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>

> That's an awesome question!! I was wondering the same thing today as

> well. After you heal the gut do you just stay on probiotics forever

> or whats the deal?

Once we no longer needed probiotics, they did tend to cause headaches

here.

Dana

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> I would like to know better about the 3/4 days chelation protocol.

This is when you give the chelator for 3 days " on " , and then you let

the body rest for 4 days " off " .

Dana

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Not Amber, but it's Andy Cutler's low, frequent dose chelation. It's the

safest out there. You can buy chelators without doctor's prescription as

they are sold as supplements.

http://onibasu.com/wiki/Cutler_protocol

http://home.earthlink.net/~moriam/

There's a group devoted to Cutler's chelation protocol. They're mostly

adults chelating, but there are still a lot of parents w/ kids that they're

chelating also.

frequent-dose-chelation/

Both of his books Amalgam Illness and Hair Test Interpretation are very good

(noamalgam.com). More info on hair analysis:

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

We get ours done at Great Plains since we have BCBS. They send it to DDI.

On Tue, Jan 27, 2009 at 6:39 AM, shemsi999 <shemsi999@...> wrote:

> Hello Amber,

>

> I would like to know better about the 3/4 days chelation protocol.

>

> Thanks

>

> Céline

>

>

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Thanks Dana.

 

céline

From: danasview <danasview@...>

Subject: Re: probiotics

Date: Tuesday, January 27, 2009, 2:56 PM

> I would like to know better about the 3/4 days chelation protocol.

This is when you give the chelator for 3 days " on " , and then you let

the body rest for 4 days " off " .

Dana

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Dana

 

Can you explain what the 3 day chelator is? 

 

Our DAN wants use to test for metals via DSMA and the consent form I need to

sign has me concern.

 

I truly feel at such a lose with my daughter.  She has imporved some, but

continues to be nonverbal and CHEWS ON EVERYTHING! Regardless of what we try

(limiting carbs, treating for yeast, giving zinc). Ugh.

 

Thanks

From: danasview <danasview (DOT) com>

Subject: Re: probiotics

Date: Tuesday, January 27, 2009, 2:56 PM

> I would like to know better about the 3/4 days chelation protocol.

This is when you give the chelator for 3 days " on " , and then you let

the body rest for 4 days " off " .

Dana

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> Dana

> Can you explain what the 3 day chelator is?

A chelator that you give for 3 days, and then you let the body rest,

usually for 4 or 11 days. You can use ALA [which is what I used],

DMSA, or a few other chelators.

> Our DAN wants use to test for metals via DSMA and the consent form I

need to sign has me concern.

If you are concerned, ask more questions and do more research.

Is this a challenge test? If so, it probably means he wants you to

give high doses of DMSA, which I would not recommend.

Dana

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Yes, it is a challenge test.

From: danasview <danasview@...>

Subject: Re: probiotics

Date: Thursday, January 29, 2009, 10:37 AM

> Dana

> Can you explain what the 3 day chelator is?

A chelator that you give for 3 days, and then you let the body rest,

usually for 4 or 11 days. You can use ALA [which is what I used],

DMSA, or a few other chelators.

> Our DAN wants use to test for metals via DSMA and the consent form I

need to sign has me concern.

If you are concerned, ask more questions and do more research.

Is this a challenge test? If so, it probably means he wants you to

give high doses of DMSA, which I would not recommend.

Dana

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  • 3 months later...
Guest guest

I've done well on pro-biotics and digestive enzymes. Sometimes,like w meds, it means finding the one for you. Some manufacturers are more reliable than others. The symptoms you describe could be detox. Just a thoughtBarbaraSent from my Verizon Wireless BlackBerryFrom: "purplesprout" Date: Sun, 24 May 2009 00:46:11 -0000<low dose naltrexone >Subject: [low dose naltrexone] Probiotics I'm interested in hearing how immunocompromised folks or autoimmune disease sufferers have fared on probiotics. The literature on probiotics is good, but my personal experience has been (repeatedly) bad. I tend to get very irritable when I take probiotics and sometimes get sick with flu symptoms, even at small doses. That said, I seriously doubt if I have any healthy bacteria left in my system and would like to do something about that. Any thoughts? Thanks in advance.... P.S. I'm taking LDN in the mornings. Evening dosing just didn't work out for me.

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Ps plum paste also helps me to settle my digestive systemBarbaraSent from my Verizon Wireless BlackBerryFrom: "purplesprout" Date: Sun, 24 May 2009 00:46:11 -0000<low dose naltrexone >Subject: [low dose naltrexone] Probiotics I'm interested in hearing how immunocompromised folks or autoimmune disease sufferers have fared on probiotics. The literature on probiotics is good, but my personal experience has been (repeatedly) bad. I tend to get very irritable when I take probiotics and sometimes get sick with flu symptoms, even at small doses. That said, I seriously doubt if I have any healthy bacteria left in my system and would like to do something about that. Any thoughts? Thanks in advance.... P.S. I'm taking LDN in the mornings. Evening dosing just didn't work out for me.

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Geeez -- I've been taking probiotics for years now...and I've not experienced

any problems. Perhaps I don't take as high a dose as others that are having

problems...???...I usually just take 1 or 2 capsules and I do take breaks from

taking ANY supplements so maybe that's the difference. ...dunno...??

Also...I like to switch out the brands of probiotics I take so that I get

different strains. I'll take one bottle of a certain brand...then when finished

with that one I'll switch to another.

I'm sorry to hear that some of you have had problems...

Best wishes,

Jann

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I too am leary of Probiotics - most literature suggests that PB are very beneficial -

But since my daughter has eliminated (2 plus years) all PB she has done much better. So now I feel that PB are not necessarily good and everyone should be careful when supplementing with same.

In a message dated 5/23/2009 11:34:44 P.M. Eastern Daylight Time, duchonb@... writes:

Ps plum paste also helps me to settle my digestive systemBarbara Sent from my Verizon Wireless BlackBerry

From: "purplesprout" Date: Sun, 24 May 2009 00:46:11 -0000<low dose naltrexone >Subject: [low dose naltrexone] Probiotics

I'm interested in hearing how immunocompromised folks or autoimmune disease sufferers have fared on probiotics. The literature on probiotics is good, but my personal experience has been (repeatedly) bad. I tend to get very irritable when I take probiotics and sometimes get sick with flu symptoms, even at small doses. That said, I seriously doubt if I have any healthy bacteria left in my system and would like to do something about that. Any thoughts? Thanks in advance....P.S. I'm taking LDN in the mornings. Evening dosing just didn't work out for me.

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

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Pharmax brand has worked really well for me but my mom can only take pearls.

Some people have a hard time with strains of probiotics while my problem has

always been what the bacteria is cultivated in. I'm really allergic to dairy,

yeast, corn, soy, gluten, etc. so it's hard to find a brand that guarantees to

be free of traces of dairy, gluten, or soy. Pharmax seems to be free of all of

these things, and I do well on the high concentrate. You may also want to

consider taking oil of oregano (or Biotics Research A.D.P. emulsified Oregano

seems to be doing the trick) and Pharmax colon guard first (garlic and cinnamon

are the predominant ingredients). Both of these things may help kill off some

of the Candida first - and that may make taking probiotics a bit easier.

Although, if you're experiencing die off symptoms with the probiotics (and

that's what it definitely sounds like), then you're probably going to have the

same problem with those products. It would at least be a good way to see if

you're having problems with the probiotics or if you just need to buckle down

and deal with the die off to feel better in the long run. I took Nystatin to

deal with an overgrowth and was miserable for about a month and a half - or more

- but now I feel much better on the LDN and have only had one minor lupus flare

since dealing with the candida. I've had to go on antibiotics since and am on

the emulsified oregano and colon guard in addition to probiotics. Dealing with

the die off even though I was sick from it so long was totally worth it IMHO.

Cami

Systemic Lupus Erythematosus

LDN 1.5 years

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I'm not at all leary of probiotics. They've worked wonders for me. But you have to use the strains you need and a good manufacturerBarbaraSent from my Verizon Wireless BlackBerryFrom: mdsport85@...Date: Sun, 24 May 2009 09:52:19 EDT<low dose naltrexone >Subject: Re: [low dose naltrexone] Probiotics I too am leary of Probiotics - most literature suggests that PB are very beneficial - But since my daughter has eliminated (2 plus years) all PB she has done much better. So now I feel that PB are not necessarily good and everyone should be careful when supplementing with same. In a message dated 5/23/2009 11:34:44 P.M. Eastern Daylight Time, duchonbaol writes: Ps plum paste also helps me to settle my digestive systemBarbara Sent from my Verizon Wireless BlackBerry From: "purplesprout" Date: Sun, 24 May 2009 00:46:11 -0000<low dose naltrexone >Subject: [low dose naltrexone] Probiotics I'm interested in hearing how immunocompromised folks or autoimmune disease sufferers have fared on probiotics. The literature on probiotics is good, but my personal experience has been (repeatedly) bad. I tend to get very irritable when I take probiotics and sometimes get sick with flu symptoms, even at small doses. That said, I seriously doubt if I have any healthy bacteria left in my system and would like to do something about that. Any thoughts? Thanks in advance....P.S. I'm taking LDN in the mornings. Evening dosing just didn't work out for me. An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

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  • 4 weeks later...
Guest guest

Hi ,

First, if balancing yeast is your objective, have you considered trying a

different route and using enzymes instead of medications? Many people have found

a strong enzyme with cellulase and protease along with a probiotic can balance

the yeast overgrowth. Either way though, when looking for a good probiotic

always look for one that guarantees the potency " at time of consumption " . A lot

of manufacturers will say they " guarantee the potency at time of manufacture "

which tells us nothing because who knows what we're taking then by the time we

consume it, right? By knowing what we're taking at the time of consumption we

can expect to consume whatever the label says. Also too I always try to go for

enteric coated, this way it survives the stomach acid environment and makes it's

way to the intestinal tract where we want it. The probiotic helps of course

because if you do give him an anti-fungal that's going to kill all bacteria,

good and bad. But the probiotic will build up the " good " bacteria back into his

system.

What is it that you really are looking to accomplish though for your son? For

any children with autism, I recommend researching into www.enzymestuff.com, it

has a ton of information about this and where to start and such. Check it out, I

think you'd appreciate it. I suggest following what it says there, starting " low

and slow " with Lacto (Enzymedica product) with meals and then Virastop in

between meals therapeutically for your son. Starting low and slow gives his body

time to tolerate the enzymes and adapt to them.

I hope this helps you guys out. :) Feel free to ask any other questions. I wish

you guys the best!

Talyna

Enzymedica Education Dept.

www.AGRT.org

www.enzymedica.com

>

> two part question What brand/type of probiotic would you think is best for a

boy who is 6 and has autism? And do you think that anti fungal and probiotics

would be a good place to start with and if so what would be your next step? and

if no where would you start?

>

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Thank you Talyna what brand of prob do you recommend?

> >

> > two part question What brand/type of probiotic would you think is best for a

boy who is 6 and has autism? And do you think that anti fungal and probiotics

would be a good place to start with and if so what would be your next step? and

if no where would you start?

> >

>

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Hi Talyna,

I am also looking for a good probiotic. I am interested in the information

you have regarding Enzymedica's Pro-Bio. Also, what is your thought on

Primal Defense or Primal Defense Ultra?

On a somewhat related question, I supposedly have overgrowth of S.

cerevisiae and kloeckera, yet S. cerevisiae is sold in a supplement to help

with yeast overgrowth. I am very confused right now.

Thanks,

a

From:

[mailto: ] On Behalf Of Alessandra

Sent: Thursday, June 18, 2009 10:08 AM

Subject: Re: probiotics

Hi ,

I'd recommend Pro-Bio from Enzymedica. I could send you samples if you want

to email me your info. Reason being because of it's unique bacteria strains.

This is a bunch of complicated stuff lol but it's important as far as

choosing a good probiotic goes I think. A lot of companies use either 1

strain or 20 strains, Lactobacillus acidophilus and L. bifidus, are

supported by a ton of research and have been used for a longtime, they're

the most common I'd say.

While I do agree these 2 strains are greatly beneficial there's other

strains that ProBio contains that I feel are just as important. There's tons

of studies and info I have on them if you want to get a little more complex

and deeper info. Normally it's something people don't pay much attention to.

It's kind of difficult understanding all of the bacteria and strain stuff.

:) And like I said, they guarantee the potency at the time of consumption.

Let me know if you want me to send ya out some samples. It'd be no problem,

hope this helps!

Talyna

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My son can not tolerate Pro-Bio from Enzymedica. It has taken me several months

and stopping everything to figure out what was causing his constipation issues.

I started backwards, probiotics first and BINGO! So we are back on all Kirkman

Lab vit/min and doing Gold Digest enzymes.

Any ideas why the Pro-Bio would cause constipation. I tried increasing vit c

and mag but didn't do a thing. This is a nt 6.8 with severe food allergies that

was having impaction, couldn't go, leakage, accidents and then some times

diarrhea down the legs when he went. He's totally find now and not on any

probiotics.

Any recommendations please, anyone?

Thanks in advance.

Tammy

PS Not doing a yeast protocol. Behavior isn't an issue, great kid. But would

like to add cellulase with my next order and try that.

Re: probiotics

Hi ,

I'd recommend Pro-Bio from Enzymedica. I could send you samples if you want to

email me your info. Reason being because of it's unique bacteria strains. This

is a bunch of complicated stuff lol but it's important as far as choosing a good

probiotic goes I think. A lot of companies use either 1 strain or 20 strains,

Lactobacillus acidophilus and L. bifidus, are supported by a ton of research and

have been used for a longtime, they're the most common I'd say.

While I do agree these 2 strains are greatly beneficial there's other strains

that ProBio contains that I feel are just as important. There's tons of studies

and info I have on them if you want to get a little more complex and deeper

info. Normally it's something people don't pay much attention to. It's kind of

difficult understanding all of the bacteria and strain stuff. :) And like I

said, they guarantee the potency at the time of consumption. Let me know if you

want me to send ya out some samples. It'd be no problem, hope this helps!

Talyna

> > >

> > > two part question What brand/type of probiotic would you think is best

for a boy who is 6 and has autism? And do you think that anti fungal and

probiotics would be a good place to start with and if so what would be your next

step? and if no where would you start?

> > >

> >

>

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Hi Tammy,

I'm sorry that happened to your son, I'm sure that was frustrating! Most likely

there is some kind of gut issue. It would be rare but maybe the ProBio was to

strong for him. With that type of reaction we would usually recommend decreasing

the dosage to 1/2 or even 1/3 of the capsule. It may have been too much for his

body to handle and too quickly at that. I often recommend the " low and slow

dosage " so our little ones can build up their bodies to the product. Normally

I'd say that for enzymes but the same would go for the probiotic.

I hope this helps... I'd be nervous as I'm sure you are to ever introduce

probiotics to him again but if you do, try giving him a really small dosage,

even 1/3 of the capsule. That's still better than nothing, then I'd wait a few

days and increase it.

Talyna

Enzymedica Education Dept.

> > > >

> > > > two part question What brand/type of probiotic would you think is best

for a boy who is 6 and has autism? And do you think that anti fungal and

probiotics would be a good place to start with and if so what would be your next

step? and if no where would you start?

> > > >

> > >

> >

>

>

>

>

>

>

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Hi Tammy,

For me personally die-off manifests itself in constipation. I have taken a

week's worth of probiotics all at once and was horribly constipated the next

day.

a

From:

[mailto: ] On Behalf Of Tammy Kuhn

Sent: Thursday, June 18, 2009 10:19 AM

Subject: Re: Re: probiotics

My son can not tolerate Pro-Bio from Enzymedica. It has taken me several

months and stopping everything to figure out what was causing his

constipation issues. I started backwards, probiotics first and BINGO! So we

are back on all Kirkman Lab vit/min and doing Gold Digest enzymes.

Any ideas why the Pro-Bio would cause constipation. I tried increasing vit c

and mag but didn't do a thing. This is a nt 6.8 with severe food allergies

that was having impaction, couldn't go, leakage, accidents and then some

times diarrhea down the legs when he went. He's totally find now and not on

any probiotics.

Any recommendations please, anyone?

Thanks in advance.

Tammy

PS Not doing a yeast protocol. Behavior isn't an issue, great kid. But would

like to add cellulase with my next order and try that.

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>>He's totally find now and not on any probiotics.

> Any recommendations please, anyone?

My son did not tolerate any probiotics. I used biotin with much success.

Dana

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Hi,

I was wondering how biotin helps?

Thank you,

a

From:

[mailto: ] On Behalf Of danasview

Sent: Friday, June 19, 2009 8:45 AM

Subject: Re: probiotics

>>He's totally find now and not on any probiotics.

> Any recommendations please, anyone?

My son did not tolerate any probiotics. I used biotin with much success.

Dana

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Guest guest

Hi a,

I have never personally heard of any bad reviews with Primal Defense Ultra.

Although I always recommend to take a probiotic that can guarantee the potency

at time of consumption. Primal Defense can guarantee the potency at time of

manufacture but I'd rather know what I'm taking, when I take it. Make sense? :)

I'm not familiar enough with UltraZorbe to know what exactly what means but

although they have " UltraZorbe™ " capsules I'd prefer enteric-coated capsules to

make sure to bypass the acidic environment in the stomach. But everyone is

different, I'm sure everyone has to try out their own preference to see what

they like ya know.

HTH!!! :)

Talyna

Enzymedica Education Dept.

www.AGRT.org

www.enzymedica.com

>

> Hi Talyna,

>

>

>

> I am also looking for a good probiotic. I am interested in the information

> you have regarding Enzymedica's Pro-Bio. Also, what is your thought on

> Primal Defense or Primal Defense Ultra?

>

>

>

> On a somewhat related question, I supposedly have overgrowth of S.

> cerevisiae and kloeckera, yet S. cerevisiae is sold in a supplement to help

> with yeast overgrowth. I am very confused right now.

>

>

>

> Thanks,

>

> a

>

>

>

> From:

> [mailto: ] On Behalf Of Alessandra

> Sent: Thursday, June 18, 2009 10:08 AM

>

> Subject: Re: probiotics

>

>

>

>

>

>

>

>

> Hi ,

> I'd recommend Pro-Bio from Enzymedica. I could send you samples if you want

> to email me your info. Reason being because of it's unique bacteria strains.

> This is a bunch of complicated stuff lol but it's important as far as

> choosing a good probiotic goes I think. A lot of companies use either 1

> strain or 20 strains, Lactobacillus acidophilus and L. bifidus, are

> supported by a ton of research and have been used for a longtime, they're

> the most common I'd say.

>

> While I do agree these 2 strains are greatly beneficial there's other

> strains that ProBio contains that I feel are just as important. There's tons

> of studies and info I have on them if you want to get a little more complex

> and deeper info. Normally it's something people don't pay much attention to.

> It's kind of difficult understanding all of the bacteria and strain stuff.

> :) And like I said, they guarantee the potency at the time of consumption.

> Let me know if you want me to send ya out some samples. It'd be no problem,

> hope this helps!

>

> Talyna

>

>

>

>

>

>

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Guest guest

> I was wondering how biotin helps?

The good bacteria in your gut [probiotics] manufacture biotin. The biotin is

what the body uses to control yeast. So if you take biotin as a supplement, you

don't have to wait for the bacteria to manufacture it, and you can take much

more than the bacteria could ever manufacture in a short space of time. My son

had severe biotin deficiency, and correcting the deficiency was one of the

things his body required so it could control yeast on its own.

Dana

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  • 2 months later...

I take Stabilized Acidophilus by NOW Foods. They don't require

refrigeration. Recent studies say probiotics should be taken after a meal,

but you could try on an empty stomach and after meals.

There's Jarrow brand that's supposed to be good, and it's enteric coated.

Called Jarro-dophilus EPS. It's strep-free.

Culturelle is another good one, but some people have problems with it.

They can all be found at iherb.com.

On Fri, Sep 18, 2009 at 3:04 AM, osamuyi05 <osamuyi05@...> wrote:

> I have been searching for a Probiotic product that will survive the stages

> of Storage, Shipping & Shelving before it gets to the G.I of my two son's (8

> & 6yrs old) with Autism.

> Your feed-backs will be highly appreciated.

>

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