Re: CCSVI results

[Guest guest]

I know this is not the same procedure and off topic, but I though I would

share. 

Back when I was in college I saw a caroid endarscopy where the doc opened up the

vein in the patients neck. 

First the doc started snaking a tube up through the patients leg up to the neck

and other areas to view the areas to be worked on under flourscopy I think. 

Its

been many years.  You could see the event on the x-ray machine across the

room. 

I stood on a step stool right next to the doc as he operated on the patient. He

opened up the caratoid artery in the neck.  I watched him pull out the plac

from

the vein.  It looked like yellow hardened stiff straw.  He removed as much as

he

could reach.  The rest is left in the vein.  This patient was on the heart by

pass machine and the 2nd doc hadn't shown up.  He called him and he was out

golfing.  He told him the pt. only had an a certain number of min.s left on the

by pass machine before the brain damage started in.  The other doc showed up

just in time.  Then he had me step back across the room in the farthest

corner. 

He took sewed a bit and then took the clamp off.  The sewing job wasn't very

good so the pluming blew and blood shot across the room.  It poured on the

floor

making a big mess.  Then they fixed it up the rest of the way properly.

I realize this isn't the same procedure.  But they did put stents in to keep

the

vein open.  3 in all.  They don't fix the plac that is in the rest of the

vein. 

Also when people are on coumadin they said after a number of years the veins,

arteries, and heart calcify.  That when they operate it is riskier as sometimes

parts crumble.  That was from the RN instructors. 

I won't even say what the anesteologist did. . .   Use your imagination as to

what can go wrong. 

________________________________

To: mscured

Sent: Tue, April 5, 2011 12:26:21 PM

Subject: CCSVI results

 

Hi. Well my CCSVI is scheduled for next month--the testing and the treatment if

indicated. At the doctor I am going to the vast majority qualified for the

treatment based on the testing.

I know there are at least 2 members in this group --if I may use names--Janet

and --that have had good results.

, could you remind me what benefits you have experiened.

Janet, could you tell me if all your benefits have been maintained.

Also, I saw about maybe 5 - 7 people wrote in to this list that they had CCSVI

and have had no changes at all so far and one person wrote that he felt worse.

As my appt is coming closer I have still not made a decision if I want to

continue because of various concerns such as restonis or being one of th 3% of

people that my doc had to use stents for because the balloons weren't working.

I would be very interested in hearing more feedback from anyone on this group

who has had CCSVI as to whether or not it was helpful.

I am considering canceling or postponing my appt but I want to give the doc some

notice, so I have to try to make my final decision within the next week or two.

I know they have a waiting list so someone else can be bumped up to my spot, but

still I don't want to tell them at the very last second.

I have been somewhat disappointed that there are only two members on this group

who are really excited about their CCSVI results. If there are others on this

list who have some good experiences to share, I would really appreciate hearing

them.

Thanks. Alan.