Re: Does anyone else have a high ANA, high SED rate, and high C-reactive protein?

[Guest guest]

    How horrid for you!  Hopefully, most or all of this will turn out to

be

nothing.  I have read that when one has one auto-immune disease, one is likely

to end up with others.  For example, I have MS and rosacea and probably cold

agglutinin though I need a blood test to determine that. 

    The only thing I could recommend is an extremely low-fat, plant based

diet,

as advised by Dr. McDougall and  Jelinek.  My husband has been

diagnosed

with rheumatoid arthritis and has been religious about sticking to the diet. 

He

has improvved enough to stop taking his RA medicine, though his doctor has

advised him to restart the medicine if the symptoms return, before he does

permanent damage to his body.  But I know you are already aware of this diet.

    Good luck and I hope you find a good solution to all your symptoms.

Ann  

  " I am not an advocate for frequent changes in laws and Constitutions. But laws

and institutions must go hand in hand with the progress of the human mind. As

that becomes more developed, more enlightened, as new discoveries are made, new

truths discovered and manners and opinions change, with the change of

circumstances, institutions must advance also to keep pace with the times. We

might as well require a man to wear still the coat which fitted him when a boy

as civilized society to remain ever under the regimen of their barbarous

ancestors. "

Jefferson, signer of the Declaration of Independence

________________________________

To: mscured

Sent: Mon, April 4, 2011 10:43:25 AM

Subject: Does anyone else have a high ANA, high SED rate, and high

C-reactive protein?

 

I have had MS for 5 years but a recent blood test also showed the above

constellation. My doc wants me to see a rheumatologist. In looking on line it

appears that this constellation of symptoms could mean that I also have

arthritis, lupus, or Sjogren's, and a few other things. Does anyone else have

these blood test results?

I am not sure I want to follow up with a rheumatologist because they will likely

prescribe ssteroids and other lifelong drugs.

I am also not sure if this affects my upcoming appointment for CCSVI.

Thanks for any information anyone may have on these matters.

[Guest guest]

Are you on LDN ?

>

>

> I have had MS for 5 years but a recent blood test also showed the above

> constellation. My doc wants me to see a rheumatologist. In looking on line

> it appears that this constellation of symptoms could mean that I also have

> arthritis, lupus, or Sjogren's, and a few other things. Does anyone else

> have these blood test results?

>

> I am not sure I want to follow up with a rheumatologist because they will

> likely prescribe ssteroids and other lifelong drugs.

>

> I am also not sure if this affects my upcoming appointment for CCSVI.

>

> Thanks for any information anyone may have on these matters.

>

> __._,

>

[Guest guest]

>

> I have had MS for 5 years but a recent blood test also showed the above

constellation. My doc wants me to see a rheumatologist.

When I was diagnosed with MS, I was surprised to find out that my normal Sed

rate was actually common in MS. Sed rate and CRP are both markers of

inflammation but, while commonly high in other autoimmune conditions, they are

frequently normal in MS.

At any rate, with the combination of a diagnosis of MS and high inflammation

markers (indicating possible presence of another autoimmune condition) I would

be suspicious of it all originating in the gut. In the altmed world, it's more

commonly accepted that the chain of events is as follows:

leaky gut---> hyperstimulated immune system---> autoimmune disease

Crystal

[Guest guest]

I was on LDN for 3 years but continued to develop new symptoms consistent with

MS so I went off it about a year or so ago. I haven't gotten any worse or better

since going off. Is this related to the blood tests I mentioned?

>

> >

> >

> > I have had MS for 5 years but a recent blood test also showed the above

> > constellation. My doc wants me to see a rheumatologist. In looking on line

[Guest guest]

How is Ur coffee consumption ? It increases CRP levels and is

proinflammatory

http://findarticles.com/p/articles/mi_m0887/is_11_23/ai_n7578036/

W dniu 2011-04-04 19:43, alansamston pisze:

>

> I have had MS for 5 years but a recent blood test also showed the

> above constellation. My doc wants me to see a rheumatologist. In

> looking on line it appears that this constellation of symptoms could

> mean that I also have arthritis, lupus, or Sjogren's, and a few other

> things. Does anyone else have these blood test results?

>

> I am not sure I want to follow up with a rheumatologist because they

> will likely prescribe ssteroids and other lifelong drugs.

>

> I am also not sure if this affects my upcoming appointment for CCSVI.

>

> Thanks for any information anyone may have on these matters.

>

>

[Guest guest]

I read that many people with autoimmune diseases develop other autoimmune

diseases, yet the vast majority of people I know with MS have only MS. Not sure

what is different in my case. Not sure if I should go to the rheumatologist as

that is really no different than going to a neurologist in the sense that all

they do is give you a label and offer meds that don't help and make you worse.

This is all very upsetting.

Thank you for the replies. I would still be interested to know if anyone else

has these high inflammation markers on top of the MS diagnosis?

Thank you.

[Guest guest]

That is an interesting question because my one makpr weaknessin my diet is that

I drink coca colas with caffeine amd other no-nos in it. And in fact when I

drink them I feel great--, more energy, clearer head-- but I noticed I started

getting some joint pain in my ankle area when I was drinking a lot of coca

colas.

>

> How is Ur coffee consumption ? It increases CRP levels and is

> proinflammatory

> http://findarticles.com/p/articles/mi_m0887/is_11_23/ai_n7578036/

>

>

[Guest guest]

Thanks for the responses. I just spoke to the regular doctor, as opposed to the

nurse I had spoken to earlier today. Anyway, the doctor said actually the

C-reactive protein is normal and the SED rate is only 2 points higher than the

norm, but the ANA is positive.

I recall when I was being diagnosed with MS 5 years ago they wanted to rule out

Sjogren's which apparently can cause MS-like attack. I wonder if is possible

that I have Sjogren's and not MS, but more likely it seems like I have a second

autoimmune disorder brewing.

I agree with a previous poster that a very low fat diet, probably lost of greens

veggies and juices would be the most anti-inflammatory. But meanwhile I received

today my pack of Prokarin patches 1 month supply, which is indicated to take

with a high saturated fat diet. I am really, really confused and as some of us

know, doctors aren't going to be of much help.

So now I am stuck with 3 decisions: whether to proceed with CCSVI, whether to

proceed with Prokarin and high saturated fat diet, and whether to bother seeing

a rheumatologist who will likely run tons of test, give me some additional new

diagnostic label, and want to put me on meds.

HELP!

[Guest guest]

Are you eating gluten free ? ?

>

>

> I have had MS for 5 years but a recent blood test also showed the above

> constellation. My doc wants me to see a rheumatologist. In looking on line

> it appears that this constellation of symptoms could mean that I also have

> arthritis, lupus, or Sjogren's, and a few other things. Does anyone else

> have these blood test results?

>

> I am not sure I want to follow up with a rheumatologist because they will

> likely prescribe ssteroids and other lifelong drugs.

>

> I am also not sure if this affects my upcoming appointment for CCSVI.

>

[Guest guest]

No . I still eat gluten. I know I shouldn't but I do. I have cut down and

gone a few weeks at a time without gluten but for the most part haven't been

able to stick to it. I am also rice intolerant according to ELISA so that makes

being gluten free more challenging.

________________________________

To: mscured

Sent: Mon, April 4, 2011 7:04:44 PM

Subject: Re: Does anyone else have a high ANA, high SED rate, and high

C-reactive protein?

 

Are you eating gluten free ? ?

>

>

> I have had MS for 5 years but a recent blood test also showed the above

> constellation. My doc wants me to see a rheumatologist. In looking on line

> it appears that this constellation of symptoms could mean that I also

[Guest guest]

C-reactive protein is a marker for inflammation. Try to eat anti-inflammatory

foods for awhile and see if that helps.

> > it appears that this constellation of symptoms could mean that I also

>

>

[Guest guest]

> I agree with a previous poster that a very low fat diet, probably lost of

greens veggies and juices would be the most anti-inflammatory. But meanwhile I

received today my pack of Prokarin patches 1 month supply, which is indicated to

take with a high saturated fat diet. I am really, really confused and as some of

us know, doctors aren't going to be of much help.

>

There are some other foods to try that are specifically anti-inflammatory. The

bromelain in fresh pineapple is helpful. I remember reading a story of someone

with rheumatoid arthritis who swore by a pineapple a day. Turmeric is also

great. You can cook with it along with taking it as a supplement. HTH!

I agree with you that the positive ANA makes it seem something else is going on,

either instead of MS or in conjunction with it. Glad to hear the sed rate and

CRP are normal, but staying anti-inflammatory with your diet anyways will only

help!

Crystal

[Guest guest]

well yeah, LDN is supposed to treat the auto-immunity and as you know MS,

lupus, Sjogren's, are all auto-immune.

Since that didnt work, there must be something else aggravating things.

Do you have mercury fillings, drink any diet soda or consume anything that

has aspartame or eat gluten ?

>

>

> I was on LDN for 3 years but continued to develop new symptoms consistent

> with MS so I went off it about a year or so ago. I haven't gotten any worse

> or better since going off. Is this related to the blood tests I mentioned?

>

>

[Guest guest]

Thank you Crystal. Unfortunately ELISA shows me intolerant to pineapples--Go

figure! As for the Turmeric, in the Prokarin literature one of the items they

say not to take is Turmeric. I'm not sure why. There are a number of things

listed that they say just don't go well with the Prokarin Patch. The Prokarin

guidelines are so very different from what most of us on this group espouses. I

was going to start the Prokarin today, but now am not sure what to do because I

don't think the Prokarin protocol fits well for someone dealing with a lot of

inflammatory issues.

________________________________

From: freewitheft freewitheft@...

..

>

There are some other foods to try that are specifically anti-inflammatory. The

bromelain in fresh pineapple is helpful. I remember reading a story of someone

with rheumatoid arthritis who swore by a pineapple a day. Turmeric is also

great. You can cook with it along with taking it as a supplement. HTH!

I agree with you that the positive ANA makes it seem something else is going on,

either instead of MS or in conjunction with it. Glad to hear the sed rate and

CRP are normal, but staying anti-inflammatory with your diet anyways will only

help!

Crystal

[Guest guest]

Thanks . I had all the metals removed from my mouth about 4 years ago, but

I never did chelation because when I tried a couple things it seemed I had

horrible herx reactions. I am careful not to take aspartame but prior to my MS

onset, I did take a lot of diet soda--but haven't had any in 5 years. One thing

I am still very bad about is the gluten, which I still eat--I will try very hard

to cut that out. It is hard because I am also rice intolerant on the ELISA so

that doesn't leave many options.

________________________________

To: mscured

Sent: Mon, April 4, 2011 8:38:06 PM

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

well yeah, LDN is supposed to treat the auto-immunity and as you know MS,

lupus, Sjogren's, are all auto-immune.

Since that didnt work, there must be something else aggravating things.

Do you have mercury fillings, drink any diet soda or consume anything that

has aspartame or eat gluten ?

[Guest guest]

Thanks . Just had my D tested recently and it was 57ng in the U.S., which I

think is supposed to be multiplied by 2.5, so it is a little lower than optimal

but not too bad. My DHEA is pretty low for my age--I think it is about 90--can't

really recall--and I am in my middle 40s. I have been hesistant to add DHEA

because to my understanding it is a steroid?

When I spoke to Elaine Delack and told her I was not heat intolerant she thought

rather than the Prokarin Patch I would be better off taking MSM and DHEA as she

feels I have Lupus rather than MS. However, when I looked up Lupus on line it

does not match my symptoms. My symptoms are optic neuritis, bladder problems,

severe fatigue, cog fog, bear hug on the limbs, numbness on the limbs,

electrical shock feelings, and vertigo. The only thing that overlapped with

Lupus was the fatiuge. Oh yeah and sometimes I do get some joint pain in my

ankles.

So I have a sachet of Prokarin in the fridge and a CCSVI appt scheduled for May

and a rheumatologist appt scheduled for late April. Honestly at this point I am

ready to go back to my original philisophy of working on detoxing and

rebuilding.

________________________________

To: mscured

Sent: Mon, April 4, 2011 8:42:39 PM

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

 

Oh and if you go to the doc, I would have your them check your vitamin D

levels and DHEA.

[Guest guest]

Try baking with coconut flour. You can also make sourdough bread and fermented

grains to digest the gluten. Sprouted spelt is good too. I'll post some recipes

if you are interested.

>

> getting off the gluten can be difficult, it took me a couple of years of

> going off and back on

[Guest guest]

Millet, quinoa, buckwheat, corn, tapioca, are just a few of the options.

Janet

To: mscured

From: alansamston@...

Date: Tue, 5 Apr 2011 11:25:13 -0700

Subject: Re: Re: Does anyone else have a high ANA, high SED rate, and

high C-reactive protein?

gluten, which I still eat--I will try very hard

to cut that out. It is hard because I am also rice intolerant on the ELISA so

that doesn't leave many options.