Re: supposedly optic neuritis?

[Guest guest]

I have optic neuritis in both eyes-always a pain behind my eyes,loss of somekind

of vision-I'm not sure if that is what you have-but I see an opthamologist that

knows about MS-I would suggest getting a second opinion,and ask for a eye doctor

who is familiar with MS-it makes all the difference...Pam

________________________________

To: mscured

Sent: Wednesday, July 27, 2011 5:26 AM

Subject: supposedly optic neuritis?

 

Hi group,

here I am, needing advice once again.

First, I would like to emphasize, that I am also on the MS vs LYME boat and I

still don't know what is the core of my troubles.

My last Western Blot came out border positive, but both neurologist and

infectologist claim I don't have LYME and that it is merely my over-responsive

immune system. Before I turn to ATB, I am trying colloidal rhodium, platine,

green foods and homeopatics.

I have had a year full of " ms " troubles. Last troubles were in April, and it

concerned my eye. I had pain in my head behind the eye and narrowed vision, as

well as pain while looking straightly left or right. I had this perimeter check

up at oftalmologist, and she said all was okay. Then it got suddenly better.

But now, since monday, I suffer more or less the same symptoms. Could it be the

beginning of optic neuritis or something like that? I dont want to go to the eye

doctor since she is going to tell me probably the same and not even to the

neurologist as the only thing they can do is solumedrol.

Am still on Rebif for lack or other options.

Any advice is greatly appreciated.

Thanks a lot.

[Guest guest]

Personal non licensed opinion, AVOID Rebif. Strongly feel it was a combo of

prednisone and Rebif that has thrown me into my current " living death "

Rather feel that MS and Lyme Disease (aka borreliosis) are the same disease.

Recently read an article " MS is Lyme Disease -- Anatomy of a Cover up " . Will do

an internet search for the article. There is currently a Facebook thread on

that topic:

http://www.facebook.com/topic.php?uid=110796282297 & topic=18083

They reference parts of the article, but not the entire article.

My IgeneX test is borderline. NONE of the tests are accurate. Once the

infection has been in us for a while, it hides INSIDE of our cells and evades

any of the tests.

Have written MUCH about my MS to Lyme voyage here on MSCured. Use the search

function to find my past work.

Feel free to send me a note directly with any other questions.

>

> Hi group,

> here I am, needing advice once again.

> First, I would like to emphasize, that I am also on the MS vs LYME boat and I

still don't know what is the core of my troubles.

> My last Western Blot came out border positive, but both neurologist and

infectologist claim I don't have LYME and that it is merely my over-responsive

immune system. Before I turn to ATB, I am trying colloidal rhodium, platine,

green foods and homeopatics.

>

> I have had a year full of " ms " troubles. Last troubles were in April, and it

concerned my eye. I had pain in my head behind the eye and narrowed vision, as

well as pain while looking straightly left or right. I had this perimeter check

up at oftalmologist, and she said all was okay. Then it got suddenly better.

>

> But now, since monday, I suffer more or less the same symptoms. Could it be

the beginning of optic neuritis or something like that? I dont want to go to the

eye doctor since she is going to tell me probably the same and not even to the

neurologist as the only thing they can do is solumedrol.

>

> Am still on Rebif for lack or other options.

>

> Any advice is greatly appreciated.

>

> Thanks a lot.

>

>

>

[Guest guest]

Hello ,

I had the same symptoms in 1990 and went for various eye tests. Nothing was

wrong with my eyes. The back of my left eye had severe pain and I had headache

too. After a few days of painkillers,the eye pain went away and left a spot of

blurred vision, which slowly grew  larger. Along with that I started having

severe back pain, tingling and weakness of legs ,increase in fatigue - all the

symptoms of an exacerbation. It was a bad time.

I was in India at that time and put on steroids, which took away some symptoms,

but left side effects and a deep depression.

Since you seem to be here in the US, please have the proper tests for MS and if

you have to take shots, I wuld like to suggest Copaxone, as that is what I have

been  taking , with the least side effects.

These are the things that have helped me the most during the span of the last 21

years and now my MS is not `active` any more, though it is still there.

Colon clensing

Liver flush

Diet

Reducing stress

rest

Yoga and stretching

Methods of trying to increase oxygen in the brain --by deep breathing exercises

( for 10--15 mins daily)

The fog in my eye and other tingling etc, went away gradually .It took 2 years

and I was taking Tibetian herbal medicine in India.

I had been on Copoxone for the last 7 years. I have stopped it for a year now,

because of insurance issues and also because I am on the first month of trying

Prokarin. I hope and pray it works to take away my fatigue and improve my foot

drop.

Please take care and good luck,

Meenu. 

________________________________

To: mscured

Sent: Wed, July 27, 2011 2:26:29 AM

Subject: supposedly optic neuritis?

 

Hi group,

here I am, needing advice once again.

First, I would like to emphasize, that I am also on the MS vs LYME boat and I

still don't know what is the core of my troubles.

My last Western Blot came out border positive, but both neurologist and

infectologist claim I don't have LYME and that it is merely my over-responsive

immune system. Before I turn to ATB, I am trying colloidal rhodium, platine,

green foods and homeopatics.

I have had a year full of " ms " troubles. Last troubles were in April, and it

concerned my eye. I had pain in my head behind the eye and narrowed vision, as

well as pain while looking straightly left or right. I had this perimeter check

up at oftalmologist, and she said all was okay. Then it got suddenly better.

But now, since monday, I suffer more or less the same symptoms. Could it be the

beginning of optic neuritis or something like that? I dont want to go to the eye

doctor since she is going to tell me probably the same and not even to the

neurologist as the only thing they can do is solumedrol.

Am still on Rebif for lack or other options.

Any advice is greatly appreciated.

Thanks a lot.

[Guest guest]

A good LLMD can help sort it out of you. I ordered my first test on my own in

2008 and it came back with several indeterminates which were suspicious. I kept

thinking something was attacking my body when I would go to the ER with my heart

pounding like crazy. I finally made an appt with an LLMD who discussed my

symptoms with me and looked at my Igenex test with the indeterminates. He felt

it was Lyme and said that I should take an antibiotic to try to get the

spirochete to surface and then I would repeat my Igenex test since it has been

three years. The test came positive this past June..... the IgM part of the

test was positive which indicates a current, active infection. I am now on a

antibiotic which will penetrate cell walls and themblood brain barrier. Lyme has

to be hit with two different drugs at the same time..one that targets inside

cell and one outside and that is where an experienced LLMD comes in. They have

the knowledge of which antibiotics will work in each situation. My LLMD charges

400 dollars. Also, drugs like Rebif and other drugs with steroid bases will make

Lyme worse because the spirochete will multiply with their use. I was fortunate

that the nuero I had when I first became I'll felt the CRAB drugs were a waste

of time and worse than any disease itself.

So far, I feel bad and fatigued, but it is to soon to tell and with the use of

antibiotics Lyme should get worse before it gets better...part of the long road.

Sent from my iPad

> Hi group,

> here I am, needing advice once again.

> First, I would like to emphasize, that I am also on the MS vs LYME boat and I

still don't know what is the core of my troubles.

> My last Western Blot came out border positive, but both neurologist and

infectologist claim I don't have LYME and that it is merely my over-responsive

immune system. Before I turn to ATB, I am trying colloidal rhodium, platine,

green foods and homeopatics.

>

> I have had a year full of " ms " troubles. Last troubles were in April, and it

concerned my eye. I had pain in my head behind the eye and narrowed vision, as

well as pain while looking straightly left or right. I had this perimeter check

up at oftalmologist, and she said all was okay. Then it got suddenly better.

>

> But now, since monday, I suffer more or less the same symptoms. Could it be

the beginning of optic neuritis or something like that? I dont want to go to the

eye doctor since she is going to tell me probably the same and not even to the

neurologist as the only thing they can do is solumedrol.

>

> Am still on Rebif for lack or other options.

>

> Any advice is greatly appreciated.

>

> Thanks a lot.

>

>

>

>