mito dx and rett dx, contact asap please

[Guest guest]

Anyone who has a child with a mitochondrial (via blood/urine work, or bio)

and rett syndrome diagnosis (with an mepc2 mutation) please contact me ASAP.

WE have have a tentative study going ....

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>From: stacimom@...

>To: Mitoegroups

>Subject: Re: Slurred speech & Mito strokes

>Date: Thu, Apr 6, 2000, 11:05 AM

>

> In a message dated 04/06/2000 5:33:44 AM Pacific Daylight Time,

> juhlmann@... writes:

>

>> But in Mito strokes it can be

>> anywhere from transient to permanent and in an article by Dr. Cohen from a

>> past UMDF newsletter, I believe he says that there is actually a continuum

>> that goes from migraine - to transient neuro effects - to permanent damage.

>> Anne

>

> That's true, you're absolutely right! That fact is one of the significant

> keys in Dr. Boles' determining Staci's birthmom, Ann has [previously

> undiagnosed] mito!

> She gets migraines, one of her maternal aunts had a stroke at age 45 and

> completely recovered from it...

>

> The info and closeness we share on this list is priceless!

>

> Let's see, how does the script go....

>

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>

> I love you guys!

> Hugz,

>

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