Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Yes, early on in MS I was in the 20s. Since I started taking 10,000iu per day for the past couple years I am able to maintain in the mid to high 50s and I have it checked regularly. The reference range used is 30-100 for normal on this 25(OH)D test. The sun did not raise my D3 levels. I needed the supplement. Apparently I would need to go up even higher than 10,000iu to get to the ideal range for PwMS, which I understand to be 75-100 nl/mg. ________________________________ To: mscured Sent: Tue, May 3, 2011 6:17:41 PM Subject: Re: Vitamin D level survey I am wondering how many people in here either know their vitamin d blood levels or not ? when I first got mine checked 6 years ago, I was at 14, now my last test was 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 this brings up a good point, doctors and labs like to interpret for you because normally if they give you numbers, the person will say is that bad or good, hence they now interpret rather than give you numbers. However, doctors know little about what levels really should be and go by if the lab says it is is ok. ie. lab may say 32+ is ok, but experts say 50 is minimum it should be. So make sure if they try to interpret to also get the numbers and then adjust your dose to get it at least above 50 (per Cannell and other experts) I started taking 3000IU after MS diagnosis because of things I read. A year later, blood tests determined I was still low in D. I went to 6000IU per day (3k in am, 3k in pm) and tested with normal D levels. All this was done with my GPs supervision. Unfortunately, no MS changes came after fixing that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 What is HH? AND.... My D level is always low. I am now up to 6000 IU's daily. I am someone's butterfly He is my teacher, my lover, my life Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 The supposed acceptable range according to my Vitamin D labs is 30-100. But my doc told me we were shooting for 60-70. (I am in the US) I tried for 2 years taking 5,000 mg per day and only got it up to 42. I have been taking 10,000 mg per day for over a year now, and finally my D3 score is 62. I'm still taking 10,000 as he'd like to see the count go to 70. I didn't have any improvements in my MS symptoms from this, however, but I still think it's worth doing--for general health if nothing else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 anybody have any issue with their doctor ordering a vitamin d test or a insurance paying for it ? You can bypass both of these and just order a test from home. blood test drawn from a local lab http://www.lef.org/Vitamins-Supplements/ItemLC081950/Vitamin-D-25-Hydroxy-Blood-\ Test.html or draw blood sample from finger at home http://www.zrtlab.com/vitamindcouncil/home-mainmenu-1.html?page=shop.browse & cate\ gory_id=1 Quote Link to comment Share on other sites More sharing options...
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