Re: Re: CCSVI

[Guest guest]

,

I wrote the previous email to Janet to apologize to her for any fears I may

have put in her mind in regard to the article that I posted that claimed

" restonsis will happen " in everyone. I did not write it to be slammed by you

and told I am an angry person, etc.

I admitted in my post that I am a worrier, but that does not mean it is OK for

you to go on and say all these hurtful things , telling me I am an angry person

and instructing me where to put my anger! You really have a lot of issues and as

usual be so self-righteous and act as though your truth is the only truth. Once

again you have overstepped your bounds and YOU are the one who is angry and

self-righteous and thinks you are correct about everything. I look at things

with a critical eye when I make a decision but you go in on some cloud 9 style.

We are just different. Many people have writtten into this group to say that

they had CCSVI and are no better at all. Only 3 people have written about

positive experiences in these group, while about 8 said they had zero

improvement. Those odds are not great. They just aren't.

To your delight I am letting you know I am now going to leave the group, as I

cannot continue to subject myself to your non-sensical, high-and-mighty, and

ridiculously stupid posts.

Alan

________________________________

To: MSCured <mscured >

Sent: Sat, April 9, 2011 9:17:54 AM

Subject: RE: Re: CCSVI

I understand the fear too - I got on the table with the same 'fear' that

everyone else has before something new like this. We'd be silly if we didn't

have that fear, but we do have to remember that if we REALLY believe in

something and if we've done all the research and TRULY believe that it makes

sense, then it makes sense to just do it without all the worrying about it or

rehashing the fears over and over, building it up to be some sort of 'boogeyman'

in our heads.

I knew there was something wrong with my veins - call it gut-feeling if you

like, but I too was fearful that my scans wouldn't sow anything.

I chose to go with the Esntial Health Clinic because of a number of things, but

mostly because they were local and just as importantly was the equipment they

were using. They use what Zamboni & his team use - when someone is told that

they don't have any stenosis, I always tell them to go somewhere else where they

REALLY know what they're doing.

There are a lot of people who haven't known what they were doing when testing

people for CCSVI and have wrongly told people that they didn't have it.

Thankully those people have gone elsewhere and have been dxd with the problem!

I believe that all of this takes having some guts and I think that all of we

who've had our files marked with those dreaded letters have to have more

intestinal fortitude than the 'healthy' do.

I love to hear of everyone's successes and progress - I know what it's like to

have what some less knowledgeable see as 'limited' or 'minimal' success with

CCSVI. It's not limited - it just takes hard work. I work out and ride for the

majority of my days now. I'm rebuilding my life as I always knew I'd have to.

CCSVI gives us the chance to work hard to get back what we probably took for

granted beforehand (as do most people anyway). When we go to get the scans, we

should make sure that where we're going is a place that can give us a dx we can

believe in.

That's my advice in regards to what you're saying about fear of not 'having it'.

Most of us do - the EHC's findings thus far have shown over 90% from what I've

seen.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alpdesigns1@...

Date: Sat, 9 Apr 2011 12:09:26 +0000

Subject: Re: CCSVI

I can understand the fear. It isn't just about the health risk issue, it's about

putting all of your eggs one basket and dropping the basket. If CCSVI doesn't

have the desired effect, what's left? This could leave a hopeless feeling. But

in truth, it isn't the only solution. It is a good one for some people and a not

for others. The fear is finding out that you might not be one of the people who

get any benefit from it. Life is full of risk.