Re: supposedly optic neuritis?/whatever the cause, I will heal!

[Guest guest]

Hi Meenu, /and all that have shared their advice/

thank you so much for your detailed reply.

I too, try to adapt mutiple approaches, both alternative and conventional.

What I still dont do and suffer from, is lack of physical exercise, for which I

dont have any energy left after travelling to work, working 6 hrs and then 1hr

travelling back home. A 30min walk with the dog in the forest seem not enough.

But I have begun attending cranio-sacral biodynamic therapy sessions, and it

seems to be doing miracles to me. I begun to think that this is the thing that

is going to help me cure my " ms " .

Thankfully, my eye/head pain issue has resolved. I began taking magnesium, B

vitamins, adopted calm regime and prayed for reiki every day to heal me. I do

however have sleep, fatigue and leg pain/tingling issues.

I lately doubt that I have " ms " at all and really dread taking Rebif.

I am in Europe, Czech Republic, Prague.

I will go down the eliminating EBV/lyme path before I take any further steps in

medications. Unless I am seriously suffering, I WONT take steroids anymore.

Food is still a huge issue but from lack of strong will, I began eating dairy

again after a year of strongly BBD eating. I love milk and it does not give me

any visible issues. Many other foods do however, I am sorting this out with my

homeopatic/acupuncture doctor with the help of EAV facility. The trouble is, it

changes overtime a lot and I am not left with many foods to eat and am not that

skilled to cook my own special food or courageous to eat raw food only.

I doubt that there are proper tests for ms. I currently have one lesion in my

cervical spine and two in my chest spine. But since they can be caused by lyme?

And my immune system is already so wrecked from the interferon, life-long alergy

and asthma medication, steroids etc. So the infectologist say that my test dont

have to mean I have lyme. And I have very active EBV! I had mononucleosis 10

years ago, but yet have it active in my system now. I will have to look at what

Mike suggested with eliminating EBV first.

I believe I am detoxifying slowly with chlorella, and generally lead a healthy,

stress-free, chemical substances-free lifestyle. With the exception of Rebif.

Thank you all so much for being there.

, 27 years, diagnosed november 2008

>

> Hello ,

> I had the same symptoms in 1990 and went for various eye tests. Nothing was

> wrong with my eyes. The back of my left eye had severe pain and I had headache

> too. After a few days of painkillers,the eye pain went away and left a spot of

> blurred vision, which slowly grew  larger. Along with that I started having

> severe back pain, tingling and weakness of legs ,increase in fatigue - all the

> symptoms of an exacerbation. It was a bad time.

> I was in India at that time and put on steroids, which took away some

symptoms,

> but left side effects and a deep depression.

> Since you seem to be here in the US, please have the proper tests for MS and

if

> you have to take shots, I wuld like to suggest Copaxone, as that is what

I have

> been  taking , with the least side effects.

> These are the things that have helped me the most during the span of the last

21

> years and now my MS is not `active` any more, though it is still there.

>

> Colon clensing

> Liver flush

> Diet

> Reducing stress

> rest

> Yoga and stretching

> Methods of trying to increase oxygen in the brain --by deep breathing

exercises

> ( for 10--15 mins daily)

>

> The fog in my eye and other tingling etc, went away gradually .It took 2

years

> and I was taking Tibetian herbal medicine in India.

> I had been on Copoxone for the last 7 years. I have stopped it for a year now,

> because of insurance issues and also because I am on the first month of trying

> Prokarin. I hope and pray it works to take away my fatigue and improve my foot

> drop.

> Please take care and good luck,

> Meenu. 

>

>

>

>

> ________________________________

>

> To: mscured

> Sent: Wed, July 27, 2011 2:26:29 AM

> Subject: supposedly optic neuritis?

>

>  

> Hi group,

> here I am, needing advice once again.

> First, I would like to emphasize, that I am also on the MS vs LYME boat and I

> still don't know what is the core of my troubles.

> My last Western Blot came out border positive, but both neurologist and

> infectologist claim I don't have LYME and that it is merely my over-responsive

> immune system. Before I turn to ATB, I am trying colloidal rhodium, platine,

> green foods and homeopatics.

>

> I have had a year full of " ms " troubles. Last troubles were in April, and it

> concerned my eye. I had pain in my head behind the eye and narrowed vision, as

> well as pain while looking straightly left or right. I had this perimeter

check

> up at oftalmologist, and she said all was okay. Then it got suddenly better.

>

> But now, since monday, I suffer more or less the same symptoms. Could it be

the

> beginning of optic neuritis or something like that? I dont want to go to the

eye

> doctor since she is going to tell me probably the same and not even to the

> neurologist as the only thing they can do is solumedrol.

>

> Am still on Rebif for lack or other options.

>

> Any advice is greatly appreciated.

>

> Thanks a lot.

>

>

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