RE: Neuro Muscular problems

[Guest guest]

Hi

I'd always recommend supplements and getting on the BBD. These two things helped

me so very much before my CCSVI procedure (Nov. 2010) and they still do now as

the two approaches together provide my body with the correct fuel it needs to

run well.

I'm a huge supporter of the BBD as it suits my body and it has always given me

more energy than I have ever had before.

I honestly think that you should try the recommended supplements and the BBD for

six months and see how you fare.

Looking into CCSVI is a personal choice and I know you've already formed an

opinion on it, but as always, I do encourage everyone to at least look into

whether they're showing signs of it.

I hope this helps to be encouragement to you to try the Dietary and

supplementary approach.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: lowdosenaltrexone ; mscured ;

LDN_Users

From: peter.nicholls@...

Date: Wed, 11 May 2011 11:10:46 +0100

Subject: Neuro Muscular problems

do not take any vitamins, supplements nor minerals, nor avoidance diet

also have monthly b12 injection hydroxocobalamin 1ml

told i am clinically depressed due to ms

any reply greatly appreciated

regards/peter/ppms/london

[Guest guest]

I had the same results with LDN. I stopped taking it and I have gotten better

with nutrition. I'm trying Prokarin now and instead of just halting the

progression of disease it is restoring some of my functions. My first obvious

symptoms of MS were mobility issues. I'm starting to doubt the immune system

hypothesis. Look into Elaine DeLack's theory of why histamine is defecient in

PWMS, its effect on cyclic AMP and what that does in your body.

>

> hi guys

>  

> ms dx 1995 primary progressive, slow deterioration in walking ability, now in

a wheelcha

[Guest guest]

Hi ,

It's a bastard, isn't it! I was diagnosed the same year as you (1995) and have

Primary Progressive and live my life in a wheelchair.

I'm not at all surprised you are clinically depressed.

You only live ONCE - fact - and so when I was told I had MS (not that the neuro

would say the actual words) I thought embrace it, see how you can turn it into

something advantageous. I haven't picked up a vaccuum cleaner since nor taken

the rubbish out I forgot everything I used to like that relies on standing

and walking and concentrated on things you can do from a chair. I am now so

passionate about art that it overshadows everything else. When else would you

have time to devote to drawing exclusively. I feel I have now got where I want

to be with art so why doesn't the MS just f$$$$ off, I don't need it anymore.

And I feel it has - CCSVI treatment has helped so much but it'll take time for

the whole body to benefit.

The 3 things that have helped me the most are the Best Bet Diet, their

recommended supplements and CCSVI.

Second to that, exercise (yoga and swimming) and marijuana for pain.

Although most of my MS symptoms vanished after CCSVI treatment I still have

problems with mobility (i.e. I can't!)

Before CCSVI treatment I couldn't balance at all, now I can stand for 30

seconds. Before I could do one or two steps with a walker, now I can do 8

metres.

The spasms have gone, the leg stiffness isn't as bad, I only get cramp very very

occasionally for a split second on waking, and I still have cold feet that swell

in the heat. Everything else has gone.

It is exciting to again feel that my life is beginning to turn around.

I really would recommend the BBD and think a lot of your problems could diminish

if not go away.

The supplements too are well worth it. In particular get yourself some vitamin

D3 and maybe MSM (my 2 favourite).

Don't touch the pharmaceuticals!

I am still monitoring people like yourself and whose MS seems most

similar to my own and for whom LDN hasn't done a lot. I still have it up my

sleeve if CCSVI treatment doesn't go any further.

MS is something you can't just sit back and watch take over. You have to be

pro-active. It's a full-time job. Get out there and win the fight

Janet

o: lowdosenaltrexone ; mscured ;

LDN_Users

From: peter.nicholls@...

Date: Wed, 11 May 2011 11:10:46 +0100

Subject: Neuro Muscular problems

hi guys

ms dx 1995 primary progressive, slow deterioration in walking ability, now in a

wheelchair

been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

if anyone has same dx as me with similar problems [leg stiffness, cramps, neuro

pain, spasms] would appreciate suggestions and advise, ldn i get scrip from nhs

doc and source from dicksons glasgow uk

doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x night]

plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side effects]

not keen on any of these due to side effects

do not take any vitamins, supplements nor minerals, nor avoidance diet

also have monthly b12 injection hydroxocobalamin 1ml

told i am clinically depressed due to ms

any reply greatly appreciated

regards/peter/ppms/london

[Guest guest]

Hi ,

iherb.com is the best place for buying supplements. This does detoxify so some

days you may not feel to good, just make sure you hydrate yourself with water. I

hope this does as well for you as it has for me!

Subject: RE: Neuro Muscular problems

To: " MS-Cured " <mscured >

Date: Thursday, May 12, 2011, 5:19 AM

Â

Get them from iHerb on the Internet. They ship to Europe and their prices aren't

bad.

Janet

To: mscured

From: peter.nicholls@...

Date: Thu, 12 May 2011 11:12:12 +0100

Subject: Re: Neuro Muscular problems

hi julie, interesting your email, checked on many uk supplement providers and

they say: * Paradise Herbs Reishi Supreme Red Ling Zhi -- 60 Vegetarian Capsules

cannot be shipped to the selected address.

any suggestions greatly appreciated

regards/peter/ppms/london

[Guest guest]

Hi ,

iherb.com is the best place for buying supplements. This does detoxify so some

days you may not feel to good, just make sure you hydrate yourself with water. I

hope this does as well for you as it has for me!

Subject: RE: Neuro Muscular problems

To: " MS-Cured " <mscured >

Date: Thursday, May 12, 2011, 5:19 AM

Â

Get them from iHerb on the Internet. They ship to Europe and their prices aren't

bad.

Janet

To: mscured

From: peter.nicholls@...

Date: Thu, 12 May 2011 11:12:12 +0100

Subject: Re: Neuro Muscular problems

hi julie, interesting your email, checked on many uk supplement providers and

they say: * Paradise Herbs Reishi Supreme Red Ling Zhi -- 60 Vegetarian Capsules

cannot be shipped to the selected address.

any suggestions greatly appreciated

regards/peter/ppms/london

[Guest guest]

It isn't a quick fix for me since I am so far into MS. I notice that some

things have gotten easier for me to do. I stand better but not without holding

onto something. My fatigue has improved but I have to put my head down

sometimes. Doing that used to make me dizzy. I haven't had that issue the last

few times that I leaned over the table to rest. My guess, because that's all

that is available to me, is that iron in my brain is hitting a nerve. I'm

keeping CCSVI open as an option.

>

>

> I do plan on trying Prokarin but not yet. I want to wait a year since

my CCSVI treatment to see how far it will go.

> So glad it is helping you. Keep us updated.

> I wouldn't call myself an artist but I'm getting there.

> Janet

[Guest guest]

You all ought to start taking digestive enzymes, particularly HCL with pepsin.

According to some articles that I read, a person with MS has trouble digesting

protein and making the enzymes required to do it. Free-radicals come from

particles of undigested food (among other things). I have had some success with

enzymes.

>

> Hi Tim,

> I started on Reishi which is a mushroom and it has done wonders! This balances

out your whole body

[Guest guest]

hi joy, good news for you, but i thing getting prokarin in the uk is difficult?

regards peter

To: mscured

Sent: Wednesday, 11 May 2011, 20:03

Subject: Re: Neuro Muscular problems

Â

My leg stiffness, cramps, spasms are gone since I have started taking the

prokarin. Also my bowels and bladder work without any issues like constipation

or leakage. I am getting stronger and the cog fog is clearing. I would try

the

prokarin and see if it has a positive effect on you. I was very close to being

wheelchair bound at the time I started it. Its only been a few months of

treatment for me, but the improvements are still happening. A few weeks ago

the

foot drop was decreasing.Â

________________________________

To: " lowdosenaltrexone " <lowdosenaltrexone >;

" mscured " <mscured >; " LDN_Users "

<LDN_Users >

Sent: Wed, May 11, 2011 3:10:46 AM

Subject: Neuro Muscular problems

Â

hi guys

Â

ms dx 1995 primary progressive, slow deterioration in walking ability, now in a

wheelchair

Â

been on ldn since 02 december last year but cannot seem to get the dosage

correct, started on solution, 1ml 1st month then up to max 4.5ml but not seen

much improvement but will continue as treating as long term fix

Â

if anyone has same dx as me with similar problems [leg stiffness, cramps, neuro

pain, spasms] would appreciate suggestions and advise, ldn i get scrip from nhs

doc and source from dicksons glasgow uk

Â

doc has also prescribed baclofen [10mg 3 x day] and clonazepam [0.5mg 3 x night]

plus 1 x 10mg nortriptyline [2nd generation amiltriptyline, less side effects]

not keen on any of these due to side effects

Â

do not take any vitamins, supplements nor minerals, nor avoidance diet

Â

also have monthly b12 injection hydroxocobalamin 1ml

Â

told i am clinically depressed due to ms

Â

any reply greatly appreciated

Â

regards/peter/ppms/london

[Guest guest]

thanks janet

regards peter

To: MS-Cured <mscured >

Sent: Thursday, 12 May 2011, 11:19

Subject: RE: Neuro Muscular problems

Â

Get them from iHerb on the Internet. They ship to Europe and their prices aren't

bad.

Janet

To: mscured

From: peter.nicholls@...

Date: Thu, 12 May 2011 11:12:12 +0100

Subject: Re: Neuro Muscular problems

hi julie, interesting your email, checked on many uk supplement providers and

they say: * Paradise Herbs Reishi Supreme Red Ling Zhi -- 60 Vegetarian Capsules

cannot be shipped to the selected address.

any suggestions greatly appreciated

regards/peter/ppms/london

[Guest guest]

julie hi, appreciate your reply

regards peter

To: mscured

Sent: Thursday, 12 May 2011, 14:42

Subject: RE: Neuro Muscular problems

Â

Hi ,

iherb.com is the best place for buying supplements. This does detoxify so some

days you may not feel to good, just make sure you hydrate yourself with water. I

hope this does as well for you as it has for me!

Subject: RE: Neuro Muscular problems

To: " MS-Cured " <mscured >

Date: Thursday, May 12, 2011, 5:19 AM

Â

Get them from iHerb on the Internet. They ship to Europe and their prices aren't

bad.

Janet

To: mscured

From: peter.nicholls@...

Date: Thu, 12 May 2011 11:12:12 +0100

Subject: Re: Neuro Muscular problems

hi julie, interesting your email, checked on many uk supplement providers and

they say: * Paradise Herbs Reishi Supreme Red Ling Zhi -- 60 Vegetarian Capsules

cannot be shipped to the selected address.

any suggestions greatly appreciated

regards/peter/ppms/london

[Guest guest]

Your comment made me laugh " a wheeler with neuro problems " and although I am

sure you are referring to neuroLOGICAL problems, we probably have more

neuroLOGIST problems especially as, as we all know, MS is all in our heads and

doesn't really exist! (Said tongue in cheek, before you beat me up.)

BBD is easy. Don't wait until you've looked into it fully or you'll never do

it. Stop one of the food groups NOW, e.g. gluten (wheat, barley, oats, rye) and

replace with corn, quinoa, millet, buckwheat, amaranth, chestnut, or dairy

(cheese, milk, cream, yoghurt - all - cow's, sheep's, goat's or yak's!), replace

with nut milk, rice milk, hemp milk, quinoa milk, amaranth milk or coconut milk.

Wait a month before you tackle the next.

Start vitamin D3, nearly everyone is deficient in it so it won't harm.

Get blood tests at your GP to see if you are low on other minerals and vitamins.

Good luck and keep enjoying people watching.

Janet

To: mscured

From: peter.nicholls@...

gives me inependence and solitude that is sometimes hard once your a wheeler

with neuro problems

looking into bbd

vitamins, minerals and supplements, yes, but as we are all different, difficult

to know what to take

[Guest guest]

I take Betaine Hydrochloride w/Pepsin after breakfast and dinner. I found that

2 tablets after a meal help prevent bloating and aid digestion. I do not take

it after lunch because lunch is usually a salid or a live juice.

-Tim

> >

> > Hi Tim,

> > I started on Reishi which is a mushroom and it has done wonders! This

balances out your whole body

>

[Guest guest]

It's the pepsin that digests meat.

>

> I take Betaine Hydrochloride w/Pepsin after breakfast and dinner. I found

that 2 tablets after a meal help prevent bloating and aid digestion. I do not

take it after lunch because lunch is usually a salid or a live juice.

>

> -Tim