Re: Re: Email Response from Dr. Woeller~Prokarin

[Guest guest]

That is why I am probably going to try CCSVI and Prokarin. Not because I think

they are the " end-all " in cures but I have been working naturally and

alternatively for 5 years now, including LDN, various diets, having all the

metals removed from my mouth, seeing natural energy healers, FAR saunas and many

other techniques. I have yet to find anything that made a major improvement and

I have gotten slightly worse over the 5 years. That is why I am probably going

to try one or both of these two things. I am going into it optimistically but

also with critical thinking, realizing, as I've stated before that each of these

protocols invariably work for some and not others, and that's just the way it is

unfortunately. It would be easier if there were a one-size-fits-all protocol

that we could all do and it would work for all of us.

________________________________

To: mscured

Sent: Tue, March 29, 2011 5:08:46 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

>have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

>have been dealing with MS for 27 years and most if not all of the success's are

>NOT expensive. If you want the truth about MS...Talk to those that have MS and

>that heve become involved with their own treatment.

[Guest guest]

The pharmacy said that it can be covered is it is broken down to the two

ingredients.  I hope you get it approved.  I would appeal it if you get good

results during the first month.  Talk to the pharmacy to see what suguestions

they have.

________________________________

To: mscured

Sent: Tue, March 29, 2011 5:45:46 PM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

 

That is great news Joy. It is interesting because I have blue cross also but

they have declined anything that is  not FDA approved for a specific condition

and from a compounding pharmacy. They did not pay for my LDN or compounded

hormones. I will check if they would pay for the Prokarin, but based on what

I've had so far, it will be a no. I guess each state's plan is different. I have

BCBS for my particular state, rather than a national plan, so that is probably

what allows them to set their own rules.

________________________________

To: mscured

Sent: Tue, March 29, 2011 8:21:41 PM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

 

Hi everyone. I contacted the pharmacy in wa.  My insurance is going to cover

the

prokarin patches.  The copay for me is 45$.  I have blue cross.

[Guest guest]

If anyone knows if CCSVI is covered in N. Ca or who is doing it please let me

know links.  I would be intrested in the future if this doesn't keep working. 

Stanford stopped studies due to a few deaths. 

________________________________

To: mscured

Sent: Tue, March 29, 2011 5:42:04 PM

Subject: Re: Re: Email Response from Dr. Woeller~Prokarin

 

That is why I am probably going to try CCSVI and Prokarin. Not because I think

they are the " end-all " in cures but I have been working naturally and

alternatively for 5 years now, including LDN, various diets, having all the

metals removed from my mouth, seeing natural energy healers, FAR saunas and many

other techniques. I have yet to find anything that made a major improvement and

I have gotten slightly worse over the 5 years. That is why I am probably going

to try one or both of these two things. I am going into it optimistically but

also with critical thinking, realizing, as I've stated before that each of these

protocols invariably work for some and not others, and that's just the way it is

unfortunately. It would be easier if there were a one-size-fits-all protocol

that we could all do and it would work for all of us.

________________________________

To: mscured

Sent: Tue, March 29, 2011 5:08:46 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

>have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

>have been dealing with MS for 27 years and most if not all of the success's are

>NOT expensive. If you want the truth about MS...Talk to those that have MS and

>that heve become involved with their own treatment.

[Guest guest]

You do have to keep the patch refrigerated !!!  You can only keep it out of the

fridge for 7-10 days.  Heat breaks down the histamine.  It says so in the

instructions. 

________________________________

To: mscured

Sent: Sun, April 3, 2011 7:40:12 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

The patch is actually a ready to apply disc. It was originally a tube of cream

that had to be refrigerated and applied to a patch. Refrigeration is not

necessary for the newer product.

I used Skip's when I took LDN. Skip talked with me when I had questions. Very

personable pharmacy. I don't know if they do Prokarin.

Ask them the next time you order LDN.

>

> Anybody try Skip's in Boca Raton. He is our favorite LDN Compounder. I wonder

>if he does Prokarin?

>

> Also, anybody know what type (patch?) is dispensed by Custom RX in Bellingham.

>I found them right away on Googly.

>

[Guest guest]

Raving about the prokarin results.  Yesterday I walked the 3.15 mile trail and

my speed improved along with my gait.  The  last .5 mile usually leaves me

very

fatigued to the point I need assist at times.  Yesterday I did the whole thing

without assist.  My balance improved so much more.  My feet did not drag at

all.  My muscles engaged very well in my legs when I went up hills.  I was

able

to run up the hill part way as a test of the improvement.  I did not need

assist

getting in the car after walking.  The down time afterwards is none.  I don't

need to rest after walking now.

Today I walked about 3.75 miles.  I carried the cane most of the way on my

shoulder !!!  I barely touched it to the ground when I walked.  I didn't need

it

to support or help me balance hardly at all.  Again I was able to maintain a

brisk pace. I was able to lift my leg without my arms getting in to the car. 

Before I would have to sit and lift the leg in.  Each day there are

imporvements.  It was windy.  Normally I can't balance in the wind.  A gust

would blow me off the pathways with a really bad chance of falling.  Now I

don't

have that issue.  I can balance in the wind no matter which direction it blew

from.  I walked farther today.  I continue to be amazed and thrilled with the

progress. 

Oh, headaches are gone.  Spasitity continues to remain gone.  No bladder

issues.  Bowels improved.  No more slurred speech.  Today I bent over during

the

walk and retied my shoes without worrying about loosing my balance or getting

dizzy.  Before I couldn't do that I would get very dizzy and tip over.  My

husband had to tie my shoes for me.  My vision is not blurring when I get warm

when I walk.  I have the ability to prespire when we walk.  I couldn't

prespire

much before. 

________________________________

To: mscured

Sent: Tue, March 29, 2011 2:08:46 PM

Subject: Re: Email Response from Dr. Woeller~Prokarin

 

To each his own. I'm going to try it before I dismiss it. I don't want to be in

a wheelchair for the rest of my life if I have an opportunity to try something

that might help me walk. $230/month is not expensive, especially if it works.

The first month is free. This IS being involved in my treatment! How is this

different than trying LDN, which did absolutely nothing for me except make my

legs stiff? I would not have known that had I not tried it.

>

> I hate to be a " Kiljoy " but this sure looks and sounds like many other that I

>have seen ... " Take Advantage of the Unknowns " ...in a disease such as MS....I

>have been dealing with MS for 27 years and most if not all of the success's are

>NOT expensive. If you want the truth about MS...Talk to those that have MS and

>that heve become involved with their own treatment.

> Best Regards,

> Tom Bayuk

>

>