Re: [lowdosenaltrexone] Re: MRI

[Guest guest]

linda, thanks your reply, in your case knowledge is a valuable asset, but like

many of us a little knowledge is a dangerous thing

 

i respect all you say and have copied other groups that may find your text

interesting

 

good luck

 

me, not that much knowledge, qualified as a reflexo so become an MBSR but cannot

practise as a bit hard from a wheelchair, but the studying was up to a high

standard on anatomy and physiology, so into the holistic approach towards the

body

 

stay tuned/peter

________________________________

To: Nicholls

Sent: Thursday, 24 November 2011, 17:47

Subject: Re: [lowdosenaltrexone] Re: MRI

Yes, knowing has made a difference.  I was a medical technologist for 25 years

so have some medical background. 

 

I have been able to go to my doctor and request she order various tests after

doing my own research.  And have gotten further important information, such as

my RF, rheumatoid factor, has always been negative. and I found on the Mayo

website there is a second test that can be done.  Requested that and it was

twice the high value.  That explained my joint pain.  Made me be even more

conscious to stay away from dairy and soy as they cause inflammation and  joint

pain.  The more I can keep my inflammation down, the less damage I will do.  I

don't want to take the strong drugs usually prescribed.  

 

I was diagnosed with fibromyalgia 20 years ago.  I educated myself as much as I

could on that at the time, but never got over the fatigue.  Chose to go the

supplement route rather than the strong drugs.  4 years ago after watching a

DVD, I was mostly sure I had a hidden form of gluten intolerance, but no gut

issues.  I was mostly gluten free and the lab work then was negative.  I

didn't want to do the endoscopic snips as was not sure if they would prove

anything, so requested the genetic tests and both were positive.  I have been

100% gluten free since then. And the deep fatigue lessened.

 

I also requested a number of other tests for autoimmune diseases and have ruled

out some, but learned that I do have auto immune thyroid disease. 

Hashimotos.  My doctor had not ordered those antibody tests.  Now I can follow

my lab results and co-guide my doc in what I want to do in adjusting my meds.

 

My issues:  Fibromyalgia. Gluten, dairy and soy intolerance.  RA, Hashi,

adrenal insufficiency.  (There too, I suspected that to be an issue and going

to a chiro who orders these proved to be significantly out of balance.)  Just a

year ago I discovered a lump under the base of my tongue that turned out to be

salivary gland cancer.  I had 3 saliva glands removed at Mayo, Rochester, MN on

Jan 5.  I am very fortunate in that I had no more tumors and the kind I had

does not metastesize and did not need radiation or chemo.  Rare chance it could

come back either in the original site or in the lungs, because the same cells

involved are in both places.  I will be followed for 10 years.

 

I am very fortunate I have a doctor who respects how I follow my own course and

is willing to work with me as I integrate allopathic and alternative medical

treatments.  I learned about LDN 19 months ago.  She is now willing to

prescribe Revia which I can get 30 tablets for a co-pay of $7.00.  Over 300

days worth of LDN.

 

And I so feel for those of you with MS.  That is a difficult one.  If you

are interested in learning about another way of treating it go to  

www.upperroomwellness.com.  I think Dr Conners is right on when it comes to

autoimmune diseases.  Unfortunately, I cannot afford his fees, but he has given

me much to think about and trying to figure out what to do next.  He has a

free downloadable ebook on the sight.  Excellent info. His knowledge is deeper

and broader than anyone else that I have come accross.

 

 

In a message dated 11/24/11 10:25:40 Central Standard Time,

peter.nicholls@... writes:

hi linda

> 

>has the 'knowing' made a difference to you, some people may not know what they

are looking at/reading

> 

>hope you dont mind but what is your condition ?

> 

>interesting ??

> 

>regards/peter/london/ppms

>

>

>

>________________________________

>

>To: lowdosenaltrexone

>Sent: Thursday, 24 November 2011, 16:10

>Subject: [lowdosenaltrexone] Re: MRI

>

>

> 

>How about getting a second opinion and take copies of your cd's with you.  Or

make an appointment for a second opinion and have them request your records. 

You may have to sign forms for the transfer.  Maybe you might get a friendlier

neuro.

> 

>I have gone through nearly all my medical records where ever they may be on

file, and then made copies of whatever I wanted for my home file.  Not a big

deal.  Just simply signing a form.  I keep copies of all my lab reports, other

tests, etc. so I can watch if there are any trends, changes with change in

medications, etc.  And to just be able to sort out what tests I have had and

when.   The systems have changed a bit in recent years.  I can get copies

made free if the work was done within the last year.  Anything beyond that

there was a fee. 

> 

>I feel more in charge of my own health care when I do this.  Plus have become

a much more informed consumer.

> 

>

>

>

>