Re: Re: Neuro Muscular problems

[Guest guest]

hi alison and thanks your rep

 

nutrition, what is specific avoidance foods and diet, very interested, as 'you

are what you eat' thoery i find very interesting

 

i am considering prokarin but find had to source in the uk, any suggestions?

 

regards peter

To: mscured

Sent: Wednesday, 11 May 2011, 14:06

Subject: Re: Neuro Muscular problems

 

I had the same results with LDN. I stopped taking it and I have gotten better

with nutrition. I'm trying Prokarin now and instead of just halting the

progression of disease it is restoring some of my functions. My first obvious

symptoms of MS were mobility issues. I'm starting to doubt the immune system

hypothesis. Look into Elaine DeLack  theory of why histamine is defecient in

PWMS, its effect on cyclic AMP and what that does in your body.

>

> hi guys

>  

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a wheelcha

[Guest guest]

Hi Tim,

I started on Reishi which is a mushroom and it has done wonders! This balances

out your whole body, it is used for aides and cancer in other countries! It

costs around $15.00 for a 2 month supply I get this at iherb.com the brand is

Paradise-Reishi. I have been taking it for 2 weeks and my stamina is good, this

is used for so many ailments. Do you have a good support system and have you

applied for disability? Hang in there and don't ever stop looking for that cure,

you need to try everything and see what works for you!!!!

Subject: Re: Neuro Muscular problems

To: mscured

Date: Wednesday, May 11, 2011, 6:32 PM

Â

I am in the same damned PPMS boat with you - taking on water and sinking fast.

That makes it so much more difficult to stay positive/hopeful. I really should

be in a wheelchait full time, but I am trying to stay on my feet as long as I

can.

I am using a walker around the house and crutches when I have to visit anyone,

but use my wheelchair for any extended walking.

A Physical Therapist once told me " Don't rush into disability. " so I stay out of

the chair as much as possible.

I keep trying different things too - for 3 years since diagnosis. LDN didn't

help. CCSVI Liberation didn't help. I am in the 3rd day of a juice fast now. I

also take the recommended supplements.

I'm unemployed, running out of money, getting depressed and loosing hope.

I wish I had something better to tell you, but be comforted knowing you are not

alone. With all the cash generated to beat MS, they should know what causes it

and have a cure.

Best wishes,

-Tim

>

> hi guys

> Â

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a wheelchair

> Â

> been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

> Â

> if anyone has same dx as me with similar problems [leg stiffness, cramps,

neuro pain, spasms] would appreciate suggestions and advise, ldn i get scrip

from nhs doc and source from dicksons glasgow uk

> Â

> doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x

night] plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side

effects] not keen on any of these due to side effects

> Â

> do not take any vitamins, supplements nor minerals, nor avoidance diet

> Â

> also have monthly b12 injection hydroxocobalamin 1ml

> Â

> told i am clinically depressed due to ms

> Â

> any reply greatly appreciated

> Â

> regards/peter/ppms/london

>

>

[Guest guest]

hi tim and thanks both your emails

Â

ms may have your body but not you, and how important it is, but hard, to stay

positive

Â

good luck

Â

brgds/peter

To: mscured

Sent: Thursday, 12 May 2011, 0:41

Subject: Re: Neuro Muscular problems

Â

I am sorry. I read my note and it makes me more depressed. That was definately

not my intention.

It's true, work/career as I have known it will probably never happen again. I

have an online business now and I am figuring out ways to earn a living on my

computer (I'm not there yet but I will get there.). Even if I get well, I may

never go back to my profession. Maybe new doors will open for me and my

disabilities will turn out to be blessings in disguise.

Best regards,

Tim

> >

> > hi guys

> > Â

> > ms dx 1995 primary progressive, slow deterioration in walking ability, now

in a wheelchair

> > Â

> > been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

> > Â

> > if anyone has same dx as me with similar problems [leg stiffness, cramps,

neuro pain, spasms] would appreciate suggestions and advise, ldn i get scrip

from nhs doc and source from dicksons glasgow uk

> > Â

> > doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x

night] plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side

effects] not keen on any of these due to side effects

> > Â

> > do not take any vitamins, supplements nor minerals, nor avoidance diet

> > Â

> > also have monthly b12 injection hydroxocobalamin 1ml

> > Â

> > told i am clinically depressed due to ms

> > Â

> > any reply greatly appreciated

> > Â

> > regards/peter/ppms/london

> >

> >

[Guest guest]

100% agree julie, we must never, ever stop in our quest

Â

leaving it to the 'professionals' when none of them have and 'condition' just

makes me wonder how they know what is right, and considering that everyone is

different how can they give the same drug to all

Â

regards peter

To: mscured

Sent: Thursday, 12 May 2011, 14:57

Subject: Re: Re: Neuro Muscular problems

Â

Hi Tim,

I started on Reishi which is a mushroom and it has done wonders! This balances

out your whole body, it is used for aides and cancer in other countries! It

costs around $15.00 for a 2 month supply I get this at iherb.com the brand is

Paradise-Reishi. I have been taking it for 2 weeks and my stamina is good, this

is used for so many ailments. Do you have a good support system and have you

applied for disability? Hang in there and don't ever stop looking for that cure,

you need to try everything and see what works for you!!!!

Subject: Re: Neuro Muscular problems

To: mscured

Date: Wednesday, May 11, 2011, 6:32 PM

Â

I am in the same damned PPMS boat with you - taking on water and sinking fast.

That makes it so much more difficult to stay positive/hopeful. I really should

be in a wheelchait full time, but I am trying to stay on my feet as long as I

can.

I am using a walker around the house and crutches when I have to visit anyone,

but use my wheelchair for any extended walking.

A Physical Therapist once told me " Don't rush into disability. " so I stay out of

the chair as much as possible.

I keep trying different things too - for 3 years since diagnosis. LDN didn't

help. CCSVI Liberation didn't help. I am in the 3rd day of a juice fast now. I

also take the recommended supplements.

I'm unemployed, running out of money, getting depressed and loosing hope.

I wish I had something better to tell you, but be comforted knowing you are not

alone. With all the cash generated to beat MS, they should know what causes it

and have a cure.

Best wishes,

-Tim

>

> hi guys

> Â

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a wheelchair

> Â

> been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

> Â

> if anyone has same dx as me with similar problems [leg stiffness, cramps,

neuro pain, spasms] would appreciate suggestions and advise, ldn i get scrip

from nhs doc and source from dicksons glasgow uk

> Â

> doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x

night] plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side

effects] not keen on any of these due to side effects

> Â

> do not take any vitamins, supplements nor minerals, nor avoidance diet

> Â

> also have monthly b12 injection hydroxocobalamin 1ml

> Â

> told i am clinically depressed due to ms

> Â

> any reply greatly appreciated

> Â

> regards/peter/ppms/london

>

>