an 'always' thing for me which others sometimes just do not understand at all - especially in Winter. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: DudleyDelany@... Date: Mon, 23 May 2011 10:49:24 +0000 Subject: Re: timing for relapses Hi Pamela, Hot weather usually is troublesome for people with MS. Heat sensitivity is common among MSers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 hi, Do you also get nauseous with heat intolerance? I feel hot all the time and it makes me feel  nauseous, it gives me a headache  .Pamela Castro Carcelen ________________________________ To: MSCured <mscured > Sent: Mon, May 23, 2011 7:33:33 AM Subject: RE: timing for relapses  Definitely Dudley! I envy those who don't have 'heat intolerance' on their lists of 'MS' symptoms. I was just letting people know that heat intolerance isn't an exacerbation or merely a seasonal thing. Whilst Summer is the hotter season for sure, Winter can be terrible too - It's bad for me if made to sit or stand in a too warm room. Others don't see it as 'hot' but for me it is stifling. Heat intolerance is an 'always' thing for me which others sometimes just do not understand at all - especially in Winter. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: DudleyDelany@... Date: Mon, 23 May 2011 10:49:24 +0000 Subject: Re: timing for relapses Hi Pamela, Hot weather usually is troublesome for people with MS. Heat sensitivity is common among MSers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 my 2 relapses have been  at the end of the year but 7 years apart.  December is  the beginning of summer here in Peru  where the hummidity is also high all year round.  Pamela Castro Carcelen ________________________________ To: MSCured <mscured > Sent: Mon, May 23, 2011 4:47:51 AM Subject: RE: timing for relapses  Hi all I have to say that for me, relapses and exacerbations have only ever happened due to extreme emotional upset and stress and it has never been due to weather or the change of seasons. Having said this, as I'm humidity intolerant, the English Summers are hell to live through and it is a time where I struggle to move as well as I do in Winter. This isn't an exacerbation though - it's just humidity intolerance. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: pamcastro@... Date: Mon, 23 May 2011 00:28:06 +0000 Subject: timing for relapses Hi, Does anybody know if there is a certain time of the year where relapses are more common? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Make sure you drink LOADS of water - should get rid of the headache. A few years ago I was using apple cider vinegar for something and spirulina for something else. Quite by chance it seemed to get rid of most of my heat intolerance. No idea why or if it was just coincidence. CCSVI treatment has got rid of the lot. Other suggestions - I used to put a wet flannel around my neck (helps if you have long hair to hide it, or dampen down a summer scarf), I sucked ice cubes, I'd rest my wrists on the cutlery in restaurants, I'd douse myself in cold water before I went out. Then there are cooling vests. Janet To: mscured From: pamcastro@... Date: Mon, 23 May 2011 05:28:38 -0700 Subject: Re: timing for relapses hi, Do you also get nauseous with heat intolerance? I feel hot all the time and it makes me feel nauseous, it gives me a headache .Pamela Castro Carcelen ________________________________ To: MSCured <mscured > Sent: Mon, May 23, 2011 7:33:33 AM Subject: RE: timing for relapses Definitely Dudley! I envy those who don't have 'heat intolerance' on their lists of 'MS' symptoms. I was just letting people know that heat intolerance isn't an exacerbation or merely a seasonal thing. Whilst Summer is the hotter season for sure, Winter can be terrible too - It's bad for me if made to sit or stand in a too warm room. Others don't see it as 'hot' but for me it is stifling. Heat intolerance is an 'always' thing for me which others sometimes just do not understand at all - especially in Winter. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: DudleyDelany@... Date: Mon, 23 May 2011 10:49:24 +0000 Subject: Re: timing for relapses Hi Pamela, Hot weather usually is troublesome for people with MS. Heat sensitivity is common among MSers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 I do. To me, heat intolerance feels like a mild case of flu. I used to regularly lose 5 lbs or so over the summer when the weather got really hot and humid. After we moved from upstate NY to the cooler Pacific NW, I gained almost 30 lbs. over 10 yrs., with less extreme temperature spikes in the summer. (I've started losing some of it since I started (mostly) following the McDougall diet last September). The last obvious exacerbaton that I've had happened almost 10 years ago when I was visiting in upstate NY during one of their humidity-filled, 90 degree+ heat spells. My feet have been numb with pins-and-needle feelings ever since. And the cognitive dissonance has been worse ever since, too. Luckily, heat intolerance does go away with the heat. But I'm still very cautious about over-exertion during hot weather. Ann " Evil cannot overcome evil, and the end does not justify the means... when we undertake to overcome evil with evil, we ourselves tend to become the evil that we seek to overcome. " Study of International Conflict, prepared for the American Friends Service Committee, 1955 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Hi Pam December is the first month of Summer where I'm originally from too (Australia) and where I'm from (South Australia) we have very dry high temperatures in the Summer - minimal humidity. I don't tend to get nauseous from the heat - I just lose the ability to move my legs when it's humid. They get so heavy that my feet tend to drag and it's not much fun! In dry heat, I'm fine - it's the humidity that kills me. I only get headaches if I've neglected to keep my fluid intake up. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: pamcastro@... Date: Mon, 23 May 2011 05:28:38 -0700 Subject: Re: timing for relapses hi, Do you also get nauseous with heat intolerance? I feel hot all the time and it makes me feel nauseous, it gives me a headache Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Hi all, Nice to hear other experiences . Do you know if your blood  pressure goes up with the heat?  Pamela Castro Carcelen ________________________________ To: MSCured <mscured > Sent: Mon, May 23, 2011 10:39:32 AM Subject: RE: timing for relapses  Hi Pam December is the first month of Summer where I'm originally from too (Australia) and where I'm from (South Australia) we have very dry high temperatures in the Summer - minimal humidity. I don't tend to get nauseous from the heat - I just lose the ability to move my legs when it's humid. They get so heavy that my feet tend to drag and it's not much fun! In dry heat, I'm fine - it's the humidity that kills me. I only get headaches if I've neglected to keep my fluid intake up. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: pamcastro@... Date: Mon, 23 May 2011 05:28:38 -0700 Subject: Re: timing for relapses hi, Do you also get nauseous with heat intolerance? I feel hot all the time and it makes me feel nauseous, it gives me a headache Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 I have one of those cooling vests but I found it to be heavy and awkward besides being too much trouble. Prokarin is helping me with heat intolerance. I believe both Prokarin and the Liberation Treatment are benefitting the thyroid and this why they are getting positive results. I'm making an effort today to drink more water as this was also suggested by Dr. Browenstein to support the thyroid. I have to remind myself all the time to do this! Sometimes I add ACV and a sprinkle of sea salt. I'm able to sit in the sun more and I'm getting a tan! > > > Make sure you drink LOADS of water - should get rid of the headache. > A few years ago I was using apple cider vinegar for something and spirulina for something else. Quite by chance it seemed to get rid of most of my heat intolerance. No idea why or if it was just coincidence.e of sea Quote Link to comment Share on other sites More sharing options...
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