Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 This is for those with MS living in the UK. It has been discussed in the House of Lords why only 12% of those with MS take the DMDs offered on the NHS and as the MS Society is the 'charity' the Govt turns to for advice on MS, I believe they are being questioned as to why this is and are perhaps feeling the pressure. They have worked on putting together a database to collect information from all those with MS in the UK. Help us to Change how MS is understood and researched within the UK At the moment, researchers, policy makers, and healthcare professionals do not have a complete picture of MS across the UK. At present, there is not even an accurate estimate of the number of people with MS in the UK, or of what forms of MS they have. More importantly, we do not know the details of how MS impacts on people's everyday lives. There are two parts of the study that you could get involved in: the web study, and the clinical study. Everyone who has MS can join the web study, but only people with MS who attend clinics in Belfast, Edinburgh, London, Nottingham, or Swansea, can join the clinical study. Your contribution could help researchers at Swansea University's Colleges of Medicine and of Human and Health Sciences to change that. http://www.ukmsregister.org/Portal/Study For those interested you can join by clicking the link above and participate. I know the cynics amongst us will not participate because it's the " MS Society " - with them not accepting LDN as a treatment. I am in discussions with the relevant health groups in Parliament about LDN and I am pleased to say finally, the doors are being opened for discussions how LDN can be brought to satisfy the regulators to make this a front line option for people with MS. So, because of the above and looking at 'the team' behind this project, I am pleased that the leading neurologist in Wales, Owen Pearson is listed. Mr Pearson has been very helpful to us throughout our campaign and what's more he is an avid supporter of LDN - 'nothing would please him more than to see this drug being used more on the NHS - it's a no brainer'. So if those in the UK would like to take part, I thought I'd post this. It could be a great opportunity to force the MS Society to accept LDN as a recognised treatment for MS. Thanks. Jayne Crocker LDNNow logo the one to use www.LDNNow.com <http://www.ipetitions.com/petition/ldnnow/> Important! Please sign our LDN petition to the European Parliament by clicking here tel: +44 (0) 7877 492 669 < Dr Steele MBE, talking about LDN LDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. .. Quote Link to comment Share on other sites More sharing options...
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