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Wendi,

Thanks for your input. I would be interested in learning more about

Hib being rare in breastfed babies, if you have more information.

Thanks,

---Jenabe wrote:

>

> ,

>

> With both kids we waited until 6 months and then only get them every

3-6 months until they are done. We also chose to only get DPaT, and

Polio. We didn't get the Hib because it is very rare in breastfed

babies. You of course have to make your own decisions but remember

you are in charge and you can create a schedule that works for you if

you choose to immunize. I went through three pediatricians before I

stopped getting lectured but I finally found someone supportive. Good

luck it was one of the hardest decision we had to make.

>

> Wendi

>

> vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

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Wendi,

Thanks for your input. I would be interested in learning more about

Hib being rare in breastfed babies, if you have more information.

Thanks,

---Jenabe wrote:

>

> ,

>

> With both kids we waited until 6 months and then only get them every

3-6 months until they are done. We also chose to only get DPaT, and

Polio. We didn't get the Hib because it is very rare in breastfed

babies. You of course have to make your own decisions but remember

you are in charge and you can create a schedule that works for you if

you choose to immunize. I went through three pediatricians before I

stopped getting lectured but I finally found someone supportive. Good

luck it was one of the hardest decision we had to make.

>

> Wendi

>

> vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

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Guest guest

Wendi,

Thanks for your input. I would be interested in learning more about

Hib being rare in breastfed babies, if you have more information.

Thanks,

---Jenabe wrote:

>

> ,

>

> With both kids we waited until 6 months and then only get them every

3-6 months until they are done. We also chose to only get DPaT, and

Polio. We didn't get the Hib because it is very rare in breastfed

babies. You of course have to make your own decisions but remember

you are in charge and you can create a schedule that works for you if

you choose to immunize. I went through three pediatricians before I

stopped getting lectured but I finally found someone supportive. Good

luck it was one of the hardest decision we had to make.

>

> Wendi

>

> vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

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Guest guest

,

It has been a long time since I did the research but I think that fact was in

the book " The Immunization Decision " Also from working in hospitals I have

never seen a case in a breastfed baby. They were all formula fed or were old

enough to have been weaned. I have to say working in pediatrics, most of the

kids in there were on formula. The only sick bf babies were less than a week

old and thus probably had something from in utero. Very, very rarely did I take

care of a baby with a Resp. problem who was breastfed. Just my experience.

Wendi

vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

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Guest guest

,

It has been a long time since I did the research but I think that fact was in

the book " The Immunization Decision " Also from working in hospitals I have

never seen a case in a breastfed baby. They were all formula fed or were old

enough to have been weaned. I have to say working in pediatrics, most of the

kids in there were on formula. The only sick bf babies were less than a week

old and thus probably had something from in utero. Very, very rarely did I take

care of a baby with a Resp. problem who was breastfed. Just my experience.

Wendi

vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

------------------------------------------------------------------------

Start a new hobby. Meet a new friend.

http://www.onelist.com

Onelist: The leading provider of free email list services

------------------------------------------------------------------------

Breastfeeding is Best!!

http://www.mariaann.com/breastfeeding.htm

If you like this list also check out

http://www.onelist.com/subscribe.cgi/weanedbuddies

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Guest guest

,

It has been a long time since I did the research but I think that fact was in

the book " The Immunization Decision " Also from working in hospitals I have

never seen a case in a breastfed baby. They were all formula fed or were old

enough to have been weaned. I have to say working in pediatrics, most of the

kids in there were on formula. The only sick bf babies were less than a week

old and thus probably had something from in utero. Very, very rarely did I take

care of a baby with a Resp. problem who was breastfed. Just my experience.

Wendi

vaccines - vent

>

>

>

>

> Bart has his 2 month well baby appt next week and I am *stressing*

> because that's when he's supposed to get his first set of shots. My

> gut feeling is that vaccines are unhealthy - that the side effects can

> be serious and that vaccines ultimately can screw up the immune

> system. I also don't understand why they have to give them so many at

> once. That doesn't seem right for such an immature immune system.

>

> It is such a tough decision whether to let him get them or not. In

> fact so far, this is the toughest decsion we have had to make

> concerning Bart. I would die if anything happened to him because of

> the shots, but I would also die if anything happened to him because of

> a disease he got that may have been prevented by the shots. (argh!)

>

> I know that no one can make this decision for us - it is up to me and

> my DH. I just needed to vent a little.

> Based on the research we have done, we are going to decline the Hep B

> (we didn't let him have it at birth) and delay most of the other shots

> until his immune system is more mature. The only one we might

> (probably?) will get is the HIB since that strikes mainly infants and

> seems to have the least amount of side effects.

>

> Anyway, *thanks* for letting me vent - I really hate having to make

> this decision. DH and I have been doing a lot of research, but I wish

> the issue were more clearcut.

>

>

> mom to Bart (1/22/99)

------------------------------------------------------------------------

Start a new hobby. Meet a new friend.

http://www.onelist.com

Onelist: The leading provider of free email list services

------------------------------------------------------------------------

Breastfeeding is Best!!

http://www.mariaann.com/breastfeeding.htm

If you like this list also check out

http://www.onelist.com/subscribe.cgi/weanedbuddies

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Guest guest

,

If you are unsure then definitely wait. I can attest it doesn't hurt them, but

you wouldn't want to regret getting them if you weren't sure. I hope your

decision comes quickly as I know how hard it can be. We never want to put our

babies in danger.

Wendi

Re: vaccines

Wendi - Thanks so much for the information. We haven't decided yet

what we are going to ultimately do, but we probably won't have any at

his 2 month appt. If we decide to get any vaccines we can always

delay them like you have done. Seems wise to me.

:)

---Jenabe wrote:

>

> ,

>

> It has been a long time since I did the research but I think that

fact was in the book " The Immunization Decision " Also from working in

hospitals I have never seen a case in a breastfed baby. They were all

formula fed or were old enough to have been weaned. I have to say

working in pediatrics, most of the kids in there were on formula. The

only sick bf babies were less than a week old and thus probably had

something from in utero. Very, very rarely did I take care of a baby

with a Resp. problem who was breastfed. Just my experience.

>

> Wendi

>

------------------------------------------------------------------------

We have a new web site!

http://www.onelist.com

Onelist: The leading provider of free email community services

------------------------------------------------------------------------

Breastfeeding is Best!!

http://www.mariaann.com/breastfeeding.htm

If you like this list also check out

http://www.onelist.com/subscribe.cgi/weanedbuddies

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Guest guest

,

If you are unsure then definitely wait. I can attest it doesn't hurt them, but

you wouldn't want to regret getting them if you weren't sure. I hope your

decision comes quickly as I know how hard it can be. We never want to put our

babies in danger.

Wendi

Re: vaccines

Wendi - Thanks so much for the information. We haven't decided yet

what we are going to ultimately do, but we probably won't have any at

his 2 month appt. If we decide to get any vaccines we can always

delay them like you have done. Seems wise to me.

:)

---Jenabe wrote:

>

> ,

>

> It has been a long time since I did the research but I think that

fact was in the book " The Immunization Decision " Also from working in

hospitals I have never seen a case in a breastfed baby. They were all

formula fed or were old enough to have been weaned. I have to say

working in pediatrics, most of the kids in there were on formula. The

only sick bf babies were less than a week old and thus probably had

something from in utero. Very, very rarely did I take care of a baby

with a Resp. problem who was breastfed. Just my experience.

>

> Wendi

>

------------------------------------------------------------------------

We have a new web site!

http://www.onelist.com

Onelist: The leading provider of free email community services

------------------------------------------------------------------------

Breastfeeding is Best!!

http://www.mariaann.com/breastfeeding.htm

If you like this list also check out

http://www.onelist.com/subscribe.cgi/weanedbuddies

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Guest guest

,

If you are unsure then definitely wait. I can attest it doesn't hurt them, but

you wouldn't want to regret getting them if you weren't sure. I hope your

decision comes quickly as I know how hard it can be. We never want to put our

babies in danger.

Wendi

Re: vaccines

Wendi - Thanks so much for the information. We haven't decided yet

what we are going to ultimately do, but we probably won't have any at

his 2 month appt. If we decide to get any vaccines we can always

delay them like you have done. Seems wise to me.

:)

---Jenabe wrote:

>

> ,

>

> It has been a long time since I did the research but I think that

fact was in the book " The Immunization Decision " Also from working in

hospitals I have never seen a case in a breastfed baby. They were all

formula fed or were old enough to have been weaned. I have to say

working in pediatrics, most of the kids in there were on formula. The

only sick bf babies were less than a week old and thus probably had

something from in utero. Very, very rarely did I take care of a baby

with a Resp. problem who was breastfed. Just my experience.

>

> Wendi

>

------------------------------------------------------------------------

We have a new web site!

http://www.onelist.com

Onelist: The leading provider of free email community services

------------------------------------------------------------------------

Breastfeeding is Best!!

http://www.mariaann.com/breastfeeding.htm

If you like this list also check out

http://www.onelist.com/subscribe.cgi/weanedbuddies

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  • 1 year later...

If your child won't need the shots, based on a school's or care center's

requirements, I would think seriously about not getting them. However,

does anyone have any experience with not getting the shots for their

child, but then having to get them at an older age (or maybe you can get

a waiver from a doctor) because of some school or other organizations

requirements?

Take care,

RH

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If your child won't need the shots, based on a school's or care center's

requirements, I would think seriously about not getting them. However,

does anyone have any experience with not getting the shots for their

child, but then having to get them at an older age (or maybe you can get

a waiver from a doctor) because of some school or other organizations

requirements?

Take care,

RH

In California you can most certainly get a waiver... although, you

have to be determined and proactive. School officials will tell you that

you cannot go to school without immunizations, but that's just not the

law. You will have to get a doctor to sign the waiver , but I opted not

to get the hepatitis B shot for my non-impacted 12 year old based on his

sister's reactions to the DPT and so many pharmaceuticals, and got my pediatrician

to sign off on the waiver. If you have trouble, consult another physician

IF that is what you feel is best for your child. Good Luck, Sharon

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You can always get a medical waiver for schools etc. but I would also weigh

this in the value of getting them vs. not: what happens if they get the

disease you're immunizing against and what is the likely hood of getting it?

We gave Steph flu shots till she was about 5 or 6 and the doctor told us

then that she was strong and healthy and he'd rather she =not= take the flu

shot, but get the flu and begin to build her own immunity to it. Of course,

if your child has impaired immunity, that's different, and if that is the

case getting an immunization might not even work. But if a flu shot is

expected to work with your child, do you really want to risk the

complications of measles, chicken pox or some of the others (HIB, etc) and

what they can do...even to a healthy child. It's a complicated issue, even

with healthy kids.

ª¿ª

Kathy

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Kathy wrote:

> You can always get a medical waiver for schools etc. but I would also weigh

> this in the value of getting them vs. not: what happens if they get the

> disease you're immunizing against and what is the likely hood of getting it?

Our state has recently changed their policy on this. It used to be that any

parent could request a waiver

for immunizations and they would pretty much grant it. Now you have to make a

appeal to the State

Department of Health, and have a confirmation of your medical necessity from

your physician. They will

make a ruling and either grant the waiver or not. If they don't grant it, then

your child cannot return

to school until they are vaccinated, if they do grant it, then your child may

attend, although they will

not be allowed to attend school, if there is any outbreak of the specific

diseases that they are

vaccinating against.... In our case, that would be chicken pox, measles, mumps

or rubella.

As far as the flu shots go, we do those each year, as the risk for her, for

side effects from the shot is

far less than the risks from the flu. But she is immune compromised and has

some other complicating

issues.

Jeannine

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I refrained from the shots because of the negative information I had

regarding the effects on children with compromised immune systems or

seizures. My children have both. However, my oldest (3yr old) daughter was

diagnosed with Kawasaki's disease in August and stayed in the hospitol for 5

days. While there, we were bombarded (literally) with questions about why we

had not yet immunized. Every specialist who walked through the door was very

concerned about it. I told them about the seizure disorder and the immune

system being compromised but they still seemed to think that I was putting my

children at risk. I don't believe that I did. In fact, I believe that I did

the right thing by waiting. My 2 year old is autistic and never received a

vaccination until this year (after the diagnosis and after her sister was in

the hospital). We did decide to vaccinate after the last hospitalization,

but, I am considering refraining until we get the titers test from an

immunologist in December. My advice to you is proceed with caution, trust

your instincts, stand up for what you believe in and don't do anything until

you feel comfortable. Look at the facts and weigh the pros and cons

according to your child's special situation. Don't compare him/her to other

(healthy) children. As far as waivers go, I may have to get one pretty soon

if I want my daughter in preschool. It doesn't look like this doctor is

going to be helping me out on this one-he is all for immunizations regardless

of my childrens medical condition. i don't get it, but we are the parents

and we still have the right to refrain.

Jayne

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We have done the flu shots for myself for several years. Then when Leah came

along and we found out what we

were dealing with and she ended up in the hospital with the flu because she got

it from me, even though mine

was a light case, she needed to be in the hospital. That was when she was just

shy of a year. Now the whole

family gets the shot. And my understanding is that you can't get the flu from

the flu shot because it is a

dead virus or whatever. And if they are to get the flu, it wouldn't be as

strong of a case. Yes, you need to

weigh everything, but to have my child so sick, not for me.

mom to Leah 2 1/2

Jeannine and Curtis Sawyer wrote:

> Kathy wrote:

>

> > You can always get a medical waiver for schools etc. but I would also weigh

> > this in the value of getting them vs. not: what happens if they get the

> > disease you're immunizing against and what is the likely hood of getting it?

>

> Our state has recently changed their policy on this. It used to be that any

parent could request a waiver

> for immunizations and they would pretty much grant it. Now you have to make a

appeal to the State

> Department of Health, and have a confirmation of your medical necessity from

your physician. They will

> make a ruling and either grant the waiver or not. If they don't grant it,

then your child cannot return

> to school until they are vaccinated, if they do grant it, then your child may

attend, although they will

> not be allowed to attend school, if there is any outbreak of the specific

diseases that they are

> vaccinating against.... In our case, that would be chicken pox, measles,

mumps or rubella.

>

> As far as the flu shots go, we do those each year, as the risk for her, for

side effects from the shot is

> far less than the risks from the flu. But she is immune compromised and has

some other complicating

> issues.

>

> Jeannine

>

>

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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A little known fact is that you CAN refuse to get your child shots!. On the

back of that card they give you that says you have to provie you got your

child's shots is a liiiiitttttllllleeee tiny sentence that syas " I reserve

the right to not vaccinate my child based on religious, or personal reasons "

(something to that effect)...and you just sign on the dotted line.

Essentially, it just says that if there is an outbreak of something

contagious you would just keep your kid at home....DUH!

ruth

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Thanks Ruth!!! It's funny though, how I am so confident when it comes to

writing my feelings down, but when it comes to confronting my child's

pediatrician, I am such a whimp!!!!! Our next appointment is approaching

quickly, time to put on the armor again. Please pray for me!!!!

Jayne

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Jayne,

I assume you mean where do i get the paperwork that says you are exempt? it

is the paper they give you at school where you hvae to have the doctor's

office fill in the info on when your child had his/her shots. but if you

flip it over, there is that little statement on the back about religious

and/or personal beliefs. HOWEVER, a word of caution now because some of the

thread that i read yesterday seemed to indicate it might be more tricky these

days...my kids both go to private school (so i can stay with lexi all day) so

i'm not 100% positive about public school. anyone else out there have public

school knowledge??

ruth

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jayne,

i will absolutely keep you in my prayers! i know how overwhleming the whole

thing can be. we are truly blessed to have the world's BEST pediatrician.

he is the absolute antithesis of an HMO doctor. i am always prepared to wait

when i go to his office because i KNOW he is always running late. but the

reason why is that when it is YOUR turn, he stays with you until YOU decide

the appointment is over...i've been in there an hour sometimes just asking

questions. he just waits patiently, making sure everything is satisfied in

my mind and then he walks me out (can you imagine such a thing???) he is

truly amazing. also, he is more than willing to support my decision

regarding no shots and has even on more than one occasion asked for MY

opinion regarding what i want to do for my children's healthcare!

(sheesh...i was so stunned that a doctor might actually think i the lowly

mother might actually KNOW something! lol) nonetheless, i will continue to

pray for you as you gear up for battle...it is worth every second of it if

the outcome is positive!

keep fighting that fight!

ruth

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I know that everyone has their own thoughts on this and i respect that we

each have to make our own decisions. I would like to add though that for

those of you who do not permit immunizations for your child -make sure you

are making an informed decision. That means to really read what happens to

a child who has a bad case of chicken pox or measles, read how hepatitis

will affect some ones life, read about a child who has gotten meningitis

from HIB. These are serious potential repercussions if a child is not

immunized and these repercussions are ones that a child with mito would

be far less able to deal with than a " typical " child.

That's not to say that you won't come to the exact same decision. But just

make sure you really look at the risks and weight it with the benefits that

you see from not immunizing.

Having said that my own 8 yr old has not had his second MMR or his last

DTP, (he has had the DT- just not the pertusis). He regressed

significantly after both of these shots at 15 and 18 months

respectively. I am a pediatric nurses and i have seen the consequences

first hand of not receiving these immunizations. The consequences are

potentially fatal.

That is why my 3 yr old has had all his immunizations - even though he is

at risk. I have not seen any reason specific to him, to hold his

immunizations like i have for his brother. And i know my 3 yr old would

never survive chicken pox or measles. he is way too fragile. So be very

very careful about just withholding them without a tremendous amount of

thought.

please know that i am not insinuating that each of you has not put a lot of

thought into your decision already and i truly do not meant o be

condescending to any of you. But I feel it would be wrong not to point

out how VERY serious it can be for a child with a mitochondrial disease to

get chicken pox or the measles, etc. It's not the same as our healthy

children getting those diseases.

Anne

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In a message dated 10/22/2000 12:25:25 AM Eastern Daylight Time,

juhlmann@... writes:

<< That means to really read what happens to

a child who has a bad case of chicken pox or measles, read how hepatitis

will affect some ones life, read about a child who has gotten meningitis

from HIB. T >>

Anne:

Thanks for your input regarding this controversial issue.

Do you (or anyone else) know of any specific articles relating to hep and HIB

diseases regarding children who have those diseases due to not being

vaccinated?

Thanks.

Michele

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Anne,

I think that is a very important point that you make regarding informed

decisions. I have chosen not to immunize either of my children but I came to

this decision (after many months of agonizing) only following years of

working with children who were vaccine injured. Then when my own children

had bloodwork results that put them at risk, we decided not to go ahead. It

was definately a painful and frightening decision, but it is one I would make

again.

Thanks for pointing out this important bit of information. The better

informed we are the better able we are to parent our precious children.

ruth,

mom to mitch 5 1/2 and lexi 2 1/2

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