Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Long time no chat, guys. Here's one to scratch your collective heads over. The bazillion geneticists that we've met have long maintained that Kennedy's mito was either passed down maternally or was a result of defective gene's on both our parts. They have also insisted that my wife's brother should have no such chance of a problem with his kids. Well, looks like lightning might be striking. He and his wife recently delivered a seriously premature girl (28 weeks). She survived the early delivery and was doing quite well and up to 12 pounds at home. Then suddenly has started experiencing extremely similar conditions that Kennedy experienced at similar size and age from birth. Difficult feeding, blue moments, etc. She is now in ICU, intubated, and the vampires are maintaining low hope and suggesting they take her home for family time (the end). Here's the question. Does anyone out there have a child who has been diagnosed with mito of any flavor but has physical cardiology problems as well. Holes, malfunctioning valves, etc.? My bro-in-law hasn't thrown in the towel but he's getting a pretty nasty gut-shot here. We all thought he had no risk but looks like maybe we were all wrong. Anyone have any experience here? Kennedy's Dad Hairston > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 , My prayers are with all of your family right now. My child doesnt have heart problems, but the doc sent us to a cardiologist immediately after we were diagnosed because mito's can have serious heart problems. Good luck. Melinda Another Cloud Long time no chat, guys. Here's one to scratch your collective heads over.The bazillion geneticists that we've met have long maintained that Kennedy'smito was either passed down maternally or was a result of defective gene'son both our parts. They have also insisted that my wife's brother shouldhave no such chance of a problem with his kids. Well, looks like lightningmight be striking. He and his wife recently delivered a seriously prematuregirl (28 weeks). She survived the early delivery and was doing quite welland up to 12 pounds at home. Then suddenly has started experiencingextremely similar conditions that Kennedy experienced at similar size andage from birth. Difficult feeding, blue moments, etc. She is now in ICU,intubated, and the vampires are maintaining low hope and suggesting theytake her home for family time (the end).Here's the question. Does anyone out there have a child who has beendiagnosed with mito of any flavor but has physical cardiology problems aswell. Holes, malfunctioning valves, etc.? My bro-in-law hasn't thrown inthe towel but he's getting a pretty nasty gut-shot here. We all thought hehad no risk but looks like maybe we were all wrong. Anyone have anyexperience here?Kennedy's Dad Hairston>>> Brought to you by www.imdn.org - an on-line support group for thoseaffected by mitochondrial disease.>>Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 I have only posted a few times, but i wanted to extend my hopes and prayers to your brothers family. Beanie mom of the amazing Mikey --- MELINDA DOTHEROW wrote: > , My prayers are with all of your family right > now. My child doesnt have heart problems, but the > doc sent us to a cardiologist immediately after we > were diagnosed because mito's can have serious heart > problems. Good luck. Melinda > Another Cloud > > > > > My Groups | Mito Main Page | Start a new > group! > > > Long time no chat, guys. Here's one to scratch > your collective heads over. > The bazillion geneticists that we've met have long > maintained that Kennedy's > mito was either passed down maternally or was a > result of defective gene's > on both our parts. They have also insisted that > my wife's brother should > have no such chance of a problem with his kids. > Well, looks like lightning > might be striking. He and his wife recently > delivered a seriously premature > girl (28 weeks). She survived the early delivery > and was doing quite well > and up to 12 pounds at home. Then suddenly has > started experiencing > extremely similar conditions that Kennedy > experienced at similar size and > age from birth. Difficult feeding, blue moments, > etc. She is now in ICU, > intubated, and the vampires are maintaining low > hope and suggesting they > take her home for family time (the end). > > Here's the question. Does anyone out there have a > child who has been > diagnosed with mito of any flavor but has physical > cardiology problems as > well. Holes, malfunctioning valves, etc.? My > bro-in-law hasn't thrown in > the towel but he's getting a pretty nasty gut-shot > here. We all thought he > had no risk but looks like maybe we were all > wrong. Anyone have any > experience here? > > Kennedy's Dad > Hairston > > > > > > > Brought to you by www.imdn.org - an on-line > support group for those > affected by mitochondrial disease. > > > > > > > > > Brought to you by www.imdn.org - an on-line > support group for those affected by mitochondrial > disease. > > > ===== beaniex5 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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