Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 I had to increase my dose to 1.5 patch. My symptoms after being on the patch since april were getting worse. I called elaine and she took me off the patch for a few hours and I could not walk or get up out of the chair without assist. Then she had me put on a 1/2 patch for a few days. I could move with 1/2 of a patch but not stand for more than a few min. due to severe weakness. Going for a walk and doing a workout was out of the question. Then she had me increase it to 1 patch. My walking was better. I could walk 2 miles with assist and a nordic pole but I was very weak still. My quads felt like buckling. Then the next day It was increased to 1.5 and my strength improved further. I have been on this new dose since Monday I think. I can walk with strength in my legs, independently, I don't feel like I need my pole for balance but use it when I walk for safety. No more foot drop, the cog fog is almost completely gone. Its rare that I ever have a sharp mind since the MS hit hard several years ago. I am hopeful that over time it will improve. In the evening when the patch wears off I put on one of my old worn patches and it helps to decrease the symptoms so I get through the evening until I go to bed without any issues. Have you tried that ? I am not prescribing or anything. Just experimenting with the med. I keep the old ones for a bit and when I need it use it. When I tried 2 patches some time back it worked for a bit then I declined which she says meant it was too strong for me. Right now at the 1.5 patches I am doing much better. My heat tolerance is better but not normal at all. We walked yesterday in 90 degree weather. I wore a camelbak shirt which has a 2 liter bottle in the back of the shirt. It works better for me than a cooling vest. I fill it with cold water and lots of ice and add an extra pack of blue ice outside of the water to prolong the cooling effect. Then I also wet my head and body before and during the walk. When my head dried I pulled up one of the drip irrigation misters and sprayed my head until water ran off and my body was wet. For me it allows me to walk further by cooling down. Thank goodness nobody saw me doing that, but its like putting in another battery in my body. I got in 3 miles independently yesterday. Elaine said the new patches are enhanced with the enzyme that increases the availability of histamine to the body that some people can't break it down. However she said until your body stabilizes with it the symptoms come and go for a bit. She says it is stronger than the original formula but uses less histamine due to the enzyme. The cost is the same. ________________________________ To: mscured Sent: Sat, June 18, 2011 8:09:09 AM Subject: Prokarin Report I tried to increase my dose from 1/4 to 1/2 a disc as the temperature outside rises. It made me worse after a few days. I called Elaine to find out why. She said that some of us have an inability to turn histamine into H2. We're missing an enzyme. I was having a histamine rush! They have developed a product called " enhanced " Prokarin that has this enzyme in it (it's called mono-something). It's been available for several years but has not been aggressively marketed. I have a follow-up appointment with Dr. Woeller ($121.00) and I will discuss this situation with him . The enhanced version may be more suitable for someone with disability like mine or worse. I'm back to having " normal " capabilities, such as they are, using a smaller dose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 Monoamine oxidase is the mitochondrial enzyme that some of us don't make that turns histamine into h2. > > They have developed a product called " enhanced " Prokarin that has this enzyme in it (it's called mono-something). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 This is definitley something that is not one-size-fits-all. Elaine told me that we reach the saturation point for histamine and that it's easier to go up than to go down in dosage. Sometimes I take the disc off for a few hours and put it back on later because I feel like I reached the saturation point. I want to try the MAO-A (monoamine oxidase) in the enhanced formula. I wet a washrag and refrigerate it to use across my bare feet when I get hot. I'm still not standing without bars and when I used a higher dose I fell a couple of times in the bathroom or I needed help getting dressed. I couldn't lift my feet onto the footrest. I can lift them with the lower dose. I'm convinced that any complete recovery is going to happen with time and other missing elements besides histamine. I have to add magnesium oxide with the cal/mag supplements that come with the Prokarin. Otherwise, I'm extremely constipated and I think it's making me full of toxins. > In the evening when the patch wears off I put on one of my old worn patches and > it helps to decrease the symptoms so I get through the evening until I go to bed > without any issues. Have you tried that ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 I am trying to get on Prokarin but the constipation issue worries me since I already suffer from it........How can I help it? Magnesium does not work  for me  Pamela Castro Carcelen ________________________________ To: mscured Sent: Sat, June 18, 2011 1:12:16 PM Subject: Re: Prokarin Report  This is definitley something that is not one-size-fits-all. Elaine told me that we reach the saturation point for histamine and that it's easier to go up than to go down in dosage. Sometimes I take the disc off for a few hours and put it back on later because I feel like I reached the saturation point. I want to try the MAO-A (monoamine oxidase) in the enhanced formula. I wet a washrag and refrigerate it to use across my bare feet when I get hot. I'm still not standing without bars and when I used a higher dose I fell a couple of times in the bathroom or I needed help getting dressed. I couldn't lift my feet onto the footrest. I can lift them with the lower dose. I'm convinced that any complete recovery is going to happen with time and other missing elements besides histamine. I have to add magnesium oxide with the cal/mag supplements that come with the Prokarin. Otherwise, I'm extremely constipated and I think it's making me full of toxins. > In the evening when the patch wears off I put on one of my old worn patches and > > it helps to decrease the symptoms so I get through the evening until I go to >bed > > without any issues. Have you tried that ? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 I am trying to get on Prokarin but the constipation issue worries me since I already suffer from it........How can I help it? Magnesium does not work  for me  Pamela Castro Carcelen ________________________________ To: mscured Sent: Sat, June 18, 2011 1:12:16 PM Subject: Re: Prokarin Report  This is definitley something that is not one-size-fits-all. Elaine told me that we reach the saturation point for histamine and that it's easier to go up than to go down in dosage. Sometimes I take the disc off for a few hours and put it back on later because I feel like I reached the saturation point. I want to try the MAO-A (monoamine oxidase) in the enhanced formula. I wet a washrag and refrigerate it to use across my bare feet when I get hot. I'm still not standing without bars and when I used a higher dose I fell a couple of times in the bathroom or I needed help getting dressed. I couldn't lift my feet onto the footrest. I can lift them with the lower dose. I'm convinced that any complete recovery is going to happen with time and other missing elements besides histamine. I have to add magnesium oxide with the cal/mag supplements that come with the Prokarin. Otherwise, I'm extremely constipated and I think it's making me full of toxins. > In the evening when the patch wears off I put on one of my old worn patches and > > it helps to decrease the symptoms so I get through the evening until I go to >bed > > without any issues. Have you tried that ? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 It isn't the Prokarin that makes you constipated, it's the calcium/magnesium tablets that cause it. The ratio of cal to mag is too high for me. Other options could be laxatives or prune juice. > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  for > me >  Pamela Castro Carcelen > > > > > ________________________________ > > To: mscured > Sent: Sat, June 18, 2011 1:12:16 PM > Subject: Re: Prokarin Report > >  > This is definitley something that is not one-size-fits-all. Elaine told me that > we reach the saturation point for histamine and that it's easier to go up than > to go down in dosage. Sometimes I take the disc off for a few hours and put it > back on later because I feel like I reached the saturation point. I want to try > the MAO-A (monoamine oxidase) in the enhanced formula. > > I wet a washrag and refrigerate it to use across my bare feet when I get hot. > I'm still not standing without bars and when I used a higher dose I fell a > couple of times in the bathroom or I needed help getting dressed. I couldn't > lift my feet onto the footrest. I can lift them with the lower dose. I'm > convinced that any complete recovery is going to happen with time and other > missing elements besides histamine. > > I have to add magnesium oxide with the cal/mag supplements that come with the > Prokarin. Otherwise, I'm extremely constipated and I think it's making me full > of toxins. > > > > > > In the evening when the patch wears off I put on one of my old worn patches and > > > > it helps to decrease the symptoms so I get through the evening until I go to > >bed > > > > without any issues. Have you tried that ? > > > I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2011 Report Share Posted June 19, 2011 The prokarin made my stomach work better at digetsting and moving food through. It used to feel like food would just sit in my stomach and water too. It doesn't block me up at all. ________________________________ To: mscured Sent: Sat, June 18, 2011 4:52:08 PM Subject: Re: Prokarin Report It isn't the Prokarin that makes you constipated, it's the calcium/magnesium tablets that cause it. The ratio of cal to mag is too high for me. Other options could be laxatives or prune juice. > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  >for > > me >  Pamela Castro Carcelen > > > > > ________________________________ > > To: mscured > Sent: Sat, June 18, 2011 1:12:16 PM > Subject: Re: Prokarin Report > >  > This is definitley something that is not one-size-fits-all. Elaine told me that > > we reach the saturation point for histamine and that it's easier to go up than > to go down in dosage. Sometimes I take the disc off for a few hours and put it > back on later because I feel like I reached the saturation point. I want to try > > the MAO-A (monoamine oxidase) in the enhanced formula. > > I wet a washrag and refrigerate it to use across my bare feet when I get hot. > I'm still not standing without bars and when I used a higher dose I fell a > couple of times in the bathroom or I needed help getting dressed. I couldn't > lift my feet onto the footrest. I can lift them with the lower dose. I'm > convinced that any complete recovery is going to happen with time and other > missing elements besides histamine. > > I have to add magnesium oxide with the cal/mag supplements that come with the > Prokarin. Otherwise, I'm extremely constipated and I think it's making me full > of toxins. > > > > > > In the evening when the patch wears off I put on one of my old worn patches >and > > > > > it helps to decrease the symptoms so I get through the evening until I go to > >bed > > > > without any issues. Have you tried that ? > > > I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 You are not supposed to take fish oil or cod liver oil with Prokarin. > > Where do we get a good high dose fish oil from ? I get it from zip vit > but to get the correct amount need to take 16- 20 a day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Try PowerPoop 100 ct. (Vegan Capsules) from 's Corner It works for me. http://www.ginascorner.com/colonpower.html > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  for > me >  Pamela Castro Carcelen > > > > > ________________________________ > > To: mscured > Sent: Sat, June 18, 2011 1:12:16 PM > Subject: Re: Prokarin Report > >  > This is definitley something that is not one-size-fits-all. Elaine told me that > we reach the saturation point for histamine and that it's easier to go up than > to go down in dosage. Sometimes I take the disc off for a few hours and put it > back on later because I feel like I reached the saturation point. I want to try > the MAO-A (monoamine oxidase) in the enhanced formula. > > I wet a washrag and refrigerate it to use across my bare feet when I get hot. > I'm still not standing without bars and when I used a higher dose I fell a > couple of times in the bathroom or I needed help getting dressed. I couldn't > lift my feet onto the footrest. I can lift them with the lower dose. I'm > convinced that any complete recovery is going to happen with time and other > missing elements besides histamine. > > I have to add magnesium oxide with the cal/mag supplements that come with the > Prokarin. Otherwise, I'm extremely constipated and I think it's making me full > of toxins. > > > > > > In the evening when the patch wears off I put on one of my old worn patches and > > > > it helps to decrease the symptoms so I get through the evening until I go to > >bed > > > > without any issues. Have you tried that ? > > > I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2011 Report Share Posted July 14, 2011 Hello, I have started Prokarin  too ( 2 weeks back) and have overcome my constipation issues with the FOS tablets that Elaine recommends and probiotic tablets too. I am sure thay will help  you. Have you just started the Prokarin? It would be helpful if we could exchange our reviews of how it is helping us. Good luck, Meenu.  ________________________________ To: mscured Sent: Sat, June 18, 2011 10:22:23 AM Subject: Re: Re: Prokarin Report  I am trying to get on Prokarin but the constipation issue worries me since I already suffer from it........How can I help it? Magnesium does not work  for me  Pamela Castro Carcelen ________________________________ To: mscured Sent: Sat, June 18, 2011 1:12:16 PM Subject: Re: Prokarin Report  This is definitley something that is not one-size-fits-all. Elaine told me that we reach the saturation point for histamine and that it's easier to go up than to go down in dosage. Sometimes I take the disc off for a few hours and put it back on later because I feel like I reached the saturation point. I want to try the MAO-A (monoamine oxidase) in the enhanced formula. I wet a washrag and refrigerate it to use across my bare feet when I get hot. I'm still not standing without bars and when I used a higher dose I fell a couple of times in the bathroom or I needed help getting dressed. I couldn't lift my feet onto the footrest. I can lift them with the lower dose. I'm convinced that any complete recovery is going to happen with time and other missing elements besides histamine. I have to add magnesium oxide with the cal/mag supplements that come with the Prokarin. Otherwise, I'm extremely constipated and I think it's making me full of toxins. > In the evening when the patch wears off I put on one of my old worn patches and > > > it helps to decrease the symptoms so I get through the evening until I go to >bed > > without any issues. Have you tried that ? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2011 Report Share Posted July 19, 2011 What kind of magnesium do you take? Mag. oxide is the type recommended by Elaine. She also recommends FOS. I ate some Ezekiel 4:9 cereal and a banana the other day and that works well for me. There are lots of herbal laxatives that work too. Fruit cleans you out, particularly peaches and apricots. > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  for > me >  Pamela Castro Carcelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 Hi, I take magnesium oxide or citrate. I also take probiotics or acidophilus but those are hard find one that really works. Do you know any good ones? I have tried many herbal laxatives, triphala, colon cleansers, aloe vera, senna..etc I guess none of the ones I tried were good or needed more pills in order for them to work. Pamela Castro Carcelen To: mscured Sent: Wednesday, July 20, 2011 1:03 AM Subject: Re: Prokarin Report  What kind of magnesium do you take? Mag. oxide is the type recommended by Elaine. She also recommends FOS. I ate some Ezekiel 4:9 cereal and a banana the other day and that works well for me. There are lots of herbal laxatives that work too. Fruit cleans you out, particularly peaches and apricots. > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  for > me >  Pamela Castro Carcelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 Pamela, One of the things that I have noticed with constipation is that I am more bothered with it if I eat animal products. I have had a test done and have a slow to empty stomach which means it takes much longer for food to leave my stomach. I also don't eat gluten. My husband is the ms patient by the way. He is also going gluten free and vegan as I have been doing some reasearch that says it can help ms as well. Take care Donna in VA Subject: Re: Re: Prokarin Report To: mscured Date: Saturday, June 18, 2011, 1:22 PM  I am trying to get on Prokarin but the constipation issue worries me since I already suffer from it........How can I help it? Magnesium does not work  for me  Pamela Castro Carcelen ________________________________ To: mscured Sent: Sat, June 18, 2011 1:12:16 PM Subject: Re: Prokarin Report  This is definitley something that is not one-size-fits-all. Elaine told me that we reach the saturation point for histamine and that it's easier to go up than to go down in dosage. Sometimes I take the disc off for a few hours and put it back on later because I feel like I reached the saturation point. I want to try the MAO-A (monoamine oxidase) in the enhanced formula. I wet a washrag and refrigerate it to use across my bare feet when I get hot. I'm still not standing without bars and when I used a higher dose I fell a couple of times in the bathroom or I needed help getting dressed. I couldn't lift my feet onto the footrest. I can lift them with the lower dose. I'm convinced that any complete recovery is going to happen with time and other missing elements besides histamine. I have to add magnesium oxide with the cal/mag supplements that come with the Prokarin. Otherwise, I'm extremely constipated and I think it's making me full of toxins. > In the evening when the patch wears off I put on one of my old worn patches and > > it helps to decrease the symptoms so I get through the evening until I go to >bed > > without any issues. Have you tried that ? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 Pamela, Contact Elaine DeLack and ask her if you can reduce the daily Cal/Mag supplement to some amount that will cause less constipation. Elaine will have advice that may be more acceptable for you. -Tim > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  for > me >  Pamela Castro Carcelen > > > > > ________________________________ > > To: mscured > Sent: Sat, June 18, 2011 1:12:16 PM > Subject: Re: Prokarin Report > >  > This is definitley something that is not one-size-fits-all. Elaine told me that > we reach the saturation point for histamine and that it's easier to go up than > to go down in dosage. Sometimes I take the disc off for a few hours and put it > back on later because I feel like I reached the saturation point. I want to try > the MAO-A (monoamine oxidase) in the enhanced formula. > > I wet a washrag and refrigerate it to use across my bare feet when I get hot. > I'm still not standing without bars and when I used a higher dose I fell a > couple of times in the bathroom or I needed help getting dressed. I couldn't > lift my feet onto the footrest. I can lift them with the lower dose. I'm > convinced that any complete recovery is going to happen with time and other > missing elements besides histamine. > > I have to add magnesium oxide with the cal/mag supplements that come with the > Prokarin. Otherwise, I'm extremely constipated and I think it's making me full > of toxins. > > > > > > In the evening when the patch wears off I put on one of my old worn patches and > > > > it helps to decrease the symptoms so I get through the evening until I go to > >bed > > > > without any issues. Have you tried that ? > > > I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 Hello, I just wanted to say that I am on Prokarin ( for 3 weeks now) and have avoided constipation by taking probiotics, 1/2 sp of castor oil at bedtime and a diet including lot of spinach and greens. Hope that helps. I have had MS for more than 25 years now and have weaknesses in legs, a right foot drop, back pain and right arm weaknesses, tensions and back pain . So many issues, but a lot of hope to get better. Was on Copaxone and had no side effects, but have stopped it temporarily. I started with 1/4 of the enhanced prokarin disc ( 1 week). then half disc ( 1 week) and now I have stareted 3/4 of the disc. My MS has left me with some disabilities, and I do not expect to see improvements at once. The improvements I have noticed so far; Better sleep Decrease in fatigue. I think that is a good start and will continue with hope for more improvement. Will give a feedback when I notice anything else. I know from my past 25 years experience, that nothing will improve until you get your colon moving. Daily bowel movement is essential to improve anything from a simple cough to something more serious. My  MS stopped being `active` when I started taking care of my colon and did yoga. I hope Prokarin will help with the disabilties that the long period with MS have left me with. Good luck, Meenu. ________________________________ To: mscured Sent: Wed, July 20, 2011 6:25:28 AM Subject: Re: Prokarin Report  Pamela, Contact Elaine DeLack and ask her if you can reduce the daily Cal/Mag supplement to some amount that will cause less constipation. Elaine will have advice that may be more acceptable for you. -Tim > > I am trying to get on Prokarin but the constipation issue worries me since I > already suffer from it........How can I help it? Magnesium does not work  >for > > me >  Pamela Castro Carcelen > > > > > ________________________________ > > To: mscured > Sent: Sat, June 18, 2011 1:12:16 PM > Subject: Re: Prokarin Report > >  > This is definitley something that is not one-size-fits-all. Elaine told me that > > we reach the saturation point for histamine and that it's easier to go up than > to go down in dosage. Sometimes I take the disc off for a few hours and put it > back on later because I feel like I reached the saturation point. I want to try > > the MAO-A (monoamine oxidase) in the enhanced formula. > > I wet a washrag and refrigerate it to use across my bare feet when I get hot. > I'm still not standing without bars and when I used a higher dose I fell a > couple of times in the bathroom or I needed help getting dressed. I couldn't > lift my feet onto the footrest. I can lift them with the lower dose. I'm > convinced that any complete recovery is going to happen with time and other > missing elements besides histamine. > > I have to add magnesium oxide with the cal/mag supplements that come with the > Prokarin. Otherwise, I'm extremely constipated and I think it's making me full > of toxins. > > > > > > In the evening when the patch wears off I put on one of my old worn patches >and > > > > > it helps to decrease the symptoms so I get through the evening until I go to > >bed > > > > without any issues. Have you tried that ? > > > I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 I asked her that because I used a smaller portion of the disc and I thought I could take less cal/mag. Her answer was NO, we need the calcium level in our blood to remain at the level as the prescribed supplementation. Calling her would be a good idea as she can walk you through the process. > > Pamela, > Contact Elaine DeLack and ask her if you can reduce the daily Cal/Mag supplement to some amount that will cause less constipation. Elaine will have advice that may be more acceptable for you. > -Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 I personally like Nature's Sunshine LBS II but it contains licorice root, not recommended with Prokarin. I also like Colon Corrective from Baseline of Health. You might need to take more magnesium too. > > Hi, > I take magnesium oxide or citrate. I also take probiotics or acidophilus but those are hard find one that really works. Do you know any good ones? > I have tried many herbal laxatives, triphala, colon cleansers, aloe vera, senna..etc I guess none of the ones I tried were good or needed more pills in order for them to work. > > Pamela Castro Carcelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 How much magnesium is safe? I take 1200-1500mg Sent from my iPod > I personally like Nature's Sunshine LBS II but it contains licorice root, not recommended with Prokarin. I also like Colon Corrective from Baseline of Health. You might need to take more magnesium too. > > > > > > Hi, > > I take magnesium oxide or citrate. I also take probiotics or acidophilus but those are hard find one that really works. Do you know any good ones? > > I have tried many herbal laxatives, triphala, colon cleansers, aloe vera, senna..etc I guess none of the ones I tried were good or needed more pills in order for them to work. > > > > Pamela Castro Carcelen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 I take it until I see results. Some days I need more than others. Start with one and increase if necessary. I don't go by certain guidelines for magnesium. Don't start with a high dose and you should be fine. Your body will let you know when you've had enough. > > How much magnesium is safe? I take 1200-1500mg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 I make fermented vegetables, kombucha, kefir and sourdough bread for living probiotics. Elaine recommended FOS, a prebiotic. Yakon root is another prebiotic. > > > > > > > > Hi, I also take probiotics or acidophilus but those are hard find one that really works. Do you know any good ones? > > > Pamela Castro Carcelen Quote Link to comment Share on other sites More sharing options...
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