Re: CCSVI

April 7, 2011

Alan get eoin's the pursuit of happy hips dvd tape and you will feel more

relaxed.Â It helps take away the stress.Â Its my favorite yoga tape.Â He

focuses

on healing thoughts and being happy.Â

Don't focus on every little symptom.Â Its not worth it.Â Try to relax and let

things work.Â

________________________________

To: mscured

Sent: Thu, April 7, 2011 8:40:27 PM

Subject: CCSVI

Â

Janet,

I'm sorry-I didn't mean to worry you with that article.

I think made an excellent point that article is just one " expert

opinion " and this procedure is very new and there are many expert and non-expert

opinions out there that difffer..... As an analogy, look at something like all

the different " expert opinions " on the " right " way to chelate heavy metals. For

every expert who will say chlorella is great, there is another " expert " who will

say it is harmful. Same thing goes for DMSA or DMPS or Zeolites or MMS, etc,

etc. The experts completely disagree. Some people follow Cutler, or Mercola, or

Klinghardt's chelation suggestions with great conviction--yet all of these

protocols are completely different from each other, while others feel strongly

that a particular diet will provide or has provided chelation,etc.....So hence,

again, what said, I agree, this is just one person's opinion regarding

CCSVI, and really doesn't mean much. Besides you do so much research in blood

thinning supplements that I don't think you have anything to worry about in that

regard.

I think because for myself personally I am fearful of CCSVI and scheduled to

have it next month that I am looking for reasons not to proceed, so I find them.

Hence, I will likely cancel my appt as it seems in my head and heart I am not

ready for it. Ss we all know all MS cases are different. In my case, my mobility

is not affected at all but I have many other difficult symptoms which do

interfere very much with my life, but I am always afraid of doing something that

could take away my mobility. Whereas I think for someone who already has

mobility issues, such as being in a wheelchair or walking is getting

progressively worse then I think moving forward with the CCSVI would be more of

a no-brainer.

I hope that takes away any potential worry I might have planted with the article

I posted. That wasn't my intention. It is just I am not ready in my head/heart

for CCSVI. I was hoping someone could contradict the article, which did.

As it is I am worrying about this Prokarin thing I am trying at the moment, but

we will see. When I feel the slightest exta symptom I am ready to stop using the

patch. That is just the way I am wired--a worrier, perhaps

contributes/contributed to my getting MS in the first place.

April 9, 2011

I'm glad we have some options. If one doesn't work there is another way. There

are people who have recovered without either. LDN did not relieve my symptoms

and I have been getting along well without it.

>

> The precise reason why I have never gone for LDN. I want a safety net.

> I thought the same of CCSVI and then thought hang on, that is false logic, if

something were to help me, what not try it.

> Janet

>

> To: mscured

> From: alpdesigns1@...

> If CCSVI doesn't have the desired effect, what's left?

>

April 9, 2011

As I tried to describe, apparently unsuccessfully, is that I have full mobility

and that has not changed in 5 years. I am not willing to risk my mobility if I

need to get repeat CCSVIs every year and eventually my veins collapse. Everyone

including me is free to disagree. It is my choice and many have healed with

CCSVI and I plan to be one of those!

Just because I was willing to admit I am a worrier does not give you or

a right to degrade me.

You will all be happy to know I am leaving this group.

Goodbye

________________________________

To: mscured

Sent: Sat, April 9, 2011 8:09:26 AM

Subject: Re: CCSVI

I can understand the fear. It isn't just about the health risk issue, it's

about putting all of your eggs one basket and dropping the basket. If CCSVI

doesn't have the desired effect, what's left? This could leave a hopeless

feeling. But in truth, it isn't the only solution. It is a good one for some

people and a not for others. The fear is finding out that you might not be one

of the people who get any benefit from it. Life is full of risk.

> Alan, how can you be this scared? On its own, it will NOT end your life or

make

>it worse - remember that with all your negativity, stress, fear and ngativity,

>you will make your situation get worse very rapidly!

>

April 9, 2011

________________________________

To: MSCured <mscured >

Sent: Sat, April 9, 2011 7:05:18 AM

Subject: RE: CCSVI

.....

So, now that you see your limitations and their link to having ot you to 'MS',

maybe you should remember that your hypochondria-style fears of 'worsening

symptoms' will only lead you down the weak path of negativity and dreary

thoughts and words to a far worse place. You have so much anger in you - harness

that and turn it into drive and passion. Use it to push yourself and to fix this

problem that you recognise yourself with all your fear based thoughts and

attitudes.

So if what your wrote above is true of me ---that fears lead to MS and

anger leads to MS, I guess the same can be said of you, since you have MS also.

Maybe you should go to Preacher's School since you seem to love preaching and

you have admitted nobody in your family believes anything you say. The preaching

school might help you be better at expressing yourself and obviously preaching

is your passion where you can put YOUR anger.

August 17, 2011

If you are on Facebook, there are lots of CCSVI groups. Joan Beal is the name

who maybe knows the most, or has certainly been around it the longest.ThisisMS

was high in its coverage but I left when it was getting infiltrated by naysayer

neuros so don't know if it is still the same. While on CCSVI treatment - an

update to the group. I am at 10 months since treatment and still doing well

with all my initial benefits still in place. I am practising walking daily in

the pool but still have no balance so am still in my wheelchair. Regarding

restenosis, I believe if you eat a healthy diet, take any supplements that help

blood flow/circulation, drink plenty of water and do regular exercise, you are

doing what you can to avoid it. Janet

To: mscured

From: ghs@...

Date: Tue, 16 Aug 2011 20:29:59 +0000

Subject: Re: CCSVI and Subdural Hematoma

Hi All,

I'm a newbie here, looking for information for a friend in Germany. In

particular, I would like to learn as much as possible about CCSVI. I've

visited several websites, but before I can recommend considering CCSVI, I need

to read at least a couple technical research articles published in reputable

medical journals that describe the basis of the theory and the evidence that

supports it.

Can anyone point me to technical information of this sort?

Thanks.

Glenn.

.

August 17, 2011

Thanks Janet,

I'll check these out. I'd like to chat with some of the naysayers, too. I

want to hear about this from all sides.

Glenn.

>

> If you are on Facebook, there are lots of CCSVI groups. Joan Beal is the name